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Aplasia Cutis Congenita
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Aplasia Cutis Congenita

Is anyone familiar with this disease. It is very rare. My 4 yr. old daughter has it and I'm looking for anyone whom has gone threw what we have and see what the future holds for her.
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539003_tn?1213763163
I'm a 16 year old girl with the condition. Theres not much you can do about it. I have it in 2 or 3 small patches on my scalp. They do not affect me except for a painful sensation when touched.

Where is it on your daughter?
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754648_tn?1233714967
Hi, I saw pictures on the internet that have led me to believe that my son also has ACC. He will also be 4 yrs old soon, too. There's a great website (makingcontact.org) that lists 16 others describing their stories re: this condition (do a search for 'Aplasia Cutis').
Did a Dr. make the diagnosis for your daughter or did you do your own internet research too?
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jemma116
United Kingdom