This a updated posting from Addiction Forum. I got some good responses from the folks there but would like your opinions too.
My daughter has been in chronic pain for seven yrs after a work related injury that caused neuropathy pain in her thoracic vertebrae area. She has tried physical therapy, she has had 3 failed neural stimulators surgeries 2 which were implanted directly into her spine(failed because of scar tissue) and morphine pain pump that was infected during implant -caused her to go septic, and pick line IV antibiotics trying to clear pump of infection found she is allergic pencillin and rochephin(?) bad allergic reaction caused her skin to slough off. Pain pump needed to be remove-took a year to heal and since doc left the catheder in so he could use it again and 6 months later found it was infected too and that was the reason she was losing the use of both legs!! They are stronger now since he removed the infected catherder. On Bipap w/ oyxgen, her breathing and oxygen levels haven't been okay since the infection and allergic reactions to antibiotics. Doc has tried neurotin, lyrica, hydrocondone,methadone, percocet, dilaudin,fentynal patches,etc. all with serious side effects(dilaudinand fentynal patches caused her to go into a physchotic episode that we weren't sure she would come out of). She is now on MS Contin 30mg 4x daily for pain and morphine 15mg for break through pain and prozac 40mg for depression, - she is stable and trying to control her pain without anymore extreme majors-actual she is very frighten of trying anything new. Worker's comp is demanding she tries(Kansas worker compensation laws are really bad) Suboxone or they will take away her monetary benefits!!! (Update:Found out today that they already have!) She has seen the suboxone doctor one time and he really has not revewed all of her updated medical records and is 165 miles away from here. These 6 hour round trips increases her pain from a usual 6-7 to 8-10 for 2-3 days after. Nurse case manager working for the WC insurance company won't even consider the doctors that are only 25 miles from here. She could have some severe reactions to Suboxone if she is allergic to it and when she asked the Suboxone Doc what she should do if she did he said he guessed she would have go to an ER closer to her,which of course would not have a doctor who would know her case! Her pain doc says she doesn't need this treatment and needs other pain management procedures(another pain pump or stimulator) before she tries to get off the morphine-they aren't listening to him either! Lawyer says we need a hearing before the WC judge, which will take about 6 weeks to schedule. The manufacturer states that Appropriate use of SUBOXONE
Do not use SUBOXONE or SUBUTEX for conditions for which they were not prescribed. Patients with a clinical need for analgesia should not be transferred to a SUBOXONE regimen. SUBOXONE is not indicated for pain management.
I called their website and although the lady was very nice she said the FDA forbids her to talk about Suboxone and pain management . I called the FDA and since manufacturer has not applied for approval for pain management they didn't have much info on it, only that it is not illegal for doctors to prescribe it off label. If suboxone has helped, okay but I really need the truth from everyone and can't find it on websites. Why aren't the websites telling the TRUTH!!
With all this stress my daughter is having nightmares again about not being able to walk and being sick again!
Momscares