my daughter birthed 1994 with TOF WITH ABSENT PULMONARY VALVE got operated as "total correction" in 2002 without putting valve. after the operation she grownup very fast with nice physic,complexion,Now she is 17+ yrs.without much knowing of her desease .Now she wants to know her previous problem as she is not aware the feelings of healthy person and she also feels as quite healthy .
your valuable advice is solicited what should be our next step in all aspects.
Tetralogy of Fallot with absent pulmonary valve is a complex cardiac defect. Although she had a repair at age 7-8 years, it is unclear to me how much over- or under-circulation her lungs got. As well, I am assuming that they did not place a valve in the pulmonary position. The long term outcome with patients with tetralogy of Fallot without a functioning pulmonary valve, whether they have absent pulmonary valve or not, is to have progressive right ventricular enlargement, arrhythmias, right-sided congestive heart failure, exercise intolerance, and earlier death. Therefore, even though she may feel good and look good, her heart is not fixed--there are many complications for which there needs to be surveillance. It is important that she be evaluated by an adult congenital heart disease (ACHD) specialist. She should NOT be evaluated or managed by a regular adult-medicine cardiologist. Finally, it is important that she not only know of but also understand her heart defect and the long term risks and outcomes associated with it. You may need to travel to find an ACHD specialist, but it will be very important to have her seen for this.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.