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Has anyone made videos of how people are allergic to us?

I would like to make some videos actually showing people's reaction.  
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Avatar universal
My buddy and I were eating at a restaurant.  We were talking the whole time and the AC was blowing right on me.  Check out this couples reaction.  I thought this one was decent.  Had to blur and cut a few sections to not show the restaurant name for obvious reasons but still got most of the footage in.  And no sound because we were talking pretty loud.

https://youtu.be/ylDq_MlDovs
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Avatar universal
And another one at Walmart.  Great place.  Will be doing a lot of videos from here to record reactions.  

https://youtu.be/0aP7BUg6nt4
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Avatar universal
Here is another vid.  Honestly, these are minor.   I've been having trouble getting the severe reactions because of not having watch with me.  I will get them soon.  

https://youtu.be/xKxdVyOsMTE
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Avatar universal
Here is another vid.  It's short but typical.

Going to try and use a link below.  If doesn't work, Copy and paste below into browser.
https://youtu.be/vkJpqNQOuog
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Avatar universal
Just typed a post and realized I wasn't logged in and lost it.  Anyway, been doing a lot of recordings and will try to create video today.  

Weird thing is that since I started wearing watch, I have had little reactions.   Been eating al kinds of bad food and talking with people.  Will keep u updated.  
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Avatar universal
Guess you can't embed video on this site.  Here is the link.
https://youtu.be/m1_TElfa7uc
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Avatar universal
Hi All,

Sorry to drop off the planet for a few months.  I actually thought I found a solution and was testing it out.  And then had to research a way to record without other people knowing.  Anyway,  I got a watch with hidden camera.  Works really good and here is my first video.  Keep in mind, it's just a test but thought worth posting.  

Here is a link to watch in case anyone else wants to do the same thing.  Only used the watch once but seems to be working well.  I'll keep you updated.  Plenty more videos to come.
http://www.amazon.com/CamRom%C2%AE-Camcorders-Function-Waterproof-SP1005A/dp/B0143YH2YA/ref=sr_1_3?ie=UTF8&qid=1464293041&sr=8-3&keywords=camrom+16gb+watch

And here is link to video

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1 Comments
Hi;  thank you so much  for all bro

Merci beaucoup!
16586576 tn?1449410735
Yeah, my feeling is exactly same with you.

You open my eyes about the 'Brownian motion' & some professional terms, which I never heard about. Thanks.

I visited about 4-5 ENT, 1 neurologist, 2 psychiatrist, they will deny my statement about I could pass my allergy around & they said that's impossible, but I saw them rub their nose or one or two even sneeze while I'm talking with them.

For my case, I feel like the allergen comes out from my nasal or face area.
Sometimes, my eyes will feel the itching too.

The itching can occur when I eat, talk, laugh, when move my facial muscle, applying lotion, with water on my face, or something close to my nasal area...

So I think I'm allergic to myself sometimes. & I'm more causing people to sneeze, as for coughing, normally if after they discovering I may make them allergic. Sometimes will feel that their coughing or quickly sniffing are more on purpose when they're around me.

I think we are 'sensitive' people which can differentiate what people reactions mean. What do you think?

I feel quite conflicted every time after visiting doctors, on one hand may feel relieved by trusting their words, but on the other hand, still feel doubtful as you'll see the people eg. the nurse give you the reaction that make you feel you're really the cause of their allergy.

Like you say, confusing.

I had entered the state of anger many years ago, just that sometimes try to find some way to calm myself down. It's like roller coaster. & my emotions was unstable since 2 years ago. Now turn back to peaceful state.

Sure we will feel anger & bit cynical, as we tend to isolate ourselves from people when we think we can make people suffer, people around seems bit afraid too. Still, we still need to try to accept ourselves more, even though others may not.

Keep going! =)
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1 Comments
Hey guys,

This is extremely serious issue.
Hope find a solution.
Good luck all.
I still reading your posts. Hope some geniuse find a solution.I am living the disease every day, for 10 years.
"If you are walking through hell, keep going" Churchill
Avatar universal
This problem is really confusing, isn't it? When I first started connecting the dots and deciding that it was something about me that was making people cough, I hoped it was just some kind of temporary food poisoning, bacterial infection, or something like that, and I hoped it would subside within, say, 3 months at most. Over the next year, however, the problems did not subside but rather got worse. As the problems got worse, I think I genuinely entered a state of psychological denial during which I told myself things like:

"This is not possible. Nothing the human body produces or excretes could possibly have this kind of effect. It's impossible to make people cough from 30 feet away - not even known allergens like cat dander could have that kind of range. Odor particles must diffuse in the air via Brownian motion, so it's impossible for a person across a room to be affected immediately after you walk into that room - your odor would have to diffuse throughout the room first, and without any wind or air pressure differential, that diffusion would take time. So stop thinking that you affect people the way you think you do."

And every time I made people cough (as I think is empirically verifiable in the videos I posted, i.e., it's not just in my head), I would tell myself "This isn't happening" or "Leave your body - just turn your senses off for the time being".

I've overcome my denial now, and I think I'm entering a stage of anger/frustration in which I can't believe a problem like this could go undiscovered for so long - and whenever I try to bring attention to it or talk about it with a doctor, I'm simply dismissed (or referred to a psychiatrist).

I like to think that doctors are compassionate people whose business is to alleviate suffering, and if they see someone suffering (e.g., by withdrawing himself from social situations or manoeuvring himself to avoid people lest he make them cough), then they would make every attempt to help that person (or at least take him seriously). If you're a little cynical like me, though, you might also start to think that a doctor's job isn't really to alleviate suffering, it's to "do no harm", and if doctors are presented with a problem that they don't know how to solve, it's their job first-and-foremost to do absolutely nothing until they know of a course of action to take - I'm just a little frustrated that no doctor even wants to try to discover the course of action to take with PATM (other than assuming that it's a psychological problem).

I still subscribe to the biomedical paradigm, and I think it would be best to locate the mechanism of our problem within a biomedical paradigm (i.e., PATM is some kind of allergen that our bodies produce - perhaps when the detoxification pathways of our bodies malfunction - and this allergen somehow has enough potency and volatility to severely affect people around us, even at relatively long distances). Many (not all) doctors already recognize the validity of TMAU, which results from dysfunction of the FM03 enzyme to fully break down certain chemicals in our bodies, and these chemicals build up to a point where they start to produce an odor that's perceivable to those around us. I think (hope) that PATM is similar.

I think it would be great to communicate with each other more so that we can provide each other with social support through this problem. I just recently moved into a new apartment, and my roommate is already vacuuming the floors and walls and saying "It really smells in here" whenever he thinks I'm not home. It would help to have people to talk with in those situations.

Take care!
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Avatar universal
Another video of me at the airport: https://youtu.be/RN_tQ3v-siI

I actually don't itch too much myself. I guess I'm lucky in that I'm not really allergic to myself, although it means that my imagination runs wild when I think about what other people must be feeling around me. My throat would have to be severely irritated to cough so blatantly in public (but then again, I've always had a bit of a repressed personality to begin with).

I've noticed people holding their noses occasionally around me, and I've overheard some saying that their noses burn when I'm around. People also definitely sneeze around me from time to time, but it's their coughing that gets to me the most.
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1 Comments
Sorry about your situations too...

For my case, I had allergic since childhood. I kind of repress myself & easy to get nervous in the past too.

Now my nose or face may itch when talk or when people come close to me.
Sometimes they might also tend to hold or rub their nose, or cough (sound fakely) . But it seems that some of them realised that their reactions are too obvious & they are trying to avoid it. But still, you will feel the uneasiness.

The tension might also cause my nose burn. I do not know exactly how others feel when I'm around as they would react instead of say out how they feel, thus, I just guess how they feel from their reactions.

Even though I asked someone before, they won't admit it. & said I was funny to think so.

Now I am trying not to receive the signals that people try to pass to me as if I'm the cause for their allergy or discomfort.

The situation seems getting improved if I persist more positive belief on myself :
1) Accept yourself more rather than blaming yourself too much.
2) Trust yourself more. You'll get better & better.
3) Trust that we are still being loved by Universe, God & family.

Wait for the one day to be healed.
16586576 tn?1449410735
Hi, saw your video.

Except coughing, anyone rub their nose or sneeze sometimes when you're around them?

What's your physical feeling when their react that way? Eg. do yourself feel itch too?
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Avatar universal
i'm curious what kind of taumatic experiences have you guys had?
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Avatar universal
Follow-up to first video: https://youtu.be/KPLAHutdOsM
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16586576 tn?1449410735
Hi there,

I had made this video early this year. Personally I also think might be not so nice for me to record ppl reactions. Just venting my emotions via this video.
https://www.youtube.com/watch?v=KesbGVd_1XY

Hi, "PATM sufferer", Received your reply ya.

Just to share my current conditions, I may not be fully recovered yet, but I am trying to heal myself via 'Seth' concepts.

I am strengthening my belief that I am actually being loved by Universe & God.

I need to accept and forgive my imperfection. Try not to compare with the idea of perfection.

In fact, it's very important we need to vent out our negative feelings, but sometimes feel hard to talk to those who are not suffering as our situations, may not understand or may feel embarrass to comment much.

Lucky we still got this place to share our experience.

Hope all of us could get well soon! =)
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Avatar universal
I'd recommend getting a camera with long battery life, or a replaceable battery, or an AC adapter. I bought a cheap, Gopro-type camera that only has 40-60 minutes of battery life (depends on recording settings) and can only be charged via usb (and it can't record while being charged). I've managed to get some usable footage from it, but it's too stressful to think about battery life while also having to think about how and when to record a situation.

I have additional footage that I'll try to edit into a consumable form. I'm not a filmmaker (the video I posted is the first one I've ever made and posted on the web), so it takes me some time to get these videos out (plus I'm trying to finish a PhD at the same time, so I'm pretty distracted). Some of my footage would also require me to blur out people's faces or somehow make them unrecognizable (we need to be ethical about recording people without their consent*) so that'll take some time for me to learn.

But I do think more videos like this are needed since it's so hard to convince people that we are experiencing a genuine problem that's not just in our heads (though I'm sure we wish it were). It's already hard enough just living with this problem without also having to fight so hard to be taken seriously.

*I think it's defensible to record people's reactions in a public space where one might expect CCTV cameras to be in operation anyway (say, a mall), but anonymity of any non-consenting people in any videos should still be maintained.
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Avatar universal
K, will try to work something out.  I need to buy a more discrete camera and have one in mind.  I'll purchase this week.  I'll try to get a video within a couple weeks.  Will be interesting.  Hold me accountable if you don't hear from me.  
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Avatar universal
Excellent video, we need to do more like this one. Thanks for the job.
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Avatar universal
I've made a video of people coughing around me at a conference. The quality isn't ideal, but I hope it still gets the point across:
https://youtu.be/Zpj0mPa1zS0
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1 Comments
Gros work bro  thank you so much
Avatar universal
I SUPPORT YOU 100%
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