Pain Management Community
neurofibromatosis
About This Community:

This patient support community is for discussions relating to pain management, chronic pain, arthritis, back pain, cancer, headaches, movement disorders pain, and muscle pain.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

neurofibromatosis

I have NF 1. I have had 5 tumors removed from my right foot. there were 4 remaining. it seems like 2 have grown back and I think I have 2 brand new ones. I also have pain in my back, however no tumor is located there. I can not take pain medications they wither knock me out or make me sick. I have 4 kids to raise and 1 is a cardiac child. so being unable to function (this is on the lowest doses) is not an option. and who wants to vomit all day.
The neurologist is recommending me to try a spinal nerve stimulator. oh I also had a nerve block on my right leg and it was like heaven. it was the first time in 18 years I wasn't in pain. we went and had the tibual nerve cut so I can go on with life. (I have never gone swinming, hiked, biked or anything that involes moving my foot with my children and I want to) the nerve cutting failed. I think it made the pain worse. The only thing that seems to help is sitting in my hot tub at 103 degrees.
What is your opinion on the spinal nerve stimulator. I am desperate.
Michelle
Related Discussions
Post a Comment
To
Go
Blank
Weight Tracker
Reach your weight goal faster
Start Tracking Now
MedHelp Health Answers
Top Pain Answerers
1326416_tn?1366740555
Blank
shinty
Just outside of Boston, MA
1855076_tn?1337118903
Blank
marycarmel
MA
Avatar_m_tn
Blank
omhome
eureka ca, CA
Avatar_f_tn
Blank
Weathergirl21
1193998_tn?1265121197
Blank
carolanivey
OH
3112530_tn?1342559764
Blank
TheMadMan
Long Beach, CA
RSS Expert Activity
1741471_tn?1349564002
Blank
Parkinson Awareness Month: Parkinso... Blank
May 10 by Michael Gonzalez-WallaceBlank
233488_tn?1310696703
Blank
NEW STUDIES ON PREVENTING PROGRESSI...
May 08 by John C Hagan III, MD, FACS, FAAOBlank
2126606_tn?1346348724
Blank
Heroin Use in the U.S.
May 08 by Clare Waismann Kavin, Blank