I have Small Fiber Neuropathy. This disease has effected me tremendously. I used to be a runner, hiked mountains, rode my bike 30 miles a week and a size 8. Now I'm constantly in pain, unable to exercise without excruciating pain and I've gained 60lbs in a year and a half. In a few weeks I will be having a spinal block. Will I be pain free after this procedure, what can I expect about pain and will I be up and moving more?
I, I just wanted to wish u the best..I have non diabetic neuropathy pain and so far ..facet joint arthritis,,
I have had radio frequency ablation on sacral 1thru5 nerves both side of spine for facet joint arthritis but that was not for neuropathy pain..had relief for three years..
I do not know about a spinal block ...
I have trigeminal neuralgia both sides of face and it is worse on left side as ringing..roaring in ear is worse on that side..and I had cataract surgery a yr ago and have shooting pain in left eye then dull ache..
I have other areas of shooting pain that a Pedundal nerve block they said might help..
I went to see a neurologist yesterday for all nerve pain issues as I want to get off the 4 oxycodone 10mg I take a day...taking myself down to 3 a day now...but the pain just takes over my whole body..so I am just in a world of hurt but so much less than most!
Anyway..she is sending me info on a 5th cranial nerve block that can be done..to help the trigeminal neuralgia..
Hang in there..
I have heard that some blocks work right away and some last a few days,weeks, then after repeated kick in for much longer time..spinal block I do not understand but I want to understand more as I want to try to go that route dor neuropathy pain ..if I can..
Do you take lyrica or gabapentin or other anti-seizure med?
For nerve pain?
Keep in touch and best of luck..
You are not alone..
In 5 yrs I have gained 40lbs cause I hurt ......and was just diagnosed with hypothyroidism so that will slow me down more!
I take 600mg of lyrica a day, up to 300mg of tramadol, depending on pain and 7.5mg of morphine at night. I know the injections are up to 9 a year depending on pain, so obvisouly it wears off and need another injection, again depending on pain. A nurse told me today that I probably will have numb legs since they are numbing the nerves. There is no reason why I have this neuropathy, no neurologist or doctors can figure it out, but they do suspect an antibiotic that I was given 10 years ago might have caused it. Thanks for your blessings and I am glad I found this site.
Oh, my goodness.., might I ask what antibiotic?
Where are your nerve blocks?
I have had problems mostly on left side of body now,,like you, nobody knows why ...
I had left lumbar one radiofrequency ablation 13months ago and that has worn off...but had it because of severe pain in left ,lumbar plexus.pain I had had 6 yrs.....also s1thrus5 rt lft side ablation for facet joint arthritis..and that has worn off but lasted 3yrs,,,
All nerves travel and interconnect and as ablation cuts the nerve they grow back but the blocks my anaesthesiologist will give might not be Pedundal, etc..
He always asks if I feel any leg pain as he is abating nerve and I haven't yet..
I am having left lumbar ablation on thurs,..I wanted it 2 days after he did his usual xylocaine nerve block pre-ablation which, if gives relief, he then ablates a few days later."but he went on vacation for a week and that has started a plethora of nerve acute pain from vag. To Pedundal to sacral nerves on left side.
I had to increase pain med by 50% and was doing so well keeping them down.....but I pray he does the ablation to lumbar and sacral and will check out Pedundal block..
Going to go see pain dr today and will have to ask for more breakthru meds..
I take 150mg lyrica twice a day and hydromorphone 4mg 3 times a day but last week have had to take 2 tabs at a time at least twice a day...
Where we're your blocks?
Thanks for your comments and information..
Bacterim ( spelling) was the antibiotic. I had the nerve injection yesterday and today I'm still in pain. Maybe it takes a few days to kick in, not sure. I have another injection in two weeks. I'm trying to wean off of lyrica because it doesn't work. I will just use my pain meds of tramadol and I was also given morphine. I hate that this disease has taken so much from my life. I sure do hope I can get some relief and get back to "normal"
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