Yes, I eased on to a therapeutic patch dose in the same manner as you. Place both patches on at the same time, and keep them close together. Everyone is different as far as how well the adhesive works (or doesn't work) so try different parts of your body. You'll want a spot that doesn't sweat a great deal and that skin oil isn't a problem. I've settled in to placing patches anywhere on my rib cage, and just alternate the sides.
To keep track of when you put on the patches, just write down the date on them before application. You don't want to use the same spot over and over again because your skin can get very irritated.
I'm not at all surprised that 50 mcg wasn't enough for you after being on MS contin. As with any change in medication, it can take some time to figure out individual equivalents. It sounds like your doctor is a good one though, so you should quickly get to the right dose for you. :-)
Thank you so much for the suggestions. It makes me feel somewhat better to know that the 50mcg not working isnt a sign that i'm just doomed (cause, honestly, after being on so many meds you kinda feel like that)...the ms contin WAS working but just over the last year i had to keep increasing it every few months because of increasing tolerance, so in last 3 weeks, my pain intensity was just worse. I started the 25mcgt patch last night, so i have both on now...will change them so both start together come thursday night...fingers crossed about the 75mcg. I am so glad i found this site...i have been in this pain for over 3.5yrs (which i know to some is nothing!) but I just feel like i'm at my breaking point right now...i have been in tears since end of last week...moreso last few days because of pain worsening (and crying is the stupidest thing to do bc it makes it worse!). So thank you for advice/suggestions...i did make sure to put dates/dosing on the patches and will try different spots (i sweat...a lot...its disgusting, lol...so i'm trying my mid/lower back b/c less change of that there...will try ribs when change on thursday).
Thank you again :)
hi new this site - I was wondering about typical side effects of the patch - im on a 25 plus 12mcg for about 6mo and am beginning to feel very tired (more than normal ) emotions not in a good way - confused and having hard time thinking straight. I know i need to go to my dr - I was so confused i mixed up my days and missed my appt this week - only saw me long enough to give me more scripts -- ANY ADVICE --plz i fee like a freak!!
hey mbell67, not sure if you are up to it, or mentioned it in another post, but what is your pain related to...does it stem from an illness, accident...or just random? where is it? (i ask because sometimes if you have an illness that the pain stems from, it could be that illness flaring...like MS for example...you can start out with pain, or have pain consistently/chronicly, but then have flare ups that cause other problems...not that you have MS, i'm not dx'ing or anything like that, just using as example). regardless i hope u feel better!!!!!!!
hi there!, my pain is odd. over 15years ago both femurs broken in MVA.- didn't think I was going to live; rods with pins were placed inside (i was very late teens) healed up great! had no pain whatsoever; however, of course the pins had to be removed for me to walk. Therapy, therapy......... Then!! several years later in another very strange head on collision (in which my seat belt not being worn) my body, knees first slammed against the dash. The rods inside my legs, at this point, not too much holding them in place , other than bone, shot up the femur shaft, and blew off the top of the "femoral caps"? (if that's what theyre called). I have also seen at some point bone fragments floating about above my 'greater trocaner'? This has resulted in extreme pain. Upon seeing x-rays, the rods are not where they are supposed to be but several millimeters, if not 1/2 inch out of my femur. This may not sound painful to some but there are lots of nerves and muscles that are in that area that are incredibly inflamed and i can feel it. It feels like walking on red hot pokers, which you HAVE to bear weight on to walk.. This is consistent, non-stop pain Ive been dealing with for about 8 years now
how are you doing with the patches - I hope well. I was for years on percocets, vicodin etc. this has been the best for me, different side affects though. Id rather have these i think than the ones before - I was worried in the beginning too. My dr. said she has heard many complaing about the third day there not being much of an effect - so she agreed to my changing patches every 2 days - hope ur doing better too
I am new to this forum also and would like to add that I am on 125 mcg Fentanyl. I use the tape from the Dr.`s office, the cloth like tape and cover the patches, it works great!! Last week though I had a patch fold in half before I could get it on, then couldn`t unfold it. That was not good lol. But I love the patches they have been wonderful for me. Thank you for your time.
I'm a pain mgmt pt with a long history of surgeries, metal rods in back & leg, etc. I'm now at a 28 day detox program to get off this stuff. It may help with pain but you will become a prisoner! Get off the fentanyl as soon as you can because it's HELL to detox!
Do any of you have to take a PRN. I'm on oxycodone (IR) 15mg 6x a day as needed. Sometimes I need more (6) other days 5. I'm on Fentanyl 100mcg every 48 hours. History of 12 neck surgeries and a knee replacement and heart valve replacement. Chronic pain. Don't get high on this regimen at all but able to move around more than without taking the meds. Does this seem a lot? I have a good rapore with my pain mgmt team. They want me to have another MRI next week on my neck to see where it is at. I have numbness (totally) to both arms usually one at a time and some pretty bad neck pain still. Please advise.
Hi. This post is over a year old. You may get better information if you post a new question.
I will say I was on a similar dose to you, though my BT meds were a bit higher. I found it to be too much for me, and I've since tapered off the Fentanyl completely and am down to a lower dosage of the BT med. I haven't found my pain to be much worse. It's about the same as when on the higher doses.
But if you have faith in your pain management team, then they'll know best. Though ultimately you need to make the decision on how much pain you can tolerate.
Hello All !!!!! :D
I am new to your forum (Just found this site online today and joined.) and have just been prescribed the Mylan Fentanyl patches at 75mcg/hr. every 72hrs and 2mg dilaudid 3x/day as needed for breakthrough pain.) I was in a serious MVA last September (9/23/10 to be exact) where I clipped a cars' front bumper with my rear bumper, lost control of my car, spun 360 and hit another car; I then flipped completely over one time and was slammed into the concrete shoulder. I broke my pelvis in four places, broke 6 teeth, fractured my jaw, and had massive head trauma. I had surgery to reattach the left wing of my pelvis to my SI joint and had screws inserted in my pubic and pelvic bones. For the past year I had been on oxycontin (40mg 3x/day) and roxicet (5mg - 2 pills 2x/day) and unfortunately those meds have stopped being effective. So, its day 2 of my first patch and I have to say, for the first time in a year, I feel like I have my life back. I noticed a few people are scared and concerned with all of the warnings on these patches and I would like to let them know that although everyone is different, fentanyl patches are becoming more commonly prescribed than ever. If you have been on precription pain meds for some time, your body shouldn't have any problem adjusting to them. (Like I said, everyone is different) Also, I agree with the lady who posted to be your own advocate. Every time my dr. prescribes me a medication, the first thing I do is go online and research it. This may help to calm some of your fears. Lastly, and I know this is a long post, and for that, I apologize; I read online yesterday that MOST people who are prescribed the patch never have any issues with the medication. The only side effect I have had so far is really, really, REALLY dry mouth. (Kinda feel like Jim Carey's character did in Me, Myself, and Irene when he took his psych meds. - lol) Chewing gum and sucking on hard candy helps. I have to say I am thankful I found this forum, as I have been told that the pain I have will most likely be a chronic, life-long battle. And, on Monday, when I heard this news, I was a wreck. I would enjoy having people to talk to when it all seems to be to much to handle. So, thats my history and my meds. I wish everyone a happy and healthy holiday season!! =D
I have been dealing with chronic hip pain for 16 months secondary to a MVA. I have FAI syndrome with Cam impingement and labrel tears. My condition has progressed from bad to worse and all low-level treatment has been tried including physical therapy. I have been chewing on vicodin, skelaxin, motrin 800, valium and percocet for 16 months until they just don't cut it anymore. My dr. prescribed Savella (commonly prescribed for fibromyalgia) and have been on that a week....horrible side effects but I'm hanging in there. He also started me on the duragesic patch today at 25 and to be changed every 72 hours. My concern is that if one of the side effects of Savella is severe dry mouth...and duragesic....I'm gonna be licking people's sweat for relief! Anyway..walking every day is a challenge and I'm hoping that I can taper off vicodin with this patch.
I to have had 3 back surgeries,I have screws, rod a cage. I have taken percs, lyrica, Tramazadine, for the nerve damage in my legs and I also hv a spinal cord stimulator that does not help much. My doc had me on the patch 25mg, for the past 9months. I am now on 50mg, patch. Lyrica 4x a day and no break through Meds. Don't know how I'm gonna feel without the BT Meds cuz my pain level is always high. The 25mg patch never did much for me. The percocets and tramazidine muscle relaxer was the better Meds, especially for the burning in my legs, but they were only short acting. I so wish I didn't hv to go through this pain day in and day out. It's so depressing. Going on sites like these do help though.
You make a great point in that doctors are individuals just like we are, and not all of them follow the manufacturer's prescribing guidelines. Once a medication goes to market with FDA approval, it's open season to be prescribed in any manner an MD sees fit.
I am from Alberta your site is great i had cancer in my neck i have been in pain for 4 years neck and lower spine chronic pain started on percoset then oxyconton 80 s to fent 3 100mg/h every 72 hours yet on the last 72 hours i suffer it mudt run out when i put new patches on it take 8 hours plus time the whole day i suffered a #8 pain i would like to go to 48 hours what do u think
I change my patches every 48 hours. My doctor initially wrote my script this way so I have not experienced the patch's effects out to 72 hours. I do know that the effectiveness begins to wane on the 2nd day so I could only imagine what it might possibly feel like on the 3rd day.
I would simply talk with your doctor and see what he thinks. Just tell him the patch isn't working past x number of hours < 72 hours and that you researched that sometimes the patch is rx'd every 48 hours and see what he says. If he wants to keep you on a every 72 hour schedule, then ask if you could be alotted more breakthrough pain meds to take on the 3rd day.
To relieve the dry mouth symptoms, use biotene toothpaste and biotene mouth rinse. These products are available over the counter at most drug stores and large chains such as Meijer. Do not use any whitening toothpastes as they can promote dry mouth. I am a dental hygienist and many of my patients find relief from these products. Good Luck.
I think I am reading/responding to a thread and comments that seem to have been written in 2008? It is doubtful that anyone is out there anymore.
I have been taking Morphine 400 mg/4 hours, since 1998. Took a break for a while, started up again on Oxy 30 mg/2 hours and added Morphine recently, to little avail. I have a strong tolerance but must introduce it slowly or will vomit. I needed to get stronger medication in my system but avoid my stomach - and just won't do IV administration. I was told about Duragesic last night in the ER. I applied my first 100 mcg Fentanyl gell patch tonight at 8 pm (2 hours after my last 30 mg Oxy). It's now midnight and the pain is pretty darn awful. I feel no effects helpful nor harmful. I read that it can take between 8 - 24 hours for relief to begin. The Q is: Would it be safe to take an IR Oxy 30 mg at this juncture or should I just keep trying to hang in there for the Fent to work? Any suggestions? I am a stickler about taking my meds as prescribed - but I simply lack access to professional advice at this hour.
try not to be on patches for to long . they are very hard to get off them . ive been on them for over 6yrs. 100mcgs every 48hrs.i got fifteen a month. My Dr. Now knows tht i want to get off them so i went to 100mcgs every two days to every 72hrs. Now i am on 75mcgs every 72hrs it took me five months to go from 100's to 75mcg. So if you dont have to go higher i suggest you don't if you don't have too. Goodluck to anyone trying to get off these things. its not easy.
Yes it is possible the dose you are taking is not working. I am taking a 25mg and 12.5 mg patch. This is working for me now. I was taking a 50mg patch and thats way to much. You will have to try different doses to find whats rt for you. Good Luck.
Yes it is possible the dose you are taking is not working. I am taking a 25mg and 12.5 mg patch. This is working for me now. I was taking a 50mg patch and thats way to much. You will have to try different doses to find whats rt for you. Good Luck.
Hi Lynn27 I just started the patch yesterday. I too have a spinal cord stimulator for the RSD after a MVA 3 years ago today.How long have you had the stimulator? I got mine last June and it has been great. My ankle is tolerable. However the minute it needs to be charged I turn into a different person because of the pain. The RSD was in my ankle and has now traveled up my leg more. I do take the pain meds because of severe arthritis in my ankle and knee. I stopped the oxycontin and am trying the patch. Anything I should look out for? Hope to hear from you....
Well, unfortunately for me, it was the 5th of NEVER! It didn't ever help my pain, and I was on a HIGH dose, but I became allergic to the adhesive and FINALLY the pain management Dr. let me quit! I Still have what I think are going to be scars, all over my upper thigh and some on my upper arm. It never itched, hurt, or (unfortunatelt) worked for me! But I just tried that horror drug OPANA! Lord give me stength! I was sicker than a dog...but so sleepy, and in pain, NOT a winning combo!
I am with you, my doctor specifically told me it was up to me whether I staggered them by days, etc. I was on them for 3-4 months, 4-100mg patches at once. I HAD to stagger them, the way the medicine is released the doctor told ME it was better that way! And I have never gotten into trouble, they fall off so easy, especially in the summer, I lost quite a few before the adhesive started to eat away my skin and i stopped! They never worked good for pain for me anyway, and I KNOW my dose was high.I have nver experienced being treated like a criminal because of my medical history EXCEPT at the local emergency rooms! I can't believe how some states seem to be, I think they are pumping out young Dr's that don't want to relieve anyones pain, if it involves THEM having to write a triplicate! What do they think they make the drugs for? not just cancer patients, my son died of leukemia, and I am on more medication than he was..., for pain,..until the end.
Thanks, I never even noticed the date!. I will pay attention to the date from now on...but actually, I posted as a reply to someone that DID post not to long ago! The post showed up after the long-ago post! i don't understand the posting concept, but it is hard to reply to someone's question, they just put it (your answer), antwhere they want...unless I am missing something!
hello , i am so new to this that i am not sure if anyone is out there to hear me out . (please)..... i have use of one hand only due to an elevator accident. all this was in 2001. i have had 6 surgeries and lots of hardware put in my arm . damn elevator crushed me as i was exiting and and trapped me and i used my arm to push door open . i broke the blood supply to bone and got avascular necrosis. i have chronic pain , high blood pressure , diabetes, high cholest. , restless leg syndrome , and too much more . i have been on morphine ir for breakthur pain and fentanyl patches every 72 hrs. well after all the time was some what stable , when now my internal med. dr started doing urine test , 2 came back negative. oh no , never have i ever had any issues with drugs or alchol , i dont drink , smoke or dont even leave my home , my disabled hubby and i stay home and go out only for drs appts. well i was shocked , i asked her is there anyway something could be making this read neg.?? she said NO , I NEVER HEARD OF THAT .... OMG... i begged her pls do blood work , thats NEGATIVE AND I AM IN SHOCK . after reading on line this seems to occur more than known. again omg.... she will not prescribe my pain meds now and sent me to pain clinic , been there done that and was no help. they did some nerve block . well amy ideas or comments would be soooo welcome at this time. thanks in advance , goldy31160
This is what I've done for months now and it seems to keep that down time pain from happening. And if you will notice even at 72 hrs all the medicine is still not out of the patch. And if you have to pay for these you definitly want to use every bit of it cause they are very expensive when insurance doesnt cover them.
Hi! I just wanted you to know that I will pray for you and the rest of us...I feel for you, I really do...I suffer also and understand breaking points, depression(my own), "what am i going to do" thoughts and so on. I am glad I found this site since it makes me feel better to read that I am not alone...God Bless you!
Am on fentanyl for the second time, the first time the dr was stupid and the dose too low, no effect. Now on a higher dose and still in agony. The dr says to give it TEN days and come back and he will not allow anything for breakthrough pain. Next he wants to put me on methadone and that's very scary. I'm two days in on the new dose fentanyl and was reading this to see if it should have worked by now. Can't believe any dr suggested to put a heat pad on these things, is he trying to kill the patient??!! Any way good luck everyone, a life in pain is hell
Hello Mollyrae, I literally just had my first appointment at pain clinic on Thursday amd was put on a 50 fentanyl patch. The dr TOLD me tht heat induces the fentanyl faster so do tht, just not directly over patch. Also, it takes up to only12 hrs to get fully in your system but a full week to level out. U shud not be telling people to use more becuz u obviously dont no what your talking about. Maybe all docs are different but im pretty sure they wud stick with the same information.
I have read the comments here and would like to offer my OPINION here.
Being in the Fentanyl patch was horrible for me. It was supposed to help with the pain but I was too doped up to realize that I had lost an excessive amount of weight, slept all the time and did not care about what was going on around me. When I woke up one day and looked in the mirror and saw a face that scared the hell out of me, I got off the 50mcg of the Fentanyl patch because my weight was down to 108 from 150 lbs. It was rough but I did not want to be that person who I saw in the mirror that day. Since then I have gone back to the doctors to help correct my pain issues and insisted that the drugs were not doing me any good and what really needs to be addressed here was WHY was I in so much pain and what could be done about it. That is what needed attention here and I got a few answers and treatments but I really had to get the doctor to focus on the attention of treatments and not the drugs. Since then I am doing a little better. Went through a whole host of doctors for attention to what needed to be done and will continue to do so until I have some relief from my pain issues WHICH I have experienced in the past with proper treatments. That is the issue at hand so to everyone who is on the Fentanyl patch I say BEWARE of what this medication can do and the damage it does to your internal organs. My pancreas acted up because of all these pain medications I was on and now I have to take an enzyme for the rest of my life for pancreatic problems caused by these pain medication so BEWARE of the future and what is to come due to the damage that these medications can cause. Thank you for listening.
I was recently taken off one of my 100 mcq Fentynal patches after many years, my MS Contin all at once, and my Klonipin as well.
It's now been a month since my car accident, where I have no memory at all as to what even happened at all, and now was just told I had, had a stroke.
I had a bleed on my brain as well, I am still having many problems, especially with pain, but my boyfriend refuses to let me take anything other than the 100 Fentynal patch, which he now puts on well if it's it's Mon. he will put a new one on Wed.
I just don't want to be in pain, and want to be able to do a little around the house, but he just doesn't get it, will only help me in public
First time prescribed this for chronic lower back pain degenerative disk disease and bulging disks. I've been taking 10-325 vicodin morning, afternoon and evening 2 pills each time. My question is with the fentanyl 25mcg how alert I will be. I do a lot of driving for my job. I know I should not be but unfortunately I have to work so that's not an option.
My pain specialist told me today that fentanyl patches are used to relieve pain anywhere from 48 hours to 72, and if I am one of the ones who it only works up to 48 hours, he could write me a script for 15 a month so I could change it every 2 days, instead of 3, and insurances and pharmacists are aware of this issue with the patch and there is no problem with it.
Sorry Bout My Accent folks,..I have to agree with mr stnick on putting the patch on every 48 hours,1st month dose 25mg/72hr i complained he quickly said ill move you to 50mg. at 2nd apnt. i was on 4 300mg lyrica an 8/800mg gabapentin,i ruined any hope of being pals with him.i said thats too much to soon. I said im not a paitent here anymore,As im walking out,he offered if i promised to take each patch at exactly or later than last patch.then chastised me that it oughta have been enough?
then states,id have to buy the overage,non formulated portion.Im happy to buy an pay,just to not increase the dose.As an adult i think i hope we all know the danger of this medicine.id never heard of it,or a patch for pain,i never look up medicine,so as not to get preconcived side effects.you get 27minutes each viset by law.he just forcefully told me how dangerous it was.forgetting where to place it,my chest ..i looked like a rabid dog shaveing spots lol,now i put them on my inner forearm,least fuzzy on me,but no matter,they came off.i found a bandaid 3-M Nexcare wtr proof,costly,but no skin rash,no marks or pain,
i still screw up,i have cut them in half,to make them last,
i aint no doctor but id hope folks have common sense nuff to look up drugs they take,the mayo clinic has less spam an is easier to understnd for me.
I also wanna say how sorry i feel for all of you here goin through this liveing hell.i know what its like at 2am ur on the floor in a ball rockin back an forth.
again i am so sorry that you hurt..thanks fer lettin me speak Le'roy
your guess is as good as mine I have had 2 docs tell me at least 12 hrs a nurse say at least 12 hrs and the newest doc say 5 hrs so as far as I am concerned not even a doc can give a decent answer....go with what yer doc is saying if you trust them...I can not trust what any doc in my town says about it now so I refuse to take it anymore ....it has also put me in a life threatening situation cause I forgot to change my patch out....I personally think this drug is very dangerous and should be used with extreme caution
dont ever heat it up. my brother had used one for the first time and heated it up and it made him die. i cant say it enought, its very dangerous, it was the gel kind. he read it online to do it and that it was safe..and well u can not believe everything u read, you hafta ask your own Dr. because now hes gone, and he was only 30 yrs old, my baby brother RIP
Six years later yet still, I wanted to take a moment to thank you for posting this nytimes article.
I'm very concerned about starting the patch. From all of the patient feedback it seems so many write of how unhappy they've been with their experience as opposed to those commenting on success with it.
Omg, this may not seem painful to some? I just read this year's after you wrote it and nearly vomitted thinking of the pain you must be in. I'm still queasy. How are you? Has your medical team done anything to correct the movement of the rods?
All my best and bless you...
You are so correct, also, if you apply them sooner, you will run out sooner and no pain management center will write you an early prescription!!! So you will be going through very, very painful DT's. Plus, putting a heating pad over it is just plain suicide!!!
Old post I know but you are actually wrong according to my guy. I understand your point and I do exactly what you do, but at 72 hours, the old patch still has medicine in it and, more importantly, your skin still stores it and has it, so when you remove it and put the new one on, your body still benefits from the old one while the new one is kicking in. Now...the old one may not be strong enough for you at hour 72, which is why I do the same thing, but technically...people should wait. Also, I have never heard of the patches being legally prescribed in intervals of less than three days, so unless you have an amazing hook up...you would run out nine or ten days too early using your suggestion. Anyhow...just a discussion. I hope you are feeling well.
I'm on the 75mcg/h and I've found putting it on before bedtime and wake up with it working full blast. I've also found placing patch on bicep (upper arm muscle) and putting a 4"x4" waterproof bandaid over it to prevent leaking (if the adhesive on patch doesn't work well) and for peace of mind. I also write the date I apply it so I don't have to tracking it,, I just look! For transparency I use oxy 15mg ir for breakthru and together allows me to at least get groceries but not long outings. Without both these meds I can't even get out of bed. Hope this helps. Aloha
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