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another ovarian remnant

by Buckeyegirl, Mar 22, 2009 01:00PM
Since there is little to no information about Ovarian Remant Syndrome I was hoping that someone can possible answer a few questions. I was just diagnosed with ANOTHER ovarian remant. I have been in extreme pain for many, many months and will be seeing my GYN oncologist tomorrow. I can't believe this is happening again. I know the doctor is going to want to take the "wait and see" approach, but the pain is so overwhelming. I can't take Percocets everyday for the rest of my life. The pain feels like a balloon inside of me that keeps getting bigger and bigger.......maybe it will POP....and the pain will go away. I was told that one Ovarian remnant was not common, but now another. I had my first OVR removed in November of 2006 and had 108 staples afterward....it was crazy.....I don't want to go through that again, but want to get this removed so I can life somewhat pain free. I'm not even asking for a totaly life free from pain, but at least on a scale from 1-10....I can live with a 5.....I just can't live with a 9 or 10 for the rest of my life.
Any help would be greatly appreciated.
Thanks,
Member Comments (3)

by MarieMichele, Mar 23, 2009 06:51AM
To: Buckeyegirl
I googled Ovarian Remnant Syndrome and a doctor wrote a rather informative post over on the Ovarian Cancer expert forum here at MedHelp.  See if you can find it.  We're not talking cancer, mind you, just the fact that pieces of ovaries can be missed in surgery and come back to haunt you.

This is an alarming problem for all of us who have had ovaries removed and I'm just learning about it for the first time (there's some info on the Web, but like you said, not very much).  Here I thought once they were gone, they were gone for good. In a perfect world, they should be.

It is good that you are seeing a gyn/onc today because I can't think of a better specialist to help you right now. I agree, you shouldn't have to deal with pain of that magnitude.

by Buckeyegirl, Mar 23, 2009 03:13PM
Well I was correct....we are taking the "watch and wait" approach. I really like my doctor, but he said that my last surgery for ORS was so complex that he hates to do another surgery. I have a 4.1 cm left adnexal cyst and a comlex 5.2 left adnexal cyst and it says on the report that is may represent bowel.....I have not a clue what that means. I am repeating my ultrasound in June (3 months) and then seeing him a week after that. I have no clue I am going to get through the pain for the next three months, but we'll see. I guess what doesn't kill us, makes us stronger.
Thanks for the post.

by MarieMichele, Mar 23, 2009 05:20PM
To: Buckeyegirl
Oh, that is so discouraging!  Maybe it's time to find another doctor?  
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