History: Repaired TGA/VSD/ASD/PDA w/ complete right heart block and/or conduction delays aortic root/ascending aortic dilation history of 1 partial complex seizure.
My 3 year old son is having episodes that generally follow this pattern:
He will run/walk come find me and say he is "cold" (more often this one) or "it hurts" and will be trembling, looking scared and worried. When I pick him up his lips are blue and he is shaking slightly, he seems scared and wants to cuddle. His blue lips last perhaps a few minutes and he is off playing again. These episodes have been getting progressivly longer with mottled cheeks and today his forearms. Today he didn't just tremble but shook and when I held him he clutched me tightly and it felt like he hiccupped and was then holding his breath or had lots of tension in his chest. This lasted for maybe 10 minutes at the park with my husband. These episodes are infrequent (perhaps 1 or 2 a month) and random. He is aware during these episodes, as we are also struggling with episodes that are more classic absence seizures..these are different. And his allergic asthma is a non-stop coughing spell. When he was on the heart monitor for minor surgery it went fairly crazy with irregular heart beats, sustained and non-sustained VTACH, PVC's, run PVC"s with a heart rate jumping from 64-120, I think every alarm went off at some point and it was explained that his right heart block while benign would cause the monitor to do this.
As a cardiologist do these episodes sound more neurologic or cardiac in origin? And would his right heart block prevent the monitor from reading accuratly? Also would an EKG show an arrythmia only while it was happening? They did a quick EKG while in hospital but he didn't have any alarms going off while recording..please forgive my spelling, it's early am. please let me know if you need anymore information : ) Thank you
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