I have a 3 month old son who has a lot of complications. The doctors don't know what happened to him at all, they said whatever it is, there's no test for it. Other than that, he has a heart aneurysm. Can someone please explain all you know about it? His dr didn't tell me anything about it. Will he have to get heart surgery for it? What are the risks if I decline the surgery?
I have very little information about your son's aneurysm, as to where it is, how big it is, etc. I really cannot say what needs to be done for it. I recommend that you talk with your local cardiologist and discuss these questions specifically. If you feel that you are not getting the answers that you need, I would strongly consider a second opinion.
It's a Sinus of Valsalva (spellcheck) and it's large. His cardiology appt is in a couple of weeks and I just want to be prepared for what is to come. I know some aneurysms are fatal but I don't know if this is the type. Thank you.
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