Thank you I was diagnosed with 2 pct and varigate yeah I forgot that I had an attack some time back and amir died porph was attacking my CNS as well as seizures and hallucinations docs where I live now have no clue what to do with porph patients it is now affecting me in my heel as well sharp pains hard to walk
I know that porphyria can affect the nervous system and can cause muscle pain. This I suppose could be interpreted several ways. If it affects the nervous system, it would not surprise me if pain over various areas of the body popped up, sharp in nature. That is just an interpretation, but what you describe sounds like part of the disorder to me.
which type of porphyria? I had PCT, a type of porphyria which caused blisters on my hands due to liver malfunction. PCT does not cause pain except where the blisters were.