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Saw GYN today
I saw my GYN today regarding my 16.0 x 11.3 x 12.2 cm cyst on my Rt ovary. She says it's unlikely that it's anything more than a large simple cyst, but wouldn't know for certain until it's taken out. She said the good thing about it being soooo big is that it is very unlikely to twist or rupture. That thought took quite awhile to sink into my head. It just seemed like a weird way to see a positive, but I'll take whatever I can! A laproscopic surgery would be impossible with the size of the cyst. It could be punctured by the first scope inserted. I had bloodwork done today to determine my hormone level from my left ovary. She wants to leave my left ovary if it's still functioning and doesn't look bad during surgery. The Dr said she would personally rather have the ovary left behind for hormone benefits, and I can understand that. Not sure if I'm OK with worrying about that ovary doing something strange in the future, though. She is also sending me for a CT scan to see what my lymph nodes and lt ovary look like (along with the cyst, of course). I thought it odd she never looked at the u/s films. She just read the radiologist report.
I spent the evening looking for a Gyn/Oncologist w/in 50 miles who takes my insurance. So far, I found the chief of the gyn/onc staff at USC is one. Sounds like she would know what to look for since she's also an assoc. professor at the university. Now I just have to get another referral for her 2nd opinion.
Is there anything I'm missing thus far? Any advice?
My symptoms seem to be increasing. I've outgrown all my fat jeans and had to buy sweats to accommodate my belly. I have trouble getting to sleep because my insides just don't feel "right".
I spent the evening looking for a Gyn/Oncologist w/in 50 miles who takes my insurance. So far, I found the chief of the gyn/onc staff at USC is one. Sounds like she would know what to look for since she's also an assoc. professor at the university. Now I just have to get another referral for her 2nd opinion.
Is there anything I'm missing thus far? Any advice?
My symptoms seem to be increasing. I've outgrown all my fat jeans and had to buy sweats to accommodate my belly. I have trouble getting to sleep because my insides just don't feel "right".
I'm not painful if I don't wear jeans... Now, the only thing I wear now is scrub pants (work) and sweats (elsewhere). I hate it! I feel like a balloon.
I've started having to sleep on the front of my hips if that makes any sense. I'm side-lying on the front of my pelvic bone at a 45* angle to the bed. It kind of lets the cyst "hang" forward so it's not squishing me so much. It's making my back ache quite a bit.
I hope you get tood news from the oncologist!
I've started having to sleep on the front of my hips if that makes any sense. I'm side-lying on the front of my pelvic bone at a 45* angle to the bed. It kind of lets the cyst "hang" forward so it's not squishing me so much. It's making my back ache quite a bit.
I hope you get tood news from the oncologist!
Ugghhh, I'm in the same position you are! My cyst is 15 cm x 13 cm and growing everyday.
None of my pants fit anymore and I feel huge and gross! Night time is the worst, isn't it?! I'm not really in any "pain" but for some reason, laying down just reminds me of the severity of the cyst because it's weight just seems to push on all my organs. Then I start to stress about every little thing possible that could go wrong with it.
I go to the gyn/onc next week and I'm hoping he'll set me up with a surgery asap. I can't wait to see that surgery date and finally know when it's coming out!
I shouldn't jump to any conclusions before meeting with the oncologist but just like you, I'm fixated on them just completely removing both ovaries, even if it isn't cancer. I just don't want to have to go through this ever again...or have to keep worrying about it happening again with the other ovary. Hormone replacement does seem tricky though so I don't know. It's such a hard decision! I'm sure the oncologist has seen this a zillion times though and knows what's best.
None of my pants fit anymore and I feel huge and gross! Night time is the worst, isn't it?! I'm not really in any "pain" but for some reason, laying down just reminds me of the severity of the cyst because it's weight just seems to push on all my organs. Then I start to stress about every little thing possible that could go wrong with it.
I go to the gyn/onc next week and I'm hoping he'll set me up with a surgery asap. I can't wait to see that surgery date and finally know when it's coming out!
I shouldn't jump to any conclusions before meeting with the oncologist but just like you, I'm fixated on them just completely removing both ovaries, even if it isn't cancer. I just don't want to have to go through this ever again...or have to keep worrying about it happening again with the other ovary. Hormone replacement does seem tricky though so I don't know. It's such a hard decision! I'm sure the oncologist has seen this a zillion times though and knows what's best.
Thanks Trudie!
Yes, I'm feeling awful and swollen and tired and just yucky! I have new stretch marks appearing on the left side of my tummy and my back kills me after just a little bit of walking. I'm a dental assistant, so working from home is not a possibility and running around is part of the job. With the way my tummy is growing, I'll have to work at arm's length before long!
I'm glad your surgery helped you get over the weight loss hump. I've gained at least 10 lbs since this all started and I'm so uncomfortable I've started to wonder if I've got adhesions from my previous surgery that are pulling against the cyst. It feels so big that I'm wondering how the heck they're going to be able to use my old incision (bikini) w/out punching a hole in the cyst in the process. :-( Silly stuff that enters my mind lately.
I'm definitely looking forward to losing the beach ball and periods!
Thanks again!
Wendy
Yes, I'm feeling awful and swollen and tired and just yucky! I have new stretch marks appearing on the left side of my tummy and my back kills me after just a little bit of walking. I'm a dental assistant, so working from home is not a possibility and running around is part of the job. With the way my tummy is growing, I'll have to work at arm's length before long!
I'm glad your surgery helped you get over the weight loss hump. I've gained at least 10 lbs since this all started and I'm so uncomfortable I've started to wonder if I've got adhesions from my previous surgery that are pulling against the cyst. It feels so big that I'm wondering how the heck they're going to be able to use my old incision (bikini) w/out punching a hole in the cyst in the process. :-( Silly stuff that enters my mind lately.
I'm definitely looking forward to losing the beach ball and periods!
Thanks again!
Wendy
Thanks Laney. I never knew about gyn/onc until I came here and am very thankful for the information. At the moment, I'm more worried about keeping the ovary than losing it. I'm sure I'd feel different if I'm suffering hormone deprivation after the surgery, but.... I guess I feel like my Rt ovary has already betrayed me and the Lt might do the same.
It would sure be a heck of a lot easier to stop worrying if I weren't getting more and more symptoms of pressure and bloating! Stupid cyst!
It would sure be a heck of a lot easier to stop worrying if I weren't getting more and more symptoms of pressure and bloating! Stupid cyst!
I had the 16 cm problem too. The bloating and weight gain and pain was awful. I got where I wouldn't leave the house because I looked and felt so awful. I did get my doctor to sign a note saying I could work but only from home which helped my case and the painkillers and anti-anxiety meds certainly helped. I wanted to get everything out with mine but had so many adhesions from my many previous surgeries that everything was glued together so they thought too risky to take other ovary and uterus.
After the surgery it took 3 - 4 weeks before all the swelling was gone. I have struggled to lose weight for many years and since my surgery it is finally coming off. I have lost 17 lbs. and hope to go another 30. I feel better than I have in many years. I sometimes wonder if those cysts were bothering me for quite some time and I was unaware. So, just letting you know there are a lot of positives that can come out of the surgery (and being benign is another). Treat your recovery as your personal holiday. Relish the time off and enjoy watching your favourite movies and shows, read, cook, and relax.
Good luck with everything!
After the surgery it took 3 - 4 weeks before all the swelling was gone. I have struggled to lose weight for many years and since my surgery it is finally coming off. I have lost 17 lbs. and hope to go another 30. I feel better than I have in many years. I sometimes wonder if those cysts were bothering me for quite some time and I was unaware. So, just letting you know there are a lot of positives that can come out of the surgery (and being benign is another). Treat your recovery as your personal holiday. Relish the time off and enjoy watching your favourite movies and shows, read, cook, and relax.
Good luck with everything!
Hi There,
That is great that you are going to see a gyn/onc. They are the absolute best trained for this type of surgery. My gyn/onc was the chief at Mass General Hospital and I was so very fortunate to have him.
I know the worry is terrible. Ugh, I remember it like it was yesterday. I am so glad it is over and can get on with my life. You too, will be feeling like that shortly. I think it is a good idea to leave one ovary if you can. I know the thought of more surgery down the road is not fun, but I tell you, surgical menopause is no piece of cake. I didn't have the option of leaving any of my ovaries as I had suspicious masses on both. I am taking hormone replacements now, and doing great. So in the event that you lose both, don't stress, they will get you regulated just fine. Good luck and keep us posted.
Laney
That is great that you are going to see a gyn/onc. They are the absolute best trained for this type of surgery. My gyn/onc was the chief at Mass General Hospital and I was so very fortunate to have him.
I know the worry is terrible. Ugh, I remember it like it was yesterday. I am so glad it is over and can get on with my life. You too, will be feeling like that shortly. I think it is a good idea to leave one ovary if you can. I know the thought of more surgery down the road is not fun, but I tell you, surgical menopause is no piece of cake. I didn't have the option of leaving any of my ovaries as I had suspicious masses on both. I am taking hormone replacements now, and doing great. So in the event that you lose both, don't stress, they will get you regulated just fine. Good luck and keep us posted.
Laney
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