My daughter is due in April and may have Tetralogy of Fallot(TOF)
Because of my severe anemia, I was referred to a ultrasound specialist. Thank God for that meeting because the doctor found symptoms of my daughter having Tetralogy of Fallot(TOF). I have some information on it, and they could not find any genetic link in both my Fiancée's and my family that would have passed down the disease. I guess I was just wondering, if my daughter were to get surgery for it when she is born in a few months, how long would the recovery be for her?
I am now seeing my regular OBGYN, a ultrasound specialist, and a pediatric cardiologist. They confirmed her with TOF and one of the values of her heart did close. So, she will need surgery as soon as the same day she's born plus the actual surgery to fix the condition (which would take place anywhere from 3-6 months of age.) I know she'll be okay though. I trust God and the doctors. I'll be having her a Loma Linda hospital.
I was just told by a friend at work whose child also has a heart defect that Olympic gold medalist Shaun White (snowboarder) was born with TOF and had 2 open heart surgeries before he was one year old.....look at him now!
blessings to you.
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