I went back and re read your post and wanted to add that my son has multibale vertebrale abmoralities.,and I know many children with all of the abnormalites that have listed and they all have a great fulfiling life.plese get a seconed opinion.I dont know were your at but its worth taveling if need to go see a spcelist like at Seattle,Saltlake,Pensilvana,new york,pitsburg,cleavland,denver.Also look at some support forums like for vactral or vaters,vertebrale like hemmi vertabrae.and talk to some of the other parents with children born with tsheese things.hypoleft heartsydroeme.
Iam begging you not to go through with this,I was told at my 17 week ulta sound that my baby was if he lived would be a veggtable and that I should terminate my pregnacey.I was also told that he had severe spinal deffects.I chose to keep my child and let God decide his fate.My son is four and half now his is healthy and beutiful.He was born with congintal scoliosis and does have to have surgries three or four times a year,but everybreath that he takes is worth it.I know a couple of people that had hypoplastic left heart syndrome one was a child and the other grew to b ean adult.My pointy is that doctors dont know what life will be like for that baby they can only predict they are not always write most are wrong.My son was also looking at heart surgry but,suddenly (with a lot a of prayer) all three holes were gone and he has a healthy heart.Iam not saying that your baby is going to be born perfect and the docs are wrong Iam just saying please let God decide the life for your child.It migh tb e a long tough road but its alife deserved to have a chance.I dont know if you belive in god or not but I do an my experiance with prayer I was also told that my son was paralized and he was I never felt him move for 8 months and I was prayed over and he kept me up kicking all night.He runs and jumps.I was also told that after birth his brain would fill with fluid and he would become braindead if he lived.He is so smart and has know braindamage.There is hope for your baby there are thing s that they can do.Most need a heart transplant,or there are a series of surgries to repair it.You can have the baby in a hospital that is set up for your baby and be prepared for it.What if the docs miss something on your other baby and only its twin can give it.Your in my thoughts and prayers.I know how it feels to carry a baby and not know its fate.Its scarey but please dont let the docs influance your decision ..Your in my thougths and prayers.