I am afraid your question is unclear: are you asking about primary pulmonary hypertension? or are you asking about congenital heart abnormalities (ASD, VSD, PDA) with elevated pulmonary artery pressure? they are very different. Also it is important to know how old the child is, and whether it was premature with lung disease.
Primary pulmonary hypertension is high blood pressure in the lungs without other causes (lung disease or heart disease for example) and usually occurs in older children/teens. It is a very serious medical condition. It requires aggressive medical management to avoid failure of the right side of the heart. On the other jand if an infant has congenital heart disease (significant sized VSD and/or PDA) those can send high pressure and high flow into the lungs that causes a secondary high blood pressure in the lungs. If that is left untreated for more than a year the lungs can be damaged and have permanent changes in the blood vessels of the lungs that can cause extra work for the heart and the potential for a shortened life span. Your cardiologist should let you know if the lung artery pressure is improving if the holes get smaller spontaneously. If not, surgery to close the heart defects may be needed.
hi,thankyou for you input..if i put to you now the symptoms..would you be able to give a diagnosis?... asd.pda.vsd..enlarged heart and syonosis...with all other extremeties..weakness..breathlessnes..etc..what would be your personal diagnosis?
You still have not given the child's age. But independent of that, if the child is cyanotic (blue) with symptoms of breathlessness and weakness, as weel as pulmonary hypertension, an ASD, VSD and PDA, that is a very, very, very serious situation and the options may be vrey limited. Surgery may not be an option if the lungs are too stiff. That child ideally should be evaluated by a specialist in pulmonary hyppertension, as there are some medications that can help symptomatic patients. But the long term prognosis is unable to be entertained in a forum such as this. I suggest that you discuss this situation ASAP with your primary pediatrician and any specialists involved in the child's care, and make sure that you have all of the correct information.
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