SCS - Spinal Chord Stimulator

[clean_in_ks]

I would be interested to know if anyone has any experience with a SCS, spinal chord stimulator.
I am just beginning my research on this and have a lot to learn yet, but would love to hear from
anyone that has had one implanted.  Thanks so much~

[Tuckamore]

I'll look forward to hearing what you learn. You can be our "resident member SCS Specialist."  :o)  

We need ppl with specific experience. I only know what I read and hear through others.

It's awesome to have hope. I'm so happy for you. There is nothing that medical science can do for my issues caused from a MVA.  It's tough when they take away your hope.

[clean_in_ks]

Thank you, Tuck~
Believe you me....I've definitely got my research hat on.
I will check the archives here on MH...good suggestion, I didn't think of that
.
I also found a SCS Support group (not on MH) filled with both males and females that have them (some for many years).  I will learn lots from them too before I make a decision.  The group is filled with wisdom and caring folks.  I feel so blessed to have found it this past week.  Reading how most of them are able to actually "live" life and "love" their lives again has brought me a glimmer of hope that I haven't had since my MVA in 2008.
I'll let you all know how it goes should I choose that path~
.

[Tuckamore]

Thanks for asking such a good question.

We use to active members that had SCS - I don't think we have anyone right now. I hope someone will see your question and respond.

My older aunt had one implanted in CA. Somehow after several years it didn't function properly. I don't know the exact details. I do know she called me about it multiple times. She wanted it removed but it had grown into the tissues or something near the spinal cord and it could not be removed.

She claimed it would shock her (not severely) unexpectedly. I have no clue how true that was. However I am certain she was very sorry that she agreed to it. She still required opiates to control her severe pain.

I have heard others say on this forum that they were happy with it. If you search our archives you should be able to find some of those old threads.

I'm glad that you are researching the SCS. It's always best to make informed decisions. I wish you well with whatever you decide. Please share with us our experience.

Best of Luck,
~Tuck