Aa
A
A
Close
2190690_tn?1338231583
Baby Has Lesions on Skin, Brain, Spleen, Spine; Cannot Find Diagnosis
Ellie has multiple lesions on her skin, brain, spleen, and spine. The lesions on her brain and spine have started bleeding. After months of tests Doctors still have not been able to find a proper diagnosis. She is currently on medication to "buy time" while Doctors try to find an alternate solution to radiation, but time is running out.

Ellie's family appreciates anyone who can provide answers or even share this story to hopefully find a diagnosis and cure before little Ellie has to use her last option: Chemo.
Cancel
6 Answers
Page 1 of 1
535822_tn?1443980380
I am so sorry I have been doing some research online and as you say its difficult to find any answers, have you seen other Doctors , specialists what about the big hospitals ?
Comment
Cancel
535822_tn?1443980380
Comment
Comment
Submit Comment
2190690_tn?1338231583
Yes there have been reviews done by Boston Children's and Seattle Children's but no conclusions yet, just that it's not any of the possible diseases they originally thought it could be. Yesterday she had a seizure, which the Dr.s said was unfortunately a common side effect from the Prednisone. At this point there are still no answers :(
Comment
Cancel
2190690_tn?1338231583
Comment
Comment
Submit Comment
535822_tn?1443980380
Dear girl ...I hope you find some dont give up researching, asking especially other families, have you a support group?
Comment
Cancel
535822_tn?1443980380
Comment
Comment
Submit Comment
Avatar_universal
Has she been in contact with anything new lately....any chemicals, drugs, vaccines....etc....?
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal
How old is Ellie?
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal
Could the cause be viral?
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Your Answer
2190690_tn?1338231583
Answer
Know how to answer? Tap here to leave your answer...
Answer
Baby Has Lesions on Skin, Brain, Spleen, Spine; Cannot Find Diagnosis
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Pediatrics Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Children's Health Answerers
134578_tn?1446090952
Blank
AnnieBrooke
OR