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10cm and 16cm cyst
Hi, I've been suffering with symptoms of ovarian cysts since I was 15 unknown to me until a few months ago. Everytime I've been to see my GP he's said that I'm most likely to be pregnant due to spotting and other symptoms and was told I should go home and take a test, everytime coming back negative.
This cycle has gone on for more than 4 years and in the end decided that going to see my GP was pointless. I've gradually become worse resulting in me constantly bleeding and etc.. I was finally encouraged to go back to my GP by my partner and was seen by another doctor.
He sent me for blood tests, an ultrasound and arranged an appointment to see the gyno straight away. My blood test has come back as high and my ultrasound showed I've got a 10cm and 16cm cyst on my ovaries. I've been told I'm on the waiting list to see a gyno but have been waiting for over two months. Im worrying myself sick, I'm only 19 and have read posts of ovaries been taken out. One person I know has been told she is infertile because of her cysts.
Can you tell me what the next step will be at the gyno and what the probabilty of treatment I will be given.
Any info would be brilliant, Thank you..
This cycle has gone on for more than 4 years and in the end decided that going to see my GP was pointless. I've gradually become worse resulting in me constantly bleeding and etc.. I was finally encouraged to go back to my GP by my partner and was seen by another doctor.
He sent me for blood tests, an ultrasound and arranged an appointment to see the gyno straight away. My blood test has come back as high and my ultrasound showed I've got a 10cm and 16cm cyst on my ovaries. I've been told I'm on the waiting list to see a gyno but have been waiting for over two months. Im worrying myself sick, I'm only 19 and have read posts of ovaries been taken out. One person I know has been told she is infertile because of her cysts.
Can you tell me what the next step will be at the gyno and what the probabilty of treatment I will be given.
Any info would be brilliant, Thank you..
Hey, thankyou so much for replying. I feel a little more at ease knowing what will come next :-) Will let you know what happens with my next step, though i've been waiting for nearly 4 months for a reply for the gyno, I just know im on the waiting list atm.
Glad to see your doing so well so early on after your operation! Hope everything is okay for you now.
Thankyou it really did answer all of my queerys :)
Cheers!!!
Glad to see your doing so well so early on after your operation! Hope everything is okay for you now.
Thankyou it really did answer all of my queerys :)
Cheers!!!
Hi Sarah...I don't know how helpful I can be, since I don't know much about PCOS, and I didn't have multiple cysts. But I wanted to chime in with whatever I can. I just had a very large mucinous cyst removed from my right ovary...it was at least 14 x 16cm, although it burst as they were taking it out, so I don't know the actual final size. The surgery was a laparotomy, with a bikini cut incision. My recovery has been much easier than I expected! I'm at post op day 12 and I feel really good, I'm already back in class. But the entire experience was terrifying and emotionally draining. I completely understand how scared and unsure you are.
As far as what to expect at the gyno...the first thing my gyno did was send me for a more sophisticated ultrasound. A pretty basic ultrasound of my belly showed that there was a large cyst, but they needed to know more about it and what was inside it. So I was sent for a transvaginal ultrasound, in which a probe was inserted in my vagina to take the images. That was uncomfortable, but not terrible. I would assume that your gyno will send you for something similar. I also got a CAT scan so that the dr could better see the position of the cyst in relation to my abdominal organs. It was a CAT scan with contrast, so I had to drink a barium shake (gross!) and they injected iodine into a IV (made me feel really warm below the waist, which was weird!).
The cysts you have are pretty large, so you're probably going to need surgery. But they may be able to do it laproscopically, which means a much shorter recovery. That possibility depends on what kinds of cysts they are. Like I said, I don't know much about PCOS. You say that your blood test came back high... was that the CA 125? Because mine was elevated as well, and my gyno said that was to be expected with such a large cyst. An elevated CA 125 does not necessarily indicate cancer. I did end up having a gyn oncologist take my cyst out, and that was because my cyst was a complex cyst/ borderline tumor. You should be prepared for the possibility that your gyno sends you to a gyn onc - not because you have cancer, but because gyn oncs have more experience in taking out large masses that MAY be malignant. Ovarian cancer is VERY rare at age 19. (But I know that it's impossible not to think about it! I'm 22 and I was scared out of my mind).
As to your concerns about fertility, I don't know your condition or if your ovaries are damaged or anything, but I do know that gynocologists will do absolutely EVERYTHING they can to save the ovaries of such a young woman. My ovary was stretched out from such a large growth, and it has a high chance of growing another mucinous cyst - and my surgeon still left it in. She said that even if I get another cyst on it, she'd STILL recommend leaving it in. I was under the impression that the ONLY reason they would remove my ovaries would be if the cyst was malignant and the cancer had spread everywhere in the area (which, like I said, was really really unlikely).
Anyway, I hope that some of this information helped. Good luck with everything. I know that waiting between doctors appointments is the worst, but hang in there! Let me know if I can answer anything else.
As far as what to expect at the gyno...the first thing my gyno did was send me for a more sophisticated ultrasound. A pretty basic ultrasound of my belly showed that there was a large cyst, but they needed to know more about it and what was inside it. So I was sent for a transvaginal ultrasound, in which a probe was inserted in my vagina to take the images. That was uncomfortable, but not terrible. I would assume that your gyno will send you for something similar. I also got a CAT scan so that the dr could better see the position of the cyst in relation to my abdominal organs. It was a CAT scan with contrast, so I had to drink a barium shake (gross!) and they injected iodine into a IV (made me feel really warm below the waist, which was weird!).
The cysts you have are pretty large, so you're probably going to need surgery. But they may be able to do it laproscopically, which means a much shorter recovery. That possibility depends on what kinds of cysts they are. Like I said, I don't know much about PCOS. You say that your blood test came back high... was that the CA 125? Because mine was elevated as well, and my gyno said that was to be expected with such a large cyst. An elevated CA 125 does not necessarily indicate cancer. I did end up having a gyn oncologist take my cyst out, and that was because my cyst was a complex cyst/ borderline tumor. You should be prepared for the possibility that your gyno sends you to a gyn onc - not because you have cancer, but because gyn oncs have more experience in taking out large masses that MAY be malignant. Ovarian cancer is VERY rare at age 19. (But I know that it's impossible not to think about it! I'm 22 and I was scared out of my mind).
As to your concerns about fertility, I don't know your condition or if your ovaries are damaged or anything, but I do know that gynocologists will do absolutely EVERYTHING they can to save the ovaries of such a young woman. My ovary was stretched out from such a large growth, and it has a high chance of growing another mucinous cyst - and my surgeon still left it in. She said that even if I get another cyst on it, she'd STILL recommend leaving it in. I was under the impression that the ONLY reason they would remove my ovaries would be if the cyst was malignant and the cancer had spread everywhere in the area (which, like I said, was really really unlikely).
Anyway, I hope that some of this information helped. Good luck with everything. I know that waiting between doctors appointments is the worst, but hang in there! Let me know if I can answer anything else.
Hey babs_the_fly_girl.. Im a bit gutted that no-one has replied to my mesage. Ive looked around and people seem to be getting post left, right and centre..
Is there someway i could reword my message or repost it? as I am pretty nervous with no-one i know having this p.c.o.s and reading about cancer and surgery is scary!!
Is there someway i could reword my message or repost it? as I am pretty nervous with no-one i know having this p.c.o.s and reading about cancer and surgery is scary!!
hi sarah...I don't really have any helpful comments for you because I'm pretty new to this whole ovarian cyst thing, but I wanted to welcome you and tell you someone will likely be along shortly to help you with your questions!
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