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People Are Allergic To Me (PATM)
People are allergic to me. And a lot of other people around the world are suffering from this condition. Doctors do not beleive the reports, and most of them claim that we are crazy but we all know that we're far from being crazy. This condition causes so much heartache and stress. I have sent emails to CDC, NIH and WHO with no help. Would you please address this issue?
PATM- indole,indole smell.indole-serotonin in the guts
Hi soiledsytem, yes “Volatile Organic Compounds (VOCs)”, generally means everything within a particular volume of space. The machines were however used by scientists very often to study prehistoric climate millions of years ago by obtaining trapped air bubbles on drilled ice cubes from the Antarctica. That’s how they know there was no oxygen in the atmosphere billions of years ago.
In any case for our concern the VOCs is everything within our breath. How the machine function is that it works on the principal of melting and boiling point in terms of temperature for different stuff.
On our case, a breath is taken and then frozen to a specified temperature to solidify all compounds which are then carefully collected and tested to identify each VOCs. It’s like taking steam (H2O) and solidify all at once then tested. The only difference here is we are doing the reverse process with VOCs on much lower melting points.
Actually there are a variety of different ways of doing it and I don’t know them all. People who claim things on sources such as sweat on hands, head, feet, underarms, urine, ***, poo, whatever LOL, regardless where, you actually don’t have to worry because everything ends up in the blood and VOCs in the breath, sweat glands and skin comes from the blood. Everything in the blood came from the gut which goes out through the anus. Therefore it doesn’t matter where the problem is, the breath VOCs test will show all relevant molecules so that’s a part you don’t need to worry about.
In any case for our concern the VOCs is everything within our breath. How the machine function is that it works on the principal of melting and boiling point in terms of temperature for different stuff.
On our case, a breath is taken and then frozen to a specified temperature to solidify all compounds which are then carefully collected and tested to identify each VOCs. It’s like taking steam (H2O) and solidify all at once then tested. The only difference here is we are doing the reverse process with VOCs on much lower melting points.
Actually there are a variety of different ways of doing it and I don’t know them all. People who claim things on sources such as sweat on hands, head, feet, underarms, urine, ***, poo, whatever LOL, regardless where, you actually don’t have to worry because everything ends up in the blood and VOCs in the breath, sweat glands and skin comes from the blood. Everything in the blood came from the gut which goes out through the anus. Therefore it doesn’t matter where the problem is, the breath VOCs test will show all relevant molecules so that’s a part you don’t need to worry about.
just wanted to add this to freeland's comments about VOCs (volatile odor compounds). the byproducts of bacterial metabolic activity (bacterial "waste products") can be VOCs, most notably sulfur.The most noxious of these are hydrogen sulfide ("rotten eggs"), methyl mercaptan ("skunk"/"barnyard"), and dimethyl sulfide ("rotting cabbage). I have had all of these smells, but my overriding one when i eat food high in choline (no-no for those with TMAU2) is skunk/barnyard e.g. methyl mercaptan.
here is a list of some other VOCs besides the sulfur-based ones, and what they "smell" like:
cadaverine: "urine"/"decaying meat"
putrescine: "rotting meat"
skatole: "human fecal matter"
isovaleric acid: "sweaty feet"
this info may only be helpful to people who have the odorous type of PATM (as many here report that their PATM is odorless)
here is a list of some other VOCs besides the sulfur-based ones, and what they "smell" like:
cadaverine: "urine"/"decaying meat"
putrescine: "rotting meat"
skatole: "human fecal matter"
isovaleric acid: "sweaty feet"
this info may only be helpful to people who have the odorous type of PATM (as many here report that their PATM is odorless)
no rash
hydrogen breath test at cedars-sinai with lactulose (the gold standard for sibo testing)...high reading and diagnosis of SIBO. The sibo produced a "fermentation odor" (similiar to wet hay). Did SCD diet (lost too much weight and looked/felt ill), did not try FODMAPS. Body odor at this point (wet hay) was not as offensive, became burning rubber/ammonia/rotten meat later. Some PATM reactions at the early stage. While I feel I don't have SIBO anymore (no more gas/bloating), the TMAU2 (confirmed cleveland clinic) and PATM has gotten worse over time.
hydrogen breath test at cedars-sinai with lactulose (the gold standard for sibo testing)...high reading and diagnosis of SIBO. The sibo produced a "fermentation odor" (similiar to wet hay). Did SCD diet (lost too much weight and looked/felt ill), did not try FODMAPS. Body odor at this point (wet hay) was not as offensive, became burning rubber/ammonia/rotten meat later. Some PATM reactions at the early stage. While I feel I don't have SIBO anymore (no more gas/bloating), the TMAU2 (confirmed cleveland clinic) and PATM has gotten worse over time.
I think an opportunity where we can all meet might be a good step. I've met only one patm'er with this mysterious illness and I'd preferably like to meet more. I feel it would be good for us to share ideas. Obviously its daunting, particular timid character that I am but I think maybe meeting someone would help us understand each other better. Is anybody (really) up for a meeting? Its a scary, confusing situation we've found ourselves in but I think if we keep supporting each other mainly a group form we can jot our ideas and keep on being determined. Its undoubetful we have alot of mixed up emotions and a strong confusement keeps showing up.
You can try but if everybody in this forum were to write, what will they write? I am just a simple university student but I mingle with doctors and professors every day and trust me, the way they see things is different from what we imagine. I am likewise quite familiar with how people report patm in this forum.
Most ordinary people lack understanding of logically explanation, empirical evidence and the necessity of refraining from prejudice conclusions. It’s fine as we’re just common people. We don’t need to know them but that’s the very thing that doctors oppose and it’s hard for average folks to realize that. With a disease as mysterious as patm, our speculative interpretation to already suspicious doctors will only work against us.
Here’s what a doctor would do as soon as he obtains a bizarre letter from someone claiming to have a strange allergic disease that pierce through glass windows or malodor not detected by doctors excluding everybody else who’s not a physician. He’d get on his computer and access a global medical centralized database usually accessible for doctors worldwide and search diseases with symptoms alike, but even Google will do just fine. The first entry he’ll get from a long list of mental diseases that will pop up is probable “Olfactory reference syndrome (ORS)”.
The more patmers address the medical community the more they’ll be convinced we are crazy, and it’s because of clearly two reasons. 1. PATM is a strange and mysterious disease which we ourselves don’t really understand either. After all we don’t feel them, its other people that we interpret from and report that to doctors. 2. Our explanations are mostly speculative interpretation based on others, not from our own senses. It leaves room for huge speculation errors and doctors can easily home in on them and seal our fate.
Fortunately for other diseases, they don’t have this problem because patients report what they sense rather than reporting about other people senses. Not only they can explain precisely what they feel but doctors get accurate readings straight from patients.
Most ordinary people lack understanding of logically explanation, empirical evidence and the necessity of refraining from prejudice conclusions. It’s fine as we’re just common people. We don’t need to know them but that’s the very thing that doctors oppose and it’s hard for average folks to realize that. With a disease as mysterious as patm, our speculative interpretation to already suspicious doctors will only work against us.
Here’s what a doctor would do as soon as he obtains a bizarre letter from someone claiming to have a strange allergic disease that pierce through glass windows or malodor not detected by doctors excluding everybody else who’s not a physician. He’d get on his computer and access a global medical centralized database usually accessible for doctors worldwide and search diseases with symptoms alike, but even Google will do just fine. The first entry he’ll get from a long list of mental diseases that will pop up is probable “Olfactory reference syndrome (ORS)”.
The more patmers address the medical community the more they’ll be convinced we are crazy, and it’s because of clearly two reasons. 1. PATM is a strange and mysterious disease which we ourselves don’t really understand either. After all we don’t feel them, its other people that we interpret from and report that to doctors. 2. Our explanations are mostly speculative interpretation based on others, not from our own senses. It leaves room for huge speculation errors and doctors can easily home in on them and seal our fate.
Fortunately for other diseases, they don’t have this problem because patients report what they sense rather than reporting about other people senses. Not only they can explain precisely what they feel but doctors get accurate readings straight from patients.
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