Pediatric Heart Expert Forum
combined medical issues
About This Forum:

Questions in this forum are answered by pediatric cardiologists, cardiothoracic surgeons and anesthesiologists from The Children's Hospital of Philadelphia. This forum is for questions and support about pediatric heart problems, symptoms and topics such as heart murmurs, palpitations, fainting, chest pain, congenital heart defects (including management and intervention), fetal cardiology, adult congenital cardiology, arrhythmias and pre-participation athletic screening.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
This expert forum is not accepting new questions. Please post your question in one of our medical support communities.
Blank Blank

combined medical issues

My 18 year old was diagnosed with medulary sponge kidney with nephrocalcinosis at age 10 and kidney function was at 60% at last checkup.  She was diagnosed with long qt syndrome at 17 and has an implanted ICD and pacemaker.  I found a notice from her doctor saying her last 2 checkups indicated high blood pressure and she needs to see her doctor.  She is 18 and has decided she doesn't need to go.  I am very concerned.  What do these combined chronic health problems indicate?  What can I tell her to convince her the importance of follow-up?
Related Discussions
773655_tn?1340656399
Long QT syndrome is a very serious condition where, as you know, patients are at higher than normal risk for potentially fatal cardiac arrhythmias.  The fact that your daughter has an AICD in place tells me that her cardiologist feels that she is in a high risk category.  As one gets older, the risk of a sudden cardiac event increases incrementally.  That alone, should be worrisome enough to your daughter  that she would get regular follow up.  Separately, high blood pressure is a known contributor to heart failure, myocardial infarction and stroke in the general population. It is a "silent killer" and there is a much stronger push these days to get tight blood pressure control in anyone with high blood pressure.  In patients with kidney disease this is even more important to do, as it may be harder than in patients without kidney disease to achieve the blood pressure control that is desired.  Frankly, your daughter has to understand that, as an adult, she has to take responsibility for her health, and if she does not get appropriate follow up and treatment, then her risk if dying at a young age is quite real.
Blank
Continue discussion Blank
This Forum's Experts
773637_tn?1327450515
Jeffrey R Boris, M.D.Blank
The Children’s Hospital of Philadelphia
Philadelphia, PA
Blank
Request an Appointment
MedHelp Health Answers
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank