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Avatar universal

Desperately need help/suggestions - in agony!!@!

The past couple of weeks I've been having what started out as pain in my inside hip/groin area.  A very prominent throbbing pain that was worsened by sitting, and especially if I tried to lift my leg while I was seated.  This pain is now not only in that area, but has also moved around to encompass my entire hip area (inside hip, front of hip, side of hip, back part of hip) my lower back on that side (right) and radiates down my leg, mostly on the inside, but somewhat on the outer leg also.  I've also been getting burning, shooting pains in my foot that may or may not be related.  The pain has increased to such a point that my normal pain meds are not touching it at all and neither is my muscule relaxer.  I've also tried ice, heat, compression, elevation, rest - NOTHING helps it.  I normally cannot take any type of anti inflammatory due to it not only totally tearing up my stomach, but also because they tend to raise my blood pressure to a really high level.  However, because of this pain, I've tried some ibuprofen and as I mentioned, the only thing it did was give me a horrible stomach ache to go along with the other pain.   I can only sit for usually a maximum of 5-10 miinutes before it is so unbearable that I have to get up and move - which also can be a problem for me as I have severe arthritis in both knees and ankles, along with fibro and lupus, so standing is not much of an option for me either.  Sitting on the toilet is a MAJOR problem - the pain (not from the act being performed on teh toilet, but from the hip/groin/back/leg, et.) just about sends me to the roof. When the pain first began a couple of weeks ago, I could get some temporary relief by laying down in bed, but over the past couple of days, even that is not giving me any kind of relief.  I quite literally have not had ANY sleep in the past two days and I'm about ready to crawl out of my skin both from lack of sleep and the pain.  I've not fallen, slipped, tripped, etc., that could have contributed to/caused this pain.

I'm going to the doctor tomorrow and hoping she can figure SOMETHING out.  Last night and today have been totally out of control - almost constantly writhing in pain in bed, barely unable to move.  I'm at the point right now of even wondering if I'm going to be able to drive myself to the appointment tomorrow and if I can do that, if I'll be able to get out of the car.

I do hope I don't sound like I'm whining or complaining - I'm searching for SOME/ANY ideas or suggestions to get me through tonight.  I'm at the end of my rope as to what to try.

Any thoughts at all are GREATLY appreciated.
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Avatar universal
Not sure if you're stil available but Would I be able to PM you about an ongoing problem? thanks
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Avatar universal
Tuck - thank you so much for the additonal information about the bursitis and the SIJD - at least I now have some more information that be able to help me, as the patient, get the correct diagnosis and treatment sooner rather than later.  I have been using a pillow under my hip/thigh when I'm sitting and have tried it also when i'm laying down.  It doesn't help a great deal, but it at least does help to relieve some of the pressure in that area.  Yes, I do definitely realize my BP was way too high.  Since my BP is usually fine, my doc was quite sure it was only because of the severe pain and since I wasn't having any other symptoms of high pressure, such as a severe headache or dizziness, she felt comfortable with just having me keep tabs on it.  My father has a home BP kit that I stopped and picked up to keep at my place for a while and have been periodically checking my BP.  It's still elevated, but not as high as yesterday, so maybe the meds are doing more than what I can feel.  I do take Lasix for fluid retention, but nothing as far as a "typical" BP med.  My fluid retention is not related to my heart or BP - I just tend to retain fluid when the weather gets hot and it sure has been that here in VA lately!

Jaded - thank you also for the info on the flexeril - I've been kind of "out of it" spacey mind wise today and I was thinking it was the dilaudid, but maybe it's the flexeril - or more likely, the combination of the two.  I am feeling very sleepy, but haven't yet been able to get comfortable enough for a long enough time to get more than a very short cat nap.  I did try the pillow between the knees while laying on my good side and that did give a little relief, although it also, like everything else has been, was very short lived.  And being able to get into that position with the pillow  between my legs is VERY painful - just having to lift my leg in order to get the pillow into the right position is excruciating.  Don't get me wrong - I'm VERY thankful any and all amounts of relief, I'm just getting very, very exhausted and frustrated that nothing I'm trying is helping for more than a couple of minutes.

I placed a call to the ortho doc a short time ago to see if by any chance they had had any cancellations and could get me in today instead of tomorrow. Unfortunately, they hadn't, so I'll just have to wait for the morning.  Fortunately, it's less than 24 hours away now.

I think I'm going to go try and take a shower and see if the warm water helps at all.  I think I'd probably have better luck of that if I were able to soak in a warm tub, but even before ths hip issue, I was not able to get up and down to be able to soak.
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Avatar universal
I meant to mention, also, that the flexeril can sneak up on you and knock you out.  The first time I ever took it, I was planning on going out with my friend.  I took it and an hour later felt fine so I called to let her know I would see her later.  After another hour I laid down on the sofa for a minute because I was feeling a little tired and I woke up the next day on the sofa.  Apparently she had called me that evening, a little later and I told her I was too sleepy to hang out.  I didn't remember it at all.  That was a long time ago before I took any meds, though.  I had pulled a muscle or something and the doctor prescribed the flexeril.  
Anyway, the pillow between your legs is a good idea.  Getting your leg level with your hip and shoulder would be good to align your spine and might alleviate some pressure.
I really hope you feel better soon!
Helpful - 0
547368 tn?1440541785
I am very glad that you at least have some pain medication to help get you through this.
As you know your B/P is too high. Did they give you anything for it? Of course if they control the pain, they control the B/P. But please be safe and monitor it.

Just so you know the bursitis and SIJ issues normally do not how on an X-ray. Because my SIJ is so severely effected it showed "something" when x-rayed but not enough to put a definitive DX (Diagnosis) on it.

Bursitis is usually DX through symptoms. SIJ is also DX through symptoms but for a final and accurate DX an injection right into the joint of a "caine" product is required. It's a difficult procedure and done under fluoroscopy. At the same time they can and do inject a steroid. It's an "old" treatment that is no longer considered effective by most in'-the-know physicians. However it is the only way to correctly DX the condition.

Many specialists poo-hoo the SIJ DX, because again it is so under recognized and under diagnosed and actually misunderstood. It wasn't till my PCP stood strong with that DX and sent me for the definitive diagnostic test that every physician beleived her (or me). If that is what you have you will need "believers" to help you with treatment and a diagnosis.

If you have any questions be sure to send me a PM. I'll help if I can.

Sometimes resting on my back with a flat pillow directly at the top of my posterior thigh will help with the pain. I then apply heat to the area that is hurting the most.Ice increases the pain. But we are all different. I have also found that a muscle relaxer is effective to some degree. The only one that works well for me is diazepam. Not only does it relax my muscles, it brings down my b/p and reduces the anxiety that the acute pain brings. So it addresses several problems with one tablet.

I am praying that you will find some answers. Hang in there our friend in pain. Let us know how you are doing when you can.

Gentle ((HUGS))
~Tuck
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Avatar universal
After reading el_em_en_oh's question about taking the dilaudid and the flexeril together, I decided to make a phone call to the pharmacy before I took the flexeril.  I mean, I know my doc prescribed both, but yes, they are human, and they can't possibly always remember ALL possible intereactions between meds.  I talked with the pharmacist and he said yes, it was ok to take them both - the combo would probably make me very sleepy, but I assured him that at this point, that was actually a GOOD thing!  He did say that if I felt better about it, to take the dilaudid first and then about an hour later, take teh flexeril - that way I'm not completely getting the first "burst" of medication from both at the same time.  So  I did that with the first dose and it worked out ok - I don't really have to worry about doing that with future doses, though, because the dilaudid is every 6 hours and the flexeril is every 8, so there's already a time gap between the two.  Unless, of course, if I'm able to go longer without the dilaudid, then I may have to do that again (oh, that would be so great if I could extend time between or even skip a dose!) -- definitely not at that point right now.

I do usually take Soma with my regular pain meds, but my doc felt that maybe changing muscle relaxers as well as changing the pain meds would give me more relief.  It was quite obvious that my normal meds (lorcet and the soma) were not doing anything and I needed something stronger.

If they tell me that the x-rays are ok, I'll definitely ask about an MRI or at least a CT scan.   The did do xrays of my lumbar spine yesterday as well as my hip, so at least they're considering that area as a possiblity of the cause of the problem as well.

Once again - if anyone has any other "tricks" or ideas to try to help alleviate some of the pain, I'm open for any and all suggestions.  
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Avatar universal
From what I've heard of SIJD, it definetly sounds like that.  It could also be a severly herniated disc in your lower lumbar region.  My FIL had a problem very similar to that. The thing about it is that they can only really see those problems on the MRI, sometimes. I really hope your situation gets better and that you get some relief.
About taking the flexeril and the dilaudid together.  Any time I have gone to the ER they have given me dilaudid and flexeril.  I take a pain med with muscle relaxer every day as the disc herniations in my neck cause muscle spasms, which compound into straightening my neck which causes more muscle spasms and pain.
Best of luck with your doctor's appt!  I hope you get the help you need!
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Avatar universal
My appointment with the ortho doc is at 10:30 Thursday morning - I have to go by the x-ray place beforehand and get my x-rays to take with me.  Hopefully they'll be able to tell me SOEMTHING after looking at them.

I will ask about the steroid injection.  I've had them in my shoulder and my knees, so I'm a little familiar with them, but still a little scared about them - especially since I'm already in so much pain, I'm worried that the shot will be absolutely unbearable.  But I'll defintely give it a try if it's offered.

I do take prevacid and usually tums with the ibuprofen, but it still doesn't help.  I'm allergic to Aleve, so can't take that one at all.  Actually, at this point, my doc toldme to stay away from all anti inflammatories - not only becuase of the stomach issue, but also because of how high my BP was in her office.  I've had anti inflammatories raise my BP in the past (I hadn't taken any of those in a couple of days before yesterdays appot, so don't think they had any effect on my BP at that point) and with as high as it was, we certainly don't want it to get any kind of "jolt" and raise it even higher.

I did manage to get a couple of hours of "dozing" last night.  I wouldn't call it actual sleep as I completely remember moaning and groaning and trying to adjust my position all night long.  I'm also quite sure that whatever snoozing I was able to get was "chemically" induced from all the meds - they definitely do make me sleepy.  But you know, at this point, I'm not worried about a couple of days od chemically induced rest - I definitely need the sleep, not only for my sanity, but also to help me heal and not end up with a major flare of the lupus and fibro on top of all this.  I tend to get really bad flares when I don't get enough rest and I want to avoid that at all costs.

As soon as I have more information, I'll update everyone.  Again, I want to thank you all for all your support and kind words.  They really do help and I appreciate it more than you know.

As for now - it's time for me to go and get horizontal again for a while - Like you, Tuck, laying down seems to be the ONLY way I get even a twinge of relief.

Helpful - 0
82861 tn?1333453911
Praying the dilaudid will get you through until Thursday.  I've got bad hip osteoarthritis and what you describe is exactly what happens to me when a cold front is knocking on the door.  Most of the time it's just the joint itself that talks to me.  When the weather changes, there is no sleep.  Changing position brings relief for about 5 minutes.  Then the entire leg bone feels like a red hot poker.

Definitely look into the steroid injections.  I've had two rounds of them and they seriously help.  My doc likes to do no more than two per year.  Apparently if done more than that the steroids cause more damage to the joint, so I wait until winter comes before going in.  Bilateral hip replacement is in my future, but I'll put it off as long as possible.  Orthopods can do these injections too, so ask about it on Thursday.  

Have you ever tried taking pepcid or any other antacid with ibuprofen?  Personally, Aleve (naproxen) works better for me but I can't take it for more than a few days.  Same problem as you: a nice hot, piercing fire in the gut.  Pepcid buys me a few extra days.
Might be worth a shot anyway.  :-)
Helpful - 0
1187071 tn?1279369698
I am hoping the meds will help your pain so you can get some rest. Let us know how the MRI results turn out and how the meds are helping.
Hang in there
Jamie
Helpful - 0
1310633 tn?1430224091
Dude, I'm so sorry about your pain. I can actually FEEL your pain in the words I'm reading, so you've expressed quite well.

Just thought I'd blurb quickly about the Dilaudid vs. Opana thing. I've been on both, and the Dilaudid is by far the superior medication for 'instant gratification'. I use it for BT pain associated with kidney-stones, and it kicks in quickly (10-12 minutes) and lasts a good long while. I take the 8mg version, so not sure what you have, but Dilaudid is Dilaudid, and even the smaller doses should work (if it's not enough, tell your doc you need a higher mg, or ask if it's okay to take 2 at a time... but ask your doc first).

Opana IR worked for my chronic-pain (associated with multiple hundreds of renal cysts), but wouldn't touch the acute pain. Different pain requires different medication (for me anyway), and even though both are narcotics, one worked for one thing, and the other worked for the other thing. Not sure if that made sense, but I hope you catch the drift.

Not sure about combining Flexeril with Dilaudid, but if your doc prescribed, hopefully they looked at the interactions and cleared it. Maybe someone else here has experience with combining them...

Good luck to you Gem.
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Avatar universal
Thank you everyone for your support and words of encouragement/suggestions.  Last night, unfortunately, was another HORRIBLE night - in the past three days, I've gotten a total of 4 1/2 hours of sleep and believe me, I'm being VERY generous with that number!

I had my doctor appointment this morning - they knew immediately that I was in severe pain - not only were there tears streaming down my face and me wincing at every move, but my blood pressure was GREATLY elevated from the pain - 180/108!  My normal BP is right around 135/82, so this is quite a difference for me!!

Unfortunately, I hadn't read Tuck's information about the bursitis or the SI joint before my appointment, so I wasn't able to discuss those ideas with her.  She did send me right away for x-rays (NOT fun trying to lay on that hard x-ray table) and has made an urgent appointment for me with an orthopedic doc.  When I got home, there was a message from my doc's office stating that the appointment was on Thursday and to call them back to get the details - I did, but the nurse who had called me is currently in with a patient, so I'm waiting for a call back from her to let me know exactly when I go.

Meanwhile, she has given me dilaudid and a different muscle relaxer to see if I can at least get a little relief.  She mentioned trying opana, but she said she wasn't sure how expensive it is or whether my insurance would cover it - I've had dilaudid before and know they cover that, so that's why we went with it.  She really wanted me to go to the ER for IV pain control, but I was upfront and honest with her and told her that quite honestly, there was absolutely NO way I'd be able to sit at an emergency room for hours waiting to be seen.  She certainly understood that (especially considering I couldn't stay seated in the examining room!) - but she did make me promise that if the pain got any worse that I would definitely go to the ER - which I did promise.

I just took my first dose of the dilaudid about 5-10 minutes ago, so here's hoping it will help.  I'm about to take the first dose of the new muscle relaxer (flexeril) also. At this point, I don't care if they make me sleepy - sleep would be WONDERFUL right about now.

Thank you all again and I'll be sure to keep you all posted as to what I find out from teh xrays and the ortho doc.
Helpful - 0
547368 tn?1440541785
I am so very sorry to hear about your new pain. Forgive me for not recalling each of your past specific diagnosis. I appreciate the fact that you included them in your post.

Sherry is correct, you could have an arthritis in your hip. Usually the symptoms are insidious but they are very similar to yours. And apparently exactly the pain that Sherry experienced. If yours came on fairly suddenly (right?) I would also consider other possibilities.

Your pain sounds very, very similar to a trochanter (hip joint) bursitis flare. Does it hurt to touch the hip? The pain can be near unbearable. The bursae in the hip is the largest in the body. When it becomes inflamed it can effect the entire pain, leg and groin. The good news, if there is any with pain, is that an injection of a steroid into the bursae area can almost immediately stop the pain. No the injection is not painful, uncomfortable yes but not painful. I have had four now over the last 17 years, each and everyone has relieved my pain.
  
Another thought is a sacroiliac problem such as sacroiliitis or a problem with the sacroiliac joint. Sacroiliitis is an inflammation of one or both of the sacroiliac joints, which connect your lower spine and pelvis. Symptoms include, pain and stiffness in your lower back, thighs or buttocks and radiates down your leg, Pain that worsens with walking because the motion of your hips strains your sacroiliac joints, a fever can also accompany these symptoms. If you have not had an elevated temp this would be less likely the cause of your pain but not ever one has an elevated temperature.

The sacroiliac joint lies next to the spine and connects the sacrum (the triangular bone at the bottom of the spine) with the pelvis (iliac crest). When a problem such as SIJD  occurs it can produce pain in the hip, leg, groin, very low back and yes even the foot. I have SIJ Dysfunction (Sacroiliac Joint Dysfunction) and you describe every one of my symptoms.  Sitting is thee worse position, standing is next followed by ambulation. Only laying down helps my pain. Both these conditions are difficult to diagnosis and are often undiagnosised and always under-diagnosed.

So though it is impossible to tell you what you have it is obviously in your hip or SIJ region. The best of all possibilities (if there is one) would be the trochanter bursitis as it is quickly treated and usually does not return, or if it does it is usually years later.

Armed with these suggestions please discuss this with your physician. You have enough pain to deal with without adding more to your plate. If this is bursitis and it can be treated quickly I would go for it.

I too will watch for the results of your appointment. I hope it is good news!!

You'll be in my thoughts and prayers.
My Best to You,
~Tuck
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Avatar universal
I'm so sorry that you are going thru this terrible pain that has just come up. I'm really afraid that you may be having arthritis in your hip. This is EXACTLY what my pain was like before my surgery in 1981.

When you go to bed tonight (if you haven't tried this already) try placing a king size FIRM pillow (if you have one) between your legs and partly UNDER your stomach and see if this will give you some relief. Enough, hopefully, that you can get at least some sleep. Lay on your GOOD Leg with your bad on up on the pillow!! This will keep your hip even with your back.

I hope and pray that this can help you at least a little bit!!!

I'll be anxiously awaiting you update tomorrow after your Dr.'s appointment....Sherry
Helpful - 0
1187071 tn?1279369698
I really don't know what is causing this pain. I hope someone else on this board has some ideas for you.
I just wanted to tell you I am so sorry your going thru this, I hope your dr can find something that will help you out cause you are suffering so bad and that is not good at all. Even going to the bathroom causes problems for you.
I will be watching to see how the appt goes tomorrow and I hope you are able to drive yourself there with little to no problems.
Best of luck to you
Jamie
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1324871 tn?1288981706
I am so sorry you are suffering so much ! You have already done a lot of the things I would have suggested (ice,heat etc.) You are already taking pain meds and still having this level of pain and from your symptoms I would suggest you go to the ER tonight . It could be something serious and just from the pain you are describing you need treatment .I am not a Dr just a pain patient but I am concerned about you .You are not whining or complaining.You are in horrible pain .I hope everything goes alright for you and you get feeling better.Take care Melissa
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