HI Tuck! how are you thank you for your input i will look up this vasculitis and see what all the symptoms are and i will dicuss this with my gp because i think that my cardilogist is afraid to touch me because i died on him twice he told me i was the second person to die on him. I am new to this what does all the abreivations stand for like d.o pmp,pcp. How do you join this community all i see is watch this discussion?.
I have been asking all the doctors all kinds of questions and none of them could tell me anything i have asked my heart doc and he kept telling me that it was nerve damage but i have been to a pain management doctor that's who done both my nerve blocks and even he said he didn't think the nerve blocks would help me. my gp has put me on pain meds we tried vicodin,morphine which helped but i couldn't take it because it made me not be able to urinate so now i am on perocet it kind of helps it takes the edge off for about an hour or two but thats all then i am in pain until i can take another 2 which equals to a perocect 10. but i sure do appreciate your input i will do some checking on this and talk to my gp which i just started seeing him i was with this last doctor for 45 years but this doctor didn't do anything for me its like he was just there to make his pay check so i found a new doctor and he is trying to help me. But once again thank you and i hope you have a great day and that you stay healthy and safe. Have a blessed day! Sincerly;Redeena
Hi Redenna,
Welcome to the Pain Mangement Forum. You have certainly been through a lot and my heart goes out to you.
Although we are the Pain Management Community I am not sure that given your extensive cardiac history we will have a lot of information or suggestions for you. Your pain and pressure may very well need further medical investigations. Are you confident that the cardiologists and other specialists have been extensive in their search for the etiology of your symptoms? If not than please consult with additional medical professionals.
Have they considered a condition called Vasculitis or Rheumatoid Vasculitis? Vasculitis is a condition of blood vessel inflammation. Blood vessels include the veins, arteries, capillaries and their branches that make up the circulatory system . The is just a thought because of the way you describe the pain at every location that you have a pulse. There are so many conditions that could cause your pain that may not be related to your cardiac disease at all. But again we are the PM Forum and maybe not the best forum suited for you.
We do know about CP (chronic pain) and the struggle every day can bring when you are suffering with CP. Yours seem to be ill managed and uncontrolled. You are still a young woman to be living with this all encompassing pain. Have you been to a PMP? If there are no other solutions to your pain than I highly recommend that you see one. In my state PMP do not follow and treat CP patients. They do evaluations and offer suggestions for pain treatment but it ends there. Our PCP follow and prescribe pain management medications. Which ever physician would be responsible for PM I suggest that you set up a consult with him/her. There are medications available to you that can reduce your pain and improve your mood.
I have been where you are, frustrated and depressed with the pain that controlled my daily living. A compassionate and astute PCP, a D.O. diagnosed my painful condition and treats me. I now care if tomorrow comes instead of wondering how I could face another day of agony. Talk to your PCP and request medications to control your pain if they are unable to find other successful treatments. If your PCP is unable to or unwilling to help you with your pain request a referral to a PMP.
I would also consider posting in one of our heart forums. I know we have several. Click on the forum option above and you will find them listed in alphabetical order. Please let us know how you are doing. I will look forward to your updates. You are always welcome here. We will do our best to support you. Please consider becoming an active member of our community and any others you find helpful. Best of luck to you.
Take Care,
Tuck