My son is now an active 4 1/2 y/o with TOF, absent pulmonary valve syndrome. He had his repair at 5 weeks of age and had a difficult recovery. He was on/off the ventilator for multiple pneumothorax, had multiple chest tubes, develped chylothorax, etc. His left pulmonary artery was coming off of his aorta and his right pulmonary artery was huge. The right pulmonary artery was plicated and the left attached to the main pulmonary artery,VSD closed and a monocusp valve placed. After having said all that, my question is...what is his probable life expectancy? I know anything can happen, but the only information I can find on it is looking at infants before/immediately after repair. Are there any studies/information out there about these kids down the road?? As I said, my son is doing ok from a cardiac standpoint, we are just doing echos etc.. to watch and see when he will need a valve replacement. Not a day goes by that I don't think about this, just wondering what your opinion is and/or what your experience is. Thank you so much for your time. I really appreciate it.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.