Recurring HIGH fever in a 1 year old..

[JBsMom10]

Hi. My son is 13 months old. Since he was about 5 months old, he has off and on developed fevers. He developed teeth early ( he has 13 teeth now) and had several colds from daycare. At the age of around 8 months old, he developed a 106 fever and was rushed to the ER. They sent us home that night with antibiotics and said it was a virus. Since then, yes since then.. he has had a fever on and off. A week has not gone by without developing a fever in between the range of 100-105. Many times, he has no other sympton AT ALL. Now, it has been 7 weeks with recurring HIGH ( 101-104) FEVER. Every time we take him to the doctor, they say it is justa virus and to let it pass. I cannot take this "virus thing" as the answer anymore. Is it just me? Am I crazy or is this abnormal? What does this sound like to you? I need a doctor to help him!

[Me2mommy2b]

Well, where do I begin...I'm no doctor and I don't know what underlying medical issue there might be but I do understand your frustration with the "it's just a virus" answer.  It sounds ridiculous to me.  What does his pediatrician say?  If he feeds you with the same bullc***, I would find a different one.  Recurrent fevers do not sound normal and giving him antibiotics so often, as you know I'm sure, is not that great for his immune system.  I hope you find answers soon.  All the best.

[kellym]

Do they check his tonsils or throat during these fever episodes? My sister's 2 year old just had her tonsils out because she was getting a fever of very high temps every 28 days due to her throat infections. Sounds weird, I've heard it called periodic fever? It's very frustrating. The doctors don't like to take the tonsils out that young but the high fevers arent good for them either. good luck

[BBsMom]

Well, I just found this post and had to respond depite the delay. My 20 month old is having a similar problem. She is not in daycare so is not catching viruses from other children and other members of our household are not ill (including a baby brother). She has been taken to the ER are several occasions with a fever over 105. (Twice it was 106.5.) A few times she was actually diagnosed with something (flu, RSV) but more than half a dozen times it was "virus of undetermined origin" and was not given antibiotics. Her fevers last anywhere from 3 days to three weeks, but she has only been without fever a max of three weeks since she was 9 mo old. Everytime she sees a new doctor we get a new opinion. Now her docter is testing her for something called Mediterranean Fever - which I am doubtful about after reading the details of it online. I know this is of no help to you but I thought it might provide some peace to know you are not alone (or crazy as some Docs make me feel)

[Momx2jaymack]

i know your post wasnt recent but my son is nw 22 months old born 7-10-06 and has the same thing as your child. since he was 5 months old he has gotten fevers up to 106 (never lower than 102). He has never had any other symptoms except one UTI. I've taken him to numerous hospitals and pediatricians and no one can give me any answers. He isnt in daycare and i also have a 7th month old daughter who never catches what he has which makes me even more scared. His peds have done tons of blood work but could never come up with anything. i worry all day every day feeling his head because he gets sick every 2-8 weeks. If you find any answers please let me know!!!

_Kelley

[cassie265]

Ok, I'm not sure if you all will still read this post, but I wanted to tell you there's hope! My daughter went through the same scenario with the high fevers. (Nothing like catching hot vomit in your hands, huh?) These fevers started at 1 1/2 years and were like clockwork; every 5-6 weeks, we were in the ER (her fevers ALWAYS spiked at night and it usually happened on a friday or saturday night.) with a fever of 105 degrees and no other symptoms. And they sent us home with antibiotics EVERY time. We would then follow up with the doctor ASAP. Very rarely was she still feverish, so the doctor ASSUMED that it was an infection and that the antibiotics.
To make a long story short: we did EVERY test out there and dutifully went to the ER and the doctor EVERY time it happened. We piggybacked the ibuprofen and tylenol but often still couldn't keep her fever lower than 104...After about two years of this, the doctor implied that I was doing something to make this happen to my daughter. That is when I finally went nuts and told her that she was absolutely worthless and HOW DARE she accuse me of trying to hurt my own baby. Anyway, to get rid of us, she referred us to a PEDIATRIC INFECTIOUS DISEASE doctor. THIS doctor asked me a few questions:
1. Was it a predictable event?
   A: Yes. I had started realizing that my daughter was acting out a few days before the fever came. Plus it happened every 5-6 weeks anyway. I had started marking it on the calendar.

2. Did it happen the same was every time?
   A: Yes. It was like de ja vu.

3. Was I, or my husband, of Mediterranean decent?
   A: No. But, apparently there is a fever syndrome that goes along with that ethnic background.

So, within five minutes of entering his office, I finally had an answer. It was Periodic Fever Syndrome. He prescribed oral steroids which were to help lessen the intensity and duration of the "attacks." I was told that she would grow out of it in a few more years, which she did. Life has been wonderful without the fevers! Take care and good luck. Hope this helps! Oh, and last thing: the cause of the fevers? It was just her immune system attacking itself... It was working too well. Which made sense, since every time she got sick (respiratory infection, ear infection, etc.) her fevers were spaced much further apart... Her body had been given something real to fend off!

[roluca]

Hi, I have 18 month twin girls.  They have had on and off fevers every 2-3 weeks now since they were 7 months old.  7 months old is when they started getting ear infections.  I was told that if they got tubes they would not get so many fevers.  They still continue to get fevers.  It's like they can't get better because they just keep passing the fever to one another.  They are not in daycare.  I dont know what to do anymore.  I feel so bad for them.  It seems like they are always sick! The doctor's just tell me it is a virus and that it will go away.  That is not good enough for me. I need answers..I want answers. What do I do?

[Elilmomma]

My Daughter just turned 12 months old and a few days later she deveoped a fever , but her fever has not gone down any lower than 101 for three days now. I took her to the er and they said it was an ear infection , now her doctor says it's not. Her fever seems to be getting worse, they took blood from her but I am going crazy wondering what is wrong with her

[cstone92]

my son is 35 mths old and we have been having the prob of high fever but in a cycle for at least 4 months.... we have finally been referred to children's st.louis for a possible answer nwxt week. They say it can be a multiple of problems or just toddler high fever wich he will grow out of... we will see.

[lillianj1]

My son is 4 years old and he has had recurring fevers (between 101.5-104) since he was 8 months old.  I have done a tremendous amount of research and have found that fevers with no other symptoms that come every 3-4 weeks with alarming regularity, well that is something that sounds like PFAPA (periodic fever syndrome).  Now, PFAPA is supposed to be accompanied by mouth ulcers and joint and stomach pain but my son has never had that and if he did it was so minor that he never really mentioned it.  He would not eat for 3-5 days during fevers - lose weight with dark circles under his eyes but as soon as the fevers were over he would go back to his normal joyful self.  then i could set my calendar and low and behold 29 days later he would have the fever again.  There is a doctor in Boston that is performing Tonsillectomies and removing adenoids (adenoids) and these children (diagnosed with cyclical recurring fevers) have not had a sing episode again.  it is worth looking into and so i am discussing with a Pediatric ear nose and throat doctor what my options are for him.  I mean, its one thing to think that he might have strep or ear infection or sinusitis, and to treat it with medication and its quite another to have a child who gets fevers every 29 days on the dot (with little variation) for 3 and a half years.  I just can't imagine the body would do that if it were some random infection. Well, good luck to everyone and i hope that you all find answers...don't just settle on what your doctor tells you...you must be your own doctor, researcher, lab technician, and nurse.  Just don't give up on your child.  they deserve to live a life that is care free and not debilitated monthly by these fevers.  I know i will not stop until i have a solution.

[mw77]

I can't believe I found this site!  I have been sitting here for 2 hours trying to find answers because I CAN NOT take my doctor's lack of initiative any more!  My daughter has had reoccurring fevers since 6 months old.  They come on every 3-4 weeks and last from 24 hours to 5 days.  It seems as if they are becoming more intense and less resistant to respond to fever reducers.  We were just in the ER 3 weeks ago because she spiked to 107.4.  Yes!  The nurses said she should not be alive...comforting right?  Her diagnosis...a barely elevated bacterial count for UTI.  In other words...undiagnosed.  They also lost the throat culture they took.  What is going on with our medical field???  I don't know what to do anymore.  Her fever is 105 right now with motrin and tylenol alternating every 2 hours!!!  I took her to the doctor today and was told they believe it could be an ear infection but it 'isn't presenting like a normal ear infection" meaning..no fluid but it looks different near her inner ear bone???  Sent home with antibiotic.  My daughter has been on antibiotics 5 times in 8 months, she is only 15 months old.  If anyone with this same problem has had any luck with pediatrician recommendations or any results whatsoever...please contact me...please!  ***@****

[motherofan18month]

my son was going to the doc. or hospital at least once every week or every 2 weeks with fevers from 103-106 for almost 8 months.......then his ped. tested him for RSV! it was positive!! he is 2 1/2 now and has been diagnosed with RSV at east 2 times a month and they finally determined that he is a carrier of the RSV germ...and even when he is not sick he still tests positive for the RSV. im not saying this is what is wrong with your son but this was just an experience i have dealt with for the last 2 1/2 years.... has he been tested for RSV????  best of luck!!!!!!!!!!

[jeremiahsmommy]

My son has also had recurring monthly fevers since just after his first birthday.  He is now 20 months old, so we have been dealing with this for 8 months now.  We have been to doctors and hospitals and still have no answer.  He has also had febrile seizure with almost every episode.  He has had MRI, MRA, CT Scan, many urine tests, ebv/mono, spinal tap and lots of blood work.  All has come back clean, with the exception of 2 ear infections.  I have been researching everything from PFAPA to cat scratch fever to parasites.  If anyone who has been through this has any answers please post!  I will ask doc about RSV, did your baby have any symptoms during the fevers?  Thanks in advance for any help.

[wantanswers2day]

Well, just to add our story...very similar.  My son, 20 months has been having periodic fevers every 2-3 weeks for the last three months.  The scary thing with him is he also has febrile seizures.  He has had three in the last three months...and they are bad.  The last one he went in to respiratory arrest and almost died.  He was in ICU for several days and in the hospital for 11 days.  He ended up with aspiration pneumonia from the seizure.  But the culprit are these fevers.  We now are on "fever watch" every day so that if it starts to climb, we immediately start around the clock dosing of ibuprofen/tylenol.  We have to carry an emergency kit with us everywhere in case of seizure, because his seizures are complex and long and almost killed him.  The pediatrician is concerned and follows him closely.  Blood work shows low white cell count...but it's always during a "virus" which can lower the WBC count, so it's hard to know if his count is low when he's not sick.  He has a f/u X-ray next week to check his lungs from the pnuemonia (pneumonia) episode, and I am hoping he will be fever free and healthy so we can get a blood count during a healthy period and see if it's normal or not.

Someone above mentioned fevers until the tonsils came out.  I have heard that actually two other times recently...of someone who's child had unexplained fevers over a period of time...and ended up getting tonsils out and it cured the fevers.  Something I will also be asking my son's doctor about.

[jeremiahsmommy]

The only thing I can think of that I asked my son's ped about was cyclical neutropenia.  It is a condition where every 2-4 weeks white blood cell counts drop, making child prone to virus or infection.  My son was cleared of that because his WBC count is always elevated when sick.  We did just find out that he has several food allergies.  I have removed wheat, dairy, egg, bananas and soy from his diet, he tested positive for allergies to all of these.  Hopefully this will make a big difference.

[corky58]

I have just joined this website as well as this community.  Upon going through this messages, it's been refreshing to know that what we (me & my wife) are experiencing right now is common to every parent, wherever you are.

We haven't seen the doctor yet since our 14-month daughter temperature is between 98 - 99.  She vomited though, that's why we've placed her under observation to the next reactions and considers her as having a low grade fever.  Am i correct?

It would be highly appreciated if there's anybody or any doctors around to suggest any course of action required.  We are yet to give her any medicine.  Thanks!!!

[jeremiahsmommy]

I am not a doctor, but I do know that a temp of 99 is not considered a fever in a toddler.  The start of a fever is considered 100.4  The following is information from an online medical encylopedia:

Your body temperature is usually highest in the evening. It can be raised by physical activity, strong emotion, eating, heavy clothing, medications, high room temperature, and high humidity. This is especially true in children.

A rectal temperature up to 100.4°F (38°C) may be entirely normal. A rectal temperature of 100.5°F or above should always be considered a fever. Lower temperatures might also be a fever, depending on the person.

Fever is not an illness. Far from being an enemy, it is an important part of the body's defense against infection. Many infants and children develop high fevers with minor viral illnesses. While a fever signals to us that a battle might be going on in the body, the fever is fighting for the person, not against.

Most bacteria and viruses that cause infections in people thrive best at 98.6°F. Raising the temperature a few degrees can give your body the winning edge. In addition, a fever activates the body's immune system to make more white blood cells, antibodies, and other infection-fighting agents.

Many parents fear that fevers will cause brain damage. Brain damage from a fever generally will not occur unless the fever is over 107.6°F (42°C). Many parents also fear that untreated fevers will keep going higher and higher. Untreated fevers caused by infection will seldom go over 105°F unless the child is overdressed or trapped in a hot place.

Some parents fear that fevers will cause seizures. For the great majority of children, this is not the case. However, febrile seizures do occur in some children. Once a child is already known to have a high fever, a febrile seizure is unlikely with the current illness. In any event, simple febrile seizures are over in moments with no lasting consequences.

[yanka]

My daughter is 23 months old. She has had 4 unexplained fevers in the past 8 month and 3 that were accompanied by a cold and/or an ear infection.  After the last episode of an unexplained fever - lasted 3 days, like others, went away just as quickly as it set in, child is perfectly healthy otherwise, etc... - our pediatrician mentioned something called Cyclical neutropenia. It's worth looking into for people whose children have a certain cyclical pattern to the fevers and those whose fevers might be masked by something else ( cold, bacterial infection, ear infection), every 20-30 days.  We have performed other tests to rule out UTI and kidney infections. I've heard it all and I know how frustrating it is to hear, "it's probably just a virus" comment, when you know deep down there is something more. I researched this disorder and started a calendar with my daughter's symptoms.  We are having another episode now and I will see my dr. tomorrow and insist on seeing a specialist dealing with immunological disorders in children. Hope this helps.

[dcliebler]

Wow, I wish I had seen this site about a year ago.  My son started having high fevers 103+ when he was 4 months old.  He preceded to have a fever almost every 2 weeks after until he was 1.  He also had atypical seizures with nearly every fever.  He was hospitalized 3 times.  THe first time he stopped breathing from the seizure.  His fever was 106 that time.  They did every test humanly possible on him and would always diagnose him as chronic febrile illness.  I am writing to say that he is now just over 2 and has not had anymore fevers or seizures since last August.  He has had several colds and even the flu and recovered quickly without incident.  It is such a relief from a year ago.  I had severe anxiety from his seizures and fevers.  Fortunately, it seems that he may have outgrown them like some suggested he would.  Just know that you are all not alone.  Apparently this is more common than I thought.  I pray that your children will also "out grow" this condition also.

[Workchick]

My two year old has been sick for almost a week.  Today he only got up twice - once when he woke me up at 6:30 this morning to cry on my lap, the other time to follow his big brothers from one room to another.  Other than that, he has been flat on his back or carted around by me to the doctor's office.  He's nearly three and he actually curled up and tried to go back to sleep on the examining table while waiting for the doctor.  Luckily he is drinking fluids, but he has eaten almost nothing this week. His symptoms suggest strep throat, but two sets of cultures have come back negative.  Now he is being tested for mono of all things. The more I read about it, the more I feel like this could be it.  There's no treatment for mono, but at least I'll know what it is and that he will get over it.  Just thought I'd throw it out there as something to consider.  It's a terrible thing to feel so helpless.  

[Hizzoze]

My daughter, who is now 2 1/2. Has been getting fevers pretty much once every month, since she was about 6 months old. We are lucky to go 8 weeks w/ no fevers. Her fever is the only symptom she gets. I have taken her to the DR. several times for this and eveytime they tell me it is a virus. There are several DR.'s in the pediatric practice...and all of them have told me this. They dont seem at all concerned that it happens like clockwork every 4-6 weeks. I will admit, during the day, most of the time she acts like she isnt even sick, while on Tylenol/Motrin. It's at night she feels so hot and gets flushed, irritable, etc...She even vomits, only once, the first night of the fever. The fever only lasts, at most, 3 days. But It is scary...to anyone dealing w/ anything like it. I say I am going to take her back to the DR. and the next day she is fever free. What else is really weird is, when she is sick...like, with a cold or ear infection, she doesnt get fevers or they arent near as high as they are when she just has the fever???!! Does that make sense?  I read a lot about Ped. Fever Syndrome and it sounds like this may be the case but she doesnt seem to have any other pains. Just know no one is alone out there...there are more parents that go through this than you think. It is frightening to see your child sick...no matter what it is!!

[mawmaw146]

my grandson just turned a year old and he has had fevers of 104 to 105.1 for a couple of days now and his pediatrician dont know whats wrong and neither does 2 hospitals in our town. they have run blood tests, urine and strep tests, chest x-rays and all comes back clear. im really worried about my grandson.

[Courtney717]

My son (32 months) had periodic fevers - 103 once a week- for over 6 weeks- he just tested positive for Lyme disease..no rash..something to think about.....

[protea]

I am so happy that I found this website.My son is 2 and he started fevers on the 26 June 2009.He had a high fever from the sunday until the Friday.He was in the hospital cause he dehydrated.He was there for a week.He came home with low grade fevers.He has had every test imaginable.Including a bone scan.It all came back negative.Except ESR and CRP were elevated.But later were redone and cam back normal.His fever spiked again on 26 July.We were then sent down to Riley childrens in Indianapolis.He also has a heart condition so they are a little more careful with him.They checked his heart and it was fine.We also saw an infectious disease specialist.They also did some more tests and it too came back negative.The only thing they are going on now is a bad urine test.He did a cath. urine culture today.He also ran ESR,CRP,CBC and blood culture.We are waiting on the results for that.It is really frustrating knowing that you cannot help you child.I think we have found a great group of drs and they said that they are going to find out what is wrong.My heart goes out to all the parents out there with no answers.Just to add my son has no other symptoms.Just a fever!!!!!.

[protea]

Well we got some results back yesterday and his hematoccrit was low and his CRP was elevated.So far the urine is negative.I am waiting for the infectious disease dr to call me back with a plan of action.My sone is still running a 101.5 fever today.

[protea]

well I guess the infectious disease dr said that his levels are nothing to be concerned about.I guess some peds.have diiferent levels that they go by.Maybe hoping to look for something as he cannot explain anything.The infec. dr said to keep watching him and keep a diary of the fevers.If he spikes again at the end of the month then he has something to go by.Otherwise we are seeing him in a months time.
But I guess my son is not that serious as his is not having the febrile siezures as some of the kids are.He is just constantly running a low grade fever that disrupts his day on and off.Sometimes it will get as high as 101.6F.I guess as a mother you always worry about your kids.The dr did say that is it not normal to run a fever permanantly.I guess he is hoping that some other symptoms will show later on.If anyone has had anything similar please let me know.Thanks in advance.

[protea]

This might sound crazy but we are very happy we are 1 1/2 days with a normal temp.Rectal of 98.4F.My son normally runs at 97F.He is also acting well.I hope that we are on the road to recovery.My ped.is still concerned about the hematocrit level so we are restesting his CBC in 2 weeks time.He finishes his iron tomorrow.I will be glad with that I am done with changing black poop. I will update you all once hw has the next CBC done.

[protea]

Well he woke Sunday with a fever on 101F.No suprise there.He is also saying that when I rub on his hip bones he says no.which means that it hurts him or they are tender.Anyone have any ideas?Thanks.

[Spinicki82]

We have been dealing with monthly fevers also.  My son is 15 months old and has been having fevers for 4-5 months now.  Finally this time they put him in the hospital for testing.  His blood count is always normal, but he always has an extremely high crp level.  It goes up with his fever.  Then when his fever drops so does his crp level.  This time his crp level was at 230 which is extremely high.  So now they are sending us to a rheumatologist.

[protea]

Good news!!! we went  to see a hematologist and he has no blood disorders.They may be looking at Malaria and other things that are rare.We are wating to see if he spikes in a couple days.will let you all know.Thanks

[jeremiahsmommy]

Awesome! Thanks for the update.  I will be taking my son to an infectious disease doc in a couple of weeks.  He did get a fever again this month, but he had a throat infection.  At least there was a reason this time!  Look forward to hearing how your son is doing.

[protea]

Well I am kind of confused.My son was running a fever the whole week at around101.8 leading up to the 28th.The 28th complained of ear pain and sure enough his ear was draining and he has a really bad cough but then so does his brother who is 3 years old.His brother also running a fever with cough.They x-rayed his brother for pneumonia.Waiting on the results.Broc was given antibiotics for his ears (both are now draining)he has ear tubes in and they said that if he had pneumonia then the meds would cover it too.They also tested him for TB and Malaria on Friday.I am not sure if he spiked his 28 day cylce fever and then had ear infection and cough too.so he is dealing with 2 things at once.Although his fever never went higher than 102.Maybe thats cause they gave him antibiotics.Not sure.anyway we are waiting for a consult with infectious disease at Childrens Hospital in Chicago.We felt that Riley Hospital was too far if we needed to get there in a hurry.Will let you all know when we get some results back.

[protea]

Ok.So the Malaria and TB came back negative.You kind of want something to be positive so you finally have an answer.Any , so now we wait for the consult with the I.D. dr in Chicago.

[protea]

We finally have our app. with ID dr in Chicago.We are going on the 15 Sep.Another I haven't mentoned before my son drinks a lot.And almost gets hysterical if you don't give him anything.No matter what it is.He drinks a lot of water cause I don't want to give him juice everytime time.The only juice they drink it V8 fusion with water.I wonder if it has anything to do with his fevers.I thought that maybe he is trying to replemnish himself cause of the ongoing fever.Not quite sure.Any thoughts would be great.

[jeremiahsmommy]

The only thing I know about excessive thirst is that it has been linked to diabetes.  But that study was for adults so I'm not sure if it applies to kids.  I have been trying to get an appt. with ID dr. for two weeks now!  Still waiting on doc to get records from ped. so I can even make the appt.  Hopefully we won't have to wait another two weeks after appt. is made!

[jem_smartie]

I have a 25 month old daughter who is also plagued by these recurrent fevers. Her first episode was at 6 months, and they have been monthly since then. I've been blown off as its viral too many times to count. Finally in July, we were sent to the Children's Hospital, and we were admitted for testing. They ran every test imaginable, including a spinal tap. Everything was normal, other then her being anemic. We are on Iron supplements now and it has no affect on her recurrent fevers. With her episodes, her fevers spike to over 105F. They rise quickly and without warning. We also alternate the Tylenol/Motrin, and towards the end of her episodes they dont work anymore. She is misreable with her episodes, and complains of lower abdo pain. Everything checked out fine in that department, so we know nothing is going on there. She is thoroughly examined during every episode and everything comes back negative.  We just seen a pedi for a followup yesterday, and he is convinced she has Periodic Fever Syndrome. We follow up with her Rheumatologist in December, and we are hoping for a diagnosis.

I am so glad but sad, that there are so many of us parents dealing with these awful fever episodes.

[protea]

Hello everyone.
Here is an update on Broc's progress.We went to University of Chicago to see an infectious disease dr.She was really nice and helpful.They are testing Broc for parasites which he has never been tested for before and they retested him for the Epsteinn barr virus as the last results were not conclusive.She seems to think that he has had anEBV recently and that weakened his immune system and therefore he is suseptable to everything that comes his way.She is not completely sold on that idea either as she is waiting for the other results too.They tested him for diabetes and that was negative.I guess he just loves to drink and gets thirsty.He is still running his low grade fevers every day.I know compared to other children he is not as severe.He has only had this for a couple months now.I know that there are parents who have been dealing with this for years now.I really feel for you all.They might also be ruling out PFAPA.As he is having a fever for the rest of the month too and they said that children with that are completely well for 3 weeks in between episodes.They are waiting to see if he gets sick again on the 28th.That is his number.so for now they are really looking at all possibilities.I am happy that they are having an open mind about all of this.Thank to you all who are so supportive and encouraging.I will let you all know as soon as we have results.

[protea]

We found out today that he has no parasites.I am very pleased.We are just waiting for the other results to come.Please can someone help me.I was taking my sons temp rectally until one fellow proceeded to tell me that I was re-infecting my own child so I was giving him the low grade fevers.Needless to say I was not pleased.But since then I have bought a temporal lobe thermometer the one that goes across the forehead.I was told that it is as acurate as a rectal.so now his temp reads from 99.3 -99.7F.As far as I know that would be considered a low grade temp.Am I right????? His ped told me that a low grade is only from 100.4-101.0 so now I am really confused.Any thoughts would be welcome.

[protea]

Finally an answer!!!!!!
Wow it has been a long road for us all.Thank you for all your support.I got an email from the ID dr on Tuesday night confirming that he did indeed have the Epstein Barr Virus.They think he got it at the end of June when this all started.They read the results backward in Riley where they said that he had not had the virus lately.I guess no-one is perfect.They also said that they think his is reactive and that is why he keeps having these fever attacks.at least now we know what we are dealing with and sort of how to treat it.There is no treatment for EBV so we are treating him naturally.The best thing is for us to build up his immune system.Otherwise he is likely to catch anything that comes his way.Thank you for all the support and love that you have shown our family.I hope that you too can find the answers you are looking for.Please remeber that if a dr is ready to give up on you then it is time to find another one.There is a dr out there that will help you.we had to go to the next state to find our dr.

[Rue18]

I need help with my 29 month old daughter who I believe needs some help.
Ever since she has been around 18 months old she has had bouts of vometing
sometimes worse than others, usually lasting about a day or 2 to up to a week,
this happend once a month, Dr said to me each time it was just a bug. On her second birthday she was in a bouncy castle and had been jumped on by accedant and broke her leg. This is when everything else started. about a week later she had started getting sick we took her 4 times to the dr's with her and in the end I felt like a paranoid mother,
and on April 27th was rushed into the hospital with purple lips and shaking and vometing, with a UTI and a sinus infection.
  On May 27th she was sick again, this time with just a sinus infection, it was treated and she was once again better. On June 27th She once again got herself a UTI,  Than July was a free month for us! :) THAN Augest (no joke) 27th she came down with a low grade feaver and red spots on her body and face and no explanation from the ped. Now.... Sept 27th like clock work she is sick again! Just a feaver, no symptoms otherwise and again no explanation!
  I'm not one to be very sick very often so I don't know many things on health but my gut and everything else in me says THIS IS WRONG! I'm scared that her body can't handle whatever medication it is she is taking before 4 weeks is up.
  Can anybody else relate to this? I can't make any sence of it.

[protea]

If I was her mom I would find an infectious disease dr in her state and have a consult.You need someone to put all these together.Thats what we needed.All the drs were looking at each symptom on its own.meanwhile it was a combination that made sense.I also think you need a fresh set of eyes on your daughters health.I was not happy with my ped.so I found another on in our insurance network and explained my situation.we were seen the next week.There is someone who will help you.If you reallly want answers and I know as a mom you do,you will find the right person for your daughter.We had to go to the next state over to find someone.I feel for you and your family.you can PM me  if you want.

[protea]

Okay so even though Broc was diagnosed with EBV.We think he has periodic fever syndrome as well.He spiked a fever on sunday.It has been up to 103.6F.He is really miserable.I took him to the dr and he said there are no other symptoms or signs other than the high fever.So we have contacted ID Dr in Chicago again to see what they think.Just when we thought it was gone it started all over again.

[ajsmom418]

Wow, I thought we were the only people who were dealing with this...  Our son is 4 1/2.  He started last October(08) getting a high fever, normally around 103.7, and it would come on in a matter of a few minutes.  He will keep the fever, even with the piggy backed Tylenol and Motrin, for 1-2 days, then it will disappear.  We would assume that all was ok, cancel the Dr. appointments, send him back to preschool, and about 2 days later it would come back.   This went on for a few months.  I kept telling his Dr. something was wrong, but each time she saw him, he was feeling great and the blood work was normal.  It is sooo frustrating, because it just is not normal for this to keep happening, and it scares me that something bad is happening and not getting treated.  

I don't have any answers for you all, but do have some comments on things I have read in all your posts.   My son's fever is not a monthly thing.  It seems to hit in Oct and last until around January.  It did last year and has already started this year.  The fever gets very high, very fast, and then stays above 101, even with meds.  

Someone mentioned their child being thirsty.  Ours too!  He wants a water bottle with him at all times.  He drinks way more than the 64oz per day that an adult is supposed to drink.  We have had him tested for diabetes and he is negative.  He too will get really upset if he can not get to water immediately.  

Several mentioned the tonsils and adenoids (adenoids).   We had his removed, also had tubes put into his ears.  Nothing helped at all.  Still is happening.  

In April of this year, he had a spell of this fever thing, and it just kept going. Then he started coughing, and it was a horrible, painful sounding cough.  He went to the pediatrician and yes, he had the fever, but the cough must be sinus drainage.  Well, after 4 Dr. visits in 5 days, and a fever of 104.7, they finally caught that he had pneumonia.  Don't know that it was related to the high fevers, but you never know.  

We are going through it right now, and it seems that as he gets older, he feels worse with it.  I guess he just realizes that he is sick.  He is perfectly healthy otherwise, always has been.  He was born 6 weeks premature, but was healthy and weighed 7lbs at birth.  Never had to be in NICU or anything, came home with me 24 hours later.  

I am just tired of the run around the Dr.s give, and want my child to be free of this whatever!  I am supposed to take him to the Ped. tomorrow, so will ask about the IF Dr.  

One final note... little brother never gets the high fevers, and during the hot summer, it was gone.  

Please keep posting your updates... ;maybe we can all find something to help.

Thanks,
Lisa

[protea]

Mine has a little brother too.Only once were they sick at the same time.Broc is 2 and his brother 3 so surely if it was viruses then the 3 year old wold get them too.They did blood work on Broc last night again.The usuall cbc,esr,crp,blood clture.We will wait for the resluts and see what they say.We are also working alongside with our ID Dr.she is really helpful.I really think finding an Infectious Disease Specialist for you son would help you.Just a thought but maybe cause the cold weather is related it could me a rhumetologic problem.Does he complain of pain or soreness in his joints or muscles or just being extremely tired.That is another avenue you could look at.
I hope we can find some answers together.Have a great day.
Kerrigan

[RoseBG]

Thank God I found this thread! Fever of 102-105 or around there every 2-3 weeks in my daughter that is 14 months old. My son never had these problems, every once in a while, she will have a runny nose also, but usually just the fever. Over time she has become resistent to the tylenol and motrin. ER said it looks like strep throat, but inconclusive, so they gave her meds, but her fever was gone within 18 hours like always, so I don't think they were right. I can't get any answers either! Atleast I know this happens with others and isn't my fault, and I have a list of possibilities to look into. Thanks for this thread!!!

[RoseBG]

Update from my previous post:
Went to the doctor today and she is leaning towards familial Mediterranean fever. Though I do not know the exact blood lines of my family, and she said that there are cases where the heritage did not matter. She has referred us to an Infectious Disease Specialist and we go there on 10/26/09. I hope he can give us some answers or at least get the ball rolling.....
Not sure where everyone is from, but the IDS we are going to is at St. Johns in Springfield, IL. About an hour drive for us, but worth it. Good luck Everyone! I know we haven't got a concrete diagnosis yet, but I feel like I just won the lottery with a doctor willing to accept it isn't just a "bug"!

[protea]

I am so happy for you.It seems like some parents wait forever to get any kind of answers.I really hope you find some.They still think that my sones fever is from the EBV,but he had another episode on the 4th october.His fever went up to 103.6 as usual.They tested all the usual blood tests and his crp and esr came back more elevated than normal is.They are referring us to a ped.rhumetologist at Riley in Indianapolis.They are also going to test for Hyper-Igd syndrome and doing a lymphoctye panel on him.It is truly a blessing when you find someone willing to help you.
I have found in our journeys that you have to be your childrens advocate and make a nuisance of yourself if need be.I wish you all the best.Please keep us posted.

[protea]

We got Broc's immunoglobulin levels back and all are in the normal range.We are still waiting for the lymphocyte panel to come back.In the meantime we have an app. with the ped. rhumetologist on the 24 Nov.We are waiting for another episode to start.It will come either Monday or Tuesday.I will let you know if anymore happens.

[twoAs]

All,
What a blessing to find this forum.  We started blood testing last Friday because my almost 3 year old has had ongoing low-grade fevers that would spike on occasion (during the night)...she would wake up screaming and would always vomit once.  The fevers seem to last 3 days on average.
Her blood work showed elevated WBC, normal platelets.  We were sent to the hospital the following day for more blood work, urnine culture, strep culture, chest xray...all normal.

We are going to see our ear, nose, throat dr. tomorrow to check her sinuses...my husband and I have horrible sinusitis.  Just a thought.

This is not easy to talk about, but one thing I noticed from reading all of the posts on here is that not one person mentioned being worried about leukemia...why am I so worried about this?  I have been beside myself since Saturday wondering if she has leukemia (since when I google "elevated white blood cells", it is the first thing that pops up!).  Her doctor assured me that the numbers on her blood panel would look much different if it was, but I know without a spinal tap or bone marrow test you can't say for sure that it's not leukemia.

Has anyone else worried about this?  Any insight or advice to ease my mind and make me stop worrying?

We will see our pedi again on Friday.  She will most likely have more blood drawn...not fun, but it's necessary, and I look forward to finding out the results.

Thanks so much,
Jody

[protea]

Well we took broc to the rhumetologist,They were very nice and listened to us.Which as a parent is wonderful.They tested all his blood the usual and all came back looking good but lymphocytes were on the high side again.They have tested him for Hyper-IgD and we are waiting for the results.They are also going to check with his cardiologist if he needs a special echo TTE to look for endocarditus.If these all come back negative then I guess we just live with the fevers.The low grade  fever seems to be back for weeks at a time with increased low energy and fusiness.I will post again when we have some more results.  

[protea]

Hi Jody I was wondering what you are calling a low grade fever.It would be nice to know as most of the drs have dismissed my sons fever from 99-100.4.
I reallly here you.I too am worried about Luekemia.They have re-assured me that it is not the case and they can tell from his blood work.I also read that ongoing low grade fevers could mean something.while my son does not have a low WBC he does have a severe heart condition and that is why I have been so insistant on finding out what is wrong with him.You have probably read all my posts so you have an idea of who we have seen and what diagnosees we have.I really hope you find the answers you are looking for.all the best.Please feel free to PM me if you want.
Regards Kerrigan.