update on Joanne

[jlock]

Well ladies I have seen my Onc and the beast has returned!!  I'm very sad because I just finished chemo the 2nd of June and just 3 weeks ago had a ca-125 of 10.9.  The ascites is to be drained tomorrow and then sent out to get checked to see if I'm ER+ or not.  The new plan is Navelbine 2 weeks on and 1 week off for at least 9 rounds.  Then if I'm able to use estrogen we will give Tamoxifen a try and stretch my remission times. This just *****!!!  I have yet to recurr so quickly and so hard.  This fluid has been awful.  My Onc has now prescribed Dulaidid for the pain and it works for 2 hours and then the pain is right back again!!! Tomorrow can not get here soon enough!!  I start the chemo next week.   Are there any ladies out there with exp. with this drug??  I would appreciate any info.  (((hugz)))~~~Joanne

[cirella]

Joanne,
I'm sorry that I can't offer anything but a hug.  I'm sorry for your news.  Stay strong!
L

[withe]

Sorry to read this news, I wish we all could have a break from this ******* cancer. Had  2 navelbine pushes, discontinued because I had unusual reaction.  ( Please don't be frightened by this... I am the one they watch carefully at the clinic when they start new chemo cause I have more often than not strange unusual reactions to chemo drugs. )  On the up side these 2 infusions drove my CA125 way down. Hope it works for you.  Withe

[momofsandj]

I'm so sorry your recurrence was so fast -- I guess, like me, it didn't really go away --- I took tamoxifen for 6 months before it stopped working -- at least it gave me 6 months but it was also accompanied by nausea and hot flashes ---- My doctor is really high on Navelbine although I'm not up to that yet -- next time will be Topotecan and then probably Navelbine for the time after that -- not pessimistic just realistic --- i'm so sorry you are in pain --- I'm sending you warm and healing thoughts and wish I could do more
Jeanne

[SimplyStar]

I am so sorry , this dam* disease is horrible.  I pray that you will get real good results with this chemo, Leslee starts a new one next week if we are lucky.  Hang in there girl.  marty

[gma718]

Please know that you are in my thoughts and prayers....Gia :)

[JC145]

So sorry for the bad news.  Wish I could help with drug info but have none.  I have been on tamoxifen since 7/07 .. counts went down really well and have been rising steadily for the last 6 months, but disease very small and stable at this time.  Will keep you in my pryaers.  Judy

[silver&gold]

Im sorry you are going through this and will be praying for you . Goodluck tomorrow and I hope this chemo works well for you.

Love Angie

[crecco]

  Joanne,
    I know how upset you are about this and how you have wanted some breaks from Chemo. I remember when you had to start it the last time how unfair it was then. If they ever took me off of chemo I am fairly certain that I would be the same way. Just try to hang in there. The chemo seems to work very well for you so maybe this one will work even better than the last one.
    Love Chris

[marleerose]

I am so so sorry that your news was not more positive. I wish I could be there with you to hold your hand and give hugs! This is just not right!! I hope the new regime is the magic one . Best of luck tomorrow and my thoughts and prayers are with you. Love, Barb

[vegas2cr]

Just wanted to send my best wishes and also tell you that it stinks... I really hope that the plan your oncologist has works fast and long.. Ronni

[nyc lady]

I have no info, but wanted to tell you how sorry I am to read this news....it does #$%^!!!  
I hope that this chemo works and puts you into remission for a long long time.
Best of luck,
Pam