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1275919 tn?1279836004

Please help!

I'm still so confused. I'm going to try to not go into too much that is not immediately relative but feel free to ask any questions you may have and I will answer them. I go to a pain management doctor who has been a godsend. I love him and his entire staff. I have been going to him for about a year and a half and never had any problems. Until I was asked to try nucynta. As with every other suggestion from my doctor I had no problem giving it a try since the 10/500 hydrocodone 4-5/day was becoming less effective. The first three days I was on it I began hallucinating. Not monsters and walls moving, but I would be talking to my kids, kissing their foreheads etc... and they weren't there. I picked up the nucynta on a monday, and was back in the office after reporting my side effects by the following monday. When switching my meds we decided that I would try oxycodone because I was trying to get away from the acetaminophen I've been taking everyday now for 4 years. I asked to be given a 1 week prescription because I have had allergic reactions to many other meds I've tried as well (including oxycontin, methadone, fentanyl, and opana). When I came back for my 1 week appointment I brought my mom with me (I'm 28 and tend to bring her when I expect to discuss changes to my treatment). As I have been for the last 7-8 months I submitted a urine sample having nothing to fear because I take my meds as prescribed. Nothing more, nothing less. So to my dismay and shock the doctor came in the room and asked for permission to speak in front of my mom. As usual I granted it. She informed me that the urine came back containing not only the benzos I'm prescribed, as well as the oxycodone I'm prescribed but she said also fentanyl or dilaudid and THC. I don't smoke marijuanna. I have not taken fentanyl since I was put on it 6 mo ago and broke out in the worst hives of any of the allergic reactions. I asked if it was possible to test positive for THC from second hand and she told me the levels they test for are too high to register if it was from second hand exposure. She asked again if I was smoking marijuana. I told her the last time I smoked was over a year ago. My husband wanted me to try some medicinal grade marijuanna to see if it helped with my pain. He said it would relax my body and alleviate some pain. I did and it made things ten times worse! Then he told me that it probably relaxed my body and I was experiencing my true pain level. Not cool. Never done it since. I was shocked to say the least. I've been having real trouble with my husband and things have been really hard at home. My mom said she did not trust him and did I think it was possible he had given me something in my food or drink. I was thinking that too but I realize they probably hear every crazy story and I realize how crazy that sounded. I honestly didn't know. The doctor asked if I would submit a blood sample. I agreed. The results from the lab for the urine confirmation tests came back negative. That means they were a false positive, correct? But then she said that my blood showed nothing! No benzo, no oxycodone either!!! How can this be when I had taken an oxycodone just 4-5 hours before my appt! And a restoril the night before! So at first she was concerned I was self medicating, now she's concerned I'm not taking my meds. How can that be? 3 labs with 3 different results???? I am devastated. I feel like I've lost the only source of hope in life. And how could we really suspect my husband of this??? What does that say about my marriage? I'm so distressed on so many levels. So when she informed me of my results at around 3 pm she asked if I would come in the following day and do another urine sample. I said absolutely. Again, This doctor probably literally saved my life!!!! She had told me at the appointment that she was not going to discharge me from the practice at that time and gave me another prescription and a follow up appointment. Now I am waiting for the results from the second urine sample and I am facing another dilemma. The follow up was for 30 days later. She prescribed 120 5mg oxycodone and the directions on the bottle read "take 1-2 pills orally every 6-8 hrs as needed for pain." Here's the thing now. I feel like I now have this stigma over my head. I don't understand any of it and have been SOOOO stressed over what I feel like are false allegations not to mention worrying about my husband drugging me now. So naturally my pain is intensifying. I know that my prescription isn't going to last me 30 days. I'm 9 days into the prescription and if I take the max allowed per the script I will be out between days 12-15 right? Do I wait until my appointment, call and try to get in earlier???? what do I do? Now I'm terrified if I wait then I won't have it in my system not to mention the pain that's gonna come with that. Will she see me earlier with all this going on??? I don't know what to do! I have offered to allow to let her call me on a truly random basis. I work 20 min from the practice and can come in at any point at lunch to do a drug test. I've released my psychiatrist who prrescribes celexa wellbutrin ativan and restoril to answer any/all questions she may call him with.... what more can I do? What do I do about this month? It's my first full month on oxycodone. Please help!!!! How can I get a false positive and a false negative on the same day????
Best Answer
356518 tn?1322263642
I am sorry your dealing with so much.
First of all I would like to say I do not advocate the use of any illegal drug. I think it adds to our problems we face as chronic pain Pt's and if anything it certainly does not help our cause at all.
You need to refrain from being around your husband when he does smoke. I have to say that you need to realize that if your husband is caught by law enforcement with marijuana you too can be charged if it is found in a mutual place such as your home or car. You need to protect yourself and your children, I have no idea what the circumstances are with your husband and his smoking but it involves you and your children. I am not being judgmental so please do not take this the wrong way. I understand your in a very difficult position. If you were ever charged with possession then you would never be able to find a PM doctor and your job would be on the line. Maybe ask yourself is your husband smoking worth your losing your medical care and your job.
I want to make sure you understand I am not judging you or saying your a bad person at all. I just feel I need to say these things. I know your very aware of whats going on and have thought of these things but sometimes we need to have it put in front of us to make us realize what we can lose.
Your situation is all to common. There are so many people who have had these bad test results and have lost their medical care all together. You are lucky your doctor is willing to work with you and find out whats going on. She is well aware of the fact that there are false lab results all the time, she knows you have three totally contradictory test results.
There are may articles and research studies I have researched on this and it is very disturbing. There are thirteen known medications that will cause a false negative and I will re post those. The VA did a study on this and the results were astounding. I have that in my journal and will send it to you also.
I would say talk to your doctor and make sure she knows your upset over this as it not only can get you dismissed from PM but it also questions your integrity. She seems like she is willing to find out what is causing this and willing to work with you. But as you say her license could be on the line and she would not be willing to risk that.
A hair shaft test can show her what you have taken in the past ninety days, I have suggested this to those who have had false negatives to prove their innocence. From what I understand they are very accurate.
The dilaudid and fentanyl would not be in your system at this point after that long.
The problem is that office personel can mix up urine samples. This may have been the case. The lab can make this mistake as well. Clearly this has happened as you did not have these drugs show up in the blood work.
Just a reminder, anytime you have a urine test done follow these tips...
Make sure your name and information printed on the cup before you use it.
When you turn it in have the nurse seal the sample in your presence and initial the cup.
Make sure the paperwork included has the medications you take and when you took your last dose.
As far as the lab that is out of our control but we can make certain the sample sent in our name is indeed ours.
There was a member here that had this happen to him and he did alot of research and it was extensive and impressive. I will find that for you as well and send it to you.
I have suggested to others in this situation to take this information about false negatives and how often it happens and other research to their doctors.
I have had this problem before myself. I was seeing a PM doctor who was also a friend as I was close friends with his wife. I had a test come back negative for all of my medications and the doctor knew this to be untrue as he himself had seen me take my medications many, many times. He immediately ordered a blood test and it came back normal for my medicines and the levels were where they were supposed to be meaning that the level was consistent with my having taken my meds on the regular basis as prescibed.
The doctor had to release me from his practice though as he had a strict policy that if any lab work showed negative for medications prescibed you were immediately dismissed.
I would not expect to be treated any differently just because I was a friend. He referred me to a close friend and colleague of his and I now see him and he is great also.
There really needs to be a policy in place that protects us from incorrect lab results. There is a huge problem there. My husband is friends with someone who owned the lab corp here, and he has told me many times that there are mistakes made very often. He has sold the business for this very reason.
I am sorry to be getting of track here:)
I would definitely call and make an appointment to see the doctor to make the necessary changes needed to control your pain. When you do this explain to your doctor that you would like to do whatever she can suggest to resolve this matter. Ask her if she would be willing to order the hair shaft test and use the results to declare your other test as incorrect. Make certain she understands you are distraught over this and have done research on it and your willing to do what ever you need to. I would be glad to help you gather some research to take with you to your appointment. As I said she does know there is a problem as you have had three test that contradict each other but having the research in front of her will show her that your very concerned about this and your innocent of any wrong doing and willing to do what needs to be done to get at the root of the problem.
I would refrain from being around your husband when he smokes from now on. The levels they test at are different everywhere but there is always a chance that the levels they use are low enough to show up from only second hand smoke.
I would also call the lab and ask them if they can help you. Explain the situation and ask them if they would be willing to assist you in finding out what the problem is/was.
They may work with your doctor instead of directly with you but that would be fine too.
I am sorry your going through all this and having problems with your husband. The fact that he was taping you is very disturbing to say the least. Maybe you need to have a very serious conversation with him about all this.
We are all here for you and even if you just want to talk or vent your more than welcome to as we all do sometimes:)
I will help in anyway I can.


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Avatar universal
I have a question I hope someone can answer!! I was going to a pain management clinic where I was prescribed Nucynta 100mg 3x daily. At one visit, I stupidly asked the dr what would happen if he found marijuana in my system? I DO NOT smoke it, was asking for a friend. The next visit I had I was asked to submit a urine sample. I did. After waiting approximately 5 minutes, the lab nurse informed me that the urine was too cold to test. She said it was less than 90 degrees, and it had to be at least 90 to test it!!! To make a long story short, I couldn't provide another urine sample (even after consuming 14 - 8oz cups of water) that day, so I was dismissed as a patient!! I found another dr that I really liked and trusted.  After seeing her for about 8 months, she finally saw the pain I was in, made me sign a "contract" and prescribed the nucynta for me.  I was prescribed nucynta 75mg 3x daily and Temazepam 30mg 1x nightly. I would take the nucynta in the morning and then 2 around 8pm to help me sleep and the temazepam every evening. After being on it for 30 days, I ran out and couldn't get another prescription for 3 days. When I went to pick up my new prescription, I was told they needed to do a urine drug screen and I had no problem submitting it!!! About 3 days later, I received a letter from my dr office stating that the drug urine screen came back inconsistent with what the dr prescribed. I immediately called the office and started a rant about how it was impossible for there to be anything except what I'm prescribed in my system! The nurse stopped me and said the screen came back NEGATIVE for ALL drugs! I said that was also impossible, because I took my pills as prescribed. They said I could get my prescription if I'd agree to submit another sample. I told them I'd gladly do it! 3 days later, I got a call from the office telling me the results were the same and the previous letter I received was in effect! I was stunned!!! I KNOW I had taken my Rx as prescribed and wondered what would cause it to not show up in my system! I asked the dr what would cause it and she just shrugged it off!!! I dismissed her as my pcp and when I was asked why, I told her because I didn't think a dr and patient should have an untrusting relationship and I didn't appreciate her thinking I was selling my drugs! Now, I'm wondering if it didn't show up in my urine because this lab that did the urine drug screen refrigerates the urine before testing it!!! Is it possible that's what happened? I really don't want anyone thinking I'm a drug dealer because I am not! Even my boyfriend witnessed me taking the medication on several nights!!!
Helpful - 0
1275919 tn?1279836004
Thank you! I know he knows I'm suffering. I know he's a control freak and I really think that he just doesn't know how to deal with it because he can't "fix" me. Sometimes he's very demeaning though. He apparently suffered a very bag IBS flare that lasted months some time before we met. He was dismissed by doctors and I guess to him that means that because he had to go through it with no help I could get through it without help if I really wanted to. I watched a video with him one time where this lady was put in like an MRI machine and was told to close her eyes and imagine her pain was a light like from a candle and to try and extinguish that light with her mind. Apparently this led to a reduction of pain for her. While I do believe the mind is a very powerful thing and while I would like to "learn" how to relax to assist with managing the pain, I do also know that I practice breathing exercises very regularly and that helps some. And they come quite naturally when in intense pain as well :) But I don't believe that I can have the quality of life that I feel I need without some assistance. While I'm sure that what I'm going through affects everyone around me I'm also quite sure that it's my body that wakes up in severe pain and my body I need to "force" to sleep (currently with the aid of restoril since ambien does not work too well when people wake you up at 2 am to yell at you.) He has quit, for the most part, waking me up to argue, and he can do pretty decent (as far as support) for a couple of days before he goes back to fussing. So while I am nowhere near perfect, I keep telling him that as long as he's putting everyhting under a microscope to find something to be upset over, he's gonna find something and stay upset. That's the nature of the beast.

I read earlier a post where a woman was at dinner with her husband and he gave her a "look" when she took her pain medication. I know that look. All too well and as I'm writting this I'm realizing I should have commented.

I'll go do that now
Helpful - 0
356518 tn?1322263642
I think you should try and get your husband to understand that he needs to contribute to your marriage and to trying to resolve and issues you two have. The problems your having with him does not help your pain levels at all. Stress contributes to your pain levels dramatically. It seems your under alot of stress and that only adds to your pain and it would not only help your pain but your personal life also to be able to sit down with your husband and speak to someone.
Pain effects every single aspect of our lives. There is not one area of my life that I can honestly say is not effected by my chronic pain. We as CP sufferers have to deal with this and figure out how to make it easier on us in our own ways.
You can be intimate with your husband in many other ways. Show him your thinking about him by taking him a cold glass of iced tea or breakfast in bed on a weekend but make it clear to him that this works both ways. Explain to him that being intimate in the traditional sense causes you alot of physical pain. Tell him this too is something you can discuss with a professional as well as the other issues you may have and it will help you both in becoming close like you were. Have you spoke to him about working, how it will make him feel better about himself therefore helping you both.
The children know something is wrong. Kids are much smarter than we give them credit for. They know there is problems and this effects them as well. You have mentioned that your worried how this is effecting them. You seem to be a very loving and caring Mom and I know it has to really concern you that they are kinda in the middle of this all.
It may even be a good idea to include them in some counseling when you and your husband have gone for awhile. I know you said you can't get your hubby to go but he should realize how much this would help both of you. Having an impartial party listening to each of your concerns and issues will help open the communication lines and will help your situation alot.
You said that you were concerned that the problems you both have is on you and that your wondering if the failed marriage and the problems you having now is all you. Well let me tell you something, I do not know the circumstances of your first marriage and only what you have said about your current one but it takes TWO!
This is not all you either one as it takes two to make the problems and it takes two to try and work them out. Every single marriage has its share of problems but if only one person is willing to make an effort at fixing whats wrong then it will not work.  The other party has to take some responsibility in the situation as you did not cause all the issues and you alone can not fix them.
I really hope you can get things worked out as I said it adds to your pain.
We are here for you and will help any way we can")
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1275919 tn?1279836004
I just re-read everyone's posts. Thank you!!! I'm sure I'll be back :)

Feeling a little better and I guess that means I should get as much done as possible :)
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1275919 tn?1279836004
Yeah, I've read something to that effect as well. When she called with the results from my first urine/blood test and asked me to go in and redo them I thought they were going to do both again. I don't know from what I saw she asked for urine tests. One for a pain management profile (without confirmation) and one for THC metabolites. On both the request was >0. Hopefully this will clear some of this up. I KNOW that I haven't done anything stupid or crazy so... I called Quest while on lunch and they told me the results are back but apparently my doctor asked for them to be mailed this time. Weird, last time they were faxed or something. What gets me is that the confirmation test on the urine was negative. I had been taking the oxycodone for a week though. I would have thought it would be in my blood. Anyway, I'm hoping that by friday they'll give me a call and we can try to move past this and leave it in the past. I really do believe they believe me. I've had one surgery while under their care and refused pain meds. My pain doc added naprolyn at the time and told me he expected me to run out early and not to hesitate to call that month. And this was over a year ago! Since that time I've never asked to be seen earlier, called asking for meds... nothing. They tried me on fentanyl back in october but I had a terrible hive reaction (as I have with oxycontin, and opana). I mean really, if they were concerned at all that I was "diverting" my meds or adding anything to my regimen wouldn't I have wanted to get off the hydrocodone a long time ago? And for that matter, knowing that I had a drug test every month it seems wouldn't I schedule my appointments in the afternoon when I wasn't giving them the first urine of the morning? And those were the docs suggestions. In no way mine. Then we tried methadone. The methadone didn't give me hives but on day 5 I began vomitting constantly and even after they had me come in and pick up the hydrocodone again I was not able to get the vomitting under control for 4 long days. And I take my mom to every appt when I anticipate a treatment change to get her opinion. She's the one that has to answer the phone when I'm calling in tears, she's the one that has to come get the kids when it gets REALLY bad, so it affects her too.

So I'm a little disappointed that the results are being mailed. I hoped to be able to call and talk to her about the dosing. But I guess when she calls I'll discuss that with her too. She's got to know that I'm going to want to come in early. The quantity just doesn't match the amount dispensed. Right now I'm taking 1 every 4 hrs. (during the day when I'm awake so it's about 6/day) They just don't give me 6-8 hrs. of relief and I do try to take the lowest dose to be able to function. I don't "get" any "high" from my meds. I'm just able to get out of bed and go to work. I don't want to bug them to death. I just hope if I talk to her by friday they'll be able to see me by the 23rd. I know I'm only one patient out of many but I matter to me :) (little smile)
Helpful - 0
1271743 tn?1320892461
An example I found online for Cocaine detection times.  There is a huge difference in the times between blood and urine...

BLOOD: Cocaine parent present up to approximately 5-6 hours post dose.

URINE: Cocaine parent present up to approximately 12 hours post dose. Benzoylecgonine metabolite present for approximately 3 days, possibly longer in heavy users.
Helpful - 0
1271743 tn?1320892461
Just for information's sake... Blood & urine drug screens not only have different cut off levels but they have different detection times for different drugs.  Something may show up in your urine that is not in your blood.  I don't know if you thought about that or explored that avenue.  

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1275919 tn?1279836004
Thank you Sandee. I'm not offended. I wish sometimes that he had a job (he used to work construction and now hasn't worked in over 6 mo.) so that I would (maybe :) ) have the courage to just kick him out. He really does drive me crazy. I think that the reason I was so quick to assume that he would do something stupid is that he hates "western medicine." I've always done everything and tried everything the doctors have wanted me to . He says I've turned myself into a guinea pig. He thinks that only things like pacemakers should be implanted in the body if absolutely necessary to sustain "life." Not "quality of life" but life itself. A couple of years ago I was coming up short on my pills. I came across a bottle full on my medication one time and he told me has "putting them up for me." Ever since I have been very careful. I have different spots around the house where I'll put medication up but mostly I just keep everything at work locked up. So no, I don't think that's the reason he doens't want me to do it. He's a control freak and I think that he just doesn't want to admit that neither he nor I have any control over what's going on. It's insane that I have to worry about stupid &^% like that when all I want to do is wake up, go to work, hand out with my kids and go to bed. I don't drink, I don't have a social life. The little energy I try to maintain I reserve for my children. It breaks my heart everytime they ask me why my tummy hurts, when I have to run to the closest place to vomit and they get very concerned and ask me if i'm ok. The impact all this has had on my children really bothers me. He argues that it has impacted him as well. that I never take his feelings into consideration. What I hear when he gives me this lecture everytime, is that he's upset that our sex life is not what it used to be. Not even close. We rarely get intimate and when we do it's all I can do to not break out in tears from the pain. I know our relashionship has gotten to its worst and he's on me all the time. This weekend I went out of town with my parents and my kids just to get away for awhile. It was nice to not have to worry about what he was going to fuss at me for and get a decent nights sleep. The man can't even wait until I wake up to argue with me. he wakes me up fairly regularly to argue. It's all becoming too much. I feel like I'm stuck in a lifetime movie and I just want out but I also feel like a failure. My first husband left when my children were 8 months and almost 2 yrs old. I feel like if this is the end of this one then it's got to be me. I'm the common variable. I don't know though because I also feel like I've done everything I can. He won't come to counseling with me. I go to TRT (trauma resolution theraphy) trying to straighten this marriage out as well as my monthy psych and pain appts. I feel like I'm bouncing around and none of these things are meant to cure. There is no cure. It's all bandaids. I don't want to burden everyone and I know it's alot of information and probably raises a lot of questions. Please don't hesitate to ask anything. i won't get offended. I'm trying to clear my head and figure everything out.

Tuck I'm so glad to hear that!!! I could've sworn that it was rejected because of some privacy issues. I'm glad that's not the case. It's long overdue around here and it will hopefully make easier the lives of patients and doctors alike.

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356518 tn?1322263642
I have a question. Why on earth would your husband threaten to leave you for getting the implant? That is crazy! If it helps you then you can cut back dramatically on your oral medications if not all together. I am wondering if maybe you have a problem with him taking your medications because the only reason I can think he would get upset over the implant is that he knows you would be cut back or not take medications at all?
I hope I am not being too intrusive. I just can't for understand at all why he would try and stop you from getting the pain control you need so badly.
Your urine test was a false positive as the blood work showed none of the drugs in your system. The levels I assume for re testing would be the same. I do not believe they would change.
You know your husband and if you have a feeling that something is going on then don't ignore it. Intuition is a woman's greatest asset. We are far more intuitive than men.
You need to address these issues with your husband and have a serious talk with him. If he is drugging you then he could kill you and this not only affects you but your children as well.
Please understand we are not being judgmental we just want to help any way we can:)
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356518 tn?1322263642
I could have sworn I posted this earlier, I must be losing it:)

It seems that these test have cutoff levels as in some are very sensitive while others are not sensitive enough to detect the drugs.

A drug screen is a complex thing and the higher tuned (more sensitive)
it is the more complex it becomes. You see, drug screens can be
adjusted to detect various trace amounts of many different types of
drugs. Some test react positively for the presence of drugs
(substances or derivatives) only if those traces appear in the test
medium in certain volumes. For example, a person on parole may be
given a test for marijuana (cannabis, hash, etc) that will respond
positive if the test medium contains traces above  a certain “cutoff
level” where the cutoff level is very low (10ng/ml possibly) . Whereas
a person applying for a job may be given a test for marijuana
(cannabis, hash, etc) that will respond positive only if the test
medium contains traces above a certain “cutoff level” where the cutoff
level is very high (50ng/ml possibly).

There is some recent history with false results as is evidenced by
studies conducted by the Veteran’s Administration (VA). For example,
the VAGLAHS Outpatient Pain Program (OPMP) utilizes a standard Drug of
Abuse (DOA) immunoassay and Biorad High Performance Liquid
Chromatography (HPLC) Remedi-HS. These tests are used to monitor for
medication compliance. In 2004  as many as 44 % of patients tested
were found negative for opiates despite patient prescribed opioid
medication. The VA concluded that the DOA test was not sensitive
enough (in other words the cutoff was too high to detect the presence
of opioids commensurate with what the VA considered minimum
requirements)
.‘Result of Urine Toxicology in VA Patients Treated In a Pain Clinic’

This is an article of the VA study......

http://www1.va.gov/hsrd/about/national_meeting/2004/abstracts/2047.htm



I think my above post is saying that the test these Dr's are using are not the best for our situation. In order to test positive for our meds we have to have the required amount in our system that the test requires in order to test positive. If one test requires only trace amounts then surly there will be no problem, if one test requires that a high level be detected then we will have to have that level in order to test positive. Now to me this is outrageous that the Dr who orders these test can order the test that requires higher levels of the drug to be present in order to


These are the drugs that will cause a false negitive.....

The reactivity of 13 quinolones (levofloxacin, ofloxacin, pefloxacin, enoxacin, moxifloxacin, gatifloxacin, trovafloxacin, sparfloxacin, lomefloxacin, ciprofloxacin, clinafloxacin, norfloxacin, and nalidixic acid) was tested in 5 commercial opiate screening assays from September 1998 to March 1999. In 6 healthy volunteers, we confirmed the cross-reactivity of levofloxacin or ofloxacin with these opiate screening assays. be positive, therefore some will and have failed these test.


Helpful - 0
547368 tn?1440541785
The urine drug screen sounds like a false positive because the blood scren returned with completely different result.

I must plead ignorance as I do not understand why Georgia's pharmacies do not have a traking sysptem. I thought this was nationwide. It was my understanding that the DEA tracked all prescripiton narcotics.

So I did some searching and found this regarding Georgia, dated April 7, 2010.

BEGIN  "A bill that would create a database to keep people from going from doctor to doctor for legal controlled substances passed the state Senate and is making its way through the state House, but a state law enforcement agency has been taken out of the equation."

"The state Senate, during last year’s General Assembly, failed to pass the House version of the bill, HB 614, to create the Prescription Drug Monitoring Program, a tool for medical professionals and law enforcement. It would create a database, that would have been managed by the Georgia Drug and Narcotics Board, and would be comprised of information submitted by doctors who dispense prescriptions and pharmacies.".............."...
...."The current version takes the management of the database away from the Georgia Drug and Narcotics Board and turns it over to the state Pharmacy Board." END

Looks like your concerns are being addressed.

Tuck
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1275919 tn?1279836004
I know that him taping me was bizarre unloving unrational and just plain weird. But from what I've read the fact that the confirmation test was negative (and don't they test for lower levels on the confirmation test?) means it was in fact a false positive right? So am I still being paranoid by being uber careful about what contact he has with what I ingest?
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1275919 tn?1279836004
Thank you everyone! I do NOT take offense to anything that was said. Since that friday I have not been anywhere around him when he's "doing his thing" as well as made sure his teeth are brushed etc... when he's near me. I think I may just go do the hair test. That's one of the things that really bothers me about all this is my integrity is being questioned. She flat out told me she wanted to believe me but that she had a test in front of her contradicting what I told her. I understand that. I do. Up until now I have had to postpone a neurostimulator implant trial because my husband told me he would flat out leave if I did it. That he does not believe in implanting things into your body unless they are necessary for life (ie a heart thingy). When she called to tell me the results about the 3 labs with 3 different results I went ahead and scheduled the trial for May. I've already done the required psych eval and everything. She asked if I wanted time to think about it and I told her no, that obviously if this was what came to mind during all this I am seriously questioning my husband's concern for me so why should I be so concerned with him?

I am very frustrated after all the reasearch I've done as well because there is not pharmacy tracking in Georgia where I live. It puts the doctors in a position where they need to be more vigilant because they really can't know if someone is doctor shopping and getting a different script every week and getting them filled at different pharmacies. I'm working on a letter as we speak to my congressman addressing this situation. It would make it easier for the doctors to put their minds at ease and easier on the patients and the intense scrutiny we're continusly under in order to get the care we need to have as normal a life as possible. If anyone has any input on how to go about doing this it would be greatly appreciated.

Also when she calls to give me the results of the urine test I will ask about a hair test. I really want to clear my name. And I'm really baffled about the blood test. The urine test done in the office was not marked with my name on it but I was the only patient there. I was the first in the morning, as I always am because the office is on my way to work. I have talked to my boss and asked if he would mind if the doc called to speak to him. He has seen the hives, knows all my medical history, and is just as concerned for me as my parents almost. He asked if the second urine test was going to be done at a different lab and I told him no :) He said it should be. (Yes, he could def tell I was not myself monday tuesday and wednesday and so I told him what was going on minus the crazy husband I don't mind talking to him about my health but I know the marriage is all but done but he doens't need to get into that). So, I don't know what else I can do. I've given my doc access to my mom my psychiatrist etc... Apart from a hair test, anything else I can do?

I don't know. I'm sure I'll come back in an hour or two and post more but I really would like any info on how to get this kind of legislation passed. I think for awhile now (again I've read ALOT of info online a lot of it is shocking to me) it has been all too easy for people to walk into a doctors office (especially I guess if they have legitimate pain) get their prescriptions then go to another doctor the next day and get the same prescription to sell and so on. And what gets me is these people don't even stress! If they lose a doctor its okay because they have 5 others lined up. I'm surprised doctors aren't persuing this more but I plan on discussing this with her as well. Maybe she can round ujp some support on the medical fields side of it.

AAAAAHHHHHHH I'm thinking about a million things and a million things don't make sense.

Here's another kicker. The saturday after the initial tests my dad had asked me to go to a counseling appointment with him. He said he wanted closure on something. So I went. Apparently for the last almost 3 years he's been thinking that I called the cops and made a ridiculous accusation against him. LONG STORY. But my daughters psychiatrist got DFCS involved who got the cops involved. He knew he was innocent so he thought I for some reason did something crazy. Now I don't even know if my accusing my husband is just like that. Am I thinking he did this because I know I didn't put this in my system or did he in fact do something crazy? I know this probably doesn't make sense I'm just speaking to the universe

And yes I have become much more vigilant of what I consume. I have always kept my scheduled medication out of my husbands knowledge as far as where it is, and I have now also moved the Lyrica out of the medicine cabinet. It is the only capsule I take and I don't want there to be ANY possibility that I am ingesting something other than lyrica when I take the capsule.

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Avatar universal
this is what i think...and i'm just gonna shoot it to ya straight....i'm gonna put my response in capital lettering to help distinguish your quotes from my thoughts...so the capitals are not intended for more exclamation...

your quote- "She told me that my husband was upset that I had ruined his experiment. When I asked how so she told me that my husband had told her I had been hallucinating, that he had been taping ne and that he was very close to diagnosing me"

FROM THE DR AND NURSES (AND ANYONE FOR THAT MATTER OUTSIDE LOOKING IN) POINT OF VIEW WHAT YOU TOLD THEM YOUR HUSBAND DID IS VERY ODD, DISTURBED AND CERTAINLY CAN BE SEEN AS UNDER-MINDING TO THE MEDICAL PROFESSIONALS......THE WORDS "RUINED HIS EXPERIMENT"...STICKS OUT AS VERY SHADY...IF HE HAD...AND I STRESS -IF-....YOUR BEST INTEREST IN MIND...THEN WHY WOULD YOU HEAR ABOUT HIM TAPING YOU WITHOUT YOUR KNOWLEDGE AND THEN YOU HAVE TO HEAR ABOUT IT FROM A 3RD PERSON...DOESN'T SOUND RIGHT OR INNOCENT....SO THE DR'S AND NURSES WERE PROBALT THROWN WAY OFF BY THIS INFORMATION.

your quote-" I asked if it was possible to test positive for THC from second hand and she told me the levels they test for are too high to register if it was from second hand exposure. She asked again if I was smoking marijuana. I told her the last time I smoked was over a year ago. My husband wanted me to try some medicinal grade marijuanna to see if it helped with my pain"

FROM DOC'S POINT OF VIEW...BEING THAT THEY HAVE SEEN IT ALL, I THINK SHE FELT A RED FLAG WHEN YOU ASKED ABOUT 2ND HAND SMOKE...YOU SOUND LIKE A SMART, REASONABLE LADY SO OFCOURSE I KNOW THAT YOU UNDERSTAND THEIR CONCERNS AND/OR HESITATIONS....YES...YOU DO HAVE TO BE COMPLETELY HONEST WITH DR SO AT THAT POINT YOU HAD TO AIR YOUR HUSBAND'S POT HABIT...BUT ALSO, YOU CAN NOT CONTROL WHAT HE DOES...AND IF IT DOESN'T BOTHER YOU TO BE IN THE SAME GARAGE DURING IT THEN THAT'S YA'LLS DEAL...BUT, OBVIOUSLY AND NATURALLY YOUR DR MUST BE DISAPPOINTED THAT YOU HAVE TRIED POT FOR PAIN CONTROL IN THE PAST...YES, IT HELPS THAT YOU EXPLAINED THAT DRUG MADE U ILL AND DIDN'T HELPED WITH PAIN...BUT..ALL SHE HAS IS THE TEST IN FRONT OF HER WITH HIGH LEVELS...LEVELS IT SOUNDS LIKE TO THEM IS INHALED LEVELS....SO THEY HAVE THAT TEST W/ HIGH THC...AND U ADMIT TRYING IT BEFORE AND YOUR HUSBAND SMOKES DAILY SOME OF WHICH YOUR IN OUT OUT AND AROUND IT...YOU TOLD THEM IT'S BEEN A YEAR OR SO SINCE U TRIED IT...AND EVEN THOUGH DR MIGHT BE DISAPPOINTED IT SOUNDS TO ME THAT SHE REALLY WANTS TO BELIEVE YOU AND MOVE FORWARD...BUT SHE DOES HAVE THIS TEST INFO TO DEAL W/...AND I'M SURE SHE IS CONCERNED ABOUT THE CONFUSION WITH THE FENTANAL/DIAULAD STUFF SHOWING UP...SOUNDS LIKE DR WANTS TO HELP YOU...AND FEELS BAD FOR YOU..AND YOUR DOING ALL THE RIGHT THINGS BY SUBMITTING EXTRA URINE SAMPLES ETC...BUT SHE IS WORRIED ABOUT THOSE VERY POTENT SUBSTANCES SHOWING UP ALONG W/ THE NARCOTICS SHE SCRIPTED...SHE DOENS'T WANT TO KILL YOU...NO MATTER HOW THOSE SUBSTANCES GOT INTO YOUR SYSTEM..TO HER THE FACT REMAINS THAT THEY ARE IN YOUR SYSTEM AND MUST BE STRESSING OUT GIVING YOU NARCOTIC SCRIPTS IN THE QUANITY YOU NEED AND ARE USED TO FOR PAIN CONTROL...ALTHOUGH THIS IS JUST HER IMMEDIATE/PRIORTY CONCERN...IT IS TEMORARY..WHEN THE OTHER TEST COME BACK CONSISTENT TO WHAT SHE PRESCRIBES...SHE THEN MAY HAVE A PEACE OF MIND TO MANAGE YOUR PAIN SAFELY...
YOUR MOM DOESN'T WANT YOU TO OBSESS...BUT, ALTHOUGH SHE IS JUST CONCERNED AND DOESN'T LIKE TO SEE YOU OVERWHELMED...THIS IS TOO NEW AND FRESH FOR YOU TO JUST "LET IT GO"...THIS IS MORE LAYERED FOR YOU THAN ANYONE ELSE...INCLUDING DR'S, NURSES, HUSBAND, FRIEND, MOM ETC...BECAUSE IT'S YOUR INTEGRITY BEING QUESTIONED..IT'S YOUR MARRIAGE BEING CHALLENGED,,,IT'S YOUR HUSBAND BEING SHADY...IT'S YOUR BODY IN PAIN AND TEMPORAILY UNTREATED..SOOO YES...YOU HAVE THE RIGHT TO BE STRESSED/OBSESSED FOR THE TIME BEING...IN A PERFECT WORLD I HOPE YOUR MISSION OR CONCERNS (NOT OBSESSIVE) IS DIRECTED TOWARDS THE RIGHT PEOPLE...IE...HUSBAND...YES...THIS SITUATION ***** FOR YOU...BUT THE MORE TIME PASSES AND THE MORE ANSWERS REVEALED...THE MORE YOU WILL BEGIN TO MOVE FORWARD AND PUT SOME OF THIS BEHIND YOU....FOR NOW..I UNDERSTAND, YOU NEED TO BE VALIDATED...YOU NEED THE PEOPLE AROUND YOU TO LISTEN TO WHAT YOUR SAYING..TO VALIDATE HOW MUCH THIS AFFECTS YOU AND NEED VALIDATION IN THE RE-TESTING...IF YOUR WORRIED THE RE-TESTS ARE GONNA SHOW MORE OF THE SAME...THEN KEEP TESTING UNTIL IT IS CONSISTENT W/ PRESCRIPTIONS...DON'T EAT OR DRINK ANYTHING YOU DIDN'T MAKE AND MAYBE SMOKE CIG IN GARAGE WHEN HE'S NOT AROUND..OR GO OUTSIDE.....GET RID OF OR CHANGE ANYTHING THAT MAY ALTER A TEST...UNTIL YOU GET CONSISTENT TEST YOU WILL NOT BE VALIDATED OFFICIALLY...WHEN YOU ARE...THIS WILL ALL BECOME A SLOW BUT DISTANT MEMORY...THIS WILL GET BETTER..I DON'T KNOW WHAT TO SAY ABOUT THE MARRIAGE STUFF...BUT

your quote"  I feel like I've lost the only source of hope in life" , "This doctor probably literally saved my life!!!! She had told me at the appointment that she was not going to discharge me from the practice at that time and gave me another prescription and a follow up appointment."

YOU HAVE NOT LOST THE ONLY SOURCE...EVEN IF IT IS TAINED TEMPORARILY....YOUR DR HAS NOT GIVEN UP ON YOU....AND DON'T YOU GIVE UP HOPE THAT THIS WILL GET BETTER AND WORK IT'S WAY OUT....YOUR DR IS CHOOSING TO BE LOYAL AND CONTINUE TO KEEP U AS PATIENT...SO THAT'S THE POSITIVE THING...BUT EVEN IF THEY DIDN'T...THERE IS ALWAYS ANOTHER DR WHO WILL HELP...NO MATTER WHAT YOUR PAST RECORDS SAY...BUT THAT'S NOT THE CASE...SO HANG IN THERE..BE STRONG...FOR YOU AND YOUR KIDS...
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547368 tn?1440541785
Hello Dontundertand,


Welcome to the Pain Mangement Forum. I am so glad that you have found us and posted in our community. I am very sorry that you too have chronic pain and now must be concerned with your husband. My heart goes out to you.

Physicians will rely on the serum (blood) levels rather than the Urine Drug Screen results. There is a high rate of error with urine drug screening, the most common being human error. It is not an exact science as there are so many factors that can come into play with the Urine screening. So I agree with your mom, don't be overly concerned with the results of that portion of the testing.

Your PMP certainly seems to be very kind and understanding, many would have dismissed you on the spot. You have obviously developed a rapport and trust level with her. That can be difficult to find.

I have no explanation for the false negative results of the blood drug screen. They are generally much more accurate and will usually hold up under intense scrutiny. That said, inaccuracies occur that have no simple explanation. Our archives are filled with concerns and questions similar to yours in drug screening. I wish I could be more helpful but there are few explanations as to why this can occur.

I understand your concern over your husband's behavior. Why on earth would he "tape" you when you were having a bad reaction to a prescribed medication? To what end?  What "experiment" could he have possibly been trying to do?

I did a bit of research on the opiate you were prescribed, Nucynta (Tapentadol). These are a dew of the side effects, agitation, hallucinations, fever, fast heart rate, overactive reflexes, nausea, vomiting, diarrhea, loss of coordination and fainting. It is a newer narcotic that apparently also contains Cymbalta. The hallucinations you experienced can occur with this drug.

So is your husband "dosing" you? Very scary if your suspicion is true and certainly should not be ignored.  I cannot advise you on your personal life...other then to encourage you to give your situation a lot of thought. I would also make your suspicions known to your therapist. Please get some documentation. If this is occurring you need to protect yourself and your children.

Continue to be honest and upfront with your PMP. Believe me they have seen it all and can usually tell when someone is honest or not.

I am glad that your count is better than you thought. If you pain decreases you may want to cut back on the dose or lengthening the time between doses to try and make the RX last longer. I do know that stress can increase our chronic pain, to a greater degree than some of us realize.

I find that just sharing my concerns and pain can be helpful. Please know that you are always welcome to post your questions or just vent here. Weekends can be slower then week days so hopefully our members will have additional suggestions for you.

I will look forward to your updates with interest. Please keep us posted. I wish you the very best.

Take Care,
~Tuck
  
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1275919 tn?1279836004
Ps- I asked her for permission to take 1.5 which means that I probably have 20-25 days worth but just not 30.
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1275919 tn?1279836004
Thank you for taking the time to post!!! My mom says I'm obsessing and I need to let it go but I can't. When the hallucinations from the nucynta were gone after being switched to oxycodone I was over at a friends house. She told me that my husband was upset that I had ruined his experiment. When I asked how so she told me that my husband had told her I had been hallucinating, that he had been taping ne and that he was very close to diagnosing me. When I comfronted him about it he told me that he had and showed me the first few second of one of three tapings. I was apalled to say the least as was my mom. I had also told my doctor this when I got the one week prescription before all this mess. When they came in to talk to me about the drug test the nurse said something about "your husband taping you when you were getting high" I corrected her immediately. He was nit taping me getting high!!! I was having hallucinations not getting high!!! That was probably the most insulting part of that conversation. I spoke to the doctor on the phone Monday morning when I offered myself up for truly random drug tests and she told me not to worry about it tahr it was just going to make my pain worse but how can I not worry about it? She told me that several people have reported to her ingesting marijuanna in their orange juice or in brownings and I told her that at least they knew the source. And yes, it is my husband that smokes on a very regular basis. I have two children, 5 and 6 so usually well go on the garage and he smokes his thing and I'll smoke a cigarretts. I told her the truly horrible thing was that how can I guarantee her it's not going to happen again? I don't even know what happened!!! Why would I self medicate with something I had had a sever allergic reaction to 6 months ago? None of it makes any sense! I work for the federal government and have kept my boss very aware of every medication change. I feel like I'm being proactive in protecting not just myself but my job if I should ever get drug tested at the office. I realize the doctor is probably as confused as I am. He is double board certified and very active in clinical drug trials, after all that's why I chose him! I know he is probably concerned with his license and just looking out and protecting himself but I also feel that's it's unfair. It's unfair that the people who are doctor shopping and are truly self medicating wouldn't probably have any stress from this. They would simply find another doctor. The people who suffer all the way around are the ones who suffer already daily. I an 28 and feel like I have so Manu more years of pain to deal with. Suicide has crossed my mind over the years but like I said I have two little girls that depend on me. It hasn't crossedmy mind since I first started seeing him. I know this is long and drawn out but that's kinda how my mind is right now. All over the place
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Avatar universal

                 twinsmommma-  i'm sooo sorry you are dealing with this nightmare....that is scary and sounds like it could happen to any one of us...think i saw something similar )....anyways...i want to try and help...it may not be much help...but it won't hurt to try...

ok...i'm gonna try and help you trouble shoot through this sentence by sentence b/c my adhd medicine wore off a couple hrs ago and this is a lot going on (which is fine with me....your posts read similar to mine when i'm 'worked up')...so bare with me...
first of all, i just started posting here a few days ago so i could be called a 'rookie' poster....in addition, i hope i can offer advise that you can use if not just  disregard.....which ever u think...

              twinsmommma- fyi..u know oxycodone is in oxycontin which is an ext. release.    think it’s great to bring your mom…I have brought my mom and husband on occasion. that alone should help your doc NOT to lean towards “self-medication”…just what my intuition would feel…I’m no expert though…just trying to help break it down.

            Twinsmommma-( I also took 4 hydrocodone10/500 per day and switched to 10/600 oxycodone…my switch was to seek better pain relieve….maybe, and this is just my thoughts, your dr made an even switch, for lack of better words…’even’ meaning here take this stronger medicine at 5mg…one every 4 hrs and see if that makes a difference or helps)  I don’t think he meant take 2 every 4 hrs (I know the label say 1 or 2)  b/c he should know that u would run couple weeks short….unless he wanted u to try 1 at first and if not helping then take 2…but make sure u call for an appt if u find 1 was working..so u took 2 and will need to call.
therefore,                                                                                                                                          
                   Twinsmommma- ok, obviously here is where it gets complicated…and just so u know…I believe what u say!  Can u do some research to see if there is somehow, someway the fent. Or dilaudid could have lasted in your system that long…maybe other meds could potentiate them giving longer ½ life or how one’s metabolism may effect it…I have no answers myself…but…strange things happen…did you ask dr if there was any possibility?? If your like me I would have been in too much shock to think clearly…sure it was a blur after that blindside.
THC- I wouldn’t think that could have stuck around after a year…I don’t smoke pot soooo don’t know….i’m left to assume you may have been around pot 2nd hand being that u asked dr of that possibility…I’m left to assume (correct me if wrong) that it’s your hubby using pot around you….if so…I couldn’t help but smell a little bit fishyness…don’t want to get into marriage problem details…but u and your mom seemed a lil’ worried…it may be way off base…but then again stranger things have happened…or maybe I watch too much 48 dateline mystery…it may be best for your own peace of mind to make an early appt and really sincerlly explain what u need..it’s confidential so he doesn’t need to know…In this situation..with you in pain, stress, anxiety etc…and if u  have kid(s) that depend on you and your gonna run out of meds…all of those reasons get to ‘trump’ what ever guilt u may have for talking about it…god I hope he didn’t try and sabatoge your medical well-being….and I hope for u and family he didn’t…BUT how else would high levels show up…I’m going off my gut that u would have already come clean to the dr and could move past it etc..i made a mistake…never again..etc…etc..BUT …I believe you..so u gotta figure out what could have caused this whether good, bad, accident or whatever…ya know what I mean?

              twimsmomma- yeah….this is confusing to you still (UNDERSTANDABLY) and to me…so the blood test showed no THC after all….but didn’t show what u took…I think doc thinks this is a sure sign of Inaccurate tests etc..dr gave u script and wants u back…therefore, I think she is not worried about you, per say, dr is probally pre=occupied on how to document this somehow…and meanwhile dr and u didn’t realize your new script wasn’t enough or that u didn’t have time to ask about it for clarity b/c a tornado was blowing all around ya…know what I mean…it might make more sense to make an early appt, especially since the dust will be settled by then and let her know u wanted to clear some things up about med ?’s and other stuff if u choose…I think if u were to stay away panicy and fearful, gun-shy maybe (UNDERSTANABLY) it would look worse for lack of better word…think about it…if someone got caught red-handed failing a drug test they would probally walk out with their tail btw legs and find another doc to fool…and that’s not u…u have been there for a year plus and u brought your mom…those other kind of people work solo…geeze…I thin I watch to much tv…lol..sorry, I know this is no joking matter.

7-  So at first she was concerned I was self medicating, now she's concerned I'm not taking my meds.
How can that be? 3 labs with 3 different results???? I am devastated. I feel like I've lost the only source of hope in life. And how could we really suspect my husband of this??? What does that say about my marriage? I'm so distressed on so many levels. So when she informed me of my results at around 3 pm she asked if I would come in the following day and do another urine sample. I said absolutely. Again, This doctor probably literally saved my life!!!! She had told me at the appointment that she was not going to discharge me from the practice at that time and gave me another prescription and a follow up appointment. Now I am waiting for the results from the second urine sample and I am facing another dilemma.

             Twinsmommma- I know this is easier said than done…but try not to beat yourself up…you r the victim in this mess and I have a feeling it will work itself out…I think your bumps in the road are getting smaller…I’m sorry this mess has u possibly undertreated pain-wise, questioning loved ones and making it a little more awkward with dr..for the time being…BUT hopefully sooner than later…u go in have a sit down w/ dr, marriage might get worse before better..maybe make it stronger in the end…either way get your meds worked out so you can handle what more comes your way pain-managed which will make you see clearer and ‘run’ smoother.

8-  The follow up was for 30 days later. She prescribed 120 5mg oxycodone and the directions on the bottle read "take 1-2 pills orally every 6-8 hrs as needed for pain."
Here's the thing now. I feel like I now have this stigma over my head. I don't understand any of it and have been SOOOO stressed over what I feel like are false allegations not to mention worrying about my husband drugging me now.

9-  So naturally my pain is intensifying. I know that my prescription isn't going to last me 30 days. I'm 9 days into the prescription and if I take the max allowed per the script I will be out between days 12-15 right? Do I wait until my appointment, call and try to get in earlier???? what do I do?

Now I'm terrified if I wait then I won't have it in my system not to mention the pain that's gonna come with that. Will she see me earlier with all this going on??? I don't know what to do! I have offered to allow to let her call me on a truly random basis. I work 20 min from the practice and can come in at any point at lunch to do a drug test. I've released my psychiatrist who prrescribes celexa wellbutrin ativan and restoril to answer any/all questions she may call him with.... what more can I do? What do I do about this month? It's my first full month on oxycodone. Please help!!!! How can I get a false positive and a false negative on the same day????

         think I addressed  most in the above responses…hope it helps maybe a little.
twinsmommma



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