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what should i expect?
Hi, my mom has ovarian cancer and she posts on this forum. I thought maybe someone here could help me understand some things. They told my mom that she only has a couple months, but when they told her that she was still doing ok even though you could tell she was sick. Now it seems like she is so sick she can barely move or get out of bed. I am so surprised at how bad things have gotten in such a really short time. Is it usual for it to be this fast? What is it going to be like if it keeps getting worse?
She also tells the doctor that she doesn't want to stop treatment, so the doctor wants to do some kind of chemotherapy where they put it in through a tube into her stomach as well as doing regular chemo. Is this type of chemo more helpful? Will it make her as sick as the regular chemo?
I just really want to know what to expect because as more time passes because this is becoming so scary for me. Thank you.
She also tells the doctor that she doesn't want to stop treatment, so the doctor wants to do some kind of chemotherapy where they put it in through a tube into her stomach as well as doing regular chemo. Is this type of chemo more helpful? Will it make her as sick as the regular chemo?
I just really want to know what to expect because as more time passes because this is becoming so scary for me. Thank you.
Thank you everyone. This all means so much to me and my mom.
Deandra, thank you for telling me about the success of IP, hearing that something good is being done gives me some hope.
Jan., yes my mom is really nice and has a really big heart. I don't know if we have a Gilda Club, but I will check.
Krystal, of course i would like to email you. It helps to talk to people even if I don't always want to hear it (I mean bad news).
Becky, I am so, so sorry your little boy is going through this too at only 4 1/2. If he needs an adopted big sister for support I am here. I am trying to be a normal teenager since that is what my mom keeps telling me but it isn't easy.
I hope all the best for everyone here. Victoria
Deandra, thank you for telling me about the success of IP, hearing that something good is being done gives me some hope.
Jan., yes my mom is really nice and has a really big heart. I don't know if we have a Gilda Club, but I will check.
Krystal, of course i would like to email you. It helps to talk to people even if I don't always want to hear it (I mean bad news).
Becky, I am so, so sorry your little boy is going through this too at only 4 1/2. If he needs an adopted big sister for support I am here. I am trying to be a normal teenager since that is what my mom keeps telling me but it isn't easy.
I hope all the best for everyone here. Victoria
Hi Victoria...I am so sorry for what you and your Mom are dealing with. You are too young to have to be worrying about something like this...I can't imagine how fast you've had to grow up. I don't know that I would handle it all as well as you are..I was 26 when I was diagnosed with stage 3c and I have a young son who is 4.5 yrs old. I wonder about him, when he gets older, if he'll find support groups for kids his age whose parents are going through cancer. It must be tough to find a balance between being a normal kid and being a worried daughter. Please let us know how your Mom is doing when you have the chance...
Becky
Becky
Hi.. I just read your post. My name is Krystal. I'm 23 Years old( well 23 in dec). Please e-mail me. ***@****
I would like to speak with you. I think you are handling it great- we handle things the best way we know how. So you are allowed to be scared.. and you are allowed to be hurt or mad or however you feel. ....... Like i said i'm 23. My mom has a very advanced case of Lung cancer- with the chemo my moms dr told her 2 years max and everything i look up says 12.1 months is the average. I can def relate to what your going through and maybe we can talk sometime. It will help both of us. Email me if you are interested.
Krystal
I would like to speak with you. I think you are handling it great- we handle things the best way we know how. So you are allowed to be scared.. and you are allowed to be hurt or mad or however you feel. ....... Like i said i'm 23. My mom has a very advanced case of Lung cancer- with the chemo my moms dr told her 2 years max and everything i look up says 12.1 months is the average. I can def relate to what your going through and maybe we can talk sometime. It will help both of us. Email me if you are interested.
Krystal
Watching someone you love suffer is hard no matter how long you have been going through it. I don't think you could be handling this any better than you are sweetie. I have "talked" to your mom on here and she is a really nice lady. She must be something to have raised a great kid like you.
Do you have a Gilda's Club in your city? Our local one has a great kids program with lots of support and pizza parties.
I can tell you from both sides (having cancer and watching my mom go through it) that it makes a mom feel worse if their kids have to give up something they want to do because of us. Make sure you keep doing things with your friends and lead as normal a life as possible. Do not let your whole life become about this cancer.
I will continue to pray for your mom and hope she is home soon to enjoy the holidays with you.
Love,
Jan
Do you have a Gilda's Club in your city? Our local one has a great kids program with lots of support and pizza parties.
I can tell you from both sides (having cancer and watching my mom go through it) that it makes a mom feel worse if their kids have to give up something they want to do because of us. Make sure you keep doing things with your friends and lead as normal a life as possible. Do not let your whole life become about this cancer.
I will continue to pray for your mom and hope she is home soon to enjoy the holidays with you.
Love,
Jan
Hi Victoria! I just wanted to say that I am praying for you and your dear mom. I am going through IP chemo right now and my doc says there is a high success rate for this type of chemo. Tell your mom we are all pulling for her on the forums, and keep your head up girl. Stay as positive as you can because the mind is a powerful tool. Hugs to you sister, Deandra
Dear Pam,
You are so right that it is rotten because it may take away the only person I have. I know that I haven't been watching my mom suffer as long as many of the people here, but I am hoping that I can learn how to deal with it better from some of them.
I did post start a thread for kids with moms who have cancer and have gotten some responses. Also, Casey06 posted a site that supports kids and talked to medhelp about a forum for kids of parents with cancer.
Right now I am just hoping that she will get to come home soon.
Thank you so much for what you said. It really does help talking to all of you.
Victoria
You are so right that it is rotten because it may take away the only person I have. I know that I haven't been watching my mom suffer as long as many of the people here, but I am hoping that I can learn how to deal with it better from some of them.
I did post start a thread for kids with moms who have cancer and have gotten some responses. Also, Casey06 posted a site that supports kids and talked to medhelp about a forum for kids of parents with cancer.
Right now I am just hoping that she will get to come home soon.
Thank you so much for what you said. It really does help talking to all of you.
Victoria
Sending lots of love to you and your mom. This disease is really rotten. I don't know if anyone, regardless of their age, would handle this well.....your mom is your mom, no matter what....I am 46 and my mom is very special to me and I would be lost without her and be devasted if I had to watch her suffering from this disease. I know that there are other "children" that have posted on Med Help. They may be older, but, that doesn't matter....age isn't the issue for you, it is more of someone understanding what you are going thru.
You should start a thread for "children of mothers with OvCa".... I am certain that there will be others that will respond to it.
Have you thought of contacting the American Cancer Society to see if they have support groups for family members of cancer patients. What about speaking with your guidenance counslor in school to help find you a support group. Don't keep what you are feeling inside, it's okay to cry and be angry.
All the best to you and your mom.
Pam
You should start a thread for "children of mothers with OvCa".... I am certain that there will be others that will respond to it.
Have you thought of contacting the American Cancer Society to see if they have support groups for family members of cancer patients. What about speaking with your guidenance counslor in school to help find you a support group. Don't keep what you are feeling inside, it's okay to cry and be angry.
All the best to you and your mom.
Pam
Hi. I am 16, but I really don't feel like I am handling this well, but thank you so much for saying that. I want to know as much as I can because maybe if I do i can help my mom some and I will understand more so I don't feel like you say.... lost. If your kids want to talk to someone else going through this then please let me know because it would be so nice. Anna, Debbie and Shannon have been really great, but I think talking to other kids would give all of a chance to help each other and not feel alone, especially since she is all I really have. I think your idea about starting a thread for the kids whose parents have ovarian cancer is a really good idea. I will try it and see if any are out there.
My mom goes into the hospital tomorrow for the IP and I am hoping they also help her with other problems she is having. I am really, really hoping the IP will help her. My mom is sktmom on here. She hasn't been posting very long because it wasn't very long ago that they diagnosed her, but she has been having problems for a long time. It is also hard for her sometimes to get on when she doesn't really feel well. Thank you for keeping us in your prayers. Victoria
My mom goes into the hospital tomorrow for the IP and I am hoping they also help her with other problems she is having. I am really, really hoping the IP will help her. My mom is sktmom on here. She hasn't been posting very long because it wasn't very long ago that they diagnosed her, but she has been having problems for a long time. It is also hard for her sometimes to get on when she doesn't really feel well. Thank you for keeping us in your prayers. Victoria
I don't know how old you are, but the way you are handling this is amazing. If you want to hear from some kids out here, why don't you do a post asking kids in your age group to post and get to know each other. I think you should have a big support group that includes a lot of kids your age who are going through this also. My mom died of this beast when I was 7 and I didn't understand anything and of course no one volunteered any info. I felt so lost. I have OVCA and my kids are going through what you are. You are not alone in this.
I am on my first recurrence and have not had to have IP chemo, but some of the ladies in my Drs office have and they have had wonderful results. I am so glad your mom is continuing to fight the good fight and you sound just as strong and brave as she is. I don't know from your username who your mom is. Can you tell me her username on here. Your family will be in my prayers.
Jan
I am on my first recurrence and have not had to have IP chemo, but some of the ladies in my Drs office have and they have had wonderful results. I am so glad your mom is continuing to fight the good fight and you sound just as strong and brave as she is. I don't know from your username who your mom is. Can you tell me her username on here. Your family will be in my prayers.
Jan
Anna and Debbie,
I just wanted to say thank you so much for everything. You two are the ones that have been so kind to my mom and are the first to respond to my post. You have been made it so much easier for me with your emails. I guess maybe because your kids are close to my age, I feel very comfortable talking to you.
I don't know if there are other kids who post here because their moms are sick, but if there are I would love to hear from you. Maybe you are feeling some of same things or wanting to understand more of what is going on with your moms like me. Thank you.
I just wanted to say thank you so much for everything. You two are the ones that have been so kind to my mom and are the first to respond to my post. You have been made it so much easier for me with your emails. I guess maybe because your kids are close to my age, I feel very comfortable talking to you.
I don't know if there are other kids who post here because their moms are sick, but if there are I would love to hear from you. Maybe you are feeling some of same things or wanting to understand more of what is going on with your moms like me. Thank you.
Hi, I am sorry to hear your mom is feeling so bad. I have not her from her and was wondering what was going on
Intraperitoneal administration of chemotherapy is when the chemo is introduced into her abdomen and is probably her best option right now. Hopefully it will not make her sick.
This must be a very scary time for you. Make sure you have family and friends around to help and to talk to.
Your mom is a very brave and strong lady and so are you!
I think the IP chemo will help, so keep your hopes up.
We keep praying for her.
(PS -send my daughter a note anytime. She thanks you for the nice note and pictures).
Debbie and Shannon
Intraperitoneal administration of chemotherapy is when the chemo is introduced into her abdomen and is probably her best option right now. Hopefully it will not make her sick.
This must be a very scary time for you. Make sure you have family and friends around to help and to talk to.
Your mom is a very brave and strong lady and so are you!
I think the IP chemo will help, so keep your hopes up.
We keep praying for her.
(PS -send my daughter a note anytime. She thanks you for the nice note and pictures).
Debbie and Shannon
I wont say your name in case you dont want me to hunny but do I know who you are : (
Anna X
Anna X
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