I'm the mom who has a son that was diagnosed by chance with a bicuspid aortic valve and dilated aortic root at the age of 13 years old. He was diagnosed in May 2008. Initially the ascending part of the aorta was 2.6 and has progressed steadily with his six month checkups to 4.0 as of Feb 15, 2010. His root measured 3.8. He has had all genetic testing (Marfan's, Loeys-Dietz, Famial Thoraic) and they were all negative. He is now 15 - 5"11" and 145 lbs and still not done growing. His Dr. is looking into putting him on Losartan. Does anyone have any input on this drug with a teen? Or does anyone have a child in this type of situation? Any input would be comforting to me.
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