repaired tet child, now had ep study and found huge pulmanary vaulve
Repaired tet baby at 7 months, now almost 10, (46 pounds). We just had our ep study done last week. A loop was placed under the skin because they couldn't get him to have one of his spells. Now the docs came out and said his pulmanary valuve was 4-5 times larger than it should be. Too big for a cadavor so something else. Then they said that it was going to be a fight to do it now or do it later! We just went in for a little ep study. At least thats the way they made it seem. They one doc said he would talk to our sons cardiologist on Nov. 21st. So almost a month to think the worst, nothing I can research so I can go in there with questions. They seem to treat you better and speak to you different than if you go in as a weepy, scared ******** mom. So where do I look, what do I look up, what are the options that are even wrong with him so I may go in
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