Aa
Pain and willpower
I do not know if everone know that I would like to be here more than I am able to be but I do wish I had more hours in the day.
I have two business' and then I am home schooling my two girls ( 6&7) and they have speech therapy everyday and then there is my home my yard and car to take care of and clean and cooking and of course my husband:)
I hurt so badly some days it takes all my willpower and medications to get out of bed but I must because I am the only one who can do things like I like them done.
I keep my medication as low as I can because I do not want to keep going up on my dose and then have no where to turn when I reach the cut off level. With narcotics there is a cut off level as too much will simply make you stop breathing.
I have done all I can to make my pain better, I have done everything from injections to bio feedback and it only wastes my time and money so I go on with the pain.
I used to be able to spend much more time here but now its hard with all my other responsibilities. Tuckamore has been great about filling in when I can't
I want to thank all the members who know this about me and send me kind words of hope:)
I have two business' and then I am home schooling my two girls ( 6&7) and they have speech therapy everyday and then there is my home my yard and car to take care of and clean and cooking and of course my husband:)
I hurt so badly some days it takes all my willpower and medications to get out of bed but I must because I am the only one who can do things like I like them done.
I keep my medication as low as I can because I do not want to keep going up on my dose and then have no where to turn when I reach the cut off level. With narcotics there is a cut off level as too much will simply make you stop breathing.
I have done all I can to make my pain better, I have done everything from injections to bio feedback and it only wastes my time and money so I go on with the pain.
I used to be able to spend much more time here but now its hard with all my other responsibilities. Tuckamore has been great about filling in when I can't
I want to thank all the members who know this about me and send me kind words of hope:)
some people just have different issues.
for some it's tolerance, for some it's addiction, for others it's something else(just pain plain n simple).
I feel sorry for many people, those with pain that is difficult to treat(especially those with severe nerve pain), and those who can't take narcotics because of addiction or other problems.
nice to see you here worried.
the patches tuck suggests work great for many people and are rarely abused(they don't make you feel good, and they kick in extremely slowly so they aren't attractive to people looking for a high). I am on them. they have made a significant difference to me.
If you want to talk about them there are plenty of people here who can help with some advice.
actually there have been quite a lot of people from the SA forum lately looking for ways to treat pain and i wonder how many of them have tried the patches?
how many people on the SA forum have abused them? maybe not many?
Would be interesting to find out.
Nick
for some it's tolerance, for some it's addiction, for others it's something else(just pain plain n simple).
I feel sorry for many people, those with pain that is difficult to treat(especially those with severe nerve pain), and those who can't take narcotics because of addiction or other problems.
nice to see you here worried.
the patches tuck suggests work great for many people and are rarely abused(they don't make you feel good, and they kick in extremely slowly so they aren't attractive to people looking for a high). I am on them. they have made a significant difference to me.
If you want to talk about them there are plenty of people here who can help with some advice.
actually there have been quite a lot of people from the SA forum lately looking for ways to treat pain and i wonder how many of them have tried the patches?
how many people on the SA forum have abused them? maybe not many?
Would be interesting to find out.
Nick
I keep seeing this said here, but just because your dosage is upped doesn't make one an addict. You may have addiction problems otherwise, but a lot of people seem to think tolerance = addiction.
Hi Worried,
You know there are those days where I say you know what I am in so much pain I am going to just take my full dose that my doc prescribes me but by the time I get to the kitchen to get a glass of water I have changed my mind because I KNOW I can't do that. My doctor lectures me all the time about how it is just simply wearing my body out by allowing my self to be in so much pain when I could let him up the dose. I do not take the amount he gives me now but he still prescribed me that much thinking my pain will get so bad I will follow his orders and take what he wants me too.
I just know to well what will happen. Too soon down the line I will be topped out as I call it where I have no where else to go but down because my dosage has gotten so high. At Least now I can bear the pain most days with the low dose I am on now. I have been on the same dose for a really long time. I did have my doc add the oxycodone IR for break through a few months back and that has helped me a lot.
I do understand that you can't take the medications because of addiction but have you thought about maybe trying the patch? Since they are usually a three day dose you could just give them to your Mom or someone you trust and go there and change them every three days. It would help you with your pain and keep the addiction issues at bay since you could not take more than prescibed. Just a thought:)
You know there are those days where I say you know what I am in so much pain I am going to just take my full dose that my doc prescribes me but by the time I get to the kitchen to get a glass of water I have changed my mind because I KNOW I can't do that. My doctor lectures me all the time about how it is just simply wearing my body out by allowing my self to be in so much pain when I could let him up the dose. I do not take the amount he gives me now but he still prescribed me that much thinking my pain will get so bad I will follow his orders and take what he wants me too.
I just know to well what will happen. Too soon down the line I will be topped out as I call it where I have no where else to go but down because my dosage has gotten so high. At Least now I can bear the pain most days with the low dose I am on now. I have been on the same dose for a really long time. I did have my doc add the oxycodone IR for break through a few months back and that has helped me a lot.
I do understand that you can't take the medications because of addiction but have you thought about maybe trying the patch? Since they are usually a three day dose you could just give them to your Mom or someone you trust and go there and change them every three days. It would help you with your pain and keep the addiction issues at bay since you could not take more than prescibed. Just a thought:)
I am sure ur peeps understand..chronic pain bites! I do know how it takes ur nrg away and keeps me fighting depression often...especially when i go down for the count into a full blown pain crisis..it is all u can do to work and get home much less all the other things u would like to do if u had some nrg...i on top of the above have an addiction problem so I am glad to read sandee's post bout keeping pain meds low if possible..cos it sux when u reach the point of abusing them at such a high dose they dont help anymore..and that is where I am at..i cant use them cos i will abuse them..and my tolerence is so high that they do much anyway for my pain..
maybe methadone is next in line? have you tried any kind of knee brace to take some pressure off your kneess?
I switched from the morphine because I became tolerant to that level, 180mg's a day.
They talked about a holiday from all the meds, which I would totally support if my pain wasn't worse than a year ago, and my shift wasn't overnight at work. My job is definetly making my problem worse that's for sure.
They talked about a holiday from all the meds, which I would totally support if my pain wasn't worse than a year ago, and my shift wasn't overnight at work. My job is definetly making my problem worse that's for sure.
it shouldn't be too much to ask to go back to your previous meds unless there was a specific reason that you had to change in the 1st place. time to just stick up for yourself and let them know exactly how you feel about it. I can understand some people not liking the idea of patches, they are certainly different. they work really great for some and never seem to work quite right for others. you used to take morphine 3x a day right, maybe you could ask to try the mono preparation(24 hour stuff). i have been on it and it definately lasts 24 hours. no need to take it more than once. much easier than multiple dosing.
No I understand, I didn't take it badly.
I've been on them, calling more than a few times to tell them how much pain I am in. I only got the appointment moved up because they cancelled my other one.
I'm not a fan of the Fentanyl patch either, even though it's a low dose I just don't like the idea of a patch, honestly. I told them last time, but they don't want to change me to something else again...so I fear I'm stuck with it, and won't be too happy even if they up the dose.
I've been on them, calling more than a few times to tell them how much pain I am in. I only got the appointment moved up because they cancelled my other one.
I'm not a fan of the Fentanyl patch either, even though it's a low dose I just don't like the idea of a patch, honestly. I told them last time, but they don't want to change me to something else again...so I fear I'm stuck with it, and won't be too happy even if they up the dose.
I didn't mean it in a bad way, i had just noticed that lately you had been unhappy with your level of pain so i just meant that you needed to get on your dr's a$$ about it.
Tried getting in early, and by a stroke of luck they called and moved my appointment up today.
I wasn't sitting around doing nothing, I contacted them multiple times but they wouldn't do anything.
I wasn't sitting around doing nothing, I contacted them multiple times but they wouldn't do anything.
have you still been unable to talk to your dr about the strength of the patch you're on?
I wouldn't sit around doing nothing about it. you know what my thoughts are on it. 180mg a day morphine is way more than the 25mcg patch. it's probably about 3x stronger than the patch your on. that's just my opinion. talk to your dr about it.
Nick.
I wouldn't sit around doing nothing about it. you know what my thoughts are on it. 180mg a day morphine is way more than the 25mcg patch. it's probably about 3x stronger than the patch your on. that's just my opinion. talk to your dr about it.
Nick.
It's great you can still live your life sandee, but I've been down lately because of my pain. My medication(Fentanyl 25mcg/hr) isn't working at all and is most likely half of what I need according to a conversion table Mollyrae pointed me too.
Lately it's ruined my life. I am still working, but I'm miserable and it changes my mental state in a bad way. It's dominating my thoughts and keeps me from being happy, which hurts me because I don't want to bring my significant other down.
I'm hoping I can find a great neurosurgeon soon to fix my nerve problem, I'm starting to worry about permanent nerve damage. I think I have a lower back nerve problem on top of my Cervical one, AND my intense knee pain.
I'm 23, it's depressing that I'm this young and this screwed up. It's been my life though, as I've had a myriad of problems since birth. I just don't know what to do anymore sometimes, how bad will it be in 20 years? Sigh.
Lately it's ruined my life. I am still working, but I'm miserable and it changes my mental state in a bad way. It's dominating my thoughts and keeps me from being happy, which hurts me because I don't want to bring my significant other down.
I'm hoping I can find a great neurosurgeon soon to fix my nerve problem, I'm starting to worry about permanent nerve damage. I think I have a lower back nerve problem on top of my Cervical one, AND my intense knee pain.
I'm 23, it's depressing that I'm this young and this screwed up. It's been my life though, as I've had a myriad of problems since birth. I just don't know what to do anymore sometimes, how bad will it be in 20 years? Sigh.
I need to clarify what I mean by Tuckamore "filling in" when I can't be here because I do not want the community to think she is just a fill in here. She is a very important part of this community and helps so many people here. She is a community leader here just as I am.
When I said filling in I meant that she has a lot on her plate as well and she takes time out of her busy schedule to be here. Neither of us can always be here but she tries so very hard to be here so that when I am not able to atleast one of us is here for the community.
When I said filling in I meant that she has a lot on her plate as well and she takes time out of her busy schedule to be here. Neither of us can always be here but she tries so very hard to be here so that when I am not able to atleast one of us is here for the community.
Red,
I too hide my pain because I would not want my children to know and there are days I contemplate not getting out of bed because the pain is so great but I have to. I have even considered having my dosage upped a bit but as we all know it is a visious circle and we will all end up at the end sooner or later and I choose later.
I do have the support of my family and of course the great support I get here.
I too hide my pain because I would not want my children to know and there are days I contemplate not getting out of bed because the pain is so great but I have to. I have even considered having my dosage upped a bit but as we all know it is a visious circle and we will all end up at the end sooner or later and I choose later.
I do have the support of my family and of course the great support I get here.
I know exactly how you feel. I do the same and some days I can't get out of bed at all. It is very difficult to do the simple things that we all took for granted before we were plauged with whatever conditons we have that is causing us all of this pain.
At times it becomes very discouraging but you don't want your family to see what you are really feeling which makes it even more difficult to deal with.
If your family is behind you and you can come here to get additonal support you will make it through I'm sure.
At times it becomes very discouraging but you don't want your family to see what you are really feeling which makes it even more difficult to deal with.
If your family is behind you and you can come here to get additonal support you will make it through I'm sure.
" For those who can't see well we do have the three A's they can click on to enlarge the letters for them"
- Good advice,
i'm sure many people don't know that. it took me two years to think 'what's that for?".
- Good advice,
i'm sure many people don't know that. it took me two years to think 'what's that for?".
Oh and yes the small letters look great. For those who can't see well we do have the three A's they can click on to enlarge the letters for them:)
Thank you both:)
I also have a 20 year old son who is perfect and always has been the perfect child, I never once had any problems none. He has always been very well mannered and is just a great son. He started working pushing carts at a huge dept store and now he is a manager and made the record as the youngest to ever become a manager!
Sorry you know I have to brag:)
My two daughters on the other hand are the devils spawn:) they are so mean, I have big boys knocking on my door when they are all playing around the neighborhood asking me if I cam make them stop beating them up! They are really something. they will take things apart like their bed and playhouse and anything they can without tools too. I do not know how they do it, so I have my hands full!
I also have a 20 year old son who is perfect and always has been the perfect child, I never once had any problems none. He has always been very well mannered and is just a great son. He started working pushing carts at a huge dept store and now he is a manager and made the record as the youngest to ever become a manager!
Sorry you know I have to brag:)
My two daughters on the other hand are the devils spawn:) they are so mean, I have big boys knocking on my door when they are all playing around the neighborhood asking me if I cam make them stop beating them up! They are really something. they will take things apart like their bed and playhouse and anything they can without tools too. I do not know how they do it, so I have my hands full!
i really feel for u having all the responsibilities that u have! i dont know how u do it. i just want to sit in my chair and not move... it gets very boring but it seems like when i get up to do things i hurt even worse. its not to bad when i had my morphine but now that i dont and i just have the oxycodone 5 mg. it seems like i cant do anything without making my pain unbearable! im so glad that my son is 23 and i have no other kids to take care of. its just me and my 4 cats. i just wish threre was something we couold all do to get rid of the pain without the pain medication. i get sick of having to take and depend on it all the time... just wish the pain would go away on its own for everyone here! i hope u r feeling better and getting things done without to muich pain! take care and god bless u! catwoman ps ... is my smaller letters better.. ha ha
Haha. He does work hard too. He leaves at 4am and does not get home until 7 or 8 pm.
He works hard.
He works hard.
Life can be hard enough even for healthy people. but when you've got chronic pain it can feel like there's an elephant sitting on your shoulders(who is perfectly able to walk by itself). Dang freeloading Pachyderms!!!
Perhaps you could make your husband do more? Do you own a whip?(the kind jockeys use). I'm sure he would do things exactly as you want them done so long as you whip him enough.
Nick.
Perhaps you could make your husband do more? Do you own a whip?(the kind jockeys use). I'm sure he would do things exactly as you want them done so long as you whip him enough.
Nick.
Have an Answer?
You are reading content posted in the Pain Management Community
Find out how beta-blocker eye drops show promising results for acute migraine relief.
Could it be something you ate? Lack of sleep? Here are 11 migraine triggers to look out for.
Find out if PRP therapy right for you.
Tips for preventing one of the most common types of knee injury.
Here are 10 ways to stop headaches before they start.
Tips and moves to ease backaches
