WELCOME TO THE PEDIATRIC TRANSPLANT COMMUNITY: This patient support community is for questions and support regarding all pediatric solid-organ transplant issues, including heart, lung, kidney and liver transplantation.
Pediatric heart transplant / cellular memory research
I have a daughter that will eventually need a heart transplant (congenital tricuspid atresia). She is now 10 and has had a successful Fontan procedure. My question is a bit on the fringe but has anyone here heard about retained cellular memory in transplant patients. I heard something about this several years ago from a surgeon researching this with some startling results. Has anyone heard of this? Any tips on finding more?
Well, I don't know about the research that is being done with this, but my daughter has had a heart transplant and has had some weird things that have happened to her. She started liking foods she had previously hated. After her transplant she would complain about her heart beating too fast sometimes and at one point she told me she had a dream where a young man appeared to her and he told her that his heart had sometimes beat too fast. She believes he was her donor. I have heard of transplant patients who were dealing with these issues. Do you know when your daughter will be put on the list for transplant?
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