I have had 25 or 26 surgeries in my 30 years. Eye, heart, brain, shunts, shunt revisions/replacements ... this past Wednesday I had my VP shunt valve replaced because it was clogged. I have had issues with morphine not working after surgeries since I was a kid. I always tell the anesthesiologists and nurses that MORPHINE doesn't work. I am always reassured that my pain will be managed, don't worry, we will take care of you.
So I woke up in PACU in a lot of pain. At this point I am silently crying the biggest, dumbest tears known to mankind. But still relatively calm and hopeful that someone will take care of me, they wont just let me suffer. They get me to my neuro ICU room and all that was ordered for pain is morphine. I lose it. I'm hysterical. I can't calm down. I can't stop crying. They get dilaudid ordered. But it's .5 milligrams (I've had it in a pain pump at this dose, every 10 minutes) .. and THAT doesn't work that well. I'm then offered oral tylenol. I'm still hysterical. I hyperventilate and can not catch my breath. There are two nurses that smirk at my inability to calm down? The pain did not feel survivable. Or maybe I just wished it wasn't. The head pain management team member tries a migraine cocktail. (I just had brain surgery, I don't have a migraine) ... he thought it worked because I passed out. I had been screaming and crying and begging to be discharged for about 4 hours. I passed out from exhaustion like a child. From then until I was discharged I was only given oral tylenol.
It will be a week since surgery tomorrow. I haven't been able to sleep. Or eat. Or relax. I think I need some sort of therapy. I still can't believe how bad it was. Why would this happen? why didn't they care? my blood pressure was a little low. So maybe they could say it wasn't safe? but it was low at discharge and I was then prescribed the highest dose of hydrocodone I've ever had in my life. So versus treating my pain and monitoring me where it's safe, I'm discharged . They usually give me something for pain before the ride home. I live about an hour from the hospital and it's always a hard ride. They offered me my last dose of oral tylenol and I refused it. I'm really traumatized and I want my shunts out. I'm shunted for hydrocephalus that was a complication of one of my brain surgeries. I see the surgeon the 5th and I would rather risk untreated hydrocephalus than having to deal with these shunts for the rest of my life. I have anxiety that I never had before and I can't handle it.