Attitude and sharing our chronic pain can be so beneficial is this often difficult journey. I am happy to hear there was so much comradely in your PM Group. It makes a difference when you have others beside you.
Chronic pain is chronic pain, no matter it's location. Although I may not completely understand some one's shoulder pain, no more then they can mine, I certainly understand the challenges that pain brings to our lives. When I first came to the PM Forum I would read a post and think, "I could have written that....those are my words.....or my thoughts and feelings."
It is my greatest wish that those with CP come together here....or at least locate another support group. It can make all the difference in the world. Knowing you are NOT crazy and that others experience just what you do can be so beneficial.
Our one time posters are missing so much. MedHelp has provided us a great forum where we can share, learn and gather support and encouragement from others that face the same things.
I am happy to hear of your progress and wish you the very best. Again, thanks so much for sharing.
~Tuck
thanks for replying and i will try to come back more often. Actually, one of the really good things to come from my pain management course was that i was with 9 other people, all of whom had severe pain but different conditions. It was a big help that although we had different conditions, we all seemed to have a lot in common such as the thoughts we think and the guilt we feel. The fact that we all seemed to suffer from bouts of depression all be it in different degrees. Just belonging to the group was great as we didn't have to put on a front and if we where in pain we could just talk about it and support each other. We have swapped E-mail addresses and so far we have stayed in touch even though my e-mails have been more of a comedy run down of what i have been up to but they reply saying that it cheered them up to read it so thats my aim.
i stopped taking my oramorph yesterday morning and i have made it to the second night. I have been suffering from the sweats and the chills and the constant feeling sick but i knew this was going to happen and i think i'm doing ok so far. While at the pain clinic i was reducing my meds and oramorph was next on my list to cut down and had managed to cut it down from 4 x 25ml doses per day to 2 x 20ml and 2 x 15ml per day. i had talked with the med nurse about coming off my meds and i will be seeing her again in 2 weeks as we have to go back for a 1 month review. I can also phone them if i want as we are still under they're care for 10 months from the date of the end of the course.
Well, as i said i will try and keep coming back so will update you when i do. cheers again, niall.
Hello again and thanks so much for sharing your experience. I hope the benefits will continue to increase and that your pain will be better managed.
I encourage you to never go cold turkey off a medication that is unless you are instructed to do so by your physician......even then you will require monitoring and medical support. If your physician agrees I would continue to slowly decrease your dosage....but again, always consult your physician.
Please let us know how you are doing. I'll be interested in hearing the end results of this program and following you through the process.
My Best,
~Tuck