I have a genetic cancer disease (VHL)and currently have Kidney cancer (my right kidney has already been removed due to cancer)
A cat scan of my kidney also showed a large ovarian cyst. My ca125 is normal. An transvaginal ultrasound shows a probable cyst which has lasted at least 2 cycles.
My sister had ovarian cancer at 50. ( unrelated to VHL) It was stage 1 but had a huge cyst around it.
My ob/gyn recommends a complete hysterectomy because I'm considered high risk and because if it isn't ovarian cancer now it could be in the future. Any future ovarian cancer would require chemotherapy which would not be good for my remaining kidney. I would like to keep my kidney function as long as possible.
What are your thought on having a hysterectomy to ward off future ovarian cancer? I am 45 with 2 kids.
If you don't mind would you tell me more about your sister's ovarian cancer with the Cyst around it.
Right now I have all of the symptoms of ovarian cancer but the doctors says it's just a cyst with a white ring around it. But what I worry about is that perhaps a cancerous tomour could be hiding behind the ovarian cyst.
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