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1035252 tn?1427227833

Very painful night - waiting for meds still

Once again I'm here for some support because you guys are amazing. My neuro had a death int he family so they're playing catch-up in the office this week, which means I've been without my pain meds for several days. I was OK handling the headaches because I had some Tylenol #3 (which he's told me to use in a pinch before so he knows I have it...he wrote it and told me to keep it "for an emergency") which made them tolerable...but tonight my back is cramping and spasming so bad that I'm shivering in pain. My SI joint has almost no cartilage due to 14 years of horseback riding injuries and some genetic problems and right now it feels like someone has stuck something into my SI joint and I can feel the bones grinding together when I shiver; it's excruciating. Normally I would have a good solid Norco to take and that would at least HELP with the pain, but right now the Tylenol #3 isn't doing ANYTHING....it hurts soo bad. I'm sure you guys can relate, and most of you are saying "pfft that's nothing!" but call me a wuss LOL. I have no bathtub (we have a huge shower but no tub :-( ) so I can't take a bath....I hurt too bad to get up and heat up my rice sock but I may prod my husband into doing it soon because every time I shiver I can feel the joint throbbing and it's killing me.

Sorry guys just need some words of encouragement> I'm calling first thing in the morning and getting pushy with my neuro. I understand grief and being busy....but I'm not going to be patient anymore. I can deal with one or the other; headaches or back pain, but the two together have me really down right now.
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Avatar universal
I haven't been on much due to no more laptop :(  So I'm sort of reading and trying to catch up on things.  This ordeal has been awful for you.  I think you have had great support and advice from people here (don't you love this board and it's members????  The people here have helped me through my darkest times.)

I think you have been way more than patient and kind.  It's sad that your doctor had a death in his family BUT we all have to take care of our responsibilities even at times like that.  If he wasn't ready to be back to work, he should have had a doctor covering his practice.

I can understand your reluctance to get into pain management, but I think it's time for you to look at that option.  I love my pain management team.  We've had a couple of mix-ups here and there but nothing too bad.  They've been great in working with getting me on the right medications to help me function.

I worry about addiction ALL the time.  I talk about it at every appointment.  It's a fine line.  But the truth is, like Tuck mentioned, that the majority of chronic pain patients do not become addicted.  I had read a great book on this that was given to me by a friend.  It's on treating chronic pain with narcotics without opioid abuse.  I found the information really interesting and it did put my mind at ease.

I think it's disgraceful that you had to suffer any withdrawal symptoms at all, never mind not having anything for your unrelenting pain.  I think the suggestion of making an appointment to get this straightened out before your next refill or script is due is a good one.  Go in, sit down face-to-face, get  your new prescription and read it in front of him so there is no doubt as to what it is.  But while you're doing that, start interviewing pain management doctors.  I know it's hard to find a good one, and you don't want to jump from the frying pan into the fire, but if you can search for one while still under the care of this doctor, you will have the time needed to find the one that's right for you.

I hope you'll be feeling better soon.
Helpful - 0
647911 tn?1373314647
thank you for ur post, it made me feel better! Glad to have found someone to make these next 9 months a little easier!!!!
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547368 tn?1440541785
I am so VERY happy to hear that you have your meds...finally!!! I've been so concerned about you.

A few posts back...before you admitted you were 94...LOL..you raised a concern about addiction.  I admit that I don't know you well, only here on MH. However I have highly doubt that you have an abuse problem...or addiction, whichever  word you prefer.

Most ppl do not know the statistics. One of the toughest challenges what we as chronic pain patients encounter is our quest for adequate pain control. There is a huge misunderstanding of the difference between physical dependence on a drug and drug addiction. It is true that many CP suffers, friends, family and unfortunately even the some physicians are fearful that ppl requiring narcotics on a long-term basis will become addicted or addicts. Statistically the number is very low, around 4% by one study and less then 2% by a more recent study. The rare few who do develop a problem with an addiction are often those that have a genetic predisposition to addiction. But as a result of this unfounded fear and "opioid-phobia,"  CP patients are often labeled as “drug seekers” and stigmatized for their use of narcotic medications. Worst of all, our pain frequently remains under-treated or even untreated.

Addiction is a neurobiological disease that has genetic, psychosocial, and environmental factors. CP sufferers are much more apt to be dependent...NOT addicted. If you would like more information on this please let me know. I highly doubt that you have reasons for addiction concerns. And you answered Nic's addition post(s) well so you do get it.

Peace,
~Tuck
Helpful - 0
1035252 tn?1427227833
Thank you very much :-). I'm sorry you're so confused about everything you're going through, but from what I understand that's entirely natural when you're recovering from an addiction. You're going to find whatever you possibly can to cast doubt on your actions so you can rationalize either what you did or rationalize a way to do it again.

It's especially hard to be pregnant and in pain, but if you know you have a problem with pain meds then it's truly a gift you are giving your baby by staying clean and you shouldn't doubt yourself for even a moment. If, somewhere down the road, you feel like you need to use pain meds again to control your pain, hopefully you can do it from a different place in your life. Very often addiction comes to us in our moment of weakness in order to replace something we're lacking. Not always, but sometimes if you can attack that problem and sort out your life, you find that your addiction isn't such a battle. I took a lot of psychology in college, and while it's SO easy for me to TELL you about addiction and why it's so hard for you right now, that doesn't make it ANY easier for you to deal with, and I know that...I wish I had words to make your mind at ease!

I truly do believe that there is a way to use pain meds responsibly and have them enhance your life instead of hinder it. But I know that sometimes it's a fine line, and I completely sympathize with that. I hope that you find peace in your heart soon, and that you find a way to cope with the pain that you're in because as a mommy I know how very hard it is to try to BE a mommy while you're in pain.

Best of wishes and good luck to you, please feel free to message and talk if you're ever in a funk and need to sort out your mind! Like I said, I don't really have any first-hand experience with addiction but I do try very hard to lend a shoulder. *hugs* I'm also a Co-CL on the Pregnancy 18-34 forum so if you ever need to hop over I'm there and I'll look for your posts :-).
Helpful - 0
647911 tn?1373314647
I really understand that, I agree if u have true pain and u dont abuse why hurt so bad, and have a poor quality of life, Like myself I have to wonder sometimes I know that I abused painkillers so bad and Im trying really hard to keep myself off of them,Im pregnant and suffer everyday, Im trying to figure out if I was really in real pain or is this just rebound pain from using them for so long and so much, I dont really have any quality of life now that Ive stopped using them, but on the other hand I did abuse them really bad, I cant seem to figure it out, I dont have the physical w/ds anymore, but more mental so thats probably were I think I was using them for really no good reason, thanks for the reply thou and ur babies are very cute!
Helpful - 0
Avatar universal
LOL  -  I WONDERED about your age there for a minute, My Dear Friend!!  LOL  You are the MOST GORGEOUS 54 year old that I've EVER SEEN!!!  LOL

Yes, Ash, you stated it BEAUTIFULLY, as to the DIFFERENCE of and ADDICT vs. a person that is DEPENDENT!!  I couldn't have said it ANY BETTER!!

Hope, to hear soon that your Doctor has FINALLY corrected his HUGE ERROR!!!!

{{{{HUGS}}}}.............Mama Sherry  :)
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1035252 tn?1427227833
LOL! I've been taking them for 5/4 years...not 54
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1035252 tn?1427227833
Thanks for the info Nic :-). I have been taking them for something like 54 years and I've never taken more than I'm supposed to, or taken them to get high, or had any problem going without (other than physical withdrawals) and eveyr now and then I ask the doctor ot lower my dose so that I can keep my tolerance under control...after 4 years, I'm only taking 7.5mg norco 2-3x a day max, so I think I have a good handle on the situation.

I do worry, but I think that I'm capable of making the judgment call of when/if things started to get out of control. I've been through months of my life over the past several years without the meds and the pain is definitely NOT better.

I appreciate any point of views, but I think that everyone else hit on something really true here: there's truth to the fact that it's easy to lose yourself in addiction. But just because you're dependent, doesn't mean you're addicted. That's a whole different set of attitudes and actions and mindsets that dependent people DON'T have.

I will always watch and make sure, but I don't think that I have an addictive personality (other than crushed ice, omg I love crushed ice LOL) and as long as I feel like I am not out of control I will continue to enjoy the quality of life I get from properly controlled medication use.

Thank you though :-). (in case you were wondering the reason I was short on my meds this time was doctor error and it was clearly correct in my chart...I've spoken to a nurse and we're getting it sorted out now...it wasn't me simply taking too many).
Helpful - 0
647911 tn?1373314647
To me most people start out taking painkillers for some kind of pain, I think the line is where u need them to take away ur pain or use them to get high off of, Painkillers are so known for sneaking up on u and before anytime ur using several per day, and not as directed by there doctor either, I dont beleive in suffering but I do thing they will start running ur life, jumping different pharmaices, doctors, making excuses why u dont have enough meds to ur doctor, its a really bad cycle, I spent since 2006 consumed by them because of a car accident I had, I reached a peak this yr thats 4 yrs later that i was killing myself with the painkillers , I never did anything illegal with them just took alot, I to have 2 kids the stress of the kids were enough to send me into a haze all on its own and the w/ds were probably the most unbearable thing I ever went thru, I can see others situations on why they take pain meds, I do know with them thou they make ur pain 10X worse then it actually is, they make the pain so much worse, I just figured I dont ever want to look at another doctor unless I have to or a pharmacy telling me Im to early for my meds again,  If I offered some light on your situation and helped u to see there is always another way that would make me happy, painkillers are good and bad and sometimes they are needed but they will destore u 2, I would really like to  know that I helped someone being saved by w/ds that just get worse with more u take and the longer u take them the worse the w/ds, after months of w/d off my painkillers still today I hurt and want them so bad, but I know that comming off of them now for months of tapering I will get better, there is alot of people on the subatance forum that took painkillers, most of them have great insight on the situation! Best of Luck to u!
Helpful - 0
Avatar universal
Ash, I'm SO glad that you FINALLY have a little relief!!! What you went through was TERRIBLE!!

You were BEYOND NICE with them.  Even with him having a death in the family.  You were NEVER rude!!  I don't have ANY idea why the nurse was rude OR annoyed UNLESS she finally had the CORRECT script ready to call in for you OR something along those lines.  

Optimus had the PERFECT solution when you go in to see him and that was to ask your Doctor "What should I do next time in this situation?"!!  That is PERFECT!!

When IS your NEXT appointment?  I HOPE you don't have problems when you run out of these pills. If I remember correctly, this INCORRECT prescription is for only 2 pills a day and it was supposed to be for 3 pills a day.  Is THAT right?  And are these the 10 mg OR did he cut you back to the 7.5 BUT didn't up the dosage to 3 pills a day?  I HOPE that this gives you the relief that you DESERVE!!!

We are here for you!!  Don't EVER forget that!!

Much Love and MEGA {{{{{HUGS}}}}}...............Mama Sherry  :)
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Avatar universal
I'm so happy that you have your much-needed medication. I still can't believe that you had to go through all of this. I would totally try to find a new doctor if I were you. I am keeping you in my prayers!

Hugs,

Flower
Helpful - 0
954005 tn?1304626605
I am so glad that you will hopefully be getting some pain relief now...It will be much easier to think about what to do when you are not in such pain or withdrawing from not having your meds.  

Do you have any appointments scheduled with your doctor over the next 20-30 days? Or can you make an appointment? I believe that this incident deserves a face-to-face meeting with your doctor.  As far as the nurse goes, I would not worry too much...If she seemed annoyed, it could not even have anything to do with you.  And if it was, you have done nothing wrong.  You could mention it to your doctor also if you feel that it needs to be brought up.  I would ask your doctor "What should I do next time in this situation?" Not that you could have done anything differently, but it may break the ice a little more softly....until you decide that you will be looking for a new doctor, you want to keep a cordial relationship with him.  

Now as far as the pharmacy, that is a different story.  When the nurse said she thought it would be filled because of it being a "new" prescription...was that as opposed to a "refill"? I guess the insurance company could have a problem with it, but I'm really not sure.  

I hope you are having some relief at this point...I've been following this thread, but have been ill, and not really able to contribute.  I have been thinking of you all the time though, because I had a similar incident once, and it was just awful.  I hope you get some things straightened out with your doctor:)
Helpful - 0
1436598 tn?1332896533
I'm so glad you got your meds!  And so sorry that you had to go thru all this!

You have been beyond polite with your doctor's office and they have NO reason to be upset with you.  You, on the other hand, have every reason to be upset with them.

And no, you are not an addict.  You are taking meds as prescribed for a very real condition, not to get high or have extra energy.  Your body is dependent on the meds now which is why you had to suffer the pain of w/d in addition to the original pain that came rushing back once you were out of meds.  It is ridiculous that you had to go through this.

Please don't be hard on yourself.  You deserve to have your pain managed adequately and that absolutely didn't happen this time.

~~ dgg
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1035252 tn?1427227833
Well I have my meds in hand. still the wrong script that he called in, but I called my doctor and let them know "I picked up the script he called in last week and this way he has time to call me and sort this out before my next refill is due...so he won't be rushed and I won't feel rushed....but I just wanted to let him know."

The nurse sounded annoyed? Idk....I hope that I don't get dropped for picking up the script?> I don't see how I could, except that I've been bugging them to get it sorted and maybe they would get upset with that...but since I didnt' do anything WRONG I don't see how...

anyway, I'm just paranoid. but I have my meds and I'm going to go take one (or maybe a half) and see if I can get some relief for awhile. just wanted to update, and see if anyone had any answers about why the nurse would be annoyed? I haven't been calling excessively every day or anything, I called yesterday, and Ic alled today...but last week I only called once on thursday and once on friday after the initial fax on monday...so that doesn't seem excessive, and it was never me calling "hey fix my meds!" it was always "this is what the pharmacy said and this is what I needed to ask you"....

bleah. sorry for rambling. i'm just nervous about why the nurse would sound annoyed.
Helpful - 0
1035252 tn?1427227833
Well I just spoke to another tech who said they're filling it now for me, and it'll be ready soon..but I'll believe it when I see it. My doctor STILL hasn't called...I'm just hoping that the script goes through and if it does I'll call my doctor and be like "I went ahead and picked up the script that you called in last week and we'll sort this out this time around...we've got 20-30 days to get it figured out, so let's start talking" and go from there...at least that way I'll have my meds and I'll have more time to get it all figured out, instead of being rushed.

Does that make me an addict? that I want to just get my damned meds after several days of not having them and THEn sort it out? I always wonder about that sort of thing. I mean I didn't have any super cravings or freak outs when I ran out, I just went through withdrawals and felt very depressed and sick...idk. As a CP patient at my age I'm always afraid of addiction, but I never take more than I should (except this time but of course that was due to a very honest mistake) and I happily lower my dose whenever the doc asks me to; this last lowering of the dose was MY suggestion. Idk...I always worry though. I read through the Substance Abuse forum and see all sorts of people who suffer from chronic pain but who have opted to stop taking their meds and I wonder why?- CAN you take pain meds and not be an addict (although y+ou can be dependent i know that)+?

h
w issorry my son keeps kicking the keyboard, lol. anyway hopefull+y t
his will get sorted soon. +
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Avatar universal
You know Ash, I might EVEN consider looking for a NEW Pharmacy ALSO!!  Which Pharmacy are you using?  Because IF the Insurance is willing to cover them then there's NO REASON for this Pharmacy NOT to fill it!!! When a Pharmacy starts to "play God" that's when you need to change!!  As I recall you checked with your Insurance and they said there was no problem with filling it.  Am I remembering this correctly?

I JUST feel so HELPLESS!!!  I'm not even your Mom {Just and Adopted Mom} and I feel Helpless and like MY hands are tied.  As I've said MANY times, you KNOW how much I care for My Girls on MH!!  This just breaks my heart to think of the PAIN that you have been going through for OVER a week NOW!!!

You KNOW that I WILL be looking for your NEXT update!!!!..........Mama Sherry
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Avatar universal
I think that the pharmacy really should give you your medication already! I'm glad that you're going to call them. Can you just go in and talk to them face to face? I know that it's far, but they really should fill it.

Thank you for updating us.

Hugs,

Flower
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1035252 tn?1427227833
Thank you os much everyone for checking up on me....still no meds :'-(. The nurse I spoke to yesterday said "I can't believe we haven't sorted this out for you, I'm going to give him this message straight away I'm so very sorry you poor thing"....and...yeah..I still haven't heard anything. I sent the initial message LAST monday.

I'm definitely going to start looking for a new doctor, but for now I just wnat them to give me my freaking meds. I'm going to try contacting the pharmacy today to see if they'll release the script..since the bottle THEY gave me say s"may fill on or after 1/11/2011" i would imagine that they SHOULD fill it....I just can't believe this whole mess. I realize that there was a screw-up with the frequency and the pharmacy has to cover their butt, but I'm a good patient whoa wlays takes her meds on time or sometimes goes over on scripts, so for this to happen they have to realize that something was out of the ordinary...I guess the nurse I spoke to yesterday said that when they sent in the new script, even though it was the wrong frequency again, it should've given the pharmacy permission to fill it because it was a new script (not sure what she meant) so she had expected me to be able to get my meds last friday because of the new script.....

I don't know. at this point I'm baffled. I'm going to call right before lunch and give them until the end of the day to call me before I actually start getting rude. I'm a very patient person, and I'm always calm and not rude...but at this point, I'm miserable. I was cold last night going ot bed so I was shivering and the pain spread into my hips and butt...I had to pack my hips with heat packs to get any sort of sleep. And my head was THROBBING all night. I've been out for a few days, and withdrawals are awful. I'm over the worst of them at this point, but I really shouldn't have had to go through that...not with 2 young kids who rely on me and a mistake that WASN'T MY FAULT :'-(.

Sorry guys wish I had better news..I'll upate today later because I'm not letting this go any longer. I shouldn't ahve let it go this far, but I try so hard to be polite.
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547368 tn?1440541785
Hi Ashelen,

Just checking in to see where you are in this horrible ordeal. You poor soul...no on should have to go through this to obtain a legitimate prescription for their pain management meds.

It's time to switch SOMETHING!!! If this mix-up is caused by your PMP...change. I know how very frightening consulting a new physician can be. I just went through it!!! But I found an intelligent and concerned PMP. He'll never replace my exceptionally kind and compassionate PCP back home....but no one ever will. So don't let the fear stop you from searching so this doesn't happen again.

Now if it''s your pharmacy that has added to this mess it may be time to change pharmacies. Of course you'll have to notify your PMP and discuss the reasons with him as I believe you are required to stay with the same pharmacy.    

There's nothing that can change what has happened now....but you can take steps to see that this doesn't happen in the future.

Chipster, I'll be contacting you to learn more about your SIJ Fusion. The surgery has been discussed with me...but EVERY specialist has discouraged it due to the high failure rate... I want to know more.

Ash, Please update us! My heart goes out to you...and you have been in my thoughts and prayers.

Peace,
~Tuck
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1490116 tn?1304817137
I would just like to say that I am praying for you that you get your meds. I have the same back problems. The pain is awful. I would try a PM Doc.

Inga
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Avatar universal
Hi Ashleen. Have you spoken with your doctor yet? I hope that you have your medication by now!

Hugs,

Flower
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1553205 tn?1294251012
I had an SI fusion, and it worked miracles!!! It is the only surgery that I don't regret!
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Avatar universal
So, basically you're waiting on your doctor to write a new script...? But, there is a script at the pharmacy that can be filled but they won't fill it...?
Is there any possible way that you could just go to the pharmacy and pick it up or is that a bad idea?

HUGS,

Flower
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Avatar universal
Ash - is there ANY WAY that you can go IN PERSON to your Doctor's office on Tuesday and STAND there while they FIX-IT???  That way, they CAN'T SCREW IT UP for you.  IF they do then you will KNOW that your Doctor ISN'T as GOOD as you THINK he is!!

I just wouldn't leave it to chance on the phone ANYMORE!!!  

I just wish I could be there for you in person!!  

Sending you MORE Gentle {{{{{{HUGS}}}}}}.........Mama Sherry  :{
Helpful - 0
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