Hi. I am one of the Co-Community Leaders of the Dysautonomia Community here on MedHelp. Our community frequently gets questions regarding finding certain types of specialists and testing facilities; we tend to have a more difficult time making suggestions for pediatric patients as that isn't where most of us have experience. I'm hoping you can answer a few questions about your hospital for us.
Do you have a syncope clinic, cardiologists who sub-specialize in syncope, and/or an autonomic clinic which works closely with cardiology on syncope/dysautonomia cases?
Do you offer tilt table tests (with or without plasma norepinephrine levels? both standing and sitting or just the former?), blood volume determination, hemodynamic testing, TST, QSART, QST, etc.?
One concern that comes up frequently in our community is for parents of children with ANS issues who are geographically close to Vanderbilt, but learn that their autonomic clinic only accepts patients aged 18 and up. We are always looking for pediatric hospitals in various areas of the country that might have similarly specialized facilities or doctors.
All of our physicians do see all kinds of patients with congenital and acquired pediatric heart disease. We do not have a syncope clinic at our hospital, but manage patients with syncope through our regular cardiology clinics. We do not perform complex tilt table testing, as you are describing, nor do we have an autonomic clinic. However, we do accept patients with dysautonomia for evaluation and treatment. I also recommend looking at the Dysautonomia Information Network (www.dinet.org) and the Dysautonomia Youth Network of America (www.dynakids.org) websites for information regarding providers and hospitals who care for these patients.
The Mayo clinic sees children with Dysautonomia. Be patient because it takes 4-6 months to get in. I have a 13 year old daughter with these symptoms. There is a doctor at the Valla New york medical school who treats teens with POTS and hiis name is
Dr. Julian Stewartt. He answered my e-mail in one day(WOW) and referred me to Dr. Phil Fischer at the Mayo clinic.
Here is Dr. Stewarts information. Note my daughter has othe complicated medical issues besides just dysautonomia issues so we are going to Mayo for help in all areas.
Copyright 1994-2017MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.