Aa
I dont know what to do about the pain anymore
HI all, I am new to the forums. I am 33 year old female with a Master's degree that has not been able to work for over a year. I am in the process of an SSI review. As a child I had issues with anxiety and depression but had made great gains until and overzealous psychiatrist prescribed an a-typical anti-psychotic for my anxiety and I suffered a bout of tardive dyskinesia. The TD resolved but began the pain cycle I have been living with for nearly 4 years.
I seem to collect syndromes....fibromyalgia, IBS, Sleep apnea, erythromelalgia, allergies and the list goes on. My GP started giving my Norco and a muscle relaxant a few years ago. I finally got a referral to the only rheumatologist in town. I finally had my appointment with the rheumatologist who disagreed with the two opinions I had received for erythromelalgia and basally said I will always be in some sort of pain from the fibro and should get a new outlook. He also said that I should stop taking norco and deal with my anxiety and depression. I showed him the letter from the therapist I have been seeing for 3 years who details all of the hard work I have done and the opinion that my anxiety and depression issues are making it difficult for me to get treatment for my medical issues. He said, "well, I guess that is why she is not a physician."
I felt and feel so trivialized by him. I cant believe others live in this amount of pain and cope with a new outlook. I have lost my life, job and the hope of getting married and having children gets farther away each day. My primary doc has me on up to 4 norco per day at 10/325. (is this a high does?) The dose was working until the last few weeks when the temperature hit over 100 degrees and has stayed there for 28 days. Now, even 4 norco are not easing my pain. I began getting pitting edema and was terrified about a month ago. I called my rheumatologist and he said verbatim, go see you primary doctor because it is not related to arthritis. I also showed him these weird bumps by all of my joints and he said it could be bursa or fat.....but never checked.
I have stopped eating aspertaine began trying to accumulate to a C-Pap and have been swimming for exercise. I have also change my diet to help control the IBS but the pain remains.
Is this typical of any of your experiences? I don't know what to do anymore. I am thinking about a pain specialist as I am aware I could use some more coping skills related to my chronic pain. My doctors make me feel like I am exaggerating the pain for fibro? Honestly, the only way I can function at all, meaning in the limited way I do now, is by getting enough relief from the pain meds to wash dishes, shower and other ADL's that used to be so easy.
This post is turning into a book :) I don't know exactly what I am asking other than have any of you had these experiences, with pain, meds and doctors and what did you do?
Thanks out there to anyone who has some feedback.
Michelle
I seem to collect syndromes....fibromyalgia, IBS, Sleep apnea, erythromelalgia, allergies and the list goes on. My GP started giving my Norco and a muscle relaxant a few years ago. I finally got a referral to the only rheumatologist in town. I finally had my appointment with the rheumatologist who disagreed with the two opinions I had received for erythromelalgia and basally said I will always be in some sort of pain from the fibro and should get a new outlook. He also said that I should stop taking norco and deal with my anxiety and depression. I showed him the letter from the therapist I have been seeing for 3 years who details all of the hard work I have done and the opinion that my anxiety and depression issues are making it difficult for me to get treatment for my medical issues. He said, "well, I guess that is why she is not a physician."
I felt and feel so trivialized by him. I cant believe others live in this amount of pain and cope with a new outlook. I have lost my life, job and the hope of getting married and having children gets farther away each day. My primary doc has me on up to 4 norco per day at 10/325. (is this a high does?) The dose was working until the last few weeks when the temperature hit over 100 degrees and has stayed there for 28 days. Now, even 4 norco are not easing my pain. I began getting pitting edema and was terrified about a month ago. I called my rheumatologist and he said verbatim, go see you primary doctor because it is not related to arthritis. I also showed him these weird bumps by all of my joints and he said it could be bursa or fat.....but never checked.
I have stopped eating aspertaine began trying to accumulate to a C-Pap and have been swimming for exercise. I have also change my diet to help control the IBS but the pain remains.
Is this typical of any of your experiences? I don't know what to do anymore. I am thinking about a pain specialist as I am aware I could use some more coping skills related to my chronic pain. My doctors make me feel like I am exaggerating the pain for fibro? Honestly, the only way I can function at all, meaning in the limited way I do now, is by getting enough relief from the pain meds to wash dishes, shower and other ADL's that used to be so easy.
This post is turning into a book :) I don't know exactly what I am asking other than have any of you had these experiences, with pain, meds and doctors and what did you do?
Thanks out there to anyone who has some feedback.
Michelle
My PCP, a D.O. as I said earlier treats me in several different ways. One is OTM which along with narcotics allows me better functioning.
From the American Osteopathic Association.
"D.O.s receive extra training in the musculoskeletal system-your body's interconnected system of nerves, muscles and bones that make up two-thirds of your body mass. This training provides osteopathic physicians with a better understanding of the ways that an illness or injury in one part of your body can affect another."
and..."Osteopathic manipulative treatment (OMT) is incorporated into the training and practice of osteopathic physicians. With OMT, osteopathic physicians use their hands to diagnose illness and injury and to encourage your body's natural tendency toward good health. By combining all other available medical options with OMT, D.O.s offer their patients the most comprehensive care available in medicine today."
I agree wholeheartedly with the above two paragraphs. I am not proposing that all DO's are as good as mine. I know that there are good and bad in every practice. I just got very lucky that she is such a kind hearted and understanding physician that is very knowledgeable about my condition.
An OTM can be a bit similar to chiropractic adjustments but much more comprehensive and preformed by a physician with more medical knowledge. I have a sacroiliac joint (SIJ)that is often displaced or out of alignment, causing me great pain. She is able to realign the SIJ along with my hips and pelvic cavity. It makes a huge difference in my pain level.
I hope this is the information you were looking for.
Peace,
Tuck
From the American Osteopathic Association.
"D.O.s receive extra training in the musculoskeletal system-your body's interconnected system of nerves, muscles and bones that make up two-thirds of your body mass. This training provides osteopathic physicians with a better understanding of the ways that an illness or injury in one part of your body can affect another."
and..."Osteopathic manipulative treatment (OMT) is incorporated into the training and practice of osteopathic physicians. With OMT, osteopathic physicians use their hands to diagnose illness and injury and to encourage your body's natural tendency toward good health. By combining all other available medical options with OMT, D.O.s offer their patients the most comprehensive care available in medicine today."
I agree wholeheartedly with the above two paragraphs. I am not proposing that all DO's are as good as mine. I know that there are good and bad in every practice. I just got very lucky that she is such a kind hearted and understanding physician that is very knowledgeable about my condition.
An OTM can be a bit similar to chiropractic adjustments but much more comprehensive and preformed by a physician with more medical knowledge. I have a sacroiliac joint (SIJ)that is often displaced or out of alignment, causing me great pain. She is able to realign the SIJ along with my hips and pelvic cavity. It makes a huge difference in my pain level.
I hope this is the information you were looking for.
Peace,
Tuck
What did your new doctor eventually do for you to manage the symptoms that you were going through? You're very fortunate to have met a doctor so kind and caring that's more than willing to help you with whatever it is that you need. There should be more like her around!
Wow, I have had trouble adjusting to the Cymbalta but my firbo pain is so much better. It is hard to tell if the Cymbalta is the reason as I also began taking Lyrica. Your post causes me concern. I will look into it. thx.
Hi,
Please go online and research Cymbalta. It almost killed me. It can have horrible side effects and is harder to wean off than heroin. I was on it for over 3 years and it turned me into a zombie. When trying to wean off I and many others suffered months of brain zaps. Please look it up. I am unwilling to be a human gunea pig for any of these new drugs. My female doctor stated " don't take any medication that has not been on the market for 20 years" The last 2 days have been horrible with my pain up around 9. On these days I take 3-4 Norco and Soma and just sorta do nothing and let it pass. I am so
sorry to hear about that cruel doctor who told you that you were just focusing on your pain.....duh! There are a bunch of inept doctors, just kiss him off and find another.
I have been to many over the years. a good doctor will listen and believe you.
Good luck and please EVERYONE research Cymbalta. I am joined by a group trying our best to get this drug taken off the market. Namaste, Teri
Please go online and research Cymbalta. It almost killed me. It can have horrible side effects and is harder to wean off than heroin. I was on it for over 3 years and it turned me into a zombie. When trying to wean off I and many others suffered months of brain zaps. Please look it up. I am unwilling to be a human gunea pig for any of these new drugs. My female doctor stated " don't take any medication that has not been on the market for 20 years" The last 2 days have been horrible with my pain up around 9. On these days I take 3-4 Norco and Soma and just sorta do nothing and let it pass. I am so
sorry to hear about that cruel doctor who told you that you were just focusing on your pain.....duh! There are a bunch of inept doctors, just kiss him off and find another.
I have been to many over the years. a good doctor will listen and believe you.
Good luck and please EVERYONE research Cymbalta. I am joined by a group trying our best to get this drug taken off the market. Namaste, Teri
Thank you for the update and the good news. I am glad that you took a chance and posted with us also.
I am hopeful that your new meds will help ease your pain and make you more comfortable. Please continue to keep us updated. We are here for you.
Take Care,
Tuck
I am hopeful that your new meds will help ease your pain and make you more comfortable. Please continue to keep us updated. We are here for you.
Take Care,
Tuck
First, I want to thank all of you yet again for your support. I was ready to throw in the towel yesterday and not attend my doctors appointments today. However, reading all of your stories and well wishes gave me the strength to take care of business today.
Crappy rheumy be gone. My GP was wonderful today and we are going to try Cymbalta and Ultram. I also received a referral to a pain management specialist and am set up with another sleep study. It is amazing the ups and downs and emotional energy the process of finding good treatment has been. I hate loosing hope. I am so glad I took a chance with this community and reached out. Kudos to all of you!!!
Crappy rheumy be gone. My GP was wonderful today and we are going to try Cymbalta and Ultram. I also received a referral to a pain management specialist and am set up with another sleep study. It is amazing the ups and downs and emotional energy the process of finding good treatment has been. I hate loosing hope. I am so glad I took a chance with this community and reached out. Kudos to all of you!!!
Hey Michelle,
welcome!!! I cannot believe the audacity and condesending attitude of that rheumy you have. Kick him the the curb honey and make a fresh start, First thing, If you do in fact have fybromyalgia, ( it is totally over diagnosed and mis-understood) Pain meds are not the answer. Personally I take Cymbalta ( anti-depressant) and Soma ( Muscle Relaxer) and they really help the pain of the fybro. I also have Psoriatic Arthritis ( basically Rheumatoid Arthritis with a Psoriasis kicker!) so I take a full regimine of Pain meds for them. Together my Rheumy and my Pain doctor work along side one another to help me deal with my pain, You know what gets me, We basically HIRE doctors and they are supposed to work for us not look down their noses at us telling us we are not worth their time, If I were you I'd report him to the AMA if for no other reason then to get it off your chest and make you feel better!!
Next Step, work with You PCP to find a specialist or two that you can see. Have your Dr do a full body work up ( not full body scan) take every blood test and stuff you can to point you in the direction of the proper specialist, but in the meantime your PCP can refer you to a Pain Doctor and you can at least begin on your way to being a little more pain free.
Everyone who has posted before me is absolutely correct, We are all here for you and you are not alone. Most of us Live with Chronic Pain and have found ways to deal with it but that doesn't mean that we don't all need the support and care from peers who know what it is to live with Chronic Pain, We have all delt with people thinking we are drug seekers or faking it or making it worse then it is and overreacting and to all of them I give a huge raspberry!!! thrrrppp! I am so glad you have found MedHelp and hope you find as much love here as I have. Even if all you want to do is post a huge rant about how miserable your day is going, someone will read it and reach out to you I promise!
Don't give up Dear, you deserve to live a pain free life, you deserve to be believed, you deserved to be treated and most of all you deserve to have your life back!!!
Contact me anytime Babe, I'm here for you as well
XOXO
Babs
welcome!!! I cannot believe the audacity and condesending attitude of that rheumy you have. Kick him the the curb honey and make a fresh start, First thing, If you do in fact have fybromyalgia, ( it is totally over diagnosed and mis-understood) Pain meds are not the answer. Personally I take Cymbalta ( anti-depressant) and Soma ( Muscle Relaxer) and they really help the pain of the fybro. I also have Psoriatic Arthritis ( basically Rheumatoid Arthritis with a Psoriasis kicker!) so I take a full regimine of Pain meds for them. Together my Rheumy and my Pain doctor work along side one another to help me deal with my pain, You know what gets me, We basically HIRE doctors and they are supposed to work for us not look down their noses at us telling us we are not worth their time, If I were you I'd report him to the AMA if for no other reason then to get it off your chest and make you feel better!!
Next Step, work with You PCP to find a specialist or two that you can see. Have your Dr do a full body work up ( not full body scan) take every blood test and stuff you can to point you in the direction of the proper specialist, but in the meantime your PCP can refer you to a Pain Doctor and you can at least begin on your way to being a little more pain free.
Everyone who has posted before me is absolutely correct, We are all here for you and you are not alone. Most of us Live with Chronic Pain and have found ways to deal with it but that doesn't mean that we don't all need the support and care from peers who know what it is to live with Chronic Pain, We have all delt with people thinking we are drug seekers or faking it or making it worse then it is and overreacting and to all of them I give a huge raspberry!!! thrrrppp! I am so glad you have found MedHelp and hope you find as much love here as I have. Even if all you want to do is post a huge rant about how miserable your day is going, someone will read it and reach out to you I promise!
Don't give up Dear, you deserve to live a pain free life, you deserve to be believed, you deserved to be treated and most of all you deserve to have your life back!!!
Contact me anytime Babe, I'm here for you as well
XOXO
Babs
I have tried to send you a note in return but your notes as well as your Messages are blocked. You can go to your account and unblock them if you wish. I'm not sure if you knew this. Please take care,
Molly
Molly
I read all of your comments with tears of disbelief and love. I have felt so alone. I cannot thank you all enough for sharing your stories and giving your support. Funny, I have felt more supported here than anywhere in my 4 year battle for relief. What a wonderful group!!
Well, I saw my ex-rheumotologist yesterday and he told me the reason I had to quit my job is because I focus on the fatigue and pain. He said that if I quit "focusing" on the pain and developed a new outlook I would regain my life. I stared at him in disbelief. I yet again paid him to blame me for my pain. He said, and I mean literally said, he is too busy with patients that really need his help to follow me. I asked him if he knew any primary docs who had the same knowledge of fibo as he did. He said no. I said, "You are the one to help me but you are too busy?" He went on to explain why primary doctors don't like patients like me because they are drug seeking and complain. When I asked about a pain management specialist he said they did not deal with chronic pain only injuries and that is wasn't for me.
It sounds from all of your posts that he is wrong and I should and will pursue this.
I spent the last 14 hours in bed...totally devastated. I feel reinvigorated having read all of your posts. I see my primary doc today, who is a woman and a DO (amazing how we seen to find the same things that work) but have to explain to her that due to my edema, 100 degree weather and attempt to be more active, that I am going to be short on my pain meds. Oh joy. I don't think I can take anymore blaming or discouragement today. Please think of me.
I was wondering if anyone has seen any literature out there about two new (at least to me) meds. They are tramadol and guaifenisin. SP? Have any of u tried these?
I have also been searching online and have seen some fibro clinics down south of me in LA and such. Anyone heard of good results with these?
I want to thank you all again. Your post gave me the fight to get through today. I have learned more from your posts than any doc so far! I am very grateful to have found this group.
take care
Michelle
Well, I saw my ex-rheumotologist yesterday and he told me the reason I had to quit my job is because I focus on the fatigue and pain. He said that if I quit "focusing" on the pain and developed a new outlook I would regain my life. I stared at him in disbelief. I yet again paid him to blame me for my pain. He said, and I mean literally said, he is too busy with patients that really need his help to follow me. I asked him if he knew any primary docs who had the same knowledge of fibo as he did. He said no. I said, "You are the one to help me but you are too busy?" He went on to explain why primary doctors don't like patients like me because they are drug seeking and complain. When I asked about a pain management specialist he said they did not deal with chronic pain only injuries and that is wasn't for me.
It sounds from all of your posts that he is wrong and I should and will pursue this.
I spent the last 14 hours in bed...totally devastated. I feel reinvigorated having read all of your posts. I see my primary doc today, who is a woman and a DO (amazing how we seen to find the same things that work) but have to explain to her that due to my edema, 100 degree weather and attempt to be more active, that I am going to be short on my pain meds. Oh joy. I don't think I can take anymore blaming or discouragement today. Please think of me.
I was wondering if anyone has seen any literature out there about two new (at least to me) meds. They are tramadol and guaifenisin. SP? Have any of u tried these?
I have also been searching online and have seen some fibro clinics down south of me in LA and such. Anyone heard of good results with these?
I want to thank you all again. Your post gave me the fight to get through today. I have learned more from your posts than any doc so far! I am very grateful to have found this group.
take care
Michelle
Hi Michelle,
Add me to the list of CP sufferers. It's been a few years for me, but this year I have been really bad. The rheumy I have now thinks I have some sort of autoimmune disease, and I also have Sjogren's syndrome, which is dry mouth and dry eyes and joint pain--it's horrible.
No doctor has EVER given me any pain meds. I guess my age (53) and my being overweight has something to do with it, but I am always told to *take tylenol.* Idiots. I'll never be addicted to pain meds, because I never get them. I guess I'm supposed to just suffer, and I'm getting really depressed also, but I am older than you. You are in your prime, and should have a life.
One thing you said is the bumps on your joints--it made me think of RA or maybe lupus? Have you ever been tested for these diseases? Keep in mind, you can still have an autoimmune disease with negative bloodwork. My bloodwork is negative for all of it, but the doctor said you have to go by symptoms also. I'm on a new med now, but so far I don't notice anything.
Get a new rheumy if you can. A lot of them are terrible, and if they don't see something on a test, they treat you like ****, which happened to you.
As far as the stomach, this can also be part of autoimmune disease, or I guess it could be from your meds. I know people say a lot of things about diet and healthy eating, and of course, it's important, but I still don't think it explains CP. Otherwise, everyone in the US would have chronic pain, and that's not happening. There are plenty of people who eat bad, smoke, don't exercise, drink, etc. etc and they walk around feeling fine. I just personally would not accept it if a doctor says *change your diet* or *exercise* or *get used to it.* It's more than that.
I wish you luck, and if you ever need to talk, I'm available.
Add me to the list of CP sufferers. It's been a few years for me, but this year I have been really bad. The rheumy I have now thinks I have some sort of autoimmune disease, and I also have Sjogren's syndrome, which is dry mouth and dry eyes and joint pain--it's horrible.
No doctor has EVER given me any pain meds. I guess my age (53) and my being overweight has something to do with it, but I am always told to *take tylenol.* Idiots. I'll never be addicted to pain meds, because I never get them. I guess I'm supposed to just suffer, and I'm getting really depressed also, but I am older than you. You are in your prime, and should have a life.
One thing you said is the bumps on your joints--it made me think of RA or maybe lupus? Have you ever been tested for these diseases? Keep in mind, you can still have an autoimmune disease with negative bloodwork. My bloodwork is negative for all of it, but the doctor said you have to go by symptoms also. I'm on a new med now, but so far I don't notice anything.
Get a new rheumy if you can. A lot of them are terrible, and if they don't see something on a test, they treat you like ****, which happened to you.
As far as the stomach, this can also be part of autoimmune disease, or I guess it could be from your meds. I know people say a lot of things about diet and healthy eating, and of course, it's important, but I still don't think it explains CP. Otherwise, everyone in the US would have chronic pain, and that's not happening. There are plenty of people who eat bad, smoke, don't exercise, drink, etc. etc and they walk around feeling fine. I just personally would not accept it if a doctor says *change your diet* or *exercise* or *get used to it.* It's more than that.
I wish you luck, and if you ever need to talk, I'm available.
Hi and Namaste to all of you. I too have the same story. Funny how Fibromites all have similar experiences. I have been to MANY Doctors and so called Speciality Clinics. In 5 years I have found nothing much helps. Don't worry about the Norco, you arent taking enough to worry about. I have been taking usally 3 a day and still never need more. I think when we are in real pain we don't abuse those meds. I hate to say this next thing as it is SOOOOOOOOOO tiring but, you must just keep looking for the right doctor. I agree preferable a female and an internist.
I have bad pain every day and yes, ladies hot weather makes it worse.
Just thought you might like to know, Teri
I have bad pain every day and yes, ladies hot weather makes it worse.
Just thought you might like to know, Teri
continued....Sorry....I hit the post button in error....didn't even get to do spell check...again sorry.
So I encourage you to keep looking. See different physicians. Some one out there has a diagnosis for you. You will find a kind, patient physician who will understand you and listen. They do exist.
Internal medicine physicians are more specialized and of course I think a good DO can be better than a MD. I also think a female physician makes a difference. I avoid males physicians.
The suggestion to see a PMP is also a good one. It does sound to me like you are seeing a therapist that has been helpful and understanding. However PM therapists can speak directly to PM.
In response to your question regarding the dosage of Norco you are on, no it is not high. There are other more potent opiates that may better control your pain and that's where a good PMP may be able to help. At least you shouldn't be dismissed.
Please let us know how you doing. We will look forward with interest to your updates. We can relate to what you are experiencing. I hope you will become an active memeber of our community. Best of luck to you.
Take Care,
Tuck
So I encourage you to keep looking. See different physicians. Some one out there has a diagnosis for you. You will find a kind, patient physician who will understand you and listen. They do exist.
Internal medicine physicians are more specialized and of course I think a good DO can be better than a MD. I also think a female physician makes a difference. I avoid males physicians.
The suggestion to see a PMP is also a good one. It does sound to me like you are seeing a therapist that has been helpful and understanding. However PM therapists can speak directly to PM.
In response to your question regarding the dosage of Norco you are on, no it is not high. There are other more potent opiates that may better control your pain and that's where a good PMP may be able to help. At least you shouldn't be dismissed.
Please let us know how you doing. We will look forward with interest to your updates. We can relate to what you are experiencing. I hope you will become an active memeber of our community. Best of luck to you.
Take Care,
Tuck
Hello Dshell,
I'd also like to welcome you to the Pain Mangement Forum also. I am so sorry to hear about the agony and treatment you have experienced due to your undiagnosed chronic pain (cp).
My symptoms are not very similar to yours but I did suffer for years with undiagnosed CP. Most every physician I saw treated me as you were treated with disbelief, disdain and dismissal. I gave up. I was too exhausted from fight the cp to fight the system. Many know my story. One day I was forced to select a new physician as mine left the clinic, didn't much like him anyway. Long story short I selected a female, Internal Medicine D.O. (doctor of osteopathy). She had only been practicing for a year. After she treated me for kidney stones on the first visit I returned for a follow-up. It was a particularly painful day and she said could tell that just by looking at me. She asked what was wrong and I began to cry (I'm not a crier). I poured out my heart to her telling her about my 9 year long journey seeking reasons for the cp and the fact that I had given up even telling physicians I had CP in the previous 5-6 years. Within a week she had a tentative diagnosed that was subsequently confirmed.
I'd also like to welcome you to the Pain Mangement Forum also. I am so sorry to hear about the agony and treatment you have experienced due to your undiagnosed chronic pain (cp).
My symptoms are not very similar to yours but I did suffer for years with undiagnosed CP. Most every physician I saw treated me as you were treated with disbelief, disdain and dismissal. I gave up. I was too exhausted from fight the cp to fight the system. Many know my story. One day I was forced to select a new physician as mine left the clinic, didn't much like him anyway. Long story short I selected a female, Internal Medicine D.O. (doctor of osteopathy). She had only been practicing for a year. After she treated me for kidney stones on the first visit I returned for a follow-up. It was a particularly painful day and she said could tell that just by looking at me. She asked what was wrong and I began to cry (I'm not a crier). I poured out my heart to her telling her about my 9 year long journey seeking reasons for the cp and the fact that I had given up even telling physicians I had CP in the previous 5-6 years. Within a week she had a tentative diagnosed that was subsequently confirmed.
A very good friend of mine, and next door neighbor, is a doctor. I dont use him as my family doctor, would be kinda strange, but he and I have had several discussions about this exact subject. He is also aware of my situation.
One night we were talking in the middle of the street and I came right out and told him "doctors are heartless." While his exucse was a good one I told him it was not good enough. When a person is lying in a hospital bed or waiting in the ER...they are scared, nervous and don't know what is about to happen to them. By the way...his excuse was "we see it everyday so it is just another day at the offfice for us."
While lying in a hospital bed....I read a book by Jordin Ruben several years ago. He was in about the same situation we are and was actually preparing to die at a very early age. I cannot recall the exact age..If I remember correctly he was in his late 20's.
Similar symptoms to ours, could not eat anything, doctors could not help and he was in pain. He went somewhere out on the West Coast and began to change his diet to someting similar to the early Bible days. Organic foods and nothing prepared or out of boxes.
I've done a lot of research on this during the past year and have found that our food supply is pure poision. WHile I have not yet been able to notice any huge differences in my health I have drastically changed my diet to nothing but fresh fruits, vegetables and fresh meat..according to Jordin's book. I am convinced that most of our health issues are food related. Try reading the ingrediants on the back of a cereal box, mac & Cheese or anything else like that. I've never heard of those words.
Anyway.....It was good to hear back from you and hope today is better. What part of the country do you live in?
One night we were talking in the middle of the street and I came right out and told him "doctors are heartless." While his exucse was a good one I told him it was not good enough. When a person is lying in a hospital bed or waiting in the ER...they are scared, nervous and don't know what is about to happen to them. By the way...his excuse was "we see it everyday so it is just another day at the offfice for us."
While lying in a hospital bed....I read a book by Jordin Ruben several years ago. He was in about the same situation we are and was actually preparing to die at a very early age. I cannot recall the exact age..If I remember correctly he was in his late 20's.
Similar symptoms to ours, could not eat anything, doctors could not help and he was in pain. He went somewhere out on the West Coast and began to change his diet to someting similar to the early Bible days. Organic foods and nothing prepared or out of boxes.
I've done a lot of research on this during the past year and have found that our food supply is pure poision. WHile I have not yet been able to notice any huge differences in my health I have drastically changed my diet to nothing but fresh fruits, vegetables and fresh meat..according to Jordin's book. I am convinced that most of our health issues are food related. Try reading the ingrediants on the back of a cereal box, mac & Cheese or anything else like that. I've never heard of those words.
Anyway.....It was good to hear back from you and hope today is better. What part of the country do you live in?
Hi Mshell:
Welcome to the Pain Forum. Most of us really do understand what you have and are going through. My advise to you is to find a Pain Management Doc and a Pain Psychologist as well. One to treat the physical, the other to treat the mental part of the pain.
My Doctor has urged me for years to see a Pain Psychologist but have not had the courage to this day. He has tried to explain how they can really help with the anxiety part of the process. I will listen to him one of these days.
The Rheumatologist has no heart...very bad bedside manner you might say. You really need to get rid of him as he has done nothing for your pain or spirit.
MedHelp is a wonderful place to get advise, give advise or just vent if you need to. I found MH about a year ago and have been here ever since. You may find it as comforting as many of us do...stick around awhile and see for yourself.
There is always help out there....you just have to find it. Be assertive in your quest for a good Pain Management Doctor...It may change your life for the good.
please take care and good luck with it all. We are always here for you.
Mollyrae
Welcome to the Pain Forum. Most of us really do understand what you have and are going through. My advise to you is to find a Pain Management Doc and a Pain Psychologist as well. One to treat the physical, the other to treat the mental part of the pain.
My Doctor has urged me for years to see a Pain Psychologist but have not had the courage to this day. He has tried to explain how they can really help with the anxiety part of the process. I will listen to him one of these days.
The Rheumatologist has no heart...very bad bedside manner you might say. You really need to get rid of him as he has done nothing for your pain or spirit.
MedHelp is a wonderful place to get advise, give advise or just vent if you need to. I found MH about a year ago and have been here ever since. You may find it as comforting as many of us do...stick around awhile and see for yourself.
There is always help out there....you just have to find it. Be assertive in your quest for a good Pain Management Doctor...It may change your life for the good.
please take care and good luck with it all. We are always here for you.
Mollyrae
Thank you so much for your support, it means a great deal to not feel alone. I know my friends and family mean well but when you are not in chronic pain I think it may be a hard concept to understand. I am gearing up for 3 doctors appointments this coming week and feel better knowing I am not alone. I do need to keep up the fight.
I wonder what the heat connection is? I find it very intriguing especially since what I have read states that fibro patients usually suffer in the cold. One thing I have noticed is that I don't get treated as an individual but rather a set of symptoms and when a symptom is out of "range" in the doctors expectations they simply ignore it. I have also found that when a doctor has no answers they are reticent to admit it and simply blame me somehow.
It is comforting to know someone else really understands. Thanks.
Mshell
I wonder what the heat connection is? I find it very intriguing especially since what I have read states that fibro patients usually suffer in the cold. One thing I have noticed is that I don't get treated as an individual but rather a set of symptoms and when a symptom is out of "range" in the doctors expectations they simply ignore it. I have also found that when a doctor has no answers they are reticent to admit it and simply blame me somehow.
It is comforting to know someone else really understands. Thanks.
Mshell
Hi Michelle,
I'm sorry to hear about your situation...in fact...it is exactly like mine. I'm 45 years old and in farily good shape. 4 years ago I have emergency surgery to remove my gall bladder and appendix and it has been downhill since then.
I have developed some kind of food allergy and have drastically changed my diet in an effort to deal with chronic stomach/abdominal pain. I take anywhere from three to five 5/3325 Norcos per day and have noticed that my stomach problems developed about a year after I began taking the Norco. I'm sure the Norco is why we have stomach issues.
I too have been to several doctors only to leave their office feeling dejected and trivialized...IT IS FURIATING! I know exactly what you are going through. One thing I do find interesting is you mentioned that your pain seems to increase when the temp is approaching 100 degrees....THAT IS EXACTLY WHAT HAS HAPPENED TO ME! This past month has been anywhere from 95-100 degrees each day and I am absoulutely misserable.
Unfortunaetly the only thing I can offer you at this point is the fact that you are not alone in this fight...I am right there with you. We seem to have almost identical symptoms and the same problems with doctors. What suckz is our bodies are dependent on the norco for relief. I have tried several times to quit cold turkey but the pain is too much to deal with. Right now I am in a tapering plan..hopefull within a month I will be down to just 10mgs per day.
Never give up...never quit fighting. Our lives are too short to let azzhole doctors cheapen us and instantly brush us off when trying to inform them of our situation. Lets stay in touch. Maybe we can help each other when times seem difficult. I sure could use it.
Dean
I'm sorry to hear about your situation...in fact...it is exactly like mine. I'm 45 years old and in farily good shape. 4 years ago I have emergency surgery to remove my gall bladder and appendix and it has been downhill since then.
I have developed some kind of food allergy and have drastically changed my diet in an effort to deal with chronic stomach/abdominal pain. I take anywhere from three to five 5/3325 Norcos per day and have noticed that my stomach problems developed about a year after I began taking the Norco. I'm sure the Norco is why we have stomach issues.
I too have been to several doctors only to leave their office feeling dejected and trivialized...IT IS FURIATING! I know exactly what you are going through. One thing I do find interesting is you mentioned that your pain seems to increase when the temp is approaching 100 degrees....THAT IS EXACTLY WHAT HAS HAPPENED TO ME! This past month has been anywhere from 95-100 degrees each day and I am absoulutely misserable.
Unfortunaetly the only thing I can offer you at this point is the fact that you are not alone in this fight...I am right there with you. We seem to have almost identical symptoms and the same problems with doctors. What suckz is our bodies are dependent on the norco for relief. I have tried several times to quit cold turkey but the pain is too much to deal with. Right now I am in a tapering plan..hopefull within a month I will be down to just 10mgs per day.
Never give up...never quit fighting. Our lives are too short to let azzhole doctors cheapen us and instantly brush us off when trying to inform them of our situation. Lets stay in touch. Maybe we can help each other when times seem difficult. I sure could use it.
Dean
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