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hemorrhagic cyst

by traycek, May 28, 2006 12:00AM
I received news that I have a hemorrhagic cyst. My doctor can't see me until the 30th. My question before I get there would be, what causes this/these? And is there a way to rid them? Has anyone had experience with hemorrhagic cysts before that can share info, please? Thanks so much! Trayce K
Member Comments (36)

by Thuney, May 28, 2006 12:00AM
I don't know about them--sorry, but I am sure someone will post for you who does.  In the meantime, I found a site at www.indyrad.iupui.edu.  

Good Luck!

by Gatsby, May 29, 2006 12:00AM
Welcome to the site!  There will be plenty of ladies along to give you great info and advise.  Try to remember that 99% of ovarian cysts are benign, but you are wise not to ignore your symptoms.  You are in my thoughts and prayers.  Godspeed
~Tascha

by kmarsh, May 29, 2006 12:00AM
To: traycek
hi, i also have a hemorrhagic cyst. it was discovered in december last year and i still have it now. i have just had my second laporoscopy last this month. i originally had this cyst some 18mths ago and apparently then it looked normal on the scan, then i had it rescanned and apparently it had changed shape and become irregular. this was then thought to be a hemorrhagic cyst. i had the surgery just to make sure but when i came around the sugeon said he had not done a biopsy. i was furious and now i have to make a decision as to whether to leave it and take his word that it is this type of cyst (he says he can see blood in the corner or the ovary) or have the biopsy which he tells me would mean removal of my ovary. an hemorrhagic cyst is just a term used when it is thought that the cyst has bled into itself but it can only be definately determined by surgery. no scan either tvu or ultrasound can tell the difference between this type or cyst or possible malignancy. how was your cyst diagnosed as a hemorrhagic cyst. most cysts of this typ resolve on their own but mine has been there for 18mths now and it has not resolved. i am now going to go ahead and have the surgery because only then will my mind be put at rest. i hope this helps.

by traycek, May 29, 2006 12:00AM
I was first diagnosed, by transvaginal ultrasound, a year ago with "normal" water filled cysts. I was put on hormone creams, progesterin, and estrogen. I gained weight immediately, I couldn't sleep, and I was still hurting. 3 months later my ob/gyn had all the same tests run again. She said nothing had changed. (except for my mood swings, from being over weight (thanks to the hormone creams), tired, crabby, and in pain.)
I stopped using the creams & have dealt with the pains as much as I can. However recently I was unable to get out of bed for 2 days because I was hurting so much. On the 4th day I made it to the doctor, she had all the same tests done again. NOW she says I have the blood filled cysts. So here I am. Waiting for my next doctor's appt.
     I have no idea what she will suggest. Do you??

by ticked, May 29, 2006 12:00AM
I am doing the watch and wait.  I have two one in my ovary and one on my kidney.  I am up again for another US in June to see if the BC pills that I am on have stopped the growth or not.  I had my ca125 done and it was elevated twice.  Still have to redo that as well.  Doctor thinks its endo so I am not sure.  I think that they are benign.  Most of them are.  I am sure that someone will come along to help you some more.  

How big is yours?

by traycek, Jun 01, 2006 12:00AM
I saw my doc on the 30th. She seems to think I have Endo too.
Looks like I am going to do the laporoscopy in July. She is planning on removing, or draining, the cyst(s). I don't quite understand the process of the laporoscopy in detail. I'm wondering, will I be able to return to work (physical job) within a couple of days?  
    Thanks to everyone for writing! This has been helpful, especially for my nerves!

by Bren 3281, Jun 13, 2006 12:00AM
GREAT information, I too just found out today I have a cyst in both my ovaries, 1 looks to be hemrragic or endometrioma, working in a Cancer Clinic I was freaking myself WAY OUT!! I cheated and got my report of our Hospitals portal before my Dr even saw it.. Now I get to wait and see what the next steps are, mine came out of nowhere feeling good, then woke up one day in excruciating pain, ignored it, was 7 weeks late on my period and finally went in, Had my ultrasound 2 days ago.. Hurrying up to wait some more now...

by Alli555, Jun 15, 2006 12:00AM
So, next week I am going in for my third laproscopic surgery.  This will be the second one inside of 5 months.  Apparently, my body is continuing to develop what my doctor referrs to as hemorrhagic cysts.  I had surgery back in January to remove a hemorrhagic cyst and when I woke up, I came to find out that my fallopian tube was also removed.  The cyst was growing from inside the tube.  Six weeks after that surgery I went back for my follow up only to find that yet another cyst had developed.  I was put on the pill ( at the time we didn't know it was hemorrhagic ).  Now here I am 5 months later and ready to have surgery again in a week, only this time, my ovary is being removed as well.  
I'm told that once the ovary is removed, that will prevent any further cysts from developing on my right side.  My right side seems to be my problemed side.  My question is will the cysts now start forming on my left ?  And does anyone have any idea how or why these things form in the first place ?  Thanks in advance for all of your help.

by BJWill, Jun 28, 2006 12:00AM
I have suffered from cyst ruptures for a few years now.  I have had hemoragic cyst ruptures.  (you know when you see brown discharge following) They are one of the most painful feelings you can experience.  I have been to the ER twice, once becuase I had no idea I even had this problem, and the second time was because I was in intense pain and wasn't sure if it was from a cyst or  not.  It usually starts with referred pain in my back and comes around the front lower part of my abdomen.  I feel abdominal sensitivity to sitting and walking.  The first rupture was so painful that I was hyperventilating 15 minutes into the onset of pain.  The ER typically can't do anything for you but give you pain medication.  Women aren't usualy taken in for surgery as an ER patient unless they have a torched overy.  (twisted ovary) due to the size of the cyst.  I also had symptoms of very heavy periods and pain that radiated down my legs.  I have abdominal tenderness that began befor any surgeries.  I also have tenderness at the back of my cervix.  Endometriosis occures when cells like the ones that normally grow in the endometrial layer of your uterus, grow outside of your uterus.  They can even grow in your fallopian tubes.  This usually occurs when you have retrograde menstruation.  (heavy bleading that backs up into your tubes. )  Those cell growths develope scar tissue and can block your tubes off from a released egg so that you have a very hard time being able to conceive.  When a hemorrhagic cyst grows on your ovary, it can rupture.  Nomally, all women grow a cyst each month when they ovulate.  The ripened egg ruptures out of the cyst and is sent down the fallopian tube and either fertilized or sluffed off with your period.  So, it's not that cyst growth is abnormal, it when you have a cyst that is abnormally large or filled with abnormal material that is a concern.  Once you rupture a cyst, your tissues in the surrounding area absorb that fluid, causing lesions to develope in the tissue.  This is endometriosis.  You do not have to have cyst ruptures to have endometriosis, but this is one way it can spread. I had a hysterectomy last november because I had vein congestion (mass of uterine vericose veins) on my right side.  The pathology report mentioned findings of adenomyosis, (endometrial tissue that has grown deep in the uterin muscle in ball like forms), and 2 fibroids.  Two weeks later I was visiting my grandma and read from her diary that her mother had a hysterectomy at age 32 (I'm 26), from uterine cancer.  She also developed breast cancer.  I don't know that I have any risk as this is more unrelated to cancer, but knowing all the issues I had makes me curiouse.  Hope this helps someone out there. Since my great grandma's surgery was so long ago, I wonder if maybe she also had adenomyosis and they thought it to be cancer.  However, she did end up with breast cancer, so maybe it really was cancer.  It's just interesting to me because my grandma kept a daily journal for 40 years and I happened to read from this page as I was thumbing through her journal.  We were reading from her journals because we thought she was dying and wanted to find some nice stories to share with the family.

by BJWill, Jun 28, 2006 12:00AM
I've had hemorrhagic cyst ruptures too.  They are painful and I understand how you feel.  Good luck.

by 1katie, Apr 02, 2008 12:48PM
I to was just diagnosed with a hemorrhagic cyst. I want to know if a person can still conceive a child with this kind of cyst? And what if it ruptures? Is having a baby out of the question? Someone help me understand I LOSING MY MIND!!!

by doublek, Apr 04, 2008 09:16PM
To: 1katie
dont worry, you will still be able to have babies!! I have 4 children and have had problems with blood filled cyst for years !!  take care!!

by jessicass, Apr 17, 2008 09:14PM
To: Anyone
I'm 23 and miscarried @ 9 weeks, I do not know the reason. 4 months later I found out I have a hemorrhagic Cyst, on the right ovary. I've  been trying to get pregnant, I'm playing the waiting game for the next ultrasound to see if it's gone.Will i be able to conceive with/without the cyst?

by olderstudent, Apr 19, 2008 04:03PM
To: all
I'm 44 and am about to have a third ultrasound to reveal how my right ovary is doing. I have 2 lesions inside whereas one of them is simple and the other complex and hemorrhagic. The concern is the right ovary which has also enlarged. My doctor wants to take the ovary out if the cyst is still there. I have 2 concerns, one; why is the doctor so quick to want to take the ovary? After I said I was interested in more children she said there was the alternative of dealing with the cyst alone. Mhy second concern is the enlarged ovary. My uterus is enlarged to almost twice its size, also, because of a fibroid a little bigger than a large egg. So here we go. I have no reproductive organ cancer in the family, so how long do I live with this before I get worried? How serious do I get with a possibility of more children with my new husband (he has none) when I haven't been able to get pregnent for 14 yrs now?

by Helen1967419, Apr 22, 2008 01:06PM
To: all
I happened along this site by means of trying to pacify myself as I wait for my Dr. to get back to me with some CT scan dates and lab dates etc.  and cannot tell you how relieved I am to read that I am not losing my mind here.
I had 2 ultrasounds yesterday (1 pelvic and 1 transvag) and it showed a cyst on my left ovary...and the right ovary has nothing.  Dr. called today to confirm that she thinks its a hemorrhagic cyst.  Here's my confusion though, I have substancial pain on my right side ...it started in my back and radiates around to my lower right pelvic area.  I get "uncomfortable" sitting until I can wiggle around and find a good place and when I'm at my desk and leaning forward...forget it!
Have any of you had this same kind of "pain"?  Or should I be thinking now that I had one on the right as well and it ruptured (I read that they can rupture and the blood can just stay in your ab. cavity and not come out vaginally).

I was up all night freaking myself out so sorry if there's a bunch of typos!

Helen

by kimmywah, Apr 22, 2008 05:01PM
To: Helen

Hi there Helen
Try not to freak yourself out!  I too have these cysts that come and go, and they can definitely cause symptoms like you have described, even referring pain to different sides.
I had a 5cm cyst on my right ovary and was having symptoms including terrible back and right side pain.  I have recently had an MRI which showed that the cyst has gone, but my back pain remains!  
I have now been to the physiotherapist who says that the back pain may have something to do with how I am sitting at work as well! So do look at other causes as well.  Not saying that you dismiss your cysts.....as cysts can form and disappear as we ovulate and it is good that you are keeping an eye on them, and that your doctor is watching too.but do try not to worry too much as most cysts turn out to be ok.
Good luck and keep us posted.
Peace and love....Kim

by Helen1967419, Apr 23, 2008 02:49PM
To: kimmywah
Thanks so much for telling me about the "referred pain".  I went for a CT scan this morning and am having labs tomorrow and then I see my Dr. on 5/1.

I know that we complain about our physicians a lot but, my Dr. is sooooo on it!  All I did was call her office and let her know that I was really worried about the cyst and she said "well, if you're worried, then I need to work harder to put you at ease"  It was about an hour later that her nurse called to let me know that they had scheduled the CT and labs AND moved my appointment up from May 14th to the 1st!  I am a new patient with her office because I couldn't seem to get my last doctor to listen to me about my whacko periods etc.  So maybe I'm on the right track here, finally!

I'll let you know where this all lands next week and thanks again so much for helping put my mind at ease, if nothing else, I know I'm not out here all alone!
hearts,
helen  

by Maria917, May 06, 2008 09:26PM
To: all
I had a hysterectomy (due to cervical cancer) 2 years ago but the doctor decided not to remove my right ovary because there were no problems with it.  Now I was just diagnosed with a large hemorrhagic cyst on the ovary.  I have been in alot of pain and have even gone to the extent of changing GYN doctor.   It upsets me to know that I have to undergo surgery again.  Just wanted to voice my thoughts. Peace and love Maria

by Tbax, May 11, 2008 09:29PM
To: all
In Aug. of '07 I had a 14cm dermoid tumor removed from my left ovary (as well as my left ovary and tube) - luckily it was nonmalignant.  At the time of this surgery the MD also drained a cyst on my right ovary - which was a simple cyst (there was a 15% chance that I could have had the same type of tumor on my right ovary). After the surgery it took a few months for my cycle to regulate (I was also breastfeeding so that does not help knowing what your hormonal situation is). In January of '08 I returned for an ultrasound due to intense pain on my right side - & I was diagnosed with a "bleeding" cyst, about 2.5cm (relatively small).  It is now May of '08 and the cyst is still there and the same size.  Does anyone know if having past trauma on your ovary (for example - the removal or draining of a cyst) could cause future cysts to form (obviously not simple cysts - as those are formed from egg follicles not releasing in a timely manner)...?  In addition I have been having crazy mood swings like never before (I've had two children vaginally w/o drugs - so I have some perspective on pain and mood swings).  I feel like I've hit puberty again.  I'm also hesitant to have this cyst removed & I fear that with my recent symptoms the MD will recommend this.  I'm also terrified of losing my only existing ovary during a future surgery... Has anyone had a hysterectomy and had success with hormone therapy or other natural hormone replacements?

by Aviesmommy, Jul 11, 2008 10:27PM
I was just diagnosed with HC and will be having surgery and was just wondering what to expect as far as afterwards, like recovery time, hospital stay, etc.  I have a 2yr old and a 1yr old so I am hoping for little to no down time.  I had my tubes tied after my 1yr old was born (the same day) and am wondering if it is similar to that?  Thanks for any help.

by Shells271, Aug 10, 2008 10:25AM
To: Aviesmommy
I too was just diagnosed with a HC 2.5cm. I am scheduled to have a 2nd round of ultrasounds to determine what the next steps should be....surgery?!

Have you had your surgery yet and if so, how was your recovery time? I am worried that the cyst has grown b/c of the pain I have been in on and off.

I hope all is going well for you and your family (I understand having two little ones at home)!

by safee, Sep 07, 2008 11:35AM
my sonographer scanned me and told me i have 2 endometrial cysts on my right ovary,
is there any chance she can be confused with a heamoragic cyst?

by eridabit, Sep 17, 2008 11:19AM
I have had two cysts removed laparoscopically over the last couple of years. The surgery is outpatient, so I wasn't in the hospital for more than a half day. The worst part of the recovery is the gas they put into your abdomen to bloat it for the surgery. They are able to release most of it, but after the surgery the gas moves throughout your body typically causing shoulder pain. It goes away after a couple of days though. I took a week off of work for recovery. After the surgery it also hurts to cough or sneeze due to the expansion and contraction of the abdomen. I recommend holding a pillow against your abdomen if you have to do either. Overall it isn't that bad of a procedure. The doctor even showed me pictures of my ovary before and after the removal. It was kind of cool to see.

by momma24kids, Oct 07, 2008 11:39AM
To: all
I had a a hysterectomy 2 yrs ago, the r was going to remove my right ovary due to fibroids but last min kept it. I have had pain ever since surgery on that side. However the pain has been bad the last 1 ½ yr. It  got really bad about the last 4 months so I went into the dr 2 weeks ago and I have a large hc on the right side. My hysterectomy was due to cervical cancer, my pap test cam back clear this week year im still worried this cyst can be something cancerous am I worrying over nothing. Why do most women get them on the right side?

by meg_R, Feb 12, 2009 10:15PM
To: All
Hello I was told that i probably have Hemorrhagic Cysts in both ovary and am in a lot of pain.  I found this web site that explains what they are www.ovarian-cysts.com and I just had a CT scan and am now waiting for the results. however, cysts are almost always benign and go away on their own (well 95% of them statistacly) I am worried about this because there is Ovarian cancer in my family.  Hopefully it will bring piece of mind to some of you as it did me.

by mb16, Feb 13, 2009 10:56AM
To: all
HI, I started out with the cyst too. Everything was normal in my life, then one night excruciating pain and went to the hospital (actually waiting room) for 12 hours, had ultrasound and CT. Was told a cyst had burst and nothing to worry, just monitor. Didn't get a follow-up till 2 months later and by then had this big bump on my abdomen. Then they got worried and another ultrasound, chest x-ray, ct and blood work and referred to a gyn-onc. Had surgery another month later for radical hysterectomy and told I had ovarian cancer. On chemo now and only 1 treatment left. But my advice to you is push for the tests/surgery sooner than later. I know everyone the doctor is seeing is dealing with cancer, but this is your life and you've got to take charge. Mine grew really really fast and the first doctor even apologized and said they should have followed me up faster. I'll never know, but I'll always think that had I gotten in a month earlier, my cancer would have been contained to Stage 1 vs Stage 2. I know it's still better than Stage 3 (which is the most common) but ovarian cancer at any stage is not good.

I wish you all the best and hope it's benign as they say 95% are.

Wendy

by ElleMayElle, Feb 21, 2009 08:52PM
To: Everyone
Wow, There are some amazing stories on this board. I also have Hemorrhagic cysts although they dissolve on thier own without the use of any medication or medical interference. I do take Iodine which is supposed to prevent cysts. I agree with others and listen to your body. My GYN has my overies monitored every two months to check on new and existing cysts. Its very important to know what is going on.

by rzh, Jun 13, 2009 03:56PM
To: Everyone
On December 2007 I had 2 ultrasounds done (pelvic & transvag).  I had these tests done "just because" and as part of an annual physical.  My Pap Smear came up normal ~ the ultrasound did not.

"There are two right parauterine adnexal masses.  The lowest mass is 7.3 cm in diameter.  Separate and superior to this mass is a second lesion which measures 6.6 X 5.1 cm in diameter."

"There are two complex parauterine masses which are worrisome for ovarian neoplasm.  Differential diagnosis includes endometrioma or hemorrhagic cyst"

I haven't had pains which suprised me that I had these masses.  The doctor I saw for consultation had recommended surgery to remove the masses, but I wanted a second opinion before doing anything major.  He orderd a CA-125 test and it came up to --> 30 !! which was normal.  So I decided NOT TO HAVE SURGERY.  This was in January 2008 ~

Anyways ... fast forward to today ... June 2009 ... having had no pains or problems for the whole year.  I scheduled another "annual" physical and for some reason, a couple of days before my appointment.  I was
stretching i felt a bump on my abdomen.  Still no pains or anything.

I spoke to a NEW doctor who ordered another CA-125 TEST.  The result came up "high" -->  56

So in a couple of days I'm going to meet up with an OBGYN for consultation.  I'm worried about that bump, and the higher test result this year.  

by wellness2010, Jul 31, 2009 10:31AM
To: everyone
I was just diagnosed with the hemorrhagic cyst yesterday.  The ultrasound was so incredibly painful!  I consider myself to have a high tolerance for pain but I have been going through this since June.  Do any of you have pain like this.  It starts on my pelvic floor and feels like a spasm (an ice pick that is inserted in my paranium muscle) Then it feels like something blew up in my ovaries and uterine area!  It comes and goes and my doctor seems to think that my pain is not related to my cyst.  Am I crazy???

by notprego14, Sep 02, 2009 03:49PM
To: everyone
I just got diagnosed with an HC as well.  I have been trying to have children for over a year now.  I am very concerned.  My doctor said to have another pelvic ultrasound in 5 wks but I'm worried.  I guess my cyst burst but what does that mean?  Do I have to wait 5 more weeks to not get pregnant?  I'm already 30 with no kids.  This is driving me crazy.  I guess surgery is not an option right now for some reason maybe it is but she didn't say so.  Ovarian and vaginal cancer run in the family.  I am worried that this could lead to that.  My mom and my Aunt think it's wierd that I am not having a D&C to "clean it out".  Should I be?  I just got my period today and I am hoping to not spot again in 2 wks which seems to be happening (everytime it's time to ovulate).  20% chance of getting prego is NOT a lot.
Any advice?

by RhondaHunter, Sep 03, 2009 08:52AM
To: Everyone
I was in the ER two days ago and learned I had a HC rupture (larger than a golf ball).  I knew something was wrong as the night before I thought I was literally dying.  I have since found out I have yet another HC that is larger than normal but has not ruptured yet.  I'm on bed rest with lots of meds to help with pain.  I see my doctor tomorrow.  Will they do surgery on the HC that has not ruptured yet?  Or let it rupture and then figure out the next steps?

by Brandismom, Sep 17, 2009 07:59PM
My daughter is going through most of this that all of you are talking about.  Thank God I came upon this site.  My daughter was diagnosed with endometriosis about 3 1/2 years ago.  We have been through 2 surgeries and lupron shots.  Her last surgery was June 2009. She is 22 years old going on 23.  It is back and she is in pain. Is there places it can be without seeing it?

Well new problem now... I had her to ER last Sunday and now she is diagnosed with a hemorrhagic cyst and is in dire pain.   She is to finally see a specialist 2 hours away, but not till October 1st.  They don't want to give her pain medicine - they think she will get hooked on it being young.  They will give it to her and then take her off.  Motrin, naproxin, nothing seems to help.   My mother died of Ovarian Cancer in 1999 and this scares me totally.  Some days I wonder if she is really hooked on the percoset or the pain is that bad and from what I gather from you ladies.. this is extremely painful.  She is to go to a pain management doctor and at this point we still don't have an appt there.  There are not booking till November/December.  What is the matter with our doctors anymore ... do they not care???

She finally sees her gyno tomorrow ... wish me luck.

by Toridtor, Sep 24, 2009 05:24PM
HI
I was diagnosed with a hemorrhagic cyst a month ago  6cm. I had a hysterectomy in Dec of 08 a little bummed that I now am gonna loose the ovary we decided to save. I was completely unaware that you can still get a cyst with out all the other parts. My Dr took my ovary apart cleaned it up and now its being held together by clips......yikes! My concern is it rupturing. I go in for my second ultra sound on Tuesday. I just want this all gone. Fortunately I don't have any real pain. Mostly it hurts during sex and the ultra sound. I have spasms occasionally and some discomfort on my right side but nothing that keeps me from my day. My biggest concern is now is that I'm a cycle instructor...should I be teaching...will that possibly cause a rupture?? UUUGGHHH I'm so over all of this.

by jewelz2220, Oct 07, 2009 08:03PM
I am 25 yrs old now, last July 08 I had a cyst around 5 cm removed, fine for about 4 months, in Nov. 08 went back to the gyno to find out I had another cyst now on my left, surgery again, laproscopically my gyno went in and tried to remove it but could not save my ovary removed my whole left ovary then comes out I also have endometriosis. Now a year later had pain in my right side, had a sonogram and ultrasound just to find out I have a "hemorrhagic cyst" now. Kinda of worries me because I only have 1 ovary left... Well good luck to everyone else... I just wanted to tell my story.

by weckgal05, Oct 21, 2009 09:32PM
   I am scheduled to have a hemorrhagic cyst and right ovary removed on Friday.  
   On Monday of this same week, I found myself doubled over in excruciating pain.  I had no idea what was causing this sudden onset of pain. The pain radiated down my lower right back and throughout my lower abdomen and groin area.  
   I went to the ER on Tuesday afternoon.  After a CT scan and a vaginal ultrasound, I found out I had an enlarged kidney and an ovarian cyst. The ER doc gave me a shot and IV for pain while there. The doc believes I may have passed a kidney stone or two to create the enlarged kidney.
  I followed up with my gyno today (Wednesday) and he immediately scheduled surgery for Friday.  I was suppose to leave for a vacation to Mexico on Sunday.  I had to cancel the trip!
   My gyno warned me that the cyst was very large and the ovary was susceptible to being flopped around by having sex, riding in a bumpy bus or other physical activity.  So taking chances on a trip would put me in other medical dangers.
   I will have my right ovary removed in two days!

by bert408, Nov 22, 2009 08:06PM
well i found out i have a resolving hemorrhagic cyst but the size is 6.7 cm. i have no pain not even during sex. i am taking a trip in 3 days im woundering if the pressure the airplane will have any affect on this thing in my body? i have a follow up in 6 to 8 weeks im not sure if that seems to long to wait? although i am going to vist a relitave that is a very good gyno which i will get a second opinoin, any suggestions??? Any would be well needed, thanks everyone! your blogs really help me stay at ease for a bit.
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