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11 month old

by ashbein27, Nov 11, 2009 06:09PM
We are having so much trouble figuring out what's going on with our child, we are hoping that someone here might be able to point us in a new direction.

Our daughter is 11 months old and is failure to thrive, has trouble breathing, tremors/seizures, excessive sweating, blueishness, and fatigue.  She currently sleeps around 20 hours per day.  She also has extremely low iron dispite doctors attempts to correct this.  She also has a hole in her heart, a heart murmur and thick heart muscle (possible hypertrophic cardiomyopathy).  We are finding the same symptoms to a lesser degree in our older daughters (ages 3 & 4) as well, so it may be genetic.

Anything to look into would really be appreciated.  We have consulted the doctors in our area as well as had her in the hospital and are now scheduling appointments in offices over two hours away for their opinions.
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