Welcome to the Pain Management Community. I am sorry to hear about your leg pain induced by ambulating. Is this new for you? Do you have this or a similar feeling at rest?
How long as this been occurring? Were you inactive for awhile and just began walking again? Are you lower extremities swollen or red... or do they just feel heavy and tired? Do you have any other symptoms?
Is your heart healthy? Do you have diabetes or have you been diagnosed with circulatory problems? It could be that your legs are not getting enough nutrition and/or oxygen when you ambulate which would also indicate a circulatory compromise like PAD (Peripheral Vascular Disease).
It could be as simple as your calf (gastrocnemius) muscles are just out of condition. Additional information would be very helpful with our suggestions. Obviously you should consult your PCP. He/she will have the best answers for you.
Yes my lesg hurtmost of the time, even at rest. They are not red. This has been going on for some time. Exactlly how long, I do not know. My feet do swell but go down at night. They only feel that tired feeling with pain when I walk. I had knee relpacemen years ago in which I was placed on my back for weeks. I was not allowed to walk for quite awhile. My knee feels like it has a tight rubber band that is quite wide around it. It does not bend well. On the inter side of my right leg about a half hand from my ankle, there is a roung blue spot that feels like a knot and lokes like a cluster of blood vessels. What it is, I don't know. I do have an appointment for my doctor on the 5th. of July. My chemical stress test last year was fine. I do not have diabetes. I wondered if this could be a circulatory problem or clots. Mu feet are very tender. No matter what shoes that I wear, my feet hurt. My legs have hurt for quite awhile. It seems like they are getting worse. I feel like if nothing is done, I may be in a wheel chain in a year. I do not walk much because of the pain in my legs. My gate is bad due to the knee.
I'd like to join Tuck in Welcoming you to the PM (Pain Management Forum). I'm so happy that you have found us!!
I'm sorry that you are experiencing these problems with your legs. I was wondering if this is one leg or both of them? If it is only one, is it the one with the TKR (Total Knee Replacement) or is it the other one?
Your second post, in answer to Tuck's insightful questions, has shed a lot more light on your condition. I have had 3 THR's (Total Hip Replacement) so I know what it's like to live with an implant. You definitely could be experiencing some circulation problems, as I did with my THR's. I keep getting "bruises", with knots under them, that "pop" up, for lack of a better term, without anything causing them at all. My Orthopedic Surgeon and PCP are at a total loss as to what is causing them. These bruises are "popping" up on both of my legs, even though all 3 THR's have been done on the left hip. I, also, have swelling in my ankles from time to time that goes down when I lay down at night, just as you do. I have had an angioplasty done on both of my legs and yet nothing was found, which surprised them. Because of that I stopped one of my Celebrex capsules and believe it or not that slowed down the bruising. Seemingly, I was getting to much blood-thinners in my system and the bruises were "popping" up constantly. Now they "pop-up" much less frequently. Do you take any blood-thinners such as Plavix or coumadin or for that fact any aspirin or Celebrex or anything along that line of medications?
May I ask if you completed all of your Physical Therapy after your TKR? With your knee feeling as if it has "a tight rubber band around it", it sounds as if your muscles have tightened up quite a bit. That must be extremely uncomfortable for you. :(
Which Doctor are you going to see on July 5th? Is it your PCP or is it your Orthopedic Surgeon? If it's not your Orthopedic Surgeon, may I recommend that you make an appointment with him and get some more follow-up x-rays done of your TKR and see if everything still looks as it should? He needs to be aware of what your legs are doing, especially your operative leg, as well as what your TKR is feeling like. So many things can happen after the type of surgeries that we have had.
I hope that you will keep us informed of what your Doctor tells you and what, if any, type of further testing he/she will order for you.
I'm keeping my fingers crossed that you will get the answers that you need so that you can remain "out" of that wheel chair for a very long period of time. You and I are basically the same age. I will be 65 on the 12th of July, so I don't know if our age is playing a part in any of this or not. It sure seems that the older we get the more problems come up, doesn't it. :(
Just know that I have you in my Thoughts and Prayers and we'll be looking forward to your updates...........Sherry :)
It is mostly my right leg that does this with the knots. I do have a large bruise on the left one. Both feet and legs swell, mostly feet. I am going to my PCP on the 5th. I do not feel good about the Orthopedic Surgeon that did my total knee replacement. He kept me on my back way to long, This knee has never bent well since the surgery. It went way down before they did the surgery. They had to sit on my knee to get it down flat. I kept falling before surgery. I take one baby asprin a day since both parents had heart problems that lead to their death. I did complete all the PT after my TKR. I try to stretch out the tendons in my feet at night while I lay in my bed. T tried to bent my leg up that has the TKR and had a bad charlie hourse. At times I walk better than others. If I have to sit very long, my feet and legs swell so bad that I can hardly walk at all. This is when I have my feet down. Thanks for the comment
You know I'm wondering if they attached your tendons back to your knee incorrectly, and they are to tight. In other words, did they give you enough flexibility around your knee. Did they shorten them in some way? I hope I'm making some sort of sense here to you.
I'm just like you, in that both of my feet would swell as well as my legs from my knees down. They still do that at times, but it is beginning to get a little better.
The reason that my Doctor's took me off of one of my Celebrex to try to correct my bruising and knot problems, was that they felt that my blood may have been just a little too thin and that was causing the bruising. It did help me, but since you aren't on as many "thinning" medications as I am, that shouldn't be a consideration as far as you are concerned. I'm on Plavix 1 x day, .81 mg aspirin 1 x day, Celebrex 200 mg. used to be 2 x day now 1 x day. Fortunately, that simple solution has helped the bruising for me. However, it has caused my arthritic fingers to cramp up and stay in a frozen position when I clench my fingers. :( Seems like if it's not one thing it's another. LOL
Did the Therapist notice anything different about the tightness of your tendons when you went to PT? Was anything ever mentioned about it to you?
Will you let me know what the PCP says after your appointment? I'm really concerned about you!! TKR is really a difficult surgery. In my opinion, I think it's the most difficult of all the replacement surgeries to rehabilitate from. I think that you are remarkable to be hanging in there as you are.
My doctor had me on my back for a very long time also as I had a break in my Femur and wasn't allowed to be weight bearing at all. However, they had a machine that they attached to my feet (that drove me crazy) that would pump up and massage my feet every few minutes to keep the clots from forming. Did your surgeon have anything like that for you? I can understand you not wanting to go back to your surgeon that you don't trust. I hope that you will consider getting a second opinion from another surgeon that knows nothing about your case. Sometimes a "fresh set of eyes" will make a world of difference. Hopefully, they might see something that everyone else has missed!!
Do you mind telling me how many years ago your surgery was?
The thing that really concerns me is the fact that your legs are hurting as well as your feet and that could be indicative of clots in your legs. Therefore, please be careful in everything that you do until you see your PCP. Please insist that they do a CT Scan to see if you have blood clots. As you know, this is crucial, as clots are life threatening!!!
I will be on pins and needles until we hear back from you after your Doctor's visit!!
You are in my Thoughts and Prayers...........Sherry :)
Yes, my Therapist did notice the tightness. He put me on a slant board which felt like I was going to fall off besides hurting alot. I did this at home also as my husband made me a slant board. He also tries to br4eak my knee loose by pulling it up and over my bach and head. He could not break it loose. I cried my heart out because of the pain from that. I was not a young woman any longer and not only did it hurt ny leg, it hurt my back. The only place that felt good in PT was the warm swimming pool to do my exercises. I even joined a fittness center that had a pool, hot tub, and sauna. I went every day. I did all the exercises that could be done at home also. I was on the pump for three days after surgery, them moved to the rehab side for three weeks. I could not lift my leg until a little machine was put on it to send charges to the muscles. This surgery was either in 1997 or 1998. I can't remember. I rather have all five of my children over again than to have one of these surgeries. It had gotten to the point that I would fall just trying to get out of a chair. My arms and shoulders would not lift me any longer. I had pulled and worked them half to death. All my weight was being put on them. I could hear the crushing in my knee at night in the bed and it would sometimes lock up on me as to where I could not move. I cried in my bed at night. I am concerned also. This is why I write on this. I hate to go to the doctor. However, I am going to mine Tuesday morning. I will let you know what he says. The bottom of my legs are cooler that the upper part. That concerns me also. I am so limited to doctors because of insurance that goes with medicare. I don't trust all surgerons. I am sure that is mostly because of the experience that I had with with leg. I am not saying that it is his fault. I just don't know why it did not work so well for me. I know others that have problems after replacement also.
Thanks for your thouhts and prayers. I can use all I can get. I certainly believe in prayer........
That tightness feeling may be due in part to the swelling as well as any muscle or ligament shortening or atrophy. The amount of swelling concerns me. Your PCP may prescribe a diuretic to help get rid of the fluids in your lower extremities.
I would want to know what is causing the edema (fluid retention.) When you press on the area of swelling does it indent and remain indented for a time? If so this may be what is called pitting edema. Something that may help is when sitting try to keep your feet at or above the level of your heart. Do this several times through out the day.
Don't massage your legs until you have consulted your PCP. Your symptoms don't sound like a clot to me but just to be certain don't do anything that would "move" that clot. Usually a thrombosis (clot) is unilateral rather then bilateral. It doesn't sound like a cellulitis either, for the same reason but I am not a physician and far from an expert so please be cautious until your consult.
You may also benefit from some additional physical therapy. Your far too young to be so sedentary and limited in your activities, even though you may not feel young some days. My heart goes out to you.
If you have good support stockings they may help with the pain and swelling too. Apply them before getting out of bed. The rational behind that is to apply them before the fluid and blood supply has not had a chance to pool in your lower extremities.
I certainly understand your dislike of surgeons... but don't let one spoil your opinion of all. There are some great surgeons out there as Sherry, I and others can attest. It may behove you to consult another surgeon, not associated with your former one. I know you experienced extreme pain from the TKR but a little more pain for a short time may reduce your current levels and avoid further deterioration. Also remember that since 97 or 98, progress has been made in the procedures ... and a good surgeon (if surgery is appropriate) will do his/her best to assure you are more comfortable and have better results.
"Bad knees" runs rampant in my family. Every female member in my immediate family has either had to have a TKR, is facing one in the future or just plain has "bad knees" in some shape or form. I've been putting off knee surgery (patella) for two years now. So I can relate to knee pain, not as extreme as yours but I do know how it can effect your pain and acitivity levels
Please let us know the results of your appointment. I'll look forward to your update with great interest. I too will keep you in my prayers.
I do not have pitting edema. That is most of the time. Right now the swelling is down and I still have pain trying to get up and to walk.. Mu legs turn white when I press on them to check the edema. It feels like my achillles tendon is way to tight. I try to stretch it out with no luck so far. I really have no idea what is wrong.... That is why I decided to go to the doctor tomorrow morning. I feel like the quality of my life is taking a down spin. It is hard for me to do anything. I hate to go to the store anymore. It takes all I have. I also have a skin disease called letchin schrosis which gets worse with heat.. This prevents me from wearing anything that holds in heat. I am not sure about the spelling. That also can get quite painful and has no cure. I will let you know what the doctor says tomorrow.
I scheduled an appointment for this morning to see my doctor. They made it for the wrong doctor. The office will call me back and let me know when I can go in. They had a Temp. working and she messed it up. Oh well, try again. I let you know after I see him.
We'll be looking for your update!! I hope that they are able to make it "quickly" so that you can finally begin to get the answers that you need so desperately!! I know how horrible it is to have to wait when you are having such sever pain after a surgery and it just won't let up or go away at all. When you are having to languish in this pain, it saps all of your strength and leaves you totally helpless to be able to do anything at all!!
I want to thank both of you so much for your time, concerns, and prayers. They really meam alot to me to know that there is someone out there that does not even know me that can be this concerned about my health and welfare. Thank you.
I did not see the doctor that they made an appointment with since I did not know who he is and he does not know me. I have gone to my doctor for years and consider him to be one of the very best. I trust him alot. I do not have chest pains. The only shortness of breath that I have is from my ashma. I do elevate my legs as much as I can. Believe me when I say I feel that I rest them alot. It is hard for me to get around. My doctors nurse does know my symptoms and has informed my doctor by prhone. He does want to se4e me Friday morning when he gets back in town. The other doctor's office knows the symptoms also. They went to my doctors nurse and had her call me right away. I just feel better going to someome that knows me. If my doctor can not answer my questions, he will send me in the right direction and even get the appointment for me. Again, than you so much. Both of you really touch my heart. You have spent so much time on me.
I'm really glad that you are going to your Doctor as he knows everything about your symptoms, as well as your Health History and seems to be a really caring Doctor. I'm sure that he is concerned about what you are going through and will send you in the right direction to get the answers and the help that you need. It's definitely "no fun" when you've had surgery and it 's not feeling the way that it should. I know it's been at least 113 or 14 years since your surgery, but it never should have given you this type of problems for all of these years. They should have been there for you from the beginning to try to find out what was going on with the TKR.
As I said, my 2nd THR was done incorrectly and was loose from the day of the surgery and I walked on it for over 4 years and it would go "in and out" of place at will. I would have to lay flat on my back for the Hip to go back into place. Like I said before, I'm not saying that yours was done incorrectly but you need to get some answers and quickly so that you don't have to be in this type of discomfort any longer.
We will be anxiously waiting to hear what the next step is for you in your quest for answers about your pain!!
I truly believe that we are as anxious about your appointment on Friday as you are!!! :)
We'll be here waiting to hear from you...........Sherry :)
I went to my doctor today. He believes that my problem is varicose veins. He is sending me for a CT scan and then I see another doctor that specializes in veins. They are checking my circulation. He said that this new doctor may give me support stockings to wear. This is where I am now. The CT scan is on the 15th and the doctor appointment is on the 18th. I go back to my doctor in two months. He made these appointments for me.
Thanks so much for your prayers and concers plus all the time you have spent with me.
My doctor did not say what he thought might be caysing my knee to be so tight. I doubt if he knows. He ordered the CT scan so I do not know if it will include my knee or not. I will ask Dr. about it when I go after the scan. I believe it has something to do with the knee replacement itself. It has felt that way since I had the surgery. It feels just like a wide rubber band is around my knee tightly.
Thank you. My feet are so swollen and legs tonight that I can hardly walk. I am going to bed and hope that they will be down in the morning so that I can go to church. I did have a beautiful day today with my grand daughter for her birthday party.
I had a phone call from the nurse of the doctor that I see tomorrow. She said that the test that my doctor ordered was the wrong one. He ordered a doppler and they want a lateral, I think that is what she said. The test that I took was a ultra sound, but the wrong one. After I see him tomorrow, he will let me know what I need for sure.
Just letting you know the news as I get it. Thanks so much.
general0 or Leah
I went to the vein spec. today. He said that my problem were valves in my legs. I go back Monday at 11 am and they will run the right kind of ultra sound, then go see him and he will tell me the plan of action. He says he can help me. I somtimes feel like my whole body is falling apart. I go to bed every night with legs and feet swollen. I wake up with my lowe back hurting. He did look at that knot on my leg. What he called it, I don't remember. As far as the knee I am sure I would have to see an orthro doc. I will know more Monday from this doctor. I'll let you know. At least I am getting answers. He is really a nice older man. I like him. Thanks again,
general0 or Leah
Leah - Half the battle is finding a Doctor that you like and trust and you've managed to do that!!! Good for you. :)
My Dear, we all understand what you are felling about your "whole body" falling apart. I seriously wish I had words of wisdom to give you about your legs and feet swelling each night. I can't think of anything worse than that feeling when your body swells and you feel as if your skin is going to "burst" open. I'm sorry, but there's nothing I can add to any of what you said about it. The feeling of tightness that your swollen skin causes is beyond anything one can say. It makes me feel like a balloon that's been blown up to the maximum and is going to Pop!!! You feel like when it does Pop, that you will "fly around the room" and never stop!!
I'll be anxiously waiting to see what your Doctor says about your condition. I'm hoping you will finally get the answers that you need!!
Went to the doctor Monday. He ran the ultra sound . There were no blood clots. Everything was fine except for my valves. He told me to wear compression hose on my lower legs for the rest of my life and walked out. I went into his office and asked him if this can get worse even wearing the hose. He says yes, but showed me a picture of how they would get if I don't. He did not explain anything to me. I went home and researched it myself. It could get to the point that blood clots form, or I could loose my legs. He offered me nothing as to how I could prevent this, no exercises, diet ot anything. Today, I recieved a report from my regular doctor. It said that there are normal arterial waveforms and doppler evaluation present throughout both lower extremeties except for the anterior tibial artery bilaterally, which shoes monophasic blood flow. ABI's were not performed. No stenosis is noted. What all this means, I do not know. I put my feet up as much as I can above my heart, exercise while up, and do what I think is best. All I do know that there is pain. I feel almost as confused now as when I went into his office the first time. I am really feeling depressd. He told me Friday that he could help me. Now he says that is all he can do is give me a prescription for stockings.
Leah, you need to go and get a 2nd opinion immediately!!! Don't put up with this as a final answer. I'm not saying that there is another solution but there is a doctor out there that will explain your Ultra Sound to you the correct way, and will answer all of your questions!!
If it were me I'd start with my regular Doctor and go from there. I'm appalled at the way you were treated today!! No one should be treated in that way. When we go to a Specialist, we are all frightened, especially when we don't understand what is going on and we are in constant pain. I still can't believe how you were treated!!!
Please don't give up!!!!! Get those answers!!! You know that we will be here for you. None of us are going anywhere!! We will give you the backing and all the support that you need. We'll be looking for your updates!!
I'm sending you Warm ((((HUGS))))............Sherry :)
Thanks for your quick reply and support. I'm not giving up. I feel like the lady on the cancer commmercial. "You have a certain amount of time to live and there is not anything I can do for you." Wow! He was telling me to get the stockings and there was nothing he could do for me, The Friday before that he told me it was my valves and he could help me. I had to go into his personal office and ask could it get worse even though I wear stockings. I knew the answer since I read it for myself. He shows me a picture of a set of legs of what they would get like if I don't, I asked him about getting clots anyway. I knew the answer was yes to both questions. He confirmed it, but offered no way to prevent it. I cried for the rest of the day.
After looking at a friend of mine, who is a cop, I feel that I should not conplain. He was hit while on a sidewalk three times by some woman. All she got was a ticket. He is going through five surgeries on his leg and could loose it. She ran over him three times. They just cut out alot of bone and tissue and put in a cement rod. He has been through so much with this one leg. He now has marsa also. He was just doing his job. Now his family lives on his workman's comp. So why am I crying about my legs? We can always look around and see someone worse off than we are.
I do have an appointment for tomorrow afternoon at 2:00 for a second opinion. I am not buying the compression stockings as advised from lady at medical supply until I see this new doctor. She says all the compression hose will do is to keep down the swelling. I'll let you know what this one says when I get home. Thanks!
Doctors office called and changed my appointment until 3:30 on Tuesday. Something happened and they needed to change it. I was just so happy that they could see me as soon as even that. There are so very few vein Spec. in this town. Just pray that there is something that he can do, not just send me home with knee high compression hosery.
Please pray for my friend down in Houston. He is going through so much with his leg. He is the cop that the lady hit and ran over three times.
I can hardly wait until I hear from you about your appointment!! I'm hoping that you will have your answers finally!!
I'm sorry that I'm just now getting back to you, I've been off the computer for a few days. :(
Believe me, I've included your Friend in Houston in my Prayers!!! How sad that such a wonderful man was injured in such a terrible way!!! I hope and Pray that they are able to save his leg and that he will be able to return to work. At least to a desk job with the Police Department. Bless his heart!! Please keep me updated on his progress, too. :)
Looking forward to hearing from you soon, at least on Tuesday........Sherry :)
Believe me that sometimes I just stay away from the computer too. I pray that this doctor will be able to help me even if it is how to keep off bloodclots or having this to progress. I really need someone to be honest with me and give me the information that I need. I do pray that there is something they can do. Believe me, I do pray for this young man. I will keep you informed about him. I'm sure that he has a long way to go yet. He is such a nice young man. Will talk to you Tuesday evening or Wednesday morning.
I want to thank you two for the time and concern you have given to me. I am sorry that I did not write to you yesterday. I hope that you understand.
I went to the doctor yesterday to get a second opinion hopeing that I would be given new information about how he could help me with my legs. This did not happen. He says that he wishes that he could tell me about some surgery that he could do for me to help the valves in my legs, however there are none. He confirmed what the other doctor said. He told me to wear the compression hosery up to my knees. This should help with the pain. He also said that RIGHT NOW I should not have any concerns. I was concerned that even with me wearing these it can worsen, throw off blood clots, I could loose my legs, or my life. He did not address that.
It is really hard to loose weight when it hurts to even walk. I just hope that these knee highs will do the trick so that I can walk without the pain. I will be getting a pair when my husband gets paid. This morning I am having to fight my feelings about all of this.
My friend just had another surgery yesterday. He is in alot of pain. He will have another surgery tomorrow which should last 11 or 12 hours. It will be the worse one yet. I hope that it will be his last. This hospital in Houston has been wonderful to him and his family. They continue to fight infection. He also has a blister on his heel that the doctors do not like it being there. They have learnrd of others that they have done the same thing on as they are doing my friend which worked wonderfully. Please keep him in your prayers.
I bought a pair of compression hose yesterday afternoon. My husband helped me put them on this morning. The lady that waited on me measured my legs and ankles. She picked me the right size and I paid for them and went home. There was one problem. They were to long. I folded them back to where they should have come to. By this evening they had cut deep into my legs to where they felt bruised. They hurt to the touch. I noticed that my legs did not feel better while I wore them. They still felt tired and was painful when I tried to walk. I don't know if this will take time to work it's magic or not. I will wear them since the doctor told me that I must. I hope that in time they will feel better.
Leah, I'm having a lot of pain right now with my back and I will post a much more in depth post tomorrow, but for right now you need to be very careful that these do not hurt your legs!!
On Monday you need to call your Doctor first thing and tell him about these hose and ask him what you should do. I know that I've had problems with them being the correct length for me also, before but he needs to know what you are faced with in this situation!!
As I said, I will be answering your earlier post in a more lengthy fashion tomorrow. Just know that I'm here and will be answering it tomorrow!!!
I'm keeping you in my Thoughts and Prayers and I'm here for you..........Sherry:)
Leah, I'm so sorry that I couldn't get to this yesterday, but my SIL was checking for viruses and upgrading all the systems on the computer that I use. :( Fortunately, no viruses plus the upgrades are totally awesome and everything is running much faster than before. Therefore, I must admit it was all worthwhile. :)
Now for what you are having to go through with your leg is absolutely horrifying!! Your support hose should be the correct length. The lady that measured you should have done a better job of it or should have been more careful when picking the correct size for you. They should fit you perfectly. They make all different lengths to accommodate different people's height as well as weight.
Were you able to check with your Doctor to let him know what was happening with the Support Stockings? Did you ask about them being too long and you having to roll them over on themselves? Because you had to do that may have added to the "tightness" problem that you had with them. It certainly made them much more uncomfortable for you and tighter than they would have been had they fit you correctly.
I hope and pray that you won't give up looking for answers to your questions. There is a Doctor out there that can give you an answer that you can understand. By chance, is there a big "teaching" hospital around you anywhere that you can ask to be referred to a Doctor in that facility? They have wonderful reputations for finding out what's going on with people and sometimes can come up with solutions to the problems that other Doctor's can't come up with. It's worth a try at least. :)
As you know, you are still in my Thoughts and Prayers!!!
I'll be looking for your continued updates............Sherry :)
I called and talked to a lady where I bought the hose. She sid to fit them more around the leg and they would come to where they should be. She said that I was over stretching them. Hog wash!!! I tried what she said. Yes, I got them to go to where they should be. However, they wrinkle around my leg and ankle. The doctor never offered much, so I don't call them back. The teaching hospital here is a pain to get into. I just give up. It was 109 degrees here yesterday. I had to take the hose off early. Thiught I would die from the heat. It was 84 degrees in my house, and my air conditioner was working as hard as it could. I was also told that it would take time for my legs to feel better. They hurt without the hose, and the same with them. My husban did not get up in time this morning to help me get them on. He had to leave early to go to his eye appointment.
I am tired of fighting to get an answer. I just feel so very tired.
First I want to apologize for not answering your post sooner, but the last 2 weeks my 10 year old autistic Granddaughter was home as her Summer School and she uses the computer a lot and it's very difficult for me to get time on it as our lap-top "died" on us a few months ago. :(
Oh Leah!! You are right it is "pure hogwash" that they should fit where they are supposed to when you don't "over-stretch" them. I've never heard of such a thing before in my life!!! I've had to wear the surgical hose 3 different times in my life because of my hip surgeries and I know that they come in different lengths and sizes. The Lady that sold them to you should have fit them on you and showed you how they were to be put on. That way you would have no questions or problems when it came to wearing them.
I'm so sorry that your Husband had to leave early and couldn't help you with them. I, also, know how difficult they are to put on by yourself. I had to use a reacher to hold them and to pull them on with as I wasn't allowed to bend down far enough to put them on my feet because my new hip joint could "pop" out if I bent down that far. I wish you had someone else that you could call on to help when your Husband has to leave early. :(
I'm so sorry that it's so difficult for you to get into the "teaching hospital" near you as they are wonderful when it comes to diagnosing and treating the difficult medical problems such as the one that you have!! Is there any way that you can get on a waiting list and just bide your time until you can get in to see them? I know that there is a Doctor out there that will take the time to talk with you and explain everything to you about your condition that know one else seems willing or is able to explain to you as of yet.
I, truly, hope that you will keep searching for that one Specialist that will take the time with you that you both need and deserve to help you and be sure that you understand everything that you need to know about it. I'm just so sorry that no one will take the time that you need to be able to answer your questions. You deserve better!!! PLEASE don't give up on getting the answers!! You need to continue your search. Many times, as we've said on here, it can take 4 or 5 or even more different Doctor's until you find the one that cares and understands how important it is to a patient to know what is happening to you and will take the time that is needed to help you.
I will be on line now to help you when you need it as will others on here as well. :)
Please let me know how you are doing as I think of you daily and am very concerned about you!!
Sending you warm ((((HUGS))))............Sherry :)
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