I have total organ prolapse. The first surgeon my doctor sent me to I never saw, only the PA that gave me the run-a-round from June 10 to September 18th. I had a hernia that had to be fixed first and she kept telling me one thing and then would do something else. I was told I would see the surgeon after a bladder test the last of August but was refused an appointment until the last of October. When I pushed the point she (the PA) dismissed me from their practice with word through a physical therapist she had me going to. They have still not received word from them I was dismissed. I called and requested a letter stating I was released and why. Never received it. Finally had to find another doctor. They have me scheduled for surgery in about 4 weeks. I am a TA with Pre-K and have to be very active for 7 straight hrs. each day. I was told it would be illegal for him to put me out of work before my surgery. I am in so much pain I am unable to eat and am getting where I cannot use the bathroom. Is it true that prolapse is not cause for being out of work?
I am not sure by what you mean when you say "total organ prolapse" does this mean you are a stage 4 or does this mean you have several different prolapsed organs?I don't know about the legality in regards to working, but I doubt a Dr. could say you can't work because you have prolapse as it is is challenging condition, but not a life threatening disease...so I think it would be hard to convince a dr. to write you a "off work" letter for this.
In regards to not being able to use the bathroom...what do you mean? you are not able to urinate? Defecate? or can't go because of fear to go in public? I am unable to respond without knowing more...I was unable to have a spontaneous bm for over 6 years...at one point I was using stimulant laxatives even at 16 each day they quit working so the only way I was able to get waste out of my body was with enema's or colon hydrotherapy...as for urination...I do manage to empty my bladder but it varies on it's ease dependent on my pelvic floor dysfunction...and this is even after surgical repairs ~
I do hope that the Dr. planning to do the prolapse repairs is a urogynecologist as they are the experts in these repairs and the only type dr. I would trust to do this type repair! You Definitely want an expert as these are challenging repairs. I have had 2 surgeries ~ first surgery was done abdominal Davinci with mesh almost 2 years ago (vaginal vault, cystocele, rectocele, entrocele and intussusception, levator muscles had torn in several places and fallen to the base of my pelvic bowl-along with a few other repairs dpr endometriosis..) The surgeon was in my belly for 6.5 hours...those repairs are holding strong but unfortunately because of the pelvic floor dysfunction not allowing me to defecate ~ the mesh held strong, the anus would not open so I developed a new rectocele (distal-low where the other was higher up the vagina) and perineal descent...so that was repaired vaginally with sutures only 4 months ago and so far the repairs are holding...unfortunately the surgery is not a quick fix...I am thankful I had mine repaired as I am much better, but I still struggle with the pfd which causes much pain and until that is managed my repairs are a;ways going to be at risk...so physical therapy is always a good place to start to teach you how to care for your pelvic floor and until you have surgery you might want to consider getting fitted for a pessary to hold the prolapses up as this should alleviate at least some of the pain...Good luck and do let us know how things are going.
Haven't been told a stage. I do have multiply organ prolapse (the PA I originally saw said "total organ"), When I said I am getting so I can't use the bathroom I meant in both ways. I need to urinate but then can't get anything to come out, if I strain enough I can get a little out but then I feel like I'm tearing more stuff loose. As far as a BM I'm going 4 to 6 days with eating activia, fiber one bars, drinking juice 3 to 5 times a day 40 to 60 oz of water a day. When I do get them to move it is only small amounts at a time and with a lot of straining.
The doctor is a urogynecologist.
so it sounds like your main issue is the cystocele (bladder prolapse) but one thing with the bladder...it is super sensitive and we can train it to become worse as it is a muscle so I would first suggest no more straining because yes you are correct this will only make things worse. if you can't go..get up and try again in a little while....you most likely have pelvic floor dysfunction which is fairly common with pelvic organ prolapse so I would definitely get in to see a pelvic pain physical therapist for trigger point release and ask your uro/gyn (glad you are seeing a specialist) for vaginal valium as this should help relax the muscles...what happens is we have pelvic organ prolapse which means our muscles are hypotonic (weak) so our body begins to compensate by the muscles gripping to "hold" things in place as best it can which then creates hypertonic pelvic floor (contracted) so we then have weak and tight muscles which is a horrible combination...because contracted muscles are not strong...they are still weak just too tight to do their job...I would ask the uro/gyn exactly what all is prolapsed...in the mean time add miralax to the mix as this keeps the stool soft and moving...no more straining to pee, but instead try when you sit on the toilet making your torso long, arch your back (stick your butt out) while sitting and bend forward then take nice long, deep slow inhale/exhale in order to try to get the body to allow the urine out by relaxing...you might also try putting toilet paper rolls under your feet to make your body more in a squat position as this is the natural way our body should be in to urinate and defecate...you might also try to place your fist in your tummy and gently push in and lift up while you bend forward to help the bladder empty...these are many of the tricks I learned along my journey...hope they help you too! Magnesium also is helpful for tightness of the pf muscles..to much will give you diarrhea so that is how you will know you're at the right amount...and can back off a little bit...I do understand where you are...it's tough, but know you can and will get better! Hang in there!
In addition to ipurr2 detailed suggestions... I have a pessary and it lifts up my urethrocele and cystocele etc which makes it easier to urinate. As an interim measure before surgery ( if this is what you decided to do ) you could consider a pessary to help you for now. Speak to your Urogynecologist about a pessary. They will need to measure you as well. This doesnt take long
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