Pediatric Heart Expert Forum
Hole in the heart
About This Forum:

Questions in this forum are answered by pediatric cardiologists, cardiothoracic surgeons and anesthesiologists from The Children's Hospital of Philadelphia. This forum is for questions and support about pediatric heart problems, symptoms and topics such as heart murmurs, palpitations, fainting, chest pain, congenital heart defects (including management and intervention), fetal cardiology, adult congenital cardiology, arrhythmias and pre-participation athletic screening.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
This expert forum is not accepting new questions. Please post your question in one of our medical support communities.
Blank Blank

Hole in the heart

My baby has a hole in her heart.we diagnosed it when she was 17 days old and it was ASD 0.5 cm.We were asked to wait if it closes on its own.when diagnosed now it has become  ASD 0.7 cm,and she is 7 months old.Please give some advice as to what should be done.And to mention she is perfectly fine with no symptoms growing perfect with good weight.
Thank you.
773637_tn?1327450515
Dear Azrah Ali,

A 7 mm secundum ASD is not likely to close by itself.  She will likely need to have it closed by age 3 to 5 years, assuming that she continues to have no symptoms.  However, it can now be closed with the placement of a device through a catheter, so actual open heart surgery does not have to be performed.  This is something that you will want done by a cardiologist with plenty of experience doing this, so you should discuss this with your cardiologist.  If your cardiologist does not have much experience doing this, I would make sure to get a second opinion.
8 Comments
Blank
Avatar_f_tn
Hi Jeffrey thank you for the information, I have a series of questions regarding the method of catheterization please help me to understand the process.
1>Is it safe?
2>Does the process of catheterization guarantees for lifetime?
3>Do we have to take care of the baby in a fragile manner always?
4>Do we need to go for medical checkups after this process of closure, If Yes then till what time?
5>Can she have a normal life after this process with no complications in future?
6>How do I find the best doctor for my baby?

Thank you
Blank
773637_tn?1327450515
Dear Azrah Ali,

Allow me to answer your questions based on the numbers:
1. Yes, in the right/experienced hands
2. As long as the device is placed and the defect is able to be completely occluded, the lining of the heart grows over the device.  We don't necessarily have data over a complete lifetime (it has only been done since the mid '90's), but long term data demonstrates that it works.
3. Not at all--treat her as normal.
4. Yes--this depends on your pediatric cardiologist
5. That is the expectation
6. This is the hardest question.  I would talk with your pediatrician as well as your pediatric cardiologist.  The pediatric cardiologist who performs this should be able to demonstrates data regarding outcomes and complications.  However, it is certainly reasonable to get several opinions.
Blank
Avatar_f_tn
Hi Jeffrey, Thank you for the information.I want to choose the best doctor for my baby no matter where the doctor is located.Please help me on this. I also want to take your suggestion regarding a famous indian pediatric cardio, his name is DR DEVI PRASAD SHETTY.He is one of the well reputed and extremely successful doctors in india if you can give me suggestion on this doctor.
I am sure as you are a doctor you know about well known doctors from all over the world.And there is one more question "Can i get my baby's process done by you"

Thanks for your time and effort to answer my question.
Blank
773637_tn?1327450515
Dr. Shetty is an adult cardiac surgeon, not a pediatric cardiologist, so I do not believe it would be appropriate to have that done by him.  I am an outpatient cardiologist, so I do not perform this procedure.  However, my partners do perform this.  If you are interested further in coming here, please contact our International Medicine section through this link: http://www.chop.edu/service/international-medicine/international-patient-services/
Blank
Avatar_f_tn
Hi Jeffrey,
Thanks for answering my question but could you please suggest me any doctor from india.I want to make sure that we check for the resources nearby first.
And the doubt about DR DEVI PRASAD SHETTY is that he is the owner of a well known hospital called NARAYANA HRUDALAYA.I got this information from my friends who work in that city and they told me that this hospital performs almost 15 to 20 pediatric surgeries everyday.
Just to make sure should i go and get a check up done of my baby there to be assured.And one more question if i have to get this process done by your partners will I get all the information about the process time, money,and other info on the link that you have given me.
Thanks for your time.
Blank
Avatar_f_tn
Hi Jerrey,
There is one more question, I have checked the link that you have given me it is wonderful but could you please tell me the approximate expenses that are to be spent on this process.excluding the visa,ticket and staying expenses.

Thank you.
Blank
773637_tn?1327450515
Dear Azrah,

It would be worthwhile getting outcomes data from Dr. Shetty's hospital before just trusting friends' statements.  I do not know cardiologists in India, otherwise.  You can get the information from our nurse navigators if you contact them directly.
Blank
Continue discussion Blank
This Forum's Experts
773637_tn?1327450515
Jeffrey R Boris, M.D.Blank
The Children’s Hospital of Philadelphia
Philadelphia, PA
Blank
Request an Appointment
MedHelp Health Answers
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank