Complex Cyst, Adenomyosis and Uterine Polyps

[Bregirl]

Two years ago I had a cyst removed from my right ovary and all the symptoms went away.  Several months ago the symptons started coming back.  I went to the Dr and she sent me for an US and they found a Cyst on my Left ovary (3x3x2).  She told me she wanted another US in 2 months, I had it done on Friday.  The Dr called today with the results of the US, the cyst is has grown and is complex, I have Adenomyosis and Uterine Polyps.  Has anyone heard of having all three of these at the same time?  What type of treatment do they do on this? Should I be worried about cancer?  The Dr is sending me Wed to have blood work done and I go to the Dr next week to talk to her on what we are going to do.  I am kind of worried so any input would be nice.

[Bregirl]

Update - I had my Hysteroscopy/D&C/Polypectomy yesterday.  The doctor told my husband that she seen alot of slush and removed it and seen shadows, not sure what that means? She did tell him that nothing looked like cancer but she did biopsy, that is good news.  I go back in two weeks to find out what is going on and to get scheduled for another US for the cyst on my ovary.

[Bregirl]

I am not sure what she called the procedure, she explained it and it was alot to take in.  Oh I didn't take it that way, I am just trying to keep my head about it with my family & friends, don't want to worry or scare them.  Even though when I am along I just want to cry (that is easy to do though, everything right now makes me cry, must be my hormones).

Thanks you for your thoughts, prayers and listening.

[chloe08]

hi
is she doing a hysteroscopy?  
i didn't mean to suggest that you should blow it off as if unimportant - just try to stay positive and know you're having the right tests.
i talked to anyone who would listen about my anxiety, worry etc but just tried to remain positive in general which is not at all easy.
best of luck and my prayers are with you

[Bregirl]

They are scheduling it, she said it was a out patiant procedure and they are also taking pitcures when they do the biopsy.  Not sure what she called the procedure.

She said since so much was going on it concerned her.

I am trying really hard to stay positive and blow it off like it is no big deal, espically to my family and friends, but I am worried to death about it.

Thank you

[chloe08]

hi there
i'm glad to hear your doctor is planning on a uterine biopsy - when is it?  this is a quick office procedure but you may have some cramping afterwards so just an fyi.  motrin helped with my cramps.
i'm not sure what your doctor means by 'your case really concerns her' - which part is she referring to?  
it sounds like she's being thorough (a good thing to have in a doctor) and the uterine biopsy will show whether or not there are any malignant cells in the uterus.  it doesn't however given any info re an ovarian cyst so it is good that you'll also have another u/s.
try to stay positive -hard to do and i speak first hand.  you are finally having the correct tests for your symptoms from what it sounds like.
best of luck and keep us posted

[Bregirl]

I went back to the dr yesterday and she is very concern with everything that is going on she has reviewed my case with a cancer dr and now she is scheduling me for a uterus byopsy, and start me on some meds right after the byopsy to try to get my cycle reg, then she is going to do another US to see what is going on with the cyst, since it is more complex than 2 months ago, but since I had a cyst removed 2 yrs ago and it was ok she is going to start with the byopsy.  She said my case really concerns her.  How worried should I be?  I am trying to keep the thoughts that it can't be anything two serious and if it is since I have been to the drs alot in the last 3 yrs it would be only cells or beginning stages or it would have been caught before now (or could my previous dr missed it? I wasn't to happy with him that is why I switched drs, he kept telling me cyst didn't cause pain it had to be something else and kept sending me to other drs (kidney, gastrolygist(sp??) and ect.).

[Bregirl]

Just a quick update, I just got back from the doctors and she has review my case with a oncologist and they have decided to do a byopsy of the uterus and then do another US after that to see what the cyst on my ovary is doing.

[cincodemama]

Hi girls, just reading some of your comments looking for some info. My dr. just told me a have a cyst in my uterus.  I am scheduled for a byopsy.  anything I should be worried about or concerned with???

[Bregirl]

Thank You

[chloe08]

hi
i don't know a thing about uterine polyps.............for fibroids they can sometimes remove them though they tend to grow back.
for adenomyosis i think there is a procedure where they can remove this but, again, it likely will return.
i ended up w/ a full hysterectomy to solve my extensive endometriosis, fibroids etc.
i would mention the family hx of uterine ca to your provider and just inquire about whether or not she thinks a uterine bx would be advised.
best of luck.

[Bregirl]

How concerned should I be, I have to Aunts that had Uterus Cancer?

[Bregirl]

No they haven't did a uterine biopsy.  I go back to the doctor next week to see what we are going to do next, she wants to get the results of the blood tests before the appointment.

Do you know how they normally treat uterus polyps and Adenomyosis?  I'm just woundering what she is going to want to do about the uterus polyps, Adenomyosis and cyst.

[chloe08]

Endometriosis can cause the ca125 to be elevated - that is why many will say that this is not a reliable test for those who are pre-menopausal.   As for 'what now' I would ask your provider what your results are and if they are normal, great and if they are elevated what his/her next recommendation would be.

[dee7607]

Hi Chloe08,
What do you mean that if you have endo the CA 125 test can be elavated???  I just had this test done yesterday and I do have endo??  So...what now????  THANKS

[chloe08]

hi there
glad to hear your doctor is not wanting to just watch/wait anymore given that this has made you *understandably* very anxious.  the waiting is the hardest part for many.  the ca125 isn't always the best choice for bloodwork in pre-menopausal women so just keep that in mind and also note that endometriosis (which it sounds like you have from the adenomyosis they found) can elevate this as well.
the other symptoms you have certainly need to be evaluated.  did they do a uterine biopsy on you?  that is an office procedure (doesn't feel that great but it is quick).  just wondering given the spotting etc.
best of luck

[Bregirl]

Thanks so much and god bless u and my prays are with you.

[Sharon2714]

i am so grateful that ur doctor is agressive.  i had polyps that were removed from my throat once that turned out benign.  god bless u and grant u peace
sharon

[Bregirl]

My symptoms are, abnormal periods (go with out one for months, then have two a month and spotting thoughout the month) losts of different pain, bloting, tender breast, tired, leg pain, very emotional, dry skin patchs on hands, arms, feet and ankles.  When I have to pee I hurt so bad, I can't even move (when I had the last US done I thought I was going to die because I hurt so bad). I think that is about it.

[Bregirl]

The cyst I had removed was full of fuild with a wall dividing it.  The Dr said polyps in the uterus (not fibroids, don't know if they are the same thing or different?) and she didn't say much about the cyst but it had grown and it was complex and that she wanted me to have 3 blood test done. CA125 and I don't remember what the other two was, at that point I was all upset. And she wanted me to come in to the office and talk to her about what the next step was, because she didn't want to watch it anymore.  She is a little more aggresive about this one than my other Dr was about the other cyst that I had removed.

Thanks for your input any advise or input is nice at this point.  

Thanks

[Bregirl]

Thanks Sharon2714, I will check out the website.

[chloe08]

hi there and welcome to the forum
what are your exact symptoms?  what type of cyst had you had removed before?
i had adenomyosis (basically endometriosis in/on the uterus....) in addition to uterine fibroids (not sure if this is what you mean by polyps) and complex cysts which turned out to be endometriomas from the endometriosis i had.  so, yes you can have all 3 as they are all different (though in my case the adenomyosis and endometrioma were both the result of endometriosis) and no it does not mean you have cancer.  A complex cyst however is more concerning than a simple cyst so doctors tend to watch these closely and if they reach a certain size (ie/ 5cm or so) or change in a way that is concerning they may suggest that you have an exploratory laparoscopy to see better what is going on.  
  Do you know what they are looking for in the blood work?

[Sharon2714]

hi .. sorry ur havin trouble and i  pray u peace

jan214's link to dr birnbaums websiete has ALOT of information on it that conforms to alot of the research i did on my own condition.  depending on the type of complex cyst u can find out about its cancer potential. hes a reproductive endocrinologist with experience in many areas of gynecological disorders from the philly area.

good luck
sharon