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On Oxyneo - are there other options

Hi, I've never been any kind of forum before so please bear with me if I don't understand some if the lingo people use.

At the beginning of pain treatment (of which I will post my history following my question) starting with Percocet, to which my body did not like the acetaminophen, then 10mg of rapid release OxyContin, to 20mg rapid release, then switching to Oxyneo 20mg twice daily. (Percocet and OxyContin were as needed) and NOW I'm taking the 30mg Oxyneo twice daily or every 12 hours.

Question: I do not want to be on this medication (also other medications I will include in history), yet I have the continued, consistent pain still. Are there options to being on something less addictive that can be effective in pain relief. I feel as if my Doctor feels for me and puts me on this to help with the pain, my past surgeries are very rare and doctors I have seen just give guesses or thoughts of what it "could" be.

I am:

-32 years (born 1982)
-female

-had 3 surgeries as an infant - all lower right abdomen
   - bowel resection x2 (1983) - most of small intestines removed as result
   - right kidney removed (1984) - was healthy and in the right spot but I was born WITHOUT an inferior vena cava from mid torso down, which made it that there was not a big enough blood supply to keep the kidney alive. Very rare and 80% of doctors I've seen think I'm nuts because "no one can survive without one" and they don't believe in collateral circulation.

http://medical-dictionary.thefreedictionary.com/Posterior+vena+cava

- had an ovarian cyst 6 inches in diameter (2011), also inflamed right ovary and Fallopian tube - lower right abdomen
   - saw a "specialist" - gyno - said she was confident in removing this cyst, even after        expressing concern that I had already had so many surgeries in that area and recommended a cardiologist and  a gastroenterologist.
   -woke up from surgery (May 2012) to be told there was too much scar tissue that they couldn't remove the cyst, Fallopian tube, and ovary. They drained what they could from the cyst but that was it.

-family doctor starts me on the Oxyneo because it is slow release long lasting.

- I now have more scar tissue and have had one dr tell me it's scar tissue "pinching" nerves, and another tell me it's "Interstitial Cystitis" a which my family doctor doesn't think it is.

- pain is now constant, and 24/7.

Medications:

Oxyneo 30mg twice daily
Zopiclone 15 mg at night (The pain meds make wide awake)
Aventyl 100mg (anti-depressant and supposed to help with nerve pain)
Cipralex 20mg (anti-depressant)
Cyclen (birthcontrol)

Other than the pain, I have lost interest in going out. I stay in bed as much as I can. I used to be active and go out with friends, family. It takes everything in me to just get up and shower sometimes. I have an amazing boyfriend. We have talked about children (which will require dr input)

I want my life back. I want to be happy again. Help!!
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Avatar universal
Thank you for the information. I knew that Oxyneo was made to prevent abuse. I was led to believe it was the OxyContin that was "quicker". My dr had suggested the Oxyneo at my 12 hr marks and then was going to prescribe OxyContin 5mg for when the pain was really bad. I chose not to have that option. I've been piggybacking Advil when it's at it's worse (Tylenol doesn't work) but the ibuprophen isn't good for my 1 kidney.

I see my family dr tomorrow. Will discuss titration!

Thank you again
Helpful - 0
7721494 tn?1431627964
Because your oxycodone dosage is increased, you are feeling more side effects.

People generally become accustomed to the increased somnolence, etc. within a few months.

You have a couple of choices -- either waiting it out or reducing your dosage.

Essentially, OxyNeo work similarly to OxyContin. Both are time released preparations of the opioid analgesic oxycodone. OxyNeo is a new formulation with additional abuse prevention features.

Many people find that OxyContin does not deliver medication as promised. It could very well be that you were poorly metabolizing OxyContin and receiving a lower dose of oxycodone. Now that you're on OxyNeo, you may be receiving the whole 60mg daily dose.

This is speculation. Please consult with your physician and ask to readjust your medication. Careful titration of opioids is always a first step to long-term opioid therapy -- you never want to take more opioid than necessary.

Opioids never relieve chronic pain entirely. Many people benefit from a variety of pain treatments -- NSAIDs, Cox-2 inhibitors, muscle relaxants, certain antidepressants, specific anti-seizure medications, physical therapy, interventional pain techniques, and pain counseling. Ask your doctor about other modes to treat your pain.

Best wishes.
Helpful - 0
Avatar universal
1) I'm on the ice. Thank you! I've been doing heat.. Pads blankets etc. this is much better.

2) thank you for direction. I've googled so many things, but not that way. When I looked through my records from abroad hospitals stenosis has been mentioned.

Thank you so much
Helpful - 0
Avatar universal
Pretty much ALL of the opiates do the same thing -- I'm just generalizing here -- but the only reason one may switch from one to another (e.g. dilaudid to morphine, or, oxycodone to oxymorphone, or pick-a-name to pick-a-name) is that one narcotic may have bad side effects that the other one doesn't have.

For example, someone taking morphine may complain of constipation and sleepiness that won't go away, so the doctor may prescribe dilaudid (hydromorphone) instead. And, vice versa. Everybody's body is different.

So.... here is what I would do (I'm not a medical professional, so for now, pretend I don't know what I am talking about, and that everything I say is nonsense, but you're going to research all this yourself online!):

1.) NEVER underestimate the power of ice. The worst case stenosis, for example, can be made to feel HUGELY BETTER with 10 minutes with one of those blue stick-in-the-freezer ice packs.

2.) Go onto Google, type in the name of your condition, followed by the words "alternative treatment", "stories," and "experiences:

stenosis alternative treatmens
stenosis stories
stenosis experiences
stenosis medication experiences
etc., etc. (you get the idea)

Then, while you are reading about those treatments and experiences, you will see people mentioning medications. Then, repeat your search with:

stenosis oxycodone experiences
stenosis oxycodone stories

etc., etc.

The idea is that you are going to research your OWN condition online, and you are going to read about real people, posting their own real experiences, and from that, you will be able to begin to build a "picture" of what to talk with your own physician about.

Yes, this is a lot of work, a lot of typing, and a lot of reading.

But tell yourself that "out of respect for my own body," I am going to learn about ALL the treatments out there, and I am going to learn everything so well that the next time I visit my doctor, we can have a clear frank and *informed* discussion about my own treatment plan.

A good doctor will be delighted that you've taken that much interest, and will also be able to confirm and/or enlighten as to what you've learned, and you will feel much better about everything, as well.
Helpful - 0
Avatar universal
Thank you! I am working on getting in with a specialist!
Helpful - 0
7721494 tn?1431627964

Oxycodone is an opioid analgesic prescribed for moderate-moderately severe pain.

OxyContin is never a "rapid release" medication, but is an extended release medication that delivers oxycodone over a 12 hour period.

Oxyneo is similar to OxyContin delivering extended release oxycodone, but it has an additional ingredient designed to prevent abuse.

There are other medications for pain like NSAIDs, and the anti-seizure medications like Neurontin, which may or may not be indicated for your condition. However the opioids are the most effective against pain.

You may benefit from a consult with a pain specialist or gynecologist who may offer an alternative medication regimen.
Helpful - 0
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