I have just been diagnosised with Sertoli Cell tumor of the right ovary. I am scheduled to have it removed next month along with my omentum. I have not been able to find any real information on this disease. If anyone knows of some site that I can gain more information.
I am sorry you are going through this, but you might want to do some research and how about talking to your doctor--always a good first step.
You ask, "What is this tumor exactly?" Below is a definition from this website and there are many, many more if you just GOOGLE sertoli cell tumor:
http://www.thedoctorsdoctor.com/Diseases/ovary_sertolileydig.htm
This is a very rare ovarian tumor which has classically been grouped in the sex cord-stromal cell tumors. These tumors are known for producing various hormones and about 1/3 of cases may present with virilization. In other patients, oligomenorrhea followed by amenorrhea may occur. Progressive masculinization and hirsuitism may also occur. However, 50% of these patients may have no endocrine symptomatology and instead have abdominal pain or swelling. Removal of the tumor results in a nomral menses in about 4 weeks.
You also say, "I don't know what to do." Again, this is easy...Talk to Your Doctor. We can offer support, but we are not doctors, and I hope no one is ever taking our advice as medical personnel. Good luck and I wish only the best for you. Paula