Pain Management Community
neurofibromatosis
About This Community:

This patient support community is for discussions relating to pain management, chronic pain, arthritis, back pain, cancer, headaches, movement disorders pain, and muscle pain.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

neurofibromatosis

I have NF 1. I have had 5 tumors removed from my right foot. there were 4 remaining. it seems like 2 have grown back and I think I have 2 brand new ones. I also have pain in my back, however no tumor is located there. I can not take pain medications they wither knock me out or make me sick. I have 4 kids to raise and 1 is a cardiac child. so being unable to function (this is on the lowest doses) is not an option. and who wants to vomit all day.
The neurologist is recommending me to try a spinal nerve stimulator. oh I also had a nerve block on my right leg and it was like heaven. it was the first time in 18 years I wasn't in pain. we went and had the tibual nerve cut so I can go on with life. (I have never gone swinming, hiked, biked or anything that involes moving my foot with my children and I want to) the nerve cutting failed. I think it made the pain worse. The only thing that seems to help is sitting in my hot tub at 103 degrees.
What is your opinion on the spinal nerve stimulator. I am desperate.
Michelle
Related Discussions
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Pain Management Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Pain Answerers
7721494_tn?1411517293
Blank
philnoir
Four Corners, CO
535089_tn?1400677119
Blank
Mollyrae
WI
Avatar_m_tn
Blank
trixy71
1855076_tn?1337118903
Blank
marycarmel
MA
8976007_tn?1400955760
Blank
Jinx_777
9501656_tn?1404652987
Blank
Diamond_Dixie
Somewhere in NorthFL, FL