I will try to summarize as brief as possible. I really appreciate someone's insight cause doctors have been no help. I started to get SEVERE low back pain, flank pain- Dr's & I thought it was back problem. Got x-ray of my back- nothing abnormal, just normal wear/tear on joints, etc that comes w/age ( I am 38 yrs. old) This pain then progressed and changed; I developed pelvic pain, was real nauseas, super bloated, felt like i had to pee all time. ( did tests, bladder & kidneys are fine) The CAT scan at the ER showed I had OVARIAN CYST on left ovary. Was referred to OB/GYN, ( who was a jerk) told him I was in so much pain but he discounted it saying " you shouldnt be in so much pain w/a 5 cm Dermoid cyst..." He put me on Provera for 2 wks hoping to shrink cyst- didn't help, same symptoms/pain. He didn't think surgery was necessary.( I didn't have insurance!!) I couldnt take pain anymore. I didn't go back to him.
Finally got on payment program here in TX called Carelink to pay for surgery. Dr. agreed cyst had to come out. Had laparoscopic surgery July 2010, they removed dermoid cyst & ovary/tube.
I have WORST TIME recovering. It has taken me months! Developed several infections in incisions, which Dr. should have "caught", but they dropped the ball..... I had surgery at a "teaching hospital", which, sorry, but they are still learning and way too busy to really give you the time.
Since then I have had MULTIPLE problems: horrible pain around incisions, some pelvic pain, hip pain, super exhausted, and can barely walk some days. The 1st 2 months were the worst. Also, around my 2 incisions there is this "hardness" and slight swelling/bruising. The surgeon who did my surgery said " I dont know what that is.....maybe scar tissue/adhesions?" Basically they referred me to Pain Mgmt. cause they didn't want to deal w/me. I am outraged! It is 6 months later and I still have the "hardness" and pain around incisions.
What was interesting is my back pain DISAPPEARED right after surgery. I thought "okay, the cyst gave me back pain, cyst is gone, low back pain is gone."
NOT! Low back pain has returned ( last couple months). I now have extremely painful periods and in bad pain the WEEK before period also. I still have to take Hydrocodone during these times, that is how bad pain is. Before my surgery I DID NOT HAVE painful periods; I had a little PMS and cramps like any woman, but not like this.
What is going on w/my body? I saw a different DR. last month, he thinks maybe Endometriosis but he did not mention he saw indication of that on Ultrasound. He gave me birth control pills
which I could not tolerate ( severe MIGRAINES!) Had to stop after 2 days.
I don't know where to turn. Is it because I only have ONE OVARY NOW that I am in so much pain and getting these symptoms? As I recall back on my life I used to get pain w/intercourse but I never thought anything of it. I used to be on birth control pills all through my 20's, but haven't been on them since age 30 maybe.
( I am now 38) What can I do?? I need a specialist who really will get to the bottom of this.
I dont want to have kids but I want my life back; i cant deal w/this pain anymore. Thank you for reading this.