If TOF with absent pulmonary valve is not correct with surgery, then what will be the possible complications? As my daughter is 2 and half years old, and her colour is pink, some time feel sweating on her forehead, growth is not up to the mark. she suffered from Pneumonia in 2009 after that i did vaccine of pneumonia (Prevenor).
Please suggest me what to do????????
Patients with tetralogy of Fallot with absent pulmonary valve leaflets can have very variable courses, depending upon how "blue" they are, and if they have compression of their airway tubes by the enlarged lung arteries. The majority of them require a surgical intervention within the first few months of life because of respiratory issues. However, there are some, like your daughter, who do not get respiratory distress and are relatively pink. They usually undergo open heart surgery sometime in the first few years of life. The future risks of leaving her unrepaired would be: 1) risk of blood clots going across the VSD (hole between the lower two heart chambers) that could go out to the body and cause a stroke, or if infected, an abscess in the brain, 2) late failure or dysfunction of the right sided pumping chamber due to long term high pressure, and 3) possible development of high pressure in the lungs if the patient is "pink" and actually has extra blood flow going to the lungs compared to normal. If your daughter is not growing well and is sweating excessively, that indicates that her heart may be working too hard. If possible, I would suggest that you contact your child's heart doctor soon and discuss the timing of a surgical intervention given these findings.
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