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Biliary Atresia advice
by Vbyers6, Jul 08, 2008 12:46PM
Hello, My name is Veronika my question is, my niece was born 11 days ago (June 27) and there have been multiple tests done but still no answers. So I think it would be better talking to someone who unfortunately has been through this. My niece's (Charlet), has had jaundice since day 1, today her direct bilirubin is 2.0, this is the only abnormal test that came back. On day 1 and 3 the bilirubin was 5.9 along with elevated trigylcerides and elevated creatine, but now these two are normal. They did an ultrasound of the liver and kidney and both came back normal. We had the HIDA scan done yesterday and it shows that the radioactive tracer does not exit the liver into the gallbladder or intestine, so no answers yet but the work biliary atresia has been thrown out at us. On the internet there is sooo muchh info about Kasai Procedure and eventually liver transplant. I was wondering what you went through and what advice would you give. Any advice would be greatly appreciated.
Thanks
Veronika
Thanks
Veronika
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I know about biliary atresia. If you have any question please
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