Dear Canady,
Supraventricular tachycardia (SVT) occurs when there is more than one electrical connection between the top and the bottom of the heart. Ordinarily, electricity arises in the sinus node, the natural pacemaker of the heart, in the top right-hand corner of the heart. It spreads across the atria, the upper chambers, like a wave. It then comes to the center of the heart and is conducted to the lower chambers, the ventricles, through a single wire, the atrioventricular (A-V) node. In SVT, electricity goes down the A-V node, comes back up the extra “wire,” and then returns back down the A-V node, continuing in a circle really quickly. Your daughter was born with this extra pathway, although her SVT didn’t make itself apparent until she was 16; this is actually fairly common. Unfortunately, the likelihood of the SVT spontaneously resolving at this age is essentially zero.
There are many medications that can be used to manage SVT. Without having your daughter’s full information, I cannot say for sure, but with the medications that you list, it appears that the only medications that have been used are beta-blockers. Some of the side effects of these medications include exercise intolerance and fatigue. However, there are numerous other medications that use different arrhythmia controlling mechanisms BESIDES beta-blockers.
That said, electrophysiology study with radiofrequency ablation is a highly successful intervention. This is a special cardiac catheterization, in which several catheters with electrodes on their tips are placed in the heart by way of the veins. These catheters are put in strategic positions in the heart and electrically map the heart, which can then find the extra pathway. Then an ablation catheter is placed on the extra pathway and, depending on technique, can either be burned or frozen, destroying (ablating) the pathway. The electrical mapping is then repeated to ensure that there are no other pathways and to demonstrate resolution of the first extra pathway. The success rate is approximately 95%, depending on the location of the pathway, with complication rates less than 3%. Using freezing techniques, the complication rate can be less than 1%. Often the pathway is very near, or part of, the A-V (not the sinus) node. One of the concerns about ablating near the A-V node is heart block, in which a pacemaker would be needed lifelong. However, depending on its location, the pathway can be safely ablated, or at least modified so that it doesn’t work well, with freezing. Electrophysiologists, the specialized cardiologists who perform these procedures, are quite used to dealing with this risk assessment, and would elect to not perform the ablation if it put the A-V node at too high a risk. Permanent A-V block is a small risk, but this risk is typically mitigated by the experience of the operator.
Overall, based on what you are telling me, it sounds as if she should be evaluated by an electrophysiologist, if she isn’t already. As you have heard, if she were to have an ablation, this would cure her, so it is worthwhile to look into this. If she is already seeing an electrophysiologist who is treating her with beta-blockers alone and you are not satisfied with the outcome or the information that you are being given, I would recommend that you obtain a second opinion.
I would get a second opinion if I were you. I have never heard anything about an ablation procedure being "risky" except in atrial flutter patients. I have SVT, although not as frequently as your poor daughter, and have recently been looking into the procedure. Good luck!!