People Are Allergic To Me (PATM) - People Allergic to Me (PATM)

Holy typos! I'll proofread next time, I promise.

ItchyLife

Mar 10, 2012

To: everyone

What I think is the cause off patm is an overloaded/irritated Liver because off toxins..

Some studies clame that breathing (from your tummy) releases 75 % off the toxins in our body.

Oxygen helps to eliminate toxins from our body.

Try it, it is free, and it is the normal way people use to breath, look at babys when they breath you can see their belly moving..

I think because off stress we are not breathing from our stomach and this is causing an overload off toxins in the body (kidneys/liver)

Breathing from the stomach also helps too release stress..

So everyone who is reading this, try it!

X

Ps: probably you guys notice in the beginning that when you breath in, the stomach kind of refuses to go out. But relax and focus on your under belly!

And remember it is not your skin or your breath thats is causing the PATM, but your liver that is overloaded with toxins!!!!

grateful2011

Mar 12, 2012

To: ItchyLife

thank you ItchyLife - you are right about the Liver being the source of our problem !

I got distracted with all of the other supplements - which help to deal with the symptoms NOT the source - so I am going to start a LIVER DETOX today - have you done one yet ? how often should we do a LIVER DETOX since we are PATM sufferers ?

theproblemsolver

Mar 12, 2012

To: ItchyLife

I don't think that improper breathing is the original source of the problem.

A lot of other people have stress and anxiety in their lives, and lots of it, and it doesn't result in PATM. I'm not saying that stress doesn't exacerbate the symptoms; I feel that it does. I'm also not saying that breathing better wouldn't help a little - honestly, I don't know, it could help a little. Yoga focuses on breathing techniques and that lowers stress but this isn't the source of the illness. It's not stress alone. If you think it's the liver, then something is wrong with our liver or something else is taxing it. I don't feel I have enough substantial evidence to automatically conclude it is our liver.

@grateful2011, you might want to read this article first before wasting your money:
http://www.nytimes.com/2009/01/22/fashion/22skin.html?_r=1&pagewanted=1&ref=style

Our money is better spent of testing instead of randomly trying different supplements. I personally would think twice about the medical statements of a site that's trying to sell me stuff.

I think a better test to see whether the liver is involved is to perform a scientifically proven experiment by taxing it. A day after heavy drinking should result in worse PATM. Now, I'm not necessarily saying that you should go and get trashed, but something as simple as measuring responses after taking your regular dose of acetaminophen. This would have to be repeated several times to be conclusive.

grateful2011

Mar 12, 2012

To: theproblemsolver,Iitchylife

the reason I agree with ItchyLife that our source of the PATM is the liver - because I had been taking Milk Thistle for while - and ran out of it for a few days , was continuing to eat healthy and take my other usual daily supplements - I started having allergic reactions from people again without giving my liver the extra support from the Milk Thistle

so I am back on my Milk Thistle and began a Liver Detox today

Sick_Disease

Mar 13, 2012

Are any of you getting your nose irritated along with the usual coughs from people( The patm double cough ). My nose is a constant itch, its really frustrating because im allergic to myself now probably due to all the 100s of different medication i've tried desperately, and its messed up my system

ray2502

Mar 13, 2012

To: Sick_Disease

Hello,

I have this so called PATM (Persons are allergic to Me) syndrome. I've had it for at least 20 years and I will tell you how I have managed it.

Yes, I have gone thru all those embarrassing moments where people don't want to sit beside you or you walk into a room and everybody either starts coughing, sneezing, scratching their faces or have runny noses. I eventualy stop going to the doctors for that problem cause they thought I was crazy. One of them refered me to a shrink. Doctors just do not listen to their patiences.

Anyways, I believe some it has to do with what we consume. I pretty much have stopped eating/drinking spicey foods, tomato sauce, coffee,chocolate, onions, alcohol, soda, sugars and breads just to name a few. When I did eat any of these especially sugary donuts, I would notice a big difference when I was around people. I could not be in the same room with them cause they would have allergy attacks. This has helped me considerably. Also, having high stress, no exercise and not sleeping the amount of hours that are recommended usually triggers this odorless smell.

I think that the foods that we consume here in the USA has something to do with it also. I have gone to other countries and eating their food with no reactions from people. I guess its all of those preversatives that's put on all the foods now days.

Early in my quest to find out what the hell was wrong with me, I thought that It could be my tonsiles cause of all the food that gets trapped up in those small pits so I had them removed. We, it took care of my bad breath but not my PATM. (I will propably have my gull bladder taking out due to all the gas build up in my stomach and th acid reflux disease that I suffer.) Like everybody else, that's posted about this subject, I tried using different colognes shampoos, soaps, and nothing at all with no avail. I missed out on promotions at work, relationships went sour and people just did'nt want to be around me. It affected my sense of worth, became a loner and just thought that I was the only one in this world that had this and began to question my senses. Was I going crazy.

I have also read about people having problems with their liver, gull bladder and high histamines. I will have my liver checked out and I don't know enough about histamines but will have to research it.

If anybody has anymore info on this, please post it thanks.

ItchyLife

Mar 14, 2012

To: everyone

I think our problems are really liver related.

Itchy skin and itchy nose is also really a symptoms off liver failure.

What I think we need to do, is getting rid off the toxins in our liver, by taking detoxifying products (vitamins like vit. C).

Another thing we need to do is taking supplements that promote the fucction of our liver.

Maybe you are not all convincend, but haven't you guys notice that when you drink a lott off alcohol. Our patm sympoms dissapear, this is what I think because off that our liver gets numb.

I have read that Garlic is real good for the liver (I have been taking this the last days in the morning not knowing this was good for the liver but have had a lott less reactions already)

Dandelion, this is a herb that helps with the blood flow in the liver (never took it but this should be a good thing for us)

Vitamine K, helps for the health and the function off the liver (never took this, must be good)

Oat Bran, helps with flushing the toxins from the liver and body.

Vitmanins: C, A, E, B, D.

I have also been taking the black seeds/cumin capsules (herbs), this also works good for the liver. I take this together with the garlic in the morning, and I have no reactions till I irritate my liver (alcohol, coffee, sugar).

X

ItchyLife

Mar 14, 2012

To: everyone

What I also think is that we do more research about the Candida in combination with the Liver..

I think the candida is also causing our liver hell off a job to do..

X

grateful2011

Mar 14, 2012

To: ItchyLife, everyone

keep in mind - the Milk Thistle ( take daily) supplement is also excellent for our "overstressed,run down, toxin filled etc.etc. " - liver

Our liver is a hard working, miracle working liver - and it NEEDS our help and support - in fighting the good fight of great health !!!!!!!!!!

ItchyLife

Mar 14, 2012

To: grateful2011, everyone

Another thing that can help us to get our sugar balance in our body's normal;

pectine, there is a lott off pectine in Apples and other fruit. This pectine could be a sollution for us all..

Is there anybody on this site diagnosed with hypoglycemia?

I think that our complaints are related to the PH in our body, our body's are not acidic enough.. We should find ways that get our body's in de right PH balance.. more acidic..

A Candida can't live in a acidic environment.

I have read quite some stories about people that eat a lott off apples (15) and then get sweaty, they then believe the body is detoxifying from the Candida.. And after that they keep the candida in controll..

So what I am suggesting too everyone on this forum! get enough pectine in your body-----> eat apples, or eat 100% organic apple syrup..

Anyway just wanted to let you guys know that apples are really good for liver detoxifying!

X

ray2502

Mar 14, 2012

To: ItchyLife

Really appreciate all the info your providing. I'm new to all of this forum and tahnk God I have found it. I am just so suprised that its more common than I originaly thought. I will give some of my experiences that I have come across so some of this info might be just a replica of what has already been mentioned. I've had this PATM for 20 years or more so you can imagine how my life has been. My poor wife is extremely allergic to me and I keep telling her that its me that's causing her allergies. She still does'nt believe me, (bless her heart). I was diagnosed with having H-pylori back 15 years ago in trying to find a cure for this PATM. I took medication for the H-pylori, some kind of pump inhibitor medication. I did notice that during the time I was taking this medication, the PATM had disappeared. As soon as I stopped taking the med PATM was back with full force. After this, I had a endoscopic procedure done, thinking that there might be something wrong with my stomach lining, came back negative for hpylori and other kinds of ulcer causing bacteria. Next, I had my tonsils removed because of all the cavities in them and they where just accummulating food and causing me to have bad breath.

I have been able to somewhat control it by watching my diet. (Like I mentioned above) I will try all these wonderful suggestions that everybody is talking about, one a at a time to see what works best for me.

One last thing I want to say is that whenever I have a strong stomach ach, whether its because I ate something that did'nt agree with me or for not eating anything at all, the PATM tends to disappear. Once the stomach ach passes, PATM reappears.

Thanks for all your suggestions.

Brassrat

Mar 14, 2012

I was reading your post theproblemsolver and I really believe you're on the right path to figuring out at least what gas we are emitting.  I am an engineer myself so your post made logical sense to me about the gas chromatograph.

I'm not familiar with how expensive usage of a gas chromatograph would be but if we were to take readings from a sample of PATM sufferers and also take sample of "normal" people, we could try to figure out what gas the PATM sufferers emit that normal people don't.

The problem would be if there are multiple forms of PATM with different gasses for different people.  Then the readings would look random.

NumbLiu

Mar 15, 2012

To: ray2502

Yeah,I am also with H-pylori and HGMUE ..But I have some composite veneers ,which I think has something to do with PATM..The nickel of composite veneers may cause the damages of our livers or kidneys..

theproblemsolver

Mar 15, 2012

To: Sick_Disease

Yes, I get this as well.

What are you taking? I may be able to provide a possible theory.

theproblemsolver

Mar 15, 2012

To: Brassrat

Yes, exactly. Thank you.

The breath test study by Menssana would probably be the easiest and cheapest route I can think of for now. That said, I would like to do a little more research on this and see if it will measure what we are looking. I have also briefly looked into building one of my own.

Gas chromatographs are out of all our combined price range I believe. You can get some on the cheap though. But you also need the mass spec to interpret the data.

There are tons of other cheaper tests we can perform. The downside is that you get a "needle in haystack" scenario with most of them. For instance, check out these test kits here: https://www.indoorairtest.com/

And don't worry about that problem brassrat, we can tell exactly what the chemicals emitted are by looking at the mass spec. We probably don't even need more that one person to do it. The chemical will be out of place. Once matched, you can look it up to see it's properties (like toxicity, hazardous, volatility, etc.)...or just a simply google search of the name. I highly highly highly doubt that we all are emitting different chemicals to produce the same reactions.

theproblemsolver

Mar 15, 2012

To: Everyone

I'm going to make a survey and link it to the forum when I get done.

In the meantime, a show of hands, who has been diagnosed with h. pylori? Who had their tonsils removed to get rid of bad breath?

@Sick_Disease
I feel like this happens after I eat probiotics or bacteria-killing food. I usually have to wait a week or so before it goes away. I theorized that this could be do to mass die-off and was in fact, in the long run, a good thing, though temporarily a worse due to some chemical being released even more so that normal due to the large number or bacteria dying. Wow, that was a run-on sentence. Anyway, that's why I wanted to do the yogurt test...

ItchyLife

Mar 16, 2012

To: theproblemsolver, grateful.. everyone

Hey all!

Theproblemsolver you are doing a great job, I am glad there is somebody like you around us.

What I wanted to say, is that I have been reading a lot about different things.

And my theory about this patm thing is that it is caused by an overactive liver.. But I have also been reading a lott about how our Ph balance in the body is not normal, and actually too acidic. And I read that when your body is too aidic it needs calcium and zinc, iodine. Al these minerals really also help me feel better.

But what I am thinking is that we have too much acidicity in our body because we had too many stress, and most important off all we have a not in balance thyroid and adrenal gland.. These two organs help each other so our body stays in balance. Our adrenal glands react a lot on stress. Also when you have an imbalance between the two organs you have problems with your food metabolism, gluten and diary intollerance. Cold feet etc. Sound familiar?

Anyways I think boosting our adrenal glands is really important for us too get our balance back.. Anyways I hope there are more people here that can read about this, and try supplements themselves.

I'm now thinking about taking anti-stress medication, just wanted to let you guys know. It's just I am all the time in this cycle that I can't come out..

Physical complaints-->stress... Stress--> physical complaints

X

grateful2011

Mar 16, 2012

To: ItchyLife,theproblemsolver and everyone

thanks for the dedicated research guys, keep up the great work

damnpatm

Mar 16, 2012

I have had my tonsils removed when I was little (8 years old?) due to constant throat infections. Don't know if this is related at all but I hope it helps.

Jazzmine29

Mar 16, 2012

To: everyone

ive spent thousands of dollars already on these sickness.Visiting doctors, buying supplements, almost none of them helped.Ive been searching every night for the possible cure, Id never stop.Only natural approach would help, oh my goodness. I think i know the cure on these sickness. At first i dont believe on dieting, like eating green veggies and fruits, but then after researching and everything i found that i think we have a hole in our digestive tract, at first right we experience bad breath maybe it just a small hole then after eating so much acidic food, the hole enlarge and the acid ash goes out, I dont know where exactly is the hole, some they call eat leaky gut.Some of you taking supplements but its not helping right , because those medicine/supplements after digesting i'll become acidic ash coz most of the medicine/ supplement are acidic coz of the preservatives like citric acid..Patm is caused by overly acidic digestive tract.Its like ulcer. To make the story short try to eat raw cabbage or juice cabbage or any types of cabbage like kale, try to include aloe vera, avocado, okra(lady finger) all these were healing veggies.Okra is good, those who suffered constipation, gerd, it'll cure you.Last time i have a problem of constipation and gerd, eating 5-6 okra a day with meals oh may goodness i have a regular bowel movement even gerd disappered.Try eating all these in a matter of few weeks we will be healed.Try to juice cabbage take i liter a day coz cabbage has glutamine that helps to heal the intestinal lining.Im telling u this because i think in a matter of days or weeks ill be healed coz i can feel it and it lessens may PATM big time.I recently posted that i think i have the strongest PATM. because i really can feel the acid is coming out in my breath, its was so itchy and painful and it bruise me,i came to the point that im holding my breath coz most of the people around me or all of them reacted to me. It was very strong.If you want heal faster stick on the healing veggies.I will try to overload myself with cabbage, eat and juice or you can blender it if u want.

ItchyLife

Mar 16, 2012

To: everyone

Hey all,

I did quite some research today (again).

And I really think that we have an problem with stress and we make too less adrenal hormone in our adrenal glands.

Why I think this? The first organ that suffers from stress are the Adrenal Glands. I have tried an supplement' Ribes Nigrum last days that has the property too support the Adrenal Glands. When I take this I have no to almost no reactions around me. But I hope there is an supplement that works even better!

So I was just reading something interesting about an mushroom that grows in China, that is called; Cordyceps. This mushroom is capable in supporting the adrenal gland in making adrenal hormones. This sounds like a really good natural supplement I could find for helping the adrenal glands, and supporting less stress.

The 'interesting' thing is, there are people saying that this mushroom (a fungus) has anti candida properties.

It also boost the immune system.

Just sharing guys!

X

NumbLiu

Mar 17, 2012

To: ItchyLife

Hey, I have a new idea for our overloaded liver or kidneys..As for me ,I think it can be metal poisoning like nickel poisoning..
   Begin chelation therapy with sodium diethyldithiocarbamate and support measures including antibiotics, oxygen, corticosteroids, antibiotics and rest. Nickel carbonyl poisoning is frequently accompanied by carbon monoxide poisoning, which must be treated separately.
   Maybe that's why antibotics and H2O2  work for our PATM
  Just google the nickel posioning,and u'll find something.
http://www.ehow.com/how_2085600_treat-nickel-poisoning.html

NumbLiu

Mar 17, 2012

To: Everyone

Nickel can be found in a lot of metals such as sterling silver jewelry. Some individuals have a sensitivity to nickel, which causes them to break out in a rash. This rash can itch or burn and is not only uncomfortable, but unsightly. There is nothing you can do to get rid of a nickel allergy. You must be conscious of what jewelry you wear and what metal you come in contact with.

theproblemsolver

Mar 18, 2012

To: NumbLiu

If solely a taxed liver was the cause of PATM, then you would likely see more individuals with PATM and PATM would be horrific in those who actually experience liver failure. Now, considering we have no concept of how many people actually have this condition and that these individuals may not even know they have it, I can't dismiss this with absolute certainty, but it just seems very unlikely. And whenever you tackle a problem, you focus on the most likely first.

Again, the liver may take part, but it is likely not the cause alone. Because it may take part, I have no problem with people testing this and reporting the results to see if it helps. I haven't looked into this, but maybe it could be possible that the liver doesn't properly filter one specific chemical - but I don't know enough about the liver to verify this being even a possibility.

My best hypothesis thus far is that we are either host to some organism or that we are missing or "low" on some enzyme (or bacteria) that most people have. The fact that not all of us have had this our entire lives makes for a argument against the latter but not strong enough to rule it out.

ItchyLife

Mar 18, 2012

Hey Problemsolver!

Maybe you can do me a favor, and look at the story about the Adrenal glands. These are supporting our overall health and they react the most on stress..

I have read a lott of stories about people with candida and problems with their Adrenal Glands..

Maybe our Adrenal Glands are working to hard, and we have too many Adrenals, or maybe our Adrenal Glands are not working so good anymore, and we are not producing an certain hormone enough.

I really don't know what the problem actually is with our Adrenal Gland.. But I am really almost certain this is our problem.

The Adrenal Glands work hand in hand with the Thyroid, so if the Adrenal Glands have problems the Thyroid works harder.

Anyway can you look at this?

Greetings

ItchyLife

Mar 18, 2012

Some information about candida toxin overload and the adrenal glands:

"on top of the kidneys. These glands have two distinct parts, the outer portion or cortex, responsible for physiological response to stress, blood sugar regulation, blood pressure adjustments for postural changes, energy production and physical stamina. Many of the body's anti-inflammatories, bronchio-dialators and anti-histamines are also produced in the cortex. A commonly overlooked factor is that normal cellular uptake of thyroid hormone is directly dependent on cortisol (secreted by the adrenal cortex) levels in the blood (adrenal-thyroid axis). The inner portion of the adrenal, the medulla, produces adrenaline and is involved with the regulation of the bloodstream's electrolyte levels.

Three factors common in most cases of candida yeast overgrowth, chronic unwellness, accumulated yeast / fungal toxins ( mycotoxins ) and poor sleep, conspire to substantially undermine the normal and healthy functions of the adrenal cortex. The most common symptoms and signs of diminished adrenal function are:

Fatigue
Irritability
Hypoglycemia (low blood sugar)
Lack of physical stamina
Diminished sex-drive
Possible light-headedness upon standing up suddenly
Increased levels of achiness and general body pain"

theproblemsolver

Mar 18, 2012

Does anyone have someone else they can talk to and test the symptoms out in?

If you do, it would be very telling to have them take Allegra or Claritin and see if it helps since those two antihistamines are known to help allergy symptoms but NOT cold symptoms - unlike other antihistamines. So, if it does help, the body is responding to an allergen. If it doesn't, it's more likely a bacteria or irritant or...something. Not a huge breakthrough, but it would tell us something.

Monica1015

Mar 18, 2012

To: ItchyLife

I think ur really comming on to something. I notice when I feeling really depressed, I notice more reactions. I think I just need to lightened up.

damnpatm

Mar 19, 2012

When you're feeling depressed, you're obviously not smiling. The root of the problem, in my opinion is depression and feeling down. Have you guys noticed that when you don't think about the problem, it suddenly goes away? This is because everytime when we think about patm we get depressed. And what does depression do? A lot of bad ****. That is why we have to always be optimistic and make our bodies feel as if they are safe. Why do people always tell others to smile? Because first off all, smiling is very helpful in restoring and healing your body. When you smile, your body thinks that it's in a safe environement which would mean it would focus less on producing adrenaline (going back to your point ItchyLife about the adrenal gland) which is used in fight or flight reactions when you are scared. And second of all, it makes you feel good! Endorphins, which are what make you feel good (eating, running, orgasm) are released when you smile!
This is why I believe making our selves feel safer and always being happy and optimistic will prevent patm. The problem is how to be happy knowing people around you are suffering because of you...

ray2502

Mar 19, 2012

To: damnpatm

I think smiling has something to do with PATM but not much. I do not work in a high stressed area and people are always smiling.

I was at a retreat this weekend, I was smiling and people were fine around me, no sneezing or coughing etc...The retreat lasted 3 days and I was doing fine until my first meal which was spaggetti and meatballs. Believe me, I did not think of PATM at all until a few hours after I had ate. The only reason it came to my mind was that I could not talk directly to people, they started sneezing and coughing. Unfortuneatly, I had no way of controlling what I was going eat. It only got worse from there. If I would have eating chocolate cake or something of the sort, it would have been even worse.
There was fifty four people there and 1 out of 2 people were allergic to me.
This should have been a time to relax and socialize but instead became a nightmare. It seems that spices, tomato sauce really aggrevate the situation. I really think that we have some kind of problem with our intestines, a bacteria or something of the sort. I hope to go to the doctor soon to see if he can do some blood work and other tests to see if anything comes back as abnormal.

theproblemsolver

Mar 20, 2012

To: ItchyLife

Sorry, ItchyLife, just saw your message now. Been busy with school.

Can you post the source for the quoted text?

I'll be sure to follow-up within the week.

Thank you.

ItchyLife

Mar 20, 2012

To: Theproblemsolver, everyone

I am thinking this may has something do to with Energy drinksl, Red bull causing your Adrenal Glands to work really hard.

This is due to high taurine in the energy drinks.

Anyone here that drunk a lot off these?

I am not saying our body's have wrong working Adrenal Glands because off a little taurine, no I am saying this is due to high taurine (energy drinks). I have drunk really loads off energy drinks..

I have found some information on the internet, and this could be due to the energy drinks. If our body's get overloads of an hormone (our own system makes) in the body, maybe our body is not making it anymore, and most likely we have overworked adrenal glands (also because off stress).

What I wanna say is that Taurine is pretty important to the body and the brain.

I have even read about some information that Candida albicans in people is normally kept in balance by the amino acid taurine. But I haven't found this in science information.

Theproblemsolver there are a lott off science pages about the Taurine and the Candida on Google, I don't understand anything about this. Can you find an science page that refers the statement; candida albicans stays in balance because off Taurine?

I begin using Taurine supplement from today, and let you guys know if it works!

X

Ps: Don't drink energy drinks!

NumbLiu

Mar 20, 2012

To: Everyone

If metal toxicity is diagnosed, there are several therapeutic approaches that may be taken. The simplest is the use of an oral chelating agent. In some cases, the oral chelating agent may be combined with an intravenous chelation. In still other instances, injections of the chelating substance may be used. Some herbal substances such as cilantro and chlorella can help. TTFD, a fat-soluble and very bioefficient form of vitamin B1 also known as allithiaimine, also is effective in the detoxicification of heavy metals. Metal detoxification therapies should be done under the guidance of a knowledgeable health care practitioner who has a good working knowledge of nutrition and the biochemistry of the body. The physicians at Preventive Medicine Group are very experienced in this area. Following is a list of metals that are of concern.
  http://www.prevmedgroup.com/heavymetaltoxicity.php
  Just wanna let u guys know why chlorella can help..Maybe it's not right ,but I think the metal toxicity is one possibility of PATM

NumbLiu

Mar 20, 2012

To: everyone

NICKEL is used to produce steel, some batteries, nickel plating, heating fuel and ceramics. Environmental exposure to nickel are automobile exhaust, cigarette smoke, manufacturing emissions and airborne dust. Skin absorption can come from coins, hairpins, jewelry, prosthetic joints, heart valves and some cookware. Many foods contain small amounts of nickel. Small amounts of nickel are useful in certain body functions; however, too much nickel can be toxic. Symptoms of nickel toxicity include nausea, dizziness, diarrhea, headache, vomiting, chest pain, weakness, coughing, brain and liver swelling, liver degeneration, skin rash, respiratory illness, thyroid malfunction and interference with enzymatic reactions.

grateful2011

Mar 20, 2012

To: NumbLiu, everyone

thanx for the info on metal toxicity - I am putting cilantro in my daily fruit/veggie smoothies now and am still taking my chlorella supplements with all of my other vitamin and herb supplements - I am still on my liver detox and getting quality sleep, drinking plenty of water - things are good

grateful2011

Mar 20, 2012

To: ItchyLife, Numbliu,everyone

p.s. I also continue to take my adrenal formula by vitalogic and my thyroid med daily

smellyoulater

Mar 20, 2012

I am a sufferer for 15 years and I have not found a good treatment or cure. It is not intermittent for me but constant. You mentioned TMAU so I do want to point out that there is Primary and Secondary TMAU. I hope you were able to rule out both. Primary TMAU is a deficiency in the FMO3 liver gene that cannot oxidize TMA. Usually you are genetically born with this deficiency. Secondary is acquired later in life by illness which the gut bacteria produces an overgrowth of TMA. Common treatment is antibiotics.
I was able to get my Dr. to approve a metametrix test which was helpful and suggested a fatty chain oxidation deficiency and along with a few other items. Treatment was specific intake of OTC vitamins, as those compounds were linked to a vitamin deficiency. The test was not the Holy Grail, but it’s something outside of the traditional tests that all come back normal I have been taking the suggested vitamins for about a month now, but really no improvement. However, I have not changed my diet. I will change my diet next to see if that make a difference. You can pay for the test on your own but insurance covers also. I will be doing Mebo’s breath test soon which might help get some more answers.

"The man who does things may make mistakes, but he never makes the biggest mistake of all - doing nothing." - Benjamin Franklin

bromonation

Mar 21, 2012

Wow, thankyou for your well written and concise thoughts!  I hope you post more often about your history and symptoms.

Oddly enough, I was recently thinking about a concept a "secondary TMAU".  In your reference to this, you were speaking about the same inability of the liver to process TMA; the only difference being that "seconday TMAU" is acquired in life (due to lifestyle/rare environmental exposure/etc).

I was thinking, however, that since so many people on this forum have been TMAU tested and negative results, perhaps there are other substances that are mal-processed that produces odors or allergic reactions.  (I really think the problem is odors.)

Also someone else had brought up the possibility of holes along the small intestines that lead to acid ash being released into our system that goes to the skin and breath.  I think this is another serious possibility.

Generally I'm looking at diets and supplements that specifically promote glutathione presence in the gut, as well as a nutrient-dense diet.

Anyway good to hear from you.

takingitdaybyday

Mar 22, 2012

To: EVERYONE

Hi everyone. hope everyone starts their day with a smile even through these tough times. I too am suffering from this. I still don't know what to call it. I have been tested for a few things, but nothing yet has been found. I dont have much time right now but want to go through this forum to catch up on everything everyone is talking about. So here is my story...
since high school ( 5+ years ago) whenever I'd sit next to anyone they would face the other direction. They would cover their noses. No coughing or sneezing that i noticed. I worked at a restaurant throughout my senior year and people kept their distance & covered their noses..i thought it was cause i worked at a restaurant and I'd come home smelling like oil, bread, etc. but then when i quit it followed me. I started working at an office. it was a little closed up. so not much air ventilation. People touched their noses a bit here and there. After working there for a while people started acting even more weird, pinching their noses, not coming near me, seriously avoiding me, if they saw me coming they;d walk the opposite way. And then after months of working there i started noticing the coughing, sneezing, and more nose pinching. I take showers 2 showers a day. Have a clean room, do laundry on a regular basis, sheets-clean, etc. I dont understand what is going on. i feel like my body grabs on to smells easily. My tongue is white at times(yes brush like crazy), and i have a metal taste in my mouth sometimes...like today..? i get dizzy, dehydrated(yes i try and drink a whole lot of water), pain in my chest, just random symptoms and doctors havent done anything...very frustrating. So i understand what everyones going through. I hope we continue coming together and finding a solution! Is all hope lost?

grateful2011

Mar 22, 2012

To: takingitdaybyday

please do NOT give up if u want results now - get some oregano oil/capsules (with p73) on the label - to take care of the odor immediately !!!!

to work on the source of the problem - get Milk Thistle supplement to help give your liver, the much needed support - also u can get a Liver Detox product to detoxify

also start taking probiotics and chlorella daily and drastically reduce the dairy products in your diet

all of these u can get online thru amazon *******

God Bless You

NumbLiu

Mar 23, 2012

To: takingitdaybyday

Glad to hear what u say.. u said u had metal taste in ur mouth sometimes,so have u tested for ur metal amount in ur body?

ItchyLife

Mar 23, 2012

To: everyone

"Beta-alanine is measured to be high in blood plasma.
Often this amino acid is elevated when the dietary peptides anserine and
carnosine are elevated because they contain beta-alanine. Beta-alanine also is a
breakdown product of the pyrimidine bases cytosine and uracil. Catabolism of
damaged or diseased body tissue, tumors and malignancy feature increased
production of beta-alanine. In the absence of elevated anserine or carnosine and
accelerated catabolism of unwanted body tissue, the next most likely source of
beta-alanine is imbalanced gut flora. Some beta-alanine is produced by normal gut
flora which also make pantothenic acid from it. Intestinal dysbiosis and
infections with staphylococcus or streptococcus are observed to coincide with
increased levels of beta-alanine. Continuously elevated beta-alanine can be
detrimental by impairing renal conservation of taurine. Elevated urine taurine
with depleted blood levels may result."
"Candida Albicans and Bowel Toxemia:
Intestinal overgrowth of Candida (a naturally existing fungus) and foreign
bacteria produce the amino acids Beta-alanine and Beta-aminoisobutyric acid.
These beta amino acids increase your requirements of B6 and increase loss of
other amino acids (especially taurine). This situation often results in
imbalanced levels of amino acids, protein intolerances and excessive free radical
activity characteristic of many Candida overgrowth conditions. Normalization of
urinary amino acid levels parallels demonstrated improvement and monitoring these
levels can indicate specific supplements useful at different times."

I am going to do a high supplementing in Vit B6 and Taurine, I really notice that Taurine and B6 help me! But I think I need to dosis high in these supplements! I will let you guys know how thinks go!

xx

ItchyLife

Mar 23, 2012

To: everyone

Beta-aline puts an brake/STOP on the acidification of your body/gut.

Candida in the stomach for instance makes a lot of Beta Aline.. Taurine for instance competes with Beta-aline. So Because of Taurine our body get acidic, and candida can't live in a acidic environment.

So I think we need to supplement high in Supplements that support the growth off Gastric acid:

-Taurine
-Vitmanine D3
-Vitamine A
-Zinc
-Glutamine
-Methionine
-B6

HCL also helps with more Gastric Acid, and I know this helped me too for the PATM..

Another thing that helped me was H2O2, just googled and H2O2 also helps with the acidification of our body. (scientifically tested on rats)

I really think it is the overgrowth off candida causing this disease, and I don't know if it is the gass/toxines it produces or the Liver/Adrenal Glands overproduction.

But I know 1 thing for sure, and that is that if we keep our body ACIDIC, the Candida must go away one day.. And so as our PATM issues..

X

grateful2011

Mar 23, 2012

To: ItchyLife, everyone

your last sentence .... " but I know one thing for sure, and that is that if we keep our body "acidic" - I hope you meant to say - we should keep our bodies ' ALKALINE' in order to prevent candida and PATM issues ???????? - please clarify, thanx much and Happy Friday

ItchyLife

Mar 24, 2012

To: grateful2011, everyone

You are right grateful2011!

We have to keep our body alkaline to get this under control.. A more acidity body will have more candida and more PATM.

But we do have to keep our stomach promoting gastric acid, so we have to keep our stomach more acidic, and this is promoted by alkaline foods.

Just wanted to say that since i'm doing this taking taurine and vit b I feel much better! Also the Patm reactions around me are less.

But I'm going to supply high in both for the coming time, so I will let you guys know!

X

ItchyLife

Mar 26, 2012

To: everyone

Maybe the candida is also in the lungs, because for example I have these white pimples in my nose.

Did you guys know there is sugar in most cigarettes?

X

ItchyLife

Mar 26, 2012

To: everyone

I have an idee, I wanted to share with you guys..

Actually I read that there where people on the internet using nasal pumps with Hydrogen peroxide (HIGLY DILUTED) in in.. And they cured a lott of things like prostate cancer (for what I read).

Anyways a lott of stories, don't know what is true.

But I got a nasal pump here at home and I got some Hydrogen peroxide 35% Food-grade left. So I am gonna dilute it with some water (distilled water), and pump it in my nose a few times a day..

Since I had this PATM thing I have had these white little pimples in my nose, and I remember when I was in Paris, I became so crazy off everyone itching his nose around me, that 1 morning I scrape the white pimples all out my nose (don't do this btw). And the next day people where not itching till like 3 o'clock in the afternoon.

Anyways I have an question for everyone here on this forum, that everyone can just answer by looking in the mirror:

Does anyone on this forum have these white pimples in their nose?

PLEAS ANSWER FOR OUR COMMUNITY!

I will let you guys know how the pump spray works!

X

Ps: The taurine and the B6 is working a little, not good enough.

LondonBlob

Mar 27, 2012

To: ItchyLife

Itchy

I used to have those where you squeeze your nose and they ooze out, but I don't have them any more. What made them go away was oil pulling. I think they are just a sign of poor lymph flow, toxic burden. What I do is get a nasal spray pump, empty out whatever was in it and fill it with colloidal silver and spray that in my nose.

I have done the h202 in a spray pump but you pump it down your mouth while breathing deeply rather than your nose. 3% is the max used for the mouth, some can only handle 1.5%, the nose will burn if you use these % you have to go even lower for the nose 0.5%.

If oxygen therapy is used in any way it is important to take antioxidants away from the therapy say 1 hour or more later.

Going back to Michael Coyle and his study of fungus and how it can be inside the body, the flesh, lungs and on the skin I can't help thinking that it is important to attack it both internally and externally and when I say externally I have this in mind. Athletes foot and nail fungus and the scalp. They say that if you have athletes foot it is almost certain that there is low level fungus all over the skin. So it is important to clear up athletes foot and nail fungus - if you look at earthclinic.com you will see people have used vinegar to spray on feet or soak in, oral ingestion of Apple cider vinegar and for scalp they have rubbed in 50/50 lavender oil, tea-tree oil over night and then washing in morning with shampoo with Grapefruit seed extract drops in it and also used apple cider vinegar to rinse through their hair, they also bath with a cup of ACV in the water. Turns out that fungus dies from the acid in vinegar. One woman even cleared her nail fungus just by drinking two table spoons of ACV in a glass of water every day until the nails grew out, after her Doctor said she would have it for life - go figure.

An interesting side note on the Liver which you were on about a bit back. Have you heard of the liver flush that uses egg yolk and lime juice with a table spoon of oil? turns out it is the lethicin in the yolk which flushes fat and gunk out of the liver. Well I am making my own lyposomal vitamin C which is made from mixing lethicin vitamin C and backing soda - with this stuff you can mega dose vitamin C. After one week what I found after an enema was two green stones one of which had some white stuff attached to it what I can only think is fat. Well these stones are hard, rock hard but they float. So it will be interesting to see what comes out as I continue and increase the dose.

grateful2011

Mar 27, 2012

To: LondonBlob, Itchylife, everyone

I do oil pulling with coconut oil at least every other day - it is great for our oral health and general health also !!!! I have never noticed any white pimples in my nose

NumbLiu

Mar 27, 2012

To: ItchyLife

   Yeah,I have to clear out some white sticky substances with 0.9% salty water  every morning,but I am not sure whether it is white pimple that u said...Besides ,sometimes I feel my nose itchy and dry..People around me also feel itchy in their noses. Confused for so long..But recently I have started to learn more about nickel poisoning,which will cause the skin itchy and is a allergic source .. So I decide to have a test of metal in my blood or urine...Unfortunately,in my living city,I can't find a hostipal having that test..

smellyoulater

Mar 28, 2012

Guys,

Mebo has the breath test equipment from Menssana in Chicago right now and are taking tests. The test is able to measure every compound above 4 carbons emitted from your breath. The cost is $345 but well worth it to find out what is going on. It’s exploratory and nothing may come out of it but its worth a shot. We have to start taking control of our lives. I believe the equipment will travel to Miami then London in the next few months. Just wanted to let everyone know.

BTW I thought my problems were candida but the metametrix test ruled that out.

Monica1015

Mar 28, 2012

To: everyone

I've been on this forum for some months now. I've been dealing with this problem almost four years now and I would'nt wish this on anyone. I'm so thankful for this forum because I feel like I'm getting closer to the root cause. I'm a female and I noticed about a week prior to my monthly cycle, my PATM is really intense.People n my class are sneezing, coughing and rubbing there eyes and nose more. My body temperature rises; which is normal around that time. Another thing I notice is that the back of my tongue is really white. So self-conscious about my dental hygiene, I floss and brush after every meal. Even the dentist says I have great teeth. I told him about the problem of my tongue and he just tell me to gargle with warm salt water, but I dont think that works.
At first I thought that I had bad breath, but when I went to doctors and close friends they would say that they never smelled my breath although I still experience them rubbing their nose or eyes.

Monica1015

Mar 28, 2012

To: NumbLiu

I've heard about that on my local news about people being allergic to nickel (including myself) not only do we have to be careful of the jewlery, belt buckles but the food that we eat has some nickel in it even some of the pots that we cook the food in. The Physician on the news suggested to chew the vitamin c vitamins before eating

NumbLiu

Mar 28, 2012

Great...For me viatmin C eases my PATM so much ..When I have Vitamine C, I find people around me have less PATM symptoms..
Thanx for ur local news..

theproblemsolver

Mar 29, 2012

I like the way you approach this because it is also the way I am approaching it. I believe the Mebo breath test is seriously one of the best investments we have right now. When you say every compound above 4 carbons, do they mean every compound containing 4 carbons or more, or any compound that exists with at least 1 carbon and there are at least four of them? I'm assuming the former, and hoping for the later. I could probably answer my own question if I thought about spectroscopy a little more. I think whenever we did it the molecule always contained 4 or more carbons.

Regardless, it's not true that "nothing may come out". In fact, it's one the FIRST things that really reveals anything that significant and truly conclusive.

Good to know about the metamatrix test as well. Did you receive any other results back on the test that seemed interesting?

theproblemsolver

Mar 29, 2012

To: NumbLiu

I don't get how us being allergic to nickel would manifest itself in allergic symptoms in other people? Can you expand upon this more or is it kind of just a shot in the dark? I mean, I hate to discourage experimentation and theorizing, but I also would like to make sure time and money are being put to good use.

theproblemsolver

Mar 29, 2012

I am quite certain this is something that at least some of us are exhaling. This does not mean to say that it isn't emitting out of other areas of our body, but very likely at least from exhaling. I would say I'm 95% certain. I am very cautious to shout out high percentages because I know I must be overly critical in dealing with this and be thinking of all possible outliers.

Here is why my percentage is so high:
1. I experience an itchy nose. If the PATM is bad or...it's altered (I'm not really sure), my nose itches when I open my mouth. This happens enough for me to conclude that it's something coming from that region. This hasn't always happened, but I feel like it exacerbates a couple days after eating yogurt/probiotics. In fact, I never used to experience an itchy nose with PATM, so something I'm doing presently is altering it. Back when PATM seemed to manifest itself only in the form of others sniffling, I never reacted to myself. Seems weird to say that but that is essentially what is happening.

2. Other people react and itch their nose when I open my mouth and speak. I notice this is more likely to occur when I too am experiencing an itchy nose. This obviously doesn't happen all the time, but when it does the connection is pretty apparent and hard for even the most unassuming minds to readily dismiss - if your mind is already open to the idea.

3. This is worst upon first waking. I often find myself waking to an itchy nose.

Therefore, I've concluded that me, and it appears to be at least some others here, if not all, are definitely exhaling something that is cause the reactions. Be it from the stomach, lungs, rhinolaryngol areas. It could additionally be coming from somewhere else in the body as I haven't ruled this out, but why not work with what we know?

p.s. Apologies for my lack of absence. School is taking up a lot of my time.

Monica1015

Mar 29, 2012

My nose actually burns intstead of itching and when it burns, that when i know that others will react.I'm visiting my Doctor tommorow. Im want him to approve my sonogram. I have a feeling that the root cause for me is my digestive system.

NumbLiu

Mar 30, 2012

I think I need to say more details about my situation and u may understand why I stick to the nickel poisoning so much,,
   Several months ago,someone with PATM referred to it that GERD maybe the cause for our PATM in Yahoo..So I had a stomach check ..Then the result told me I wasn't GERD but HGMUE (Esophageal gastric mucosa ectopic)..But some researches showed that HGMUE was inherent,but my PATM started only about 2 years ago when my nickel composite veneers in my mouth had some problems..U know,the acid produced by the gastric mucosa in my upper esophagus can make my saliva acid,which will turn the Nickel into nickel ion.. Besides,research also showed that people will be allergic to nickel ion and too much nickel will damage our liver and kidneys..
   As I know,the nickel composite veneers have been replaced(or banned) by the porcelain veneers in USA and many western countries..But I am from China,where the nickel composite veneers are still popular in my country because they are much cheaper..But many people are reported to have allergic symptoms in their skins and cough all the time after they wear the nickel composite veneers..So many of them had checked their urine for the metal amount and the result showed it's ten times as normal..And when they put off their veneers,the amount of nickel went down in evidence..In my country,many reports said that the nickel would cause the kidneys diseases..
  Yeah,maybe it's not true that the nickel will cause the PATM..But I think i  will have a try to kill my PATM..I will spare no effort to find a hospital where can check my nickel amount in my urine
  Thanx.

LondonBlob

Apr 01, 2012

To: ItchyLife

itchy are you still itchy?

look at earth clinic and see what people have done

soda crystal baths + washing hair with soda crystals - it is high alkaline and kills the itchy micro-organisms

apple cider baths - one cup of ACV in bath then soak

h202 bath - one cup 35% in bath then soak 30 minutes or more

far infra red sauna

smellyoulater

Apr 01, 2012

The breath test measures compounds with 4 carbons and above. I think the only way to figure this out is by testing. my symptoms have progressed and my allergies have gotten bad. I am determined to find answers this year and I think the mebo breath test will give me some good leads. I think if every PATM sufferer takes this test it will tells us what compounds we are emitting. I am also thinkingaid we find the compounds then look into a DNA test to check for gene mutation. I am still waiting back for my TMAU test results from clevland clinic through mebo. Aurametrix is free also through mebo which tracks the food you eat to figure out the cause that triggers symptoms.

cb_patm

Apr 02, 2012

To: someone

I have done blood chemistry study, but I can't find anything I have something wrong with my liver a little.
As the time as I noticed that I have PATM, I have candida on my penis and my penis develops a crack.
I also have a coated tongue.
I want to try the breath test measures...

WorsethanJob

Apr 03, 2012

Hi everyone. To Theproblemsolver. In Your last posting you described all the thing that happen to me. When I open my eyes from sleep I experience the worst PATM. My nose itches like hell and I sneeze. Usally it doesn't make me cough but sneeze. This is also when I notice more reactions from other people.

NumbLiu

Apr 04, 2012

To: Everyone

  One guy in my country said that he had cured the PATM.. Just wanna let u guys know what he said in forum..
  Google translation:
  The only reason: deviated nasal septum

The course of treatment:

1, go to the hospital for sinus CT scan, diagnosed with a deviated nasal septum, with particular attention to whether the nasal septum, the high septum;

2, to determine the surgical program, waiting, waiting times for surgery;

3 postoperative nasal airway is the normal, non-sticky postnasal drip into the throat, that is back to normal.

Merge with chronic sinusitis, nasal polyps, turbinate hypertrophy, together with surgical treatment. Chronic rhinitis, vasomotor rhinitis, the topical steroid nasal spray for treatment;

Do not believe in Chinese medicine and antibiotics, nasal septum deviation is a natural, or acquired due to nasal bone. Medication useless, antibiotics useless, because the nasal environment is already sick, medication only temporary relief, immediately after the disappearance of the efficacy recurrence.

Produce odor: nostrils poor ventilation, the nose dry sticky, bacteria, odor;

More than 80% of the reason people are nose and throat,not internal organs, heart, liver, spleen, lung and kidney, and sy(masterbate);

I have been through the nasal septum was completely cured bc, this does not make any reply, do not draw the questions and doubts, I shall not answer, do not waste time. Do not ask my symptoms, I can say with certainty that 80% of the people are the same etiology: nasal septum deviation.

Pharyngitis, tonsillar hypertrophy is not the main reason so many people to cut the tonsil is not good.

Tonsillar hypertrophy exists in a lot of bc patients who, because of the deviated nasal septum caused by sticky postnasal drip, and the long-term to stimulate the tonsils, tonsils and immunity related to a compensatory hypertrophy, is a reflection of the human immune system. Chronic pharyngitis directly from the stimulation of the nose caused nasal unimpeded, pharyngitis will slowly disappear.

Many people say that my nose is not blocked, we can say for sure: Your nose may be small is blocked, you would have to get used to, she does not know what is smooth. . . If you spent a few minutes in the wc smell the odor is a reason.

Many people say that they are acquired, also vowed to say that they are a certain period of the beginning bc, then your attention again during this period with or without nasal trauma, nasal bleeding, or if you recall it, maybe you grew up is like this, but you do not concern nothing, while the later may be associated with chronic rhinitis, bc aggravated, and you from before the beginning of concern.

Deviated nasal septum, in addition to surgical correction, no other method, to the hospital, communication with doctors, many doctors say the septum to a lesser extent, without surgery, you have to let the doctor know you have complications, such as dry nose to nose bleeds, nose reflux, etc., yes, a person's nasal septum is not unbiased, critical look at the extent of the septum and whether there are complications.

Excess does not own discretion, surgery costs over the different levels of hospitals are different, the general case of workers' medical insurance is less than 3000 yuan. No health insurance is too much trouble, may 7,8000, the specific is not clear.

  BC means PATM..If u have puzzle at something,just post it.

ItchyLife

Apr 05, 2012

To: NumbLiu, LondonBlob, everyone

WOW! I just read the post off Numbliu!

So I thought I spray some 3% distilled H2o2 35 % FG in my nose, and the effect was really unforgettable! I noticed that my stomach right away begin doing something, like a numb/uncomfortable feeling, like it was repairing itself (I have had these symptoms a lot in the beginning of this journey).

The last days I have been reading a lott about our problems and on the internet about the leaky gut syndrome. I have always thought that this was due to a stomach related thing. But that we don't get enough oxygen true our nose and that the PATM symptoms are linked to deviated nasal septum? It sounds weird but when I just experienced the reaction off my stomach when I sprayed some oxygen in my nose!

THANKS NUMBLIU for sharing and for helping!

I think we are getting really close to the source off our problem, and I must say I haven't done much research to this, but there must be a connection with the nose and the stomach!

X

PS: I am also ingesting Glucosamine for repairing my stomach, I already feel this helps also a lott. But I will definitely continue taking the oxygen true my nose.

Too Londonblob I am not so itching the last weeks, I do still have symptoms after coffee and sugar. Without the coffee and the sugar my symtoms (symptoms) are almost gone. (including the PATM symptoms).

WorsethanJob

Apr 06, 2012

Hi everyone. Has anyone on this forum been followed by a fly or flies because of bad breath? It used to happen to me but now I seem to have solved that problem. Please provide me with an answer because there is something I'm working on which might give a lead to the cause of PATM.

NumbLiu

Apr 06, 2012

To: WorsethanJob

Sometimes I'll be followed by a fly or flies.

theproblemsolver

Apr 06, 2012

To: WorsethanJob

Awesome! We're on to something here then. It's like...some kind of bacteria has accumulated maybe? Or acid relux of some kind? It's great that we actually have something tangible and measurable that we both experience.

I notice will frequently occur when I eat Sour Cream and Onion Pringles. It would be interesting to see if the same thing occurred with you. Then we would be getting closer.

To NumbLiu, that's interesting. I had a CT scan a couple years back and I'm pretty sure they ruled out a deviated septum and I had definitely had PATM at the time. Perhaps though, it pertains to mucus drainage? The effect of mucus drainage will be worse in the morning, upon waking.

Also, Numb, I appreciate you lengthy response about nickel. Now I can see your reasoning. The only downside is that I don't think I have any nickel anywhere in my body. Unless you're also saying that perhaps we cannot properly metabolize it?

I feel like the collaborative efforts of this board have really picked up. It's great. For the first time, I feel like we're making progress. However, remember not to jump to conclusions to quickly. We don't want to waste our money or be disappointed.

To WorsethanJob, I've noticed that as mosquitoes/flies. I don't think I have bad breath anymore after removing my tonsils, but the mosquito/fly thing sometimes occurs. On another note, sometimes people generally attract more bugs than other. Note that there doesn't have to be an odor present but certain chemicals. I've been around other people who really attracted mosquitoes - even more than I. Flies, I'm not sure.

Again, I feel one, or maybe the only, source is definitely our breath.

theproblemsolver

Apr 06, 2012

I've had my nose burn before too, but it's less common.

theproblemsolver

Apr 06, 2012

Agreed. Auramatrix looks nice for testing purposes as well. Looks like we're getting more and more resources at our disposal.

To itchy, I told you I would reply to you a while back about a theory you had and forgot about it after the insanity that is school. My apologies about that. I have to say that I don't know much about Taurine and Candida. Have you noticed anything with the supplements? I believe one of the forum members said he/she tested for candida overgrowth as the results came back negative. Best thing to do is to test consistently and see what you notice. Right now, my hunch leads more towards the upper digestive, otolaryngeal, and respiratory area...but we certainly haven't ruled out the intestines.

ItchyLife

Apr 06, 2012

To: theproblemsolver, everyone

Hey Problemsolver,

Is the small intestine the upper digestive? I have noticed a little change with the taurine but the b12 does really help. Also Glucosamine helps! I am going to buy L-Glutamine too! I think anyone that is willing to open his wallet at the moment for something should google leaky gut and L-Glutamine. All the amino acids I tried, are really helpfull, L-glutamine is the most abundant amino acid, and I haven't even tried it! Damn!

There where already people on this forum tested with an overgrowth off candida/ bad symbioses in the stomach.

So this is one off the things that have been verified as a health problem on this problem.

Another thing what comes together with this is the constant stress people have on this forum, what also gives pressure on the stomach.

Another thing that people said is that when they take anti inflammation medicine/herbs their complaints get less.

For me my symptoms in my body get worse after I eat/drink things that are irritant (sugar, coffee). But what the thing is, I also get a lott off complaints on places that have nothing to do with my digestive system, if you know what I mean. When I eat a lott off sugar, my arms begin to itch from the inside, like the sugar or toxins the candida releases comes in my blood. So there is something that penetrates the stomach, and here we come back at the candida.

I think that if we would have an really strong stomach with no openings, we wouldn't have problems. There would't be an odor there would't be an itchy feeling. And we could get the candida in a good symbioses with probiotics.

So we must concentrate on this and focus on the digestive area. Already a lott of people on this forum said that probiotics help. But I know 1 thing for sure that when we would repair the intestines. It would be so much easier to get the candida under control.

The small intestine is the intestine that can become leaky.

Some questions that need to get answered;

1. What is the mucus layer in the small intestine made off?

2. What supplements can we take to repair the intestine?

3. Liquid form better?

If we could focuss more on this, then we can beginn with repairing our intestine/leaky gut. And then we are not reacting on food, and also the odor we are releasing will be going away. Because the odor/reactions we are producing is coming out off our digestive system, this must be! Because everyone here knows that eating a candy bar, gives more reactions around him.

I already notice a lott off change with the glucosamine. But I also read about L-glutamine that it helps a lott with leaky gut. There must be something that can heals our gut more quicker, without doing a diet for months and months. I am going to buy the Glutamine.

For the nose thing, we are breathing too much true our mouth because we have stress, and breathing true your nose filters the oxygen, that is why it is important we breath in true our nose! And oxygen are also really important for the digestive system. We need oxygen there too because oxygen stops the fermentation process, that we have too much after eating certain foods, because we have leaky gut. (you know there are death parts in the sea, because there is no oxygen!)

Problemsolver you are a scientist, you could read/investigate what is beneficial for creating/ building the mucus in our small intestine. leave the Taurine thing, I think you can answer these questions right? I already did a lot of research on this, but I am sick off investigating things about this, I am more an idea person.

X

ItchyLife

Apr 06, 2012

To: everyone

Just bought the L-Glutamine I will let you know if I experience something!

X

ItchyLife

Apr 06, 2012

To: everyone

"There where already people on this forum tested with an overgrowth off candida/ bad symbioses in the stomach. "

I mean Dysbiosis!

X

grateful2011

Apr 06, 2012

To: ItchyLife, everyone

I am using candia clear by "NOW" - I had orderd it a while ago and had forgot about using it . my bloating and gas was really bad this week, so I added this to my regimen of other supplements and lots of green veggies and fruit diet - and am happy to report that my intestines are no longer bloated and greatly reduced smelly gas

WorsethanJob

Apr 06, 2012

To: Itchylife, everyone. I just want to say that the mucus membrane is one of the most important tissues in the organism. It is in fact, in the defence and life saving department and taking chemicals to clear it out can be fatal. In the trachea, the mucus is useful in trapping foreign and irritant particles such as dust, bacteria etc which is then swept out of the windpipe by the cilia. So, when we get that runny nose, it means our system is working well and the mucus has just saved our lungs by preventing harmful particles reaching the alveoli. In the digestive tract, the mucus membrane protects the lining from being digested and erroded by proteases, gastric juice and other corrosive chemicals. Therefore, destroying the mucus membrane can accelerate leaky gut. Someone on the forum once said we are giving out hydrogen sulphide through our lungs. I doubt this very much. Hydrogen sulphide is fairly soluble in water. And our bodies are 70% water! Before breathing out it could already dissolve in the film layer of moisture lining the alveoli, turning into a weak acid. Now, the alveoli are epithilial so the acid could corrode the alveoli wiping out the surface area of gaseous exchange and giving us emphysema. Now, we don't have emphysema, do we? Just like the hydrogen sulphide cannot pop out through the skin in its gaseous form. It has to go the aquaeous route, changing into a weak acid because of the water in the tissue fluid, the blood and the sweat. I think we have to start elliminating some of the possibilities if we are to narrow onto the source.

WorsethanJob

Apr 06, 2012

To: Itchylife, everyone. I just want to say that the mucus membrane is one of the most important tissues in the organism. It is in fact, in the defence and life saving department and taking chemicals to clear it out can be fatal. In the trachea, the mucus is useful in trapping foreign and irritant particles such as dust, bacteria etc which is then swept out of the windpipe by the cilia. So, when we get that runny nose, it means our system is working well and the mucus has just saved our lungs by preventing harmful particles reaching the alveoli. In the digestive tract, the mucus membrane protects the lining from being digested and erroded by proteases, gastric juice and other corrosive chemicals. Therefore, destroying the mucus membrane can accelerate leaky gut. Someone on the forum once said we are giving out hydrogen sulphide through our lungs. I doubt this very much. Hydrogen sulphide is fairly soluble in water. And our bodies are 70% water! Before breathing out it could already dissolve in the film layer of moisture lining the alveoli, turning into a weak acid. Now, the alveoli are epithilial so the acid could corrode the alveoli wiping out the surface area of gaseous exchange and giving us emphysema. Now, we don't have emphysema, do we? Just like the hydrogen sulphide cannot pop out through the skin in its gaseous form. It has to go the aquaeous route, changing into a weak acid because of the water in the tissue fluid, the blood and the sweat. I think we have to start elliminating some of the possibilities if we are to narrow onto the source.

ItchyLife

Apr 07, 2012

To: theproblemsolver, everyone

Theproblemsolver; you say this: "Therefore, destroying the mucus membrane can accelerate leaky gut"

Could this also go the other way around? Like could a leaky gut accelerate in destroying the mucus membrane?

That would mean there are different casues for the people on this forum, and the treatment wouldn't be the same, or would it be the same?

Maybe for the people who have the leaky gut and the emotional stress are releasing H2S, and the H2S is destroying the mucus membrane..

I have an painful stomach and I have an runny nose. I think my stomach is causing the reactions in my nose, not the other way around.

X

Ps: for the people that need to get there leaky gut fixed, buy L-Glutamine. It helps me a lot so far! It is really not expensive. Mine cost 10 Euro's..

WorsethanJob

Apr 07, 2012

To: Itchylife, everyone. Hi Itchy. It's actually me who posted about the importance of the mucus membrane in our systems and not theproblemsolver. I always take a cautious approach to these things because I am a biologist. Maybe the word I used (accelarate) was not appropriate. What I meant was that damaging the mucus membrane may lead to leaky gut and leaky gut to PATM. You are right about stress causing leaky. Take for example, apart from the Helicobacter in the stomach causing ulcers, stress can also do it. When one is under immense stress, the stomach wall responds by producing excess dilute Hydrochloric acid which in turn might corrode the mucus membrane and expose the fleshy wall which is actually protein. Then the pepsin, a digestive enzyme produced in the wall of the stomach too, will digest it as a protein, causing ulcers. With a good mucus membrane lining the wall of the stomach, the protein digesting pepsin cannot digest the stomach. I think a good mucus membrane gives the same protection in the colon against the ravages of the candida. It could be true the PATM has its origin in the gut. But its effects are felt in the nose, which is outside. Well, I'm just trying to look at the other side of the coin. I think we have the same PATM, no doubt, but we need to cast our nets wide if we are to find the common denominator to this PATM thing. For example, I don't believe this thing is coming out when we breath out, otherwise our lungs would have long got damaged. What I think is that we are breathing in this from the environment. This thing gets off our bodies, creating an aura around us. When we breath in, we are actually drawing in air to fill the vacuum left by an expanding thoracic cavity. In the process this thing goes into the windpipe together with air. But its irritations are detected and we begin to cough and sneeze, a natural way of trying to get rid of this foreign particle from the airways. But it doesnt end there. The mucus membrane also kicks into action, preventing this foreign particle from entering the lungs, in the process giving us a runny nose.

theproblemsolver

Apr 09, 2012

To: Worsethanjob

You cannot conclude than we are not breathing it outward simply because it is not coming from our lungs. It could be from our esophagus, nose, oral cavity, etc. and it would still be forcibly exhaled through our breath.

To assume it is "damaging" to our lungs would render it an irritant instead of an allergy. If it truly is some sort of allergy, then constant exposure to it would likely lead to little response from our lungs. It is only in heightened or perhaps altered exposure that I believe we tend to experience reactions to ourselves anyway (always feels ridiculous saying that).

This said, I do agree with you on part that I lean toward it not coming from our lungs. I disagree, however, that we are not exhaling it. And by this I mean that our breath it not expelling it outward from oral/nasal cavity. I also lean toward it being an irritant or airborne organism seeing that it affects nearly everyone (though some worse than others sure, but that only makes sense).

On a side note, I noticed remarkable increased reaction from someone I know had exposure to black mold in their apartment. I have to wonder what this implies...I can't completely connect the two, since I don't know their state of reactions beforehand but it could make for some good theoretical hypothesizing.

theproblemsolver

Apr 10, 2012

To: Everyone

How many people here have tried proton-pump inhibitors and/or H2 blockers for an extended period of time?

Has anyone ever had esophageal pH monitoring?

I keep waking up with an itchy nose, most recently burning, and a sore throat. Brushing my teeth and tongue relieves this a little. This was not common when my symptoms used to be significantly lessened and never really even though about this anymore. Perhaps are stomachs are producing too much acid and this is creating and unfavorable acidic environment which leads to some kind of bacteria producing a toxic die-off?

theproblemsolver

Apr 10, 2012

To: NumbLiu

This post about the deviated septum is interesting, but I wish I could decipher it better. Towards the end, I am having trouble understanding exactly what he is saying. Is he saying that he thinks so people have a deviated septum causing blockage and some people have chronic rhinitis which causing the blockage? If this is true, I have some steriodal nasal spray I can use that I've never tried out.

I wish this man could join our forum so that we may ask him questions.

Here is something interesting I just happened to stumble upon while not even researching this:
http://www.de-fact-o.com/fact_read.php?id=150

I just tested this and noticed that right now I am breathing through my left nostril and not my right.

Wikipedia then goes on to say:
http://en.wikipedia.org/wiki/Nasal_cycle

Not saying this necessarily relates, but it's interesting to read up on.

NumbLiu

Apr 10, 2012

I think he means that the deviated septum causes the environment in the nose abnormal,which cause  chronic rhinitis ..Besides,he thinks the deviated septum brings about the blockage of the nose and it causes the lack of oxygen,which may cause the the overgrowth of the bacteria in our stomach..
  Also,the backflow of our nosal mucus caused by the deviated septum will be harmful to our health..
  For him curing the deviated septum will make all these symptoms disappearing including PATM

smellyoulater

Apr 11, 2012

I have went on so many diet restrictions with certain foods, vitamins, supplements, protocols etc - the works. I truly believe the only way to find out what is really wrong with us is testing.

There are volatile chemicals being carried in our blood stream where they are secreted out of our pores, sweat, or exhaled out of the breath. These are causing others to be the recipient of allergic reactions to the chemicals we are emitting through the natural body functions. Everyone is suffering from a variant of disorders probbaly caused by a non-full functioning liver, kidneys, pancreas brought upon by illness or gene defect. A good example is TMAU where the FMO3 gene is not oxidizing TMA at appropriate levels causing the volatile chemical TMA to flow in the blood at high level causing body odor or allergic reactions by other. There are several TMAU documentaries that evidence this. It manifests differently in everyone. Standard tests do not catch this becuase its not life threatening and we can continue living with these disorders. That doesnt say that it is not disabling.

The only current major diagnostic test for blood born presence of volatiles is TMAU test (available through MEBO research through the Cleveland Clinic and Dr. Hazen or if you live in the UK then with Dr Lachman. The TMAU test by MEBO conducted by Cleveland Clinic can be done by mail.

And the breath test being offered by Menssana through MEBO that has to be done in person.It's exploratory but you get a print out of the results in a few weeks time showing the chemical compound ranges and peaks. There is no other machines that I am aware of that can look at a broad spectrum compounds and analyze like this test. The home airborne test only detect things like radon, mold, etc but do not tell you the level. They only tell you that it there it has detected a harmful chemical (doesnt say the name or levels) and that you need more ventilations etc.. The handheld device have to be programmed to each chemical (not very helpful).

I have taken the Menssana breath test and will get my results in a few weeks. I will let everyone know what the outcome is but I hope everyone joins in on testing. It may be a steep cost as others mentioned but we pay triple this by buying vitamins, foods and testing other protocols with no answer. In turn, we might be harming our bodie seven more by doing these things.

Though there has been many claims of being cured, this board still exists, so I would assume that there is no food or vitamin or protocol mentioned that will cure this until we start using the diagnostic tests that are available and reporting the outcome of these tests.

I apologize now for the frustration but I am tired of this. living life as it is is hard but with this it makes things much worse then it has to be. We need to find a cure.

theproblemsolver

Apr 11, 2012

Wonderfully put. I completely agree. I plan to get the test done as well. I want you to know that you are not alone in your thoughts. Right now I am working up the money for it and have a couple other expenditures I have to take care of. I am also so so so excited to know that have gotten the test done, and will be reporting the results soon. It is true that we'll probably need **multiple results from several of us**. It might not hold the answer, but it is, without a doubt, the most fruitful thing we (you) have done thus far. So, from the bottom of my heart, thank you for initiating this and following through with it.

p.s. The machine they are using is likely using gas chromatography with mass spec. But it's been specifically modified for this kind of experiment in terms of instrumentation and detection.

NumbLiu

Apr 12, 2012

To: Everyone

Anyone tested for Helicobacter Pylori?

ItchyLife

Apr 12, 2012

To: everyone, Numbliu

I wanted to lett you guys know how I got this under control!

What I take:

L-Glutamine; helps to strengthen the stomach, helps to heal leaky gut! Also read that it helps to kill candida. This is really important because the toxins we produce come from our stomach, and normally these can't go out off our digestive system, but because we have an leaky gut/gut dysbiosis we release gass and there fore our kidneys and liver are overproducing. L-glutamine is the most important amino acid in your body!

Stevia extract; this is wonderful stuff, you maybe get worse itching at parts off/in the body and maybe headache (but this is the dying candida). It balance the blood sugar, which is perfect for us, I think we are all some kind off hypoglycemic. Another thing it kills candida (which I experienced and read), it helps to produce good bacteria (what I read). It also helps with the sugar cravings we all have!

Another important thing! Don't hesitate too take a lott off L-Glutamine and Stevia! Just follow your body! And off corse follow a diet without sugar, milk, caffeine, alcohol..

X

Ps: numbliu I have been tested and I don't have Helicobacter Pylori..

theproblemsolver

Apr 12, 2012

To: NumbLiu

Yes, I had a biopsy and it was negative. I am not sure how accurate the testing is.

theproblemsolver

Apr 12, 2012

To: ItchyLife

Hi ItchyLife, what do you mean by "under control" exactly?

Hannah090

Apr 12, 2012

To: Sick_Disease

i also constantly have an itchy nose!

ItchyLife

Apr 12, 2012

I have no reactions till I drink coffee, or eat sugar.. So that's how I mean under controll.. Normally I have these reactions all the time..

smellyoulater

Apr 12, 2012

To: NumbLiu

I also had the Hplori test by two different Dr’s. The first Dr. took a blood test and said I may have it. So they made me take an antibiotic cocktail for about 10 days. It was pretty disgusting after the 3rd day. It made my mouth taste like metal. I had to chew gum every time I took a pill. Then I went to my Dr. now and he said that a blood test is very inaccurate. He wanted to test me again and said that the best way is to breath into breath bag after drinking some liquid (tasted like lemonade-almost). Anyways he said he found no traces of pylori. So that previous Dr. made me take all those anti-biotics for nothing Atleast I was able to rule Hplori out.

why3

Apr 12, 2012

To: everyone

Hi all,

I stopped drinking the apple cider vinegar.

I'm noticing that the PATM is coming back stronger.  I remember when this problem happened the very first time,  I kept smelling a strange smell. Well, last week that smell came back and it was all I could smell.

PATM , I believe, is strongly connected to our colon, intestines, stomach (digestive system) mouth (our insides) and is it connected to what we eat.

There are a number of food allergies that I have, I'm allergic to cashews, wheat, spelt, white potatoes, sugar, dairy, corn, onions. when i eat onions i feel very sick, nauseous.

Everyone here, is there a food that you eat a lot, a food that you must eat or drink everyday?

Well, your body can become allergic to that food that you consume on a frequent basis.

French fry/potato chips are my addictions, when i get stressed i need pototo chips or white potatoe french fries. I had fallen off my diet and started eating potato chips and that's when the strange smell came back again.   my body is not digesting this and it's putrifying in my body, thus i believe creating that horrid smell. i don't know if others can smell this but a lot of people have been coughing around me, blowing their noses and sneezing.  I was on the bus the other day and the one guy behind me and the lady sitting next to me just coughed and coughed and it was like they couldn't help it.  I have to stay away from the foods im' allergic to. this is a major lesson learned. of course i've know this for a while now. i just don't have self control all the time.

Also I started getting the skin scratches on my skin again which started when i first developed PATM back in 2009.

I stopped eating potato chips recently and the smell is gone and my skin has cleared up.  Whenever I eat cashews, or wheat I get skin rashes, pimples, bumps on my body.

There is a book title, "You are what you eat" by Dr. Gillian McKeith and she has a website with her name in the web address if you all can find it, I would high recommend going to her site and learn about food combining.

For instance, room temperature water should be the first thing you consume in the morning (with lemon juice) and then 30 mins later. you should have fruit alone. If you decide to have two different fruits, eat the one that has the most water content in it first as that will digest quicker than if you ate the one that has less water content last. always eat breakfast, never skip.

Melons are to be eaten alone with no other fruits.

Do not drink water with your meals either drink a 1/2 hour before you eat or an hour after you eat.

Then she talks about carbs, proteins and non starchy vegetables.  these foods have to be careful combined when eaten.  If you want more info. i'll type more later, just let me know.  but you can always do a search on food combining.

here are some quick tips  : (but you need to go to the site or get the book or learn about food combining in depth b/c it is tricky and detailed).

fruit alone-good-no gas
Grains/vegetables-good-no gas
Pasta/veg-good-no gas
Beans/veg-good-no gas
Pulses/beans/grains-good-no gas

Grain with dairy or meat-bad-gas
fruits with vegetables-bad-gas
fruit with meats-bad-gas
fruit with grains or dairy-bad-gas

if we stop eating things that we frequently eat and then go on a strict vegan diet with 15 percent cooked or steamed vegs/and 85 percent raw food fresh produce/grains/ for like a year or so and practice food combining ...we can tackle PTAM.  another trick to learn, do not eat the same thing everyday. always rotate the foods you eat b/c you can develop allergies to the foods you eat on  a daily basis.

I'm also reading a book called, "The Hallelujah Diet"

people claimed they had food allergies, when they went on this particular diet their food allergies disappeared.

PATM in my belief is toxic build up in our blood by the toxic processed foods we eat and our bodies are emitting the toxic build up and people are reacting to our highly toxic bodies.

we have poor digestive health. that's why so many of us suffer from heartburn and acid reflux.  i had bad heartburn the other time. we have to think about being good to our intestines and not putting things like meat, fried food, dairy, wheat, white flour, sugar, table salt (not sea salt), packaged foods, into our stomachs.  put foods that are alive like fresh produce. once you leave the produce isle in the supermarket you have left the live food section and when you enter the packaged foods you have entered into the dead food section. dead foods do not build healthy cell tissue. and when your cell tissues aren't healthy, you're not either and you get sick and things like PATM develop.

we want to regenerate good tissue in our bodies, and those foods mentioned above will not regenerate healthy tissue but will produce toxins and the toxins get stored in the fat cells of our bodies and if we do not exercise that's will cause a build up.  exercise, eat very extremely healthy , get fresh air, get vitamins, probiotics, buy a digestive enzyme to take with your food. get off caffiene, drink herbal teas.  drink lots of water. and just detox these toxins out. it could take years but it's worth the try.  juice fresh vegetables and eat large salads as much green salads as you want. those salads will build strong healthy cell tissues and we'll get our digestive health back in a couple of years or so.

Good luck

NumbLiu

Apr 13, 2012

Absolutely same with me..The blood test told me I had not Hplori,but the breath bag test told me I had no Hplori...So I am not sure of whether I have the Hplori..

theproblemsolver

Apr 13, 2012

To: why3

When I eat onions, I basically always get a headache/migraine. When I eat a decent amount anyway...like with chopped up onion bits in food.

However, I think onions might be a migraine trigger? Not surprising.

Why3, I think diet could help, maybe even significantly, but it would not likely be the cause itself. The cause would likely then be overproduction, underproduction, or absence of an enzyme. Or maybe overgrowth certain bacteria/fungi/etc. A lot of people eat bad foods, and yet, they do have PATM. Therefore, you know, correlation doesn't necessarily mean causation.

I recently discovered that lactobacillus makes histidine decarboxylase, the enzyme responsible for converting histidine (found in certain founds) into histamine (see wikipedia article on histamine for source). I theorized that it might be histamine, but the histamine has a very high boiling point so that rules that out as a possibility.

And we obviously know that it is a gaseous compound or airborne microbe.

theproblemsolver

Apr 13, 2012

Also, I'm not saying this wouldn't and couldn't "cure" you, I'm just being technical about the cause.

ItchyLife

Apr 13, 2012

To: everyone

I am sure this is caused by our digestive system, how could it otherwise be that we/people around us get a lot reactions when we INGEST sugar/white bread coffee, milk, alcohol. Our Digestive system leaks!

What I think our root problem is: Digestive system. When I eat something with sugar the first thing I feel; is itchy balls.. Why? because the candida is so far in my system.

You could see this as a plant, the plant grows when the roots get water. So we need to kill the roots and don't give them water. Then the plant will die..

The roots is candida in the stomach..

The water is the sugar..

The plant is the candida overgrowth in our whole body..

I have been having so many die off and weird experiences during the last three days taking stevia. Headaches, itchiness, stomach feelings..

I think Stevia is a really good product for us, because it is an fungus killer, it is also an probiotic supporter for the stomach.. These two effects are really important for us. We need to kill the candida, but we also need to support our probiotics. And most off us on this forum know that these two things really help right?

Another thing I want to say is that I am also taking L glutamine, and I must say I love this product as well, it is the most important amino acid in the body. L-glutamine helps restore the gut wall/lining.

I must say I haven't had so less patm reactions in a long time, and I'm only using the L-glutamine (pills) 7 days, and the Stevia (liquid) 3 days. I put this treatment above the Hydrogen peroxide treatment!

These 3 things are what we should focus on:

1: Kill the candida in the stomach. (Stevia)

2: Get a probiotic, or promote your own probiotic health. (Stevia)

3: Strengthen the gut lining. (L-Glutamine)

Good luck all!

X

LondonBlob

Apr 14, 2012

To: ItchyLife

Yes I agree with you it is definitely in the digestive tract and no surprise  because thats where it gets food to live and grow. A lot of things help but it's like cutting the plant back and not uprooting it.

Alkalising the body with foods and bicarbonate helps make the body tissue less hospitable to the pathogens but the gut still needs to be dealt with. I had the test for leaky gut July last year  this is what they said

Your results are similar to other participants of the study. Testers with most similar to you test results reported the same symptoms and triggers. I will send you a diagram showing how you fit into the overall picture, will try to finalize it these days.

High ethanol (that may suggest not only yeast overgrowth, as noted by Biolab, but overall disbalance of gut flora, including bacteria ) was observed in about 65% of our testers. Half of them reported improvement with probiotics - which ones worked best for you, by the way?  Increased permeability is present in all (100%) body odor sufferers and was not noted in halitosis-only sufferers. B2 deficiency was also observed in more than half of testers.
So your results are very typical, indeed.

Biolab report

Basically you seem to have candida overgrowth in the small intestine (high ethanol due to fermentation) and 'leaky gut'. d-lactate was also close to the upper limit, which is produced by lactic acid bacteria. Vitamin B2 was also borderline. B2 is necessary for FMO3 to function properly. However we don't know if your B2 level would have any impact on FMO3 efficiency.

Of course we cannot say that the abvove causes any odor problems, although it seems to be a common trend amongst us.

So all that ethanol and sh** gets into the blood through the leaky gut and makes the body acidic amongst other things.

So Itchy I am also tackling the gut as well. I do enemas and usually I see white chunky bits at the end. What we should probably do is try clear as much out as possible  then heal gut with l-gluamine, slippery elm etc and then take probiotic and probable some like sprouted grain home made every day for a long time.

My last enema did not have any white bits in which is encouraging because     its a sign that what I did the last few days is working. And what it is is the big guns, I will see tomorrow the state of play again. just one teaspoon but I won't say suffice to say how do pine trees kill fungus .

LondonBlob

Apr 15, 2012

To: ItchyLife

Enema today came out with no white bits, great. I take the 'medicine' twice a week and enema a few hours after each.

Have you thought about rejuvalac as a probiotic? I have but haven't got around to making it yet so for now I have probiotic in pills.

why3

Apr 16, 2012

To: everyone

do you think it's ultimately having worms/parasites that is the cause of PATM? I mean they love sugar. We crave sugars or things that convert to sugar.

ItchyLife

Apr 16, 2012

To: LondonBlob, why3

Hey Londonblob!

Nice to hear you are having good results!

I'm going to buy Glutamine in a powder form, the Glutamine pills where already good working, but I think that the GLutmanine powder will be working a lott better! So I'm actually looking forward in buying the powder!

For Probiotics I take the stevia, it supports the body's own probiotic production. But what I read about the rejuvalac is interesting..

But still I think the first thing that is really important is the L-Glutamine Powder!

I mean I noticed with the pills that it kills the candida as well. I think we need to kill the candida as much as possible and try to heal the gut!

After this it is our body's job to create good bacteria. But a good probiotic is also nice, I prefer the powder probiotics!

Too Why3 I have been tested for almost all parasites and I have no parasites, but I do think it is really important for everyone on this forum to test for parasites in the digestive system. The first docter who gave the name to 'leaky gut', says that it is important to test for parasites!

Another thing he says is to quit with alcohol for 1 month. And he also says to take L-glutamine and to take N-Acetyl glucosamine.

X

use231t

Apr 17, 2012

theproblemsolver, I find your reasoning rather enlightening and systematic. If there’s a solution to our problem and is within our reach, your approach is the right one. I’ve just learnt yesterday that I’m not the only one on this planet with this problem and I’m glad that there are so many (not that I like their suffering, no, not all, I feel everyone’s pain, believe me.. 18 yrs is a lot for me) coz that can give us a large amount of data to crunch & correlate the relationships.
But if yours is not then here are some alternatives that might be of significant to think about.
I read something on bbc probably 2 months ago about how frogs probably sense well beforehand a volcanic eruption. I read how too much positive ions floating in the air makes people sick and that’s how frogs know it. They jump out of the water and hideout coz the positive ions in the water that may have been produced from deep beneath the crust, is just unbearable for them. Are we producing positive ions or similar unbearable molecules that affect the majority population?
There is also a possibility that we are producing a certain airborne protein that is similar to dogs and cats. I’ve recently read how certain proteins in cats & dogs saliva which they lick onto their fur but end up as flying particles which is why some people allergic to these proteins can stand cats & dogs. They’ll cough and sneeze themselves to death in front of pets.
I’m assuming if that’s a possibility and that we didn’t receive these airborne agents from anyone as some kind of microbes & disease etc., then it’s probably a mutation or just a bad gene that was inert but being expressed or turned on for some weird reason… maybe stress.
Whatever the reason, what is really needed right now is a survey. We need the data… large amount of unbiased, accurate & precise data from EVERYONE.
Only from that we can derive logical hypothesis to start with, coz right now we are all like little boats floating in the ocean without compasses… even the fishes are coughing and running away from us.
If a doctor sees our large amount data, he/she maybe able to weed out the correlation before we do.

theproblemsolver, can you make us a survey which we can all fill AND after that we can all have access to once done?

Here’s my email: ***@****

use231t

Apr 17, 2012

To: use231t

My email: **** at ****.com

ItchyLife

Apr 17, 2012

To: EVERYONE

I have bought the glutamine powder this morning!

Seriously I only took some this morning, and no body I mean NOBODY reacted on me today! And before I had bought it, I drunk some lemonade (believe me I felt ****** up because off the sugars). After I took the L-glutamine, my energy increased, my room looks nice and clean (because I did it) for the first time in a long time. And the bad feeling in my stomach/gut is gone!

Just buy the L-Glutamine Powder without sugars etc, get a good one, mine cost about 30 Euro's for 300 Gram.

This is the best thing I have tried so far! You can read on the internet how it helps with allergic reactions in people with a leaky gut, and you can go on and on about the good reviews and tests people did/had with this powder!

It helps tremendously with the allergic reactions in my body and thank god also with the allergic symptoms around me!

You are gonna love me when you buy this powder! (YOU HAVE TO BUY THE POWDER NOT THE PILLS)

X

Ps: You can find on the internet that they give L-Glutamine too patients for their liver toxicity when they do chemotherapy.

2Ps: You can find on the internet that the first man who discovered leaky gut, recommends to take L-Glutamine.

3Ps: He also recommends N-Acetyl Glucosamine, I'm also really interested about this stuff. I just read that you can find the whole glucosamine family in animal bouillon's (not a bad thing to know ;))

damnpatm

Apr 17, 2012

To: Itchylife

wow man, are you sure? I'm so tempted on buying this if it does work but only have around 70 pounds that I need desperately so not hoping to take any risks...:( are you 100% sure this product is valid and works?

use231t

Apr 17, 2012

To: ItchyLife

Thanks for your insight. By the way, I've used all that and more. I had to take all of that in great amounts. It doesn’t help with anything other than help building your body. It may enhance your mood, a little, just like most bodybuilding supplement. Try creatine or oestrogen-blocker and you’ll see what I mean. Good thought though.
I think everyone has probably tried the unimaginable. If people keep trying aimlessly, someone might die because most of us are not trained chemist.
Please be careful. Take care!

ItchyLife

Apr 17, 2012

To: damnpatm

I have never been so sure about a product as L-Glutamine.

You can also first try the pills there like 10 Euro's. I noticed with the pills that I had a lot off candida die-off (which is a good thing).

The Powder is just much better for healing the small intestines! And I think that the leaky small intestines is the cause off this Patm. So if you have the money and you can miss it buy the powder.

I am 100% sure this product works!

X

Ps: Don't be afraid when your symptoms get more in the beginning, this is all part off the healing process (die off candida). And stay away from sugar, it makes the candida grow and it gives us gas (and patm).

ItchyLife

Apr 19, 2012

To: everyone

Hee

Have you used the pills or the powder? And did you got 1 with pure Glutamine?

There are people; bodybuilders who use 30 grams a day off this stuff.. So I wouldn't call this dangerous.

And I have done a lot of research about this, Glutamine is the best thing to take when you have an leaky gut. It heals your gut tremendously.

Their can't be another cause off this, just look at the simple facts:

We already have tiny tiny wholes in our small intestine that are necessary for the minerals we take from our food.

We react on food, sugar and all kinds off food. Why because we have bigger wholes in our small intestines? Why? Because we had a lot of (emotional) stress and a lot of candida, plus we where eating bad food. Candida likes this, and goes true these wholes and makes the wholes bigger. Then all kinds off toxins go true this wholes and we (and the people around us) have an allergic reaction.

Our complaints get worse after eating ice cream right? I mean that is for me a fact. Why? Because it's the perfect ph (cold) and the perfect food (sugar) for candida. And Candida releases toxins when they eat this sugar.

Then because the toxins get in too our body our liver and kindeys have to work really hard. because normally our digestive system gets rid off the toxins. I don't know what specific is the cause for the patm, but I believe this has something to do with the liver. But I also think we are creating an odor for sure.

So how to get rid off this? Look at your body as a house, when the bricks brake, we have to put more cement around them.

L-Glutamine is like the cement in our intestines, plus it helps to flush toxins our off the liver and the kidneys.

Ps: You guys also have an annoying feeling in your tongue when you brush it? yesterday night my tongue was feeling strong and the brushing diddn't feel annoying, I could clean my whole tongue till it was red/pink!

X

tired811

Apr 19, 2012

To: Everyone

This is my first post, I have been suffering from this condition for over 3 years.. Recently I started praying for something different. I pray for a diagnosis, for me it is more important to find out what I have rather then to focus on getting rid of it. I have been doing that for over 3 years and that truly stresses me more. There are people all over the world suffering from disease or some sort of handicap this is ours. Just like those people if we knew what we were dealing with it would be much easier to explain to family and friends. So I pray for the day where I can apologize for making someone uncomfortable by saying I suffer from _______. It is only then that I can start praying for a cure.

grateful2011

Apr 19, 2012

To: tired811

God Bless you always !!!!! please read ITCHYLIFE's post above and prior so you can take ACTION and get better !!!!! does the name of our condition really matter , what difference does it really make - I don't care what " the name of our condition is" - I just want it gone and will continue with eating healthy for the rest of my life and using supplements including the L-glutamine - that ITCHYLIFE has researched - I dont want anyone else to suffer the pain that we have gone through it is NOT necessary !!!!!

Sick_Disease

Apr 19, 2012

Was actually in a 6 hour plane journey and it wasn't very pleasant. I was actually waiting for people to come take me down for terrorism or something lol, but since this disease is soo mysterious nothing came of it.The funny thing was the people sitting next to me, behind and infront were not allergic to me, but people sitting rows away as far as the eyes can see were coughing. I was just thinking how i must have messed up the flight experience of those allergic to me.

Anyway does anyone notice very small white particles floating around them? I think we are producing these things and they can travel long distances and when it enters the victim they cough it out or something.Anyway this is only one of my theories.

use231t

Apr 19, 2012

To: Everyone

I was a competitive bodybuilder; I stopped only for the last two years. As you all know glutamine is an AA that’s why bodybuilders need it more than any other athlete. I’ve take more glutamines than most of you will take in your entire life…lol… well not exactly… But I did take more than what was prescribed in the tablets and powered form for years. Nearing competitions, I’d take it 3 times a day coz the meals had to shrink as diets continue. I’m saying this because I know what it’s like when you waste your money and get disappointed. If a miracle occurs and it does cure some of you like ItchyLife has said, then it means that we have different conditions but appear the same, which to me is mostly unlikely. PATM is what we have and L-Glutamine supplements whichever form…(I have a tonne of that and more in my room) would not help. If it did I would have been cured at least in 2003 or 2004… everything has stayed the same. However, it did help me with my bodybuilding workouts but had no effect on my PATM.
“Sick_Disease”, I know how you feel. I’ve had plenty of that. I think most planes suck CO2 out of the cabin through floor vents at the windows seat.... probably that’s why you didn’t feel so much reaction. However, that air gets filtered somewhere (CO2 removed, more O2 added) and get circulated back into the cabin. Maybe those people were sitting right infront of the inlet.
There’s also a possibility that you didn’t know there was another PATM individual trying to hold his breath at that location but since we’re all sensitive about this, anybody that coughs trips an alarm in our heads saying it’s us.
My experience in travelling, it’s the best, maybe because of the added oxygen… I don’t know why. The best seat is the windows seat coz that’s where all the air gets suck into the system.
Funny to say, but it’s true that Carbon Monoxide poisoning produces the same symptoms in people as what we’re describing. It’s odourless but produces the same thing i.e., itchy nose, follow by sneezing, coughing, lack of con.., hallucination, and if too much, death follows. It happens a lot in Canada during the winter months. There are other airborne molecules that do similar things.
I believe I know what most of you are thinking. Well, we can’t assume anything, unless there’s a big survey that includes ALL of us coz that is the only way to narrow down the problem. All the academic fields would not have used it if there was another or better method.
“tired811”, I hope you’re OK. Just hang in there and keep your hopes up. I’ve gone through those 18 years ago. I want to tell you more but I know it’s too painful to hear. All I can say, if everybody here have survived and can manage (some over 30 years) then you can too. I can assure you that some have committed suicide and we’ll never know them. This decease wants us to go extinct but we want to exist. Let’s do everything to resist. Just wait, I believe there’ll be a cure!
OK, have to run to class. Good luck to you all!

tennis89

Apr 19, 2012

To: EVERYONE

hello... been awhile since I've checked in. I am doing well. I am looking healthier than ever and feel as if i am very close to being over this. I hope we can all get there VERY soon.

I have a short 10 question survey that i would really appreciate everyone to fill out. I am going to try and piece things together better for us and it's great if we all got on here and told our stories but not everyone is willing to do that and not everyone answers the same questions.

here is the link to the survey... hopefully it shows up other wise i will have to space it out in a post below this one

http://www.surveymonkey.com/s/5DJSCNF

THANK YOU! AND GOD BLESS!

use231t

Apr 20, 2012

To: tennis89

I tried filling in the survey but looks like there are repetitions. Help me out on that. It would be good to know other things as well, maybe blood type. Environment of childhood & present, other diagnosed disease, diseases of parents, siblings etc. Does anyone in the family have PATM? Past diet and current...etc.etc.. I know that most of us would disagree with exposing such information but does anyone among us have anything to hide that is more humiliating than what we’ve experienced so far. Good effort “tennis89”.. you’re on the right track, keep up the good work.
I’m back at school and working at the same time, I’m doing Chemistry… for the sole purpose of narrowing down this problem. I’ve got a lot on my hands coz I don’t know much about Chemistry. Good luck to everyone.

car11

Apr 20, 2012

To: tired811

I know this is difficult to do, but don't let this overtake your life.
You must understandt that you are not  responsible for others reactions because you are not doing this intentionally and can't help it.
Be strong and be positive that we will find a cure very soon.

What helps me?  I tell god/universe to take care of this issue as I need to continue to lead my life normally.  I keep busy and enjoy my family and friends and thank god that I am not afflicated by something much worse such as cancer or heart disease.

have had a myriad of tests done.. toxic metal, thorough blood and comprehensive stool analysis, liver, h. pylori, lymes, .. everything is fine except that i have "few yeast" in my body.. and I have very low chromium and vanadium in my body.. I am now addressing these deficiencies and hopeful that this PATM is put to rest.

For the survey, it would be interesting to also note geography.. I am curious if there are other cases from Toronto, Canada.

ray2502

Apr 20, 2012

To: Everyone

I have tried the L-glutmine pills for 3 weeks with no improvement. Don't know if also taking garlic, vitamines or glucosamine neutralize the L-Glutmine pills in any way.

What I have noticed is that I have a very bad taste in my mouth after I have exercised. Sort of like after you sneeze.

Another thing I have noticed about PATM is that my symptoms are not as prevelant if I have at least one bowel movement a day. If I go two or three days without a bowel movement, symptoms are worse.

Thanks to everybody for all the hard work. The best medicine right now, I think, is to talk about it and not keep it inside.

theproblemsolver

Apr 20, 2012

To: use231t

I can't see your e-mail, but I will create the survey. I can also make it so everyone can see the results.

I've been working on a survey for a while now, but haven't gotten around to finishing it. I will try to finish it before the end of the weekend.

I would like to make it pretty extensive.

use231t

Apr 20, 2012

Thanks “theproblemsolver”, I did put my email in after that post but I guess the webmaster must have changed it afterwards. I know it’s not automated by a script because it was there for quite a while before it got turned to Asterisk. I hope the blog/webmaster or whoever is responsible will be merciful as we’ll still use this site but we can’t use features like attaching large files back and forth; that’s when email software comes in handy. Please webmaster, have mercy and don’t edit my post.
My account is “andFosb2010” and the domain name is “gmail *******”, I hope I don’t get a bunch of Asterisk again.
Thanks Everyone, God Bless you all.

use231t

Apr 20, 2012

Thanks “theproblemsolver”, I did put my email in after that post but I guess the webmaster must have changed it afterwards. I know it’s not automated by a script because it was there for quite a while before it got turned to Asterisk. I hope the blog/webmaster or whoever is responsible will be merciful as we’ll still use this site but we can’t use features like attaching large files back and forth; that’s when email software comes in handy. Please webmaster, have mercy and don’t edit my post.
My account is “andFosb2010” and the domain name is “gmail dot “c”, “o”, “m”, I hope I don’t get a bunch of Asterisk again.
My account is “andFosb2010” and the domain name is “gmail dot ( plus first 3 letters in commercial) I hope I don’t get a bunch of Asterisk again.

Thanks Everyone, God Bless you all.

tennis89

Apr 20, 2012

To: everyone

Thanks for the responses to the survey. I realize now that there are two repeated questions and I know that it is not extensive but i wanted to get a start on compiling some sort of data.

from what i can see this is most certainly a GUT issue. Everyone in the survey showed that through their answers. Also, 50% of the people said that they had taken antibiotics for an extended period of time. I'm curious to know whether more people with PATM than not have been on antibiotics. I think at some point in our lives (ages in the survey ranged from 9-42) whether it be stress, antibiotics, or something from the environment caused our guts to take a hit. the gut can be so complicated to fix because it is so connected to the outside world. i believe the reactions have EVERYTHING to do with what type of food we are eating, how much we are eating, and basically any toxins we put in our body.

I believe we can see this is the worst possible thing that someone can go through and trust me i have felt that way or we can see this is a challenge. One that God put us up to because he knew we can handle it. He wants us to overcome this and be whole again but we have to take action to get there.

I am keeping up with my clean diet, exercising, getting sleep, taking supplements (vermox, cysteine for arsenic chelation, and glutamine--- three relatively new supplements my doctor has me on) and hoping for the best.

Will update again and maybe try to make a better survey unless someone else can make one. i threw the last one together in like 5 minutes if you can't tell.

Take care and God Bless!

LondonBlob

Apr 21, 2012

To: tennis89

vermox - worm pills right?

When I took the low dose 5 day program many years ago it cleared up the symptoms for a few days. It's possible the micro organism developed a resistance to the vermox drug because future applications did not replicate the results.

bowl movements are important because we don't want the *** to fester for too long in our gut.

I am doing pure gum turpentine protocol at the moment to clear the nasty's out and am also using DE earth as a de- wormer. I have also set my sights on MMS

ItchyLife

Apr 21, 2012

To: Tennis89, Londoblob

That is good news Tennis89!

Londonblob, I have the same thing ******** helps, I'm now looking at some kind of laxative minderals/vitamins to take.

I read calcium and magnesium help.

Coffee helps a lott for me.. But it is an irritant for the gut..

X

ItchyLife

Apr 21, 2012

To: everyone

I do think that stress (I had a lot emotional stress) triggers this (constipation) *** well.. And off corse we have all day long stress wen people itch around us.

X

grateful2011

Apr 21, 2012

To: ray2502,everyone

are u also eating a clean diet, with no sugar, dairy or caffiene ?????

L-glutamine (thanks Itchylife), probiotics, stevia and other supplements we take  -     need OUR help , they can NOT do the job alone !

like tennis 89 said :  we need to eat lots of veggies and fruit
drink our water, exercise, get our sleep and have bowel movements every day to get the waste and toxics out of our bodies - I would also add going to the sauna, at least 3 times per week if u can  - it releases toxins from our body also !!!!

stay strong, God is with you !!!!!

grateful2011

Apr 21, 2012

To: everyone

also - FIRST thing in the morning before eating breakfast :

drink at least 8oz of hot water with lemon

ItchyLife

Apr 21, 2012

To: everyone

Some information I found, I already started with relaxing the temples, I think these little things can help us a lott!

Step 1

Relax your stomach muscles. Keeping your stomach muscles tightened has a poor effect on your digestive system by not allowing your food to digest properly. Relaxing helps your food go you're your stomach properly which makes it easier to digest.

Step 2

Massage your temples. If you can't relax your head you won't be able to relax any of your muscles. Rubbing your temples will allow you to relax your entire body. Having someone else rub your temples will help even more so you can completely relax.

Step 3

Eliminate waste as often as you can. Many people have a fear of having a bowel movement in public so they will hold it in until they get home. It is important to not worry and have a bowel movement as often as you can to improve your digestive system. Remember having a bowel movement is a normal part of life and you should never be embarrassed about it.

Step 4

Drink as much water as you can a day. Drinking water cleans out your entire system and gets rid of all the things that aren't supposed to be in your body. Drinking water is not only healthy for your digestive system, but it is also good for your teeth. Water doesn't have any sugar in it like juice and soda.

Step 5

Take your vitamins and eat healthy food. Taking your vitamins regularly will help improve your digestive system. They will keep your body healthy and flush out anything unhealthy that is not needed in your body. Food high in fiber and bran are also great for your digestive system. Eating whole nuts in the shell such as pumpkin seeds, sunflower seeds and peanuts are great for your digestive system as when swallowed pieces of the shell scrape against the intestinal wall. This gets rid of anything that sticks to the wall and helps you digest it.

By following these simple rules your digestive system will greatly improve. You should see and feel a difference within a week. This will leave your body feeling great and not so drained.

Read more: http://www.infobarrel.com/How_to_improve_your_digestive_system#ixzz1sgCicHEu

theproblemsolver

Apr 21, 2012

To: use231t

Haha. I got it now. Thanks.

To everyone, I'm creating a really in-depth survey. I'm using previous posts from users and my own personal experience, to ask what I hope are the most useful questions. I project I will have it completed by Sunday or Monday. Please be patient until then. The results will be available for everyone to view. I will ask for your usernames, but only I will be able to see them. You do not have to include your username, but if you don't your answers will demoted below those who did submit usernames since it adds to validity.

Also, you guys need to make sure you are using good resources. If someone is trying to sell you something, you need to immediately dismiss them; it no longer makes them valid. If you link me to a medical publication, journal, or highly-respected medical website, I'm 10x more likely to believe you over anything else. You should be as critical of your own beliefs. Just because this is "unusual" does not mean that you should resort to pseudo-science. Instead use the science we know and has been tested, to derive your own conclusions.

use231t

Apr 22, 2012

I don’t like to speculate but since we don’t have any reliable data, neither proper tools yet, I would like to use logical reasoning just to narrow it down as much as possible what I think it is. When “theproblemsolver” finishes the survey, we can have better data to build our hypothesis upon. I would like to put in my two cents on this subject as I have given deep thoughts about it myself.
I think we can all agree that this sickness can be narrowed down to three causes: microbial OR chemical in nature OR much worse a dilution.
The latter is just for control since doctors think we have a mental disorder, but it goes both ways, we are either delusional or they are. Since they’re not willing to spend the time to collect data before hypothesizing, we can say that there is a high percentage that they on the misleading side. We on the other hand, have some form of unorganised data; our everyday observation throughout the years.
Now the second possible cause is a microbial organism. If this was true than most of us are carriers of this organism since we aren’t sick, but others are. However contrary to our observation, a microbial disease should be infectious coz that’s how microbes are. It also should propagate from a central location. How many of you who have families but none of them have PATM? How many of you have a husband/wife/kid etc and don’t have it either. They should have been infected long ago.. and they infect others and so on. You might say they have a stronger immunity than we do. But then why are they sick and you are not? Most of you have been taking antibiotics since you got PATM and never got healed. I’ve taken various kinds in the past and I can’t even tell the difference. I don’t know any microbial organism that don’t respond to any antibiotics at all and don’t even spread either.
The geographical distribution of us all agrees with my hypothesis that it’s not a microbial disease because we are from different geographical location around the world and from different ethnic groups. A microbial disease has a characteristic of spawning in a particular environment and then spread from that location as it disseminate outwards. I think we can all agree that most of you have never met many PATM individuals in your location except yourself. What kind of microbes spawns identical species at different location around the world and don’t spread either? Look at other microbial diseases; they spread once you have contact with an infected person. Think of your partner/husband/wife, the most intimate sharing that you have with him/her (excuse me but I have to be direct to prove my point), yet the villain organism doesn’t cross but HIV-virus, E-coli, genital fungal organisms etc cross from one host to other with ease. The evidence seems to say that it can’t be a microbe.
The third possible cause could be chemical in nature. Many of you have admitted that it seems this odourless “thing” travels almost instantaneously. You’d get off a bus/train station and everyone up to 10-20m away seems to just start coughing instantaneously. I would hypothesis that only a chemical could travel that fast, more like particles, ionizing nearby molecules in a cascading fashion as it travels very quickly through the air and reacts instantaneously within the hosts respiratory system.
Some have observed people have muscle aches on their back, arms and neck. Of course other individuals never know what’s causing their agony. We don’t either but since it happens everywhere we go then that’s why we correlate ourselves and symptoms of others. That fits a description of a substance similar to Carbon Monoxide poisoning. It takes the places of O2 in haemoglobin and poisons the cells, thus, creating the agonizing symptoms that we observe on others. A microbial disease needs more time to produce an instantaneous similar reaction on other people. But then again, Carbon monoxide (CO) should kill us in the first place (unless of course our Red blood cells have mutated to expel it, most unlikely) so it can’t be it but some other molecule. So, it is plausible that it’s a molecule that behaves very similar to CO.
Here’s another. Those with allergies to Cats & Dogs are really allergic to protein in the animal’s saliva. The animal would lick its fur and as it dries, the protein gets airborne and allergic people would breathe it in. Their respiratory system gets irritated and the immunity kicks in to respond as if there’s a foreign invading organism. It is possible that we’ve produced a similar protein that triggers other people’s immunity to respond. But, then it doesn’t explain the aching on muscles that people have… meaning, the protein must get into the blood stream and into the muscle tissue. I’m presuming a protein molecule would be too big to float swiftly in the air, neither find its way into muscle tissue.
So there you go, I can only narrow it down to a chemical substance. Now how did we get the illness in the first place? It’s either genetic or a mutation. If it was genetic in nature, we should have at least some members within our extend family or way back in our family lines. Try tracing back your family lines to make sure. If we can’t observe this then it’s most unlikely it’s a genetic disorder.
Since it came later in life at various ages, and that we have never gotten healed (some have claimed they have, a survey should confirm this) it supports the high possibility of a mutation. Now what could have caused a mutation? I can think or three, potent chemicals, excessive exposure to high-energy radiation and DNA replication errors. As for DNA copying error, we can’t test for that easily as we need specialised doctors (geneticists) and very expensive equipment. For chemicals & radiation exposure, we can look back to our past to see whether we were exposed to potent chemicals, pesticides (including long use prescribed drugs) or high powered radio equipment’s, Hospital X-ray machines, Computer Monitor Vacuum tubes etc.
If my hypothesis is right, then we have a quite a bit to go.
Now I’m not saying this is all true, it’s just a hypothesis. A hypothesis is only as good as the data available. We can’t be sure unless we have some reliable data, like that provided from an unbiased, accurate and precise survey. This is all based on the limited amount of information that I’ve experienced and read so far on other postings.
You all have a nice day.

use231t

Apr 22, 2012

Thanks “theproblemsolver”, you’ve made one of the most critical steps in narrowing down this problem. I urge everyone to please contribute as this is the best way to finding our way out of this maze. I think it would be a good idea to invite other PATM forums and blogs to join us on this survey. Good luck to everyone.
PS: My previous posting was for everyone to see my own person account but for some reason I pressed reply to “theproblemsolver”…

use231t

Apr 22, 2012

To: Everyone

There are many PATM individuals out there who think they’re the only one with this disease. I only knew about you guys 2 weeks ago. I wonder how can we reach out to them coz I believe they’re isolated as well, probably spend their lifetime cursing whatever they blame it on. The numbers in this forum I believe is just the tip of tip, of the iceberg. Graffiti or spam might solve the problem but then both are illegal.
Anyway, I’m sitting here and speculating what it’s like for a PATM individual out there cold and lonely by him/herself. The world is so unfair.

ItchyLife

Apr 22, 2012

To: LondonBlob

hey Londoblob,

I also believe this has to do with an fermentation process in the stomach. And actually there have been already people on this site that have been diagnosed with this. What helps me a lot last days is to massage my Temples (indicates the side of the head behind the eyes), your brain is your body. Try it, you will see it helps for getting a dump.

I'm just thinking, what if we would relax this muscle the whole night. Are there machines for these kind off things. You understand where I am going? Waking up and taking a dump directly is the best thing we should have.

Taking a good dump helps to release the toxins and the patm problems. Normal people take a 2-3 times a day a dump. We need to do this *** well.

We need to learn how to relax again, and how we can relax our body *** wel. There was also a guy who had this on this site, he said that it went away with sporting. If this is true, a logical thing would be that he relaxed a lot with sporting. Off corse the oxygen is already a good thing.

What I know is that in the past before I were gonna do something nice, I had a really exciting feeling about it, I haven't had that for a long time.
X

LondonBlob

Apr 22, 2012

To: all

"Candidiasis is caused by an overgrowth of a yeast-turned-fungus, and Chronic Fatigue Syndrome is associated with a virus (Epstein Barr Virus)...The fact is both Candidiasis and Chronic Fatigue Syndrome are very responsive to the use of hydrogen peroxide and thousands of individuals have had fantastic results using it

It is a micro organism that all of us have, that's why people all over the world can get patm the difference with us is the candida yeast has changed to candida fungus this is called Pleomorphism, you can study the work of Antoine Béchamp, Günther Enderlein, Albert Calmette,Gaston Naessens and Royal Rife. It affects the individual internally and is possibly able to transmit through body fluid exchange but if the other person has a healthy gut flora it is unlikely going to affect them. the likely symptoms that are caused by a patm sufferer are a result of the toxins "79 of them, known about" permeating the body linked with leaky gut which releases them straight to the blood stream, this toxic dump is what other people smell and react too, and no surprise because most of the candida toxins are nasty stuff.

This is my understanding so far please don't accept it as fact, do your own research

LondonBlob

Apr 22, 2012

To: ItchyLife

There are relaxation devices bio feed back devices that you can use to teach your self to relax deeply. It's like gym exercise, you have to do it a little bit every day to get results.

By the way my enemas are clear of white bits and I don't detect the toxic smell I always did before and believe me it used to be a toxic smell. The only thing I have done for this is pure gum t******* twice a week for the last two weeks. I'm hoping I have closed the 'factory' down but will continue to monitor :-)

LondonBlob

Apr 22, 2012

To: ItchyLife

apple juice with some olive oil in will really loosen things up

trundlebee

Apr 22, 2012

Hey guys I was wondering if any of you suffer from body odor in addition to people reacting with allergies?
Thanks

ItchyLife

Apr 22, 2012

To: everyone

I must say the best thing for the skin I used is just Baby oil..

X

grateful2011

Apr 22, 2012

To: trundlebee

yes, the smell causes people to cough, sneeze and/or rub their noses

NumbLiu

Apr 23, 2012

To: use231t

Referring to chemical,NH4 produced by the H-pylori or other organisms is a possibility,and NH4 can cause allergic symptoms and react with O2 in air..

ItchyLife

Apr 23, 2012

To: NumbLiu, everyone

I have been tested for the H-pyolri and I have no.

But the professional doctors say that leaky gut often goes together with digestive parasites, so testing for that would be necessary!

For me I think Stress and antibiotic (that I didn't finish) and also the candida on my **** was the culprit (which gave me a lot off stress). For the candida on the **** (their are more people who got this problem use baby oil, the best thing I have tried (and I have tried a lot).

Vit C helps a lott because it is really laxative (which is perfect). I also really like the L-Glutamine because it heals my gut, and it also boost my immune system. The people who are trying the Glutamine, you should also try to get a sort off method to relax the body. Milk thisle is a plant for instance, that is really relaxing on the liver and the gut. I have never used it but grateful uses it, and he also confirms that it helps with his patm. I use other natural remedies.

You can destroy the candida, this helps with the patm problems, but we have to live in harmony with them. They also help fermenting certain things in our body that we otherwise can't get rid off. Like sugar for instance..

We need to fix our gut and at the same time promote the good bacteria.

Everyone that have ideas on how to boost the good bacteria are very welcome. So good thoughts about Probiotica?

I have read that in every every country there is a kind off food that is eaten a lot that promotes the good bacteria. In germany sauerkraut for example, china has tofu.

Just wanna share that healing the gut is an part is off getting better, we also need to promote the good bacteria to get the balance back..

Just looking at kefir as a health drink already looks interesting!

We need to experiment more with probiotic foods, and I think that with enough probiotic foods and supplements that heal the gut, we can get these mean micro bacteria in balance.

We could eat every day, if we want, probiotic foods, there are so many probiotic dishes available that also taste so good. I mean sauerkraut with spicy sausage (1 off my favorite dishes). Gado Gado with tofu and peanut sause (another favorite dish). If we become good in making these dishes you not only have an healthy diet, but also a really good tasting dish.

If you don't have the power (energy) to make these dishes (what I can understand). You should take L glutamine to heal the gut, and an probiotic supplement to support the good bacteria.

As I am writing this I have this awful pain in my heart/gut area, and I'm taking a probiotic supplement (water with powder), and my heart/gut pain disappeared.

My theory is that our digestive system doesn't work properly because it is damaged and that the bad bacteria in our stomach uses this too make us sick. This gives us constipation, liver problems and at the same time PATM. And in the end it will probably give us cancer.

X

theproblemsolver

Apr 23, 2012

To: Everyone

Alright. I think I'm done with the survey for now. I'm going to take a break and check it over...see if there's anything else I want to add on this first go-round and then once I'm done, I'll link it.

At first I was worrying about getting all the necessary questions in there, but I've realized this will probably take multiple rounds of questions. The good news is that I can filter all the questions from each user into one "database". So really I can go back and add questions at any time.

For now, I've decided I'll have one main survey that contains ALL the questions for new users who have never taken the survey. And then I'll have other surveys with just the new questions so that people who have taken the previous surveys don't have to go through all the questions again. You will not have to sort through the results of several surveys though. All the answers will appear in a single database.

theproblemsolver

Apr 23, 2012

To: Everyone

Alright, the link for the survey is below. If you could take about 15-30 minutes of your time to fill it out, being thoughtful to your answers, this could help us considerably.

https://docs.google.com/spreadsheet/viewform?formkey=dGdTaXJoTmtJeENYMzB6ZVZhMVhPYXc6MQ

Copy and paste the above into your web address bar^.
Also going to try direct link below:
Survey

I have to get back to doing school work now, but I hope to have the results to you by the end of the week, as well as implement some other methods I have thought of. Thanks.

use231t

Apr 24, 2012

To: Everyone

Splendid work “theproblemsolver”, you’re a problem solver indeed! I know it’s a lot work but I know the effort is worth it. Coz even if we can’t find the correlation, some Dr. somewhere at some other time will use the data and find out. Thanks everyone for the effort, I know each day is a nightmare for most of us if not all so this is a leap forward into understanding our problem.

Everyone, please participate in the survey as this is the only way to start narrowing down our problem. It would be good to try and refrain from speculation at all times and use direct observations; the more accurate the data, the easier to pinpoint correlations.

I’m trying to finish 3 LABs and hand it in so I can sit down and go through it. Good luck to everyone!

ItchyLife

Apr 24, 2012

To: everyone

About the Kefir, I think this is really the cheapest way off getting your probiotics.

Let me explain how to make you own kefir.

First buy a little bag off kefir, these are really cheap, 10 grams is like 1 euro. And then you buy almond milk (what I think is the best for us since we have an dairy intolleration, it's also really nice because it's sweet), you can also use cows milk or soy.

You put the bag with kefir in a bowl of glass that you can close, and you put a liter off almond milk as well in the bowl off glass.Then just leave it in room tempature for 24 hours. Then you got you probiotic drink!

Then what is really nice! You put three eating spoons off the kefir drink you made (that has fermented for 24 hours) in a new liter off milk. And that can wait again another 24 hours, and you have again a new probiotic drink!

The cheapest kind off probiotics, you just have to buy the kefir 1 time which cost 1 euro. The almond milk is also available in the supermarkets in my country and is a little bit more expensive then the rest.

I love this kind off Probiotics, you can drink 1 liter in 1 day, and it cost you only the price off a pack off milk everyday or every two days..

X

Ps: read about what Kefir has done on the internet for people, people have no candida infections anymore can eat sugar again because they drink the kefir together. The kefir is a product that has changed a lot of peoples there lifes, just google kefir and candida or kefir and leaky gut.

use231t

Apr 26, 2012

It’s amazing to me how the medical field use to recognize gay individual as having a physiological disorder. Even today there are psychologists who still believe that gay people are having a mental disorder. It amuses me to think that in these modern days of understanding that there is still such a silly notion in the medical field even when it’s quite obvious in the phenotypic characteristic of every gay individual.

Even most religions despise homo sexual as a sin and mental disorder. Even I didn’t know about all that when I was young but I was led not to believe what my own religion said because I could obverse it on our farm animals i.e. goats, horses, cows, and even dogs. So I was quite confident that my reasoning was correct, that homosexuality is a natural phenomenon.

If some doctors & psychologists cannot understand what/why there’s homosexuality in various species then it makes sense that they find it hard to understand our problem because if they can’t understand what’s so easy to observe than they’ll find it very difficult to understand PATM coz there isn’t any obvious clear sign of symptoms or outward appearance whatsoever of this illness OTHER than our own personal observation.

Why do I say that? That’s why this survey is important, something for doctors to start on or for anyone who wish to do an independent research on this rare dilemma. Have a nice day!

https://docs.google.com/spreadsheet/viewform?formkey=dGdTaXJoTmtJeENYMzB6ZVZhMVhPYXc6MQ

use231t

Apr 26, 2012

To: Everyone

It’s amazing to me how the medical field use to recognize gay individual as having a psychological disorder. Even today there are psychologists who still believe that gay people are having a mental disorder. It amuses me to think that in these modern days of understanding that there is still such a silly notion in the medical field even when it’s quite obvious in the phenotypic characteristic of every gay individual.
Even most religions despise homo sexual as a sin and mental disorder. Even I didn’t know about all that when I was young but I was led not to believe what my own religion said because I could obverse it on our farm animals i.e. goats, horses, cows, and even dogs. So I was quite confident that my reasoning was correct, that homosexuality is a natural phenomenon.
If some doctors & psychologists cannot understand what/why there’s homosexuality in various species then it makes sense that they find it hard to understand our problem because if they can’t understand what’s so easy to observe than they’ll find it very difficult to understand PATM coz there isn’t any obvious clear sign of symptoms or outward appearance whatsoever of this illness OTHER than our own personal observation.
Why do I say that? That’s why this survey is important, something for doctors to start on or for anyone who wish to do an independent research on this rare dilemma. Have a nice day!
https://docs.google.com/spreadsheet/viewform?formkey=dGdTaXJoTmtJeENYMzB6ZVZhMVhPYXc6MQ

ItchyLife

Apr 26, 2012

To: use231t

You believe our condition is something that is going unnoticed. If you look around you see that people who eat a lot of sugar also crave their nose for instance (children). If you look around you see that people who have took a lot off antibiotics have problems with their stomachs and take probiotics. For instance you have friends that eat only kiwi's when they feel sick? I do and I know why, Kiwi's is a prebiotic, it helps the good bacteria to grow.

The good bacteria need the prebiotic to grow and to get energy. And we need the good bacteria to be strong when we have an candida overgrowth.

You just don't understand that it has nothing to do with doctors that don't believe us, this has to do with the medical science that hasn't developed enough.

You guys should stop with having pity for yourself, and work and get yourself some L-Glutmanine and probiotic..

You will notice the difference; better skin, less reactions on food, a healing gut, and best off all less till no reactions.

Get yourself a combo though; Probiotic for the good bacteria and L-Glutamine for healing the gut. And eat prebiotic foods!

X

Ps: I even ate a piece off pie last night and I wasn't reacting :D

use231t

Apr 26, 2012

To: ItchyLife

Hi ItchyLife, thank you for sharing. I believe you; it is not unnoticed according to us, we can obviously see that but not the medical doctors. As far as they are concerned, we are a bunch of lunatics and don’t deserve any kind of attention. After all, you can’t study an illness that doesn’t exist. They don’t recognise our problem coz there isn’t any kind of visible symptoms to them.
We are the only one noticing it. Our subjective beliefs are rejected because of lack of evidence.

Collecting data is the first step to solving a problem as hard as ours. All the academic disciplines would not have used it if there was anything better, I can assure that. They would have used magic if it was real.

I don’t necessary disagree with some of your claims about prebiotic, probiotics, kiwi etc,etc.. Maybe it works for you but it doesn’t work for many of us. Because if it did, many of us would have been healed long ago. Kiwi’s and Yogurt are common food that most of us use as snacks every day.

You’re certainly right about science not catching up though.

As for L-Glutamine, maybe you haven’t read my post about 3 weeks ago. I use to drink and take L-Glutamine supplements like milk. It was part of the many supplements that I use to take during my bodybuilding years. (There are many L-Glutamine containers still left in one of my rooms together with other kind of supplements). It would take some of you many many years of use to equal the amount I’ve taken in 7-8 years because I took most of my supplements overdose (not a healthy thing to do I admit).

But if it does heal you “ItchyLife” then I’m happy for you; I do hope though that those of you who have already tried it by now and worked do find some relief. Please share with us coz who knows others may also heal from it.

If this is really true, it does point out a new understanding for us. It means we have different illness or maybe PATM but comes in different varieties, categories etc. or if the organism responsible has mutated and so forth.
That’s what the survey is supposed to covey to us in one go… all that information should be revealed at once instead of us weeding out one piece of information per month or even a year.

There are many people who have claimed all kind of stuff that might heal. Maybe it’s true. As a matter of fact, there are literally billions of possible existing chemical compounds; any one of them could be the cure. If we are going to walk blindly (trial and error), the chance of finding a cure is like trying to find a needle not in a haystack but in the Ocean.

Someone will end up being poisoned before anything useful comes up. I’ve had this for about 18 yrs, some for 30 yrs etc. I don’t think you can come up with anything that I haven’t tried…,, the only think I haven’t tried yet is drinking a solution made of purified Plutonium or Uranium…lol. What I really mean is I’ll kill myself or ruin my liver/kidneys if I try every suggestion in this forum. I believe we shouldn’t walk blindly and use our body as a Lab. We need to narrow it down as much as we can.

Anyway, “ItchyLife” thank you for the sharing. You have a nice day… I have to do my Labs for tomorrow.

grateful2011

Apr 26, 2012

To: use231t, itchylife, everyone

good morning

use231t - when u were taking L-glutamine were u also eating lots of green veggies and fruits, probiotics, no sugar, no dairy, no gluten etc. ?????

most of us believe that it is a COMBINATION of all of the above that is causing us to be PATM free - no reactions, couging, sneezing, wiping nose from others around us

Itchylife : I so agree with your statement in todays post : not to have self pity, dont worry about what the doctors do or dont do and get busy and take action ourselves - it is our body !!!!

God Bless everyone

use231t

Apr 26, 2012

To: grateful2011

Yes “grateful2011”, to be exact bodybuilders go into a 3-6 months rigid diet before a competition; it’s a routine that every bodybuilder must follow. 4 to 6 meals a day. Absolutely no sugar, no fat, no salt (salt retains water underneath the skin)… you can’t have sugar in your tea/coffee. The meal will usually be steamed vegetables, and boiled chicken breast… certain fruits is used as snacks. No eating at night etc. Of course I have to take all my supplements as well. This diet is almost the same for all bodybuilders.

The difference is, most professional bodybuilders nowadays add extras i.e. variety of drugs & steroids etc.

But I only eat yogurts when the competition is over because of its fatty content. Do you think that would make a big difference? If you think so, then maybe you have a point. Take care.

ItchyLife

Apr 26, 2012

To: use231t, everyone

I feel sorry for you having this 18 years, I understand that you want to know what is wrong, I understand completely.

But I believe you when you say that you that the Glutamine wasn't reacting on you. I also think that only L-Glutamine isn't the solution for us. I do like to think that sometimes with products I use, and I'm sorry for that. But all the products that I have been advising are good for healing the gut/restoring the gut balance.

I think it's more complex than just one thing, I think this is a whole process. Our digestive system is by far the most complex in our body.

For know I think that there are more health issues for us than just the leaky gut. But I do think that the leaky gut is the culprit for the candida overgrowth and everything else.

I can feel my stomach heal when I drink L-glutamine, Glucosamine and take a pill of zinc. (It's like a numb feeling on the side off my stomach. And I remember this feeling from 2 years ago.)

I can feel the good bacteria fight against the bad bacteria in my stomach and body when I take Probiotics.

Healing a gut is not easy, it takes time, the gut off a healthy person is really strong, why do you think people can handel so much rubbish.

But see the good points off this: this have made us all strong persons, I mean I haven't ever felt such a strong feeling in my life.

Another strong thing is we have a lot off knowledge on health and food. We should get more knowledge on food and health.. And we should help each other with this.. If we can eat nice food and live healthy wat does

For instance, I can't think off a breakfast that gives me no reactions and is healthy at the same time? Does anyone know a breakfast that is good for us, leaky gut sufferers?

X

Adomas

Apr 26, 2012

To: Everyone

Hey all,
Just wondering whats your blood type?
Mine is AB+, same as my dad's. And i have a feeling he has this PATM thing, too ( i rarely see him btw )

ItchyLife

Apr 27, 2012

To: everyone

Hey all!

I was thinking about something and that is since we have an leaky gut we can't absorb some vitamins good.

Something I found in the internet:

"When the small intestine suffers impaired permeability, it both absorbs what it should not and does not absorb what it should. Vitamin B-12 and the fat soluble vitamins (A, D, E and K) pass through the leaky gut with great difficulty, often leaving the individual deficient in these vital nutrients."

I think it is really important for us to also take these vitamins to get our health back. Together off corse with the Probiotica (and Glutamine if you can afford it)

X

grateful2011

Apr 27, 2012

To: use231t

God is with you, stay strong - use231t

so what are u doing now, that is helping to reduce the PATM reactions around you ??

ray2502

Apr 27, 2012

To: Everyone

I have been on a strict diet and taking all the suggested supplements for the months with the same results. I can say that I do have more energy and are able to think and retain things better.

My blood type is O-, but I don't think that has anything to do with what we have. I have eight brothers and sisters and their all allergic to me. I also have three kids and they seem to tolerate me much better than everybody else. My wife has developed some type of respiratory infection and doctors can't seem to find out what is wrong with her.

We talked to a doctor and he said that I'm probably the cause but that he cannot treat certain symtoms (symptoms) that have not been diagnosed, reviewed and approved by professional medical board. I believe alote what everybody is saying but all I can do is keep trying.

Has anybody ever had a colonoscopy to check for parasites of some sort. I've been told that it checks all of the large intestine for polyps and other abnormalities....Thanks for your responses.

use231t

Apr 27, 2012

To: ray2502

“ItchyLife” and “Grateful2011”, thanks for the encouragement. I know, we are all desperate to know what it is.

Honestly “Grateful2011”, I don’t know how people can tell when their PATM is reduced, because, it’s almost like walking into the street and trying to predict who has kidney decease or stroke by looking at their faces..lol. I honestly can’t really tell. I mean I could be in my best shape but if I’m in the middle of some old people, they’d probably cough their throat off coz their immunity is low.
If I’m running a marathon but am on my worse day, I probably won’t be able to tell coz everyone else competing is super fit and will probably tolerate me initially. I try to eat healthy just for the purpose of being healthy.

I can only tell whether I have it or not, and right now I still have it just like it was back 18 yrs ago.
This illness is sure a hell of a problem.

I think “theproblemsolver” is busy preparing for exams but when he returns, I would like 2 things to know from the survey. First of all, how many of you have a family member, cousin with PATM. You might have to actually ask them coz they can keep silent for fear of being exposed. Second, what age you got PATM.

These two things alone themselves can give us a lot of information. E.g. If over 85% of us have a family member with PATM, it’s an indication of a mostly inherited homozygous recessive genes. A geneticist will have to get involved from then on.
If over 85% of us had it around 14-25 yrs old, it could be a disease linked to hormones released at puberty.

If 98% are males or female, then it’s probably a sex linked gene problem.
If over 50% of us observe family members getting PATM one by one, it’s an indication of a decease spread by an organism.

Anywayz, have to get to bed coz I haven’t slept since my last post. Good luck everyone!

LondonBlob

Apr 28, 2012

To: all

patm is not contagious in my observation, transmission would be very low even with body fluid exchange. Does that mean it is not an organism, no. Many conditions like malaria, aids, hepatitis, herpes, crones disease and host of other micro organism conditions do not transmit simply by being near the person or shaking their hand so why would patm be any different?

Rather it is an internal condition based on a compromised immune system and an excess of toxins like ethanol, Candida is responsible for flooding the system with an accumulation of toxic acetylaldehydes. Acetylaldehydes are known to poison tissues. These acetylaldehydes can't be expelled by the body and so accumulate in the body, thats why you can clean and shower as much as you like but the toxic poison is still in the body and seeps through the skin. This is why epsom salt or magnesium cloride baths help because they draw the toxins out of the body.

so an approach would be to detox the skin with epsom salt baths, sauna.
clean the blood with Beck's zapper/ hulda clarke zapper. h2o2 or other oxidising method which oxidises the toxins

go after the source which is in the gut, (candida) this is the 'factory' where it all begins, the candida eats the food we eat then defecates the toxins into our body. If we have leaky gut this goes straight to the blood stream and as a result our tissue, skin whatever gets filed with toxins the body can't remove.

heal the leaky gut.

grateful2011

Apr 28, 2012

To: ray2502,use231t,itchylife, everyone

Please read today's post by LONDONBLOB - excellent and right on !!!!!

thanks londonblob this should help a lot of people

God bless you ray2502 - hang in there, you can do this !!!!!

grateful2011

Apr 28, 2012

To: ray 2502, everyone

and to heal the leaky gut - read ITCHYLIFE's posts regarding L-glutamine, probiotics, green veggies and fruit, water, exercise and sleep (all should be done daily )

all to lead to a healthier and reduced and/or NO PATM lifestyle

ItchyLife

Apr 28, 2012

To: everyone

Hey all!

I wanted to share something and know what you guys think or know about this?

I was yesterday looking in what kind off vitamins you are deficient when you have a 'leaky gut'.

And I saw that B12, A, E, K, D are less in people with leaky gut.

So I began with experimenting:

-So I took a normal dose off B12.
-A normal dose off E and A.
-But I took way too much cod liver oil (which is rich in vit. D).

And after that I was eating, and my skin turned REALY RED and I got it also REALLY HOT. But after like an 1 hour the skin turned normal again. It was like the blood came to my skin.

So I searched what this was called and it is called a "Hot flash", so I googled Hot flash and vitamine D. And I saw that a lot of women in the menopause have Hotflashes, and they need more vit D. They have hotflashes because there body's make less progesteron.

So maybe we have too much progesteron in our body..

So I am googling again about too much progesteron and candida. And find that their is a big link between them. some information:

" The Candida bacterium is found in your intestinal tract. Too much progesterone can cause the white blood cells that inhibit the growth of Candida, which can cause your stomach to bloat and an increase in intestinal gases to occur. You can also contract a yeast infection because of the decreased amount of anti-Candida white blood cells. "

Wow.. This sounds really interesting guys.. Because we have too much progesteron, because off stress or candida:

We have an decreased amount off anti-candida white blood cells. This is really interesting..

Vit d deficiency is a quite come on thing under candida victims..

I'M REALLY INTERESTED IN WHAT YOU GUYS THINK ABOUT THIS!!??

X

JennyJennifer123

Apr 28, 2012

To: smelly83

Did you all hear about a drug called ATALUREN which is said to cure TMAU?

I am trying to order the drug but its expensive $$75 a pill .. And it comes from a website called " SelleckChem.com " ..... it says it should only be used for research purposes and not on humans but its already been tested on humans and it works.

ATALUREN makes you smell free while eating whatever you want (if you have tmau). Everyone please spread the news!

use231t

Apr 28, 2012

To: JennyJennifer123

“Jennifer123” – Interesting post. I’ve been reading your post, didn’t have time to verify a lot of things you mentioned but anyways… because L-Glutamine, an (Amino-Acid) AA, and Ataluren, a drug that interferes with Stop Codons and eventually allows the transcription of certain genes to protein to take place, it might explain an enzyme or some other protein deficiency; looks like they have something in common. Substantially, maybe you and “ItchyLife” have something in common too, “TMAU” or a variant. It’s also a possibility that “PATM” is a variation of “TMAU”.

Well those of you who have that disease; there goes your possible cure. Fascinating! Please, put those findings in the survey.

https://docs.google.com/spreadsheet/viewform?formkey=dGdTaXJoTmtJeENYMzB6ZVZhMVhPYXc6MQ

I would like to sit down sometime after the exam and hopefully use statistical packages to start crunching those data; that is if “theproblemsolver” will still be so kind and allow us to access the database of information that we’ve been collecting.

Thanks everyone, I find reading everyone’s post quite intriguing. I’m learning bit by bit from everyone’s comments.

LondonBlob

Apr 28, 2012

To: all

I was tested negative for TMAU last year June

theproblemsolver

Apr 28, 2012

To: Everyone

Been very busy, so I apologize for my absence.

I would like to better organize the data to make it more "readable" at a later date, but I know you guys are anxious to see the results so here is the link:

https://docs.google.com/spreadsheet/pub?key=0Ais3Hro38bJmdGdTaXJoTmtJeENYMzB6ZVZhMVhPYXc&single=true&gid=2&output=html

We really need a lot more people to take the survey. Perhaps we should do some "recruiting". Would anyone like to help with this? There might be other forums somewhere. If you search "people are allergic to me", you can probably find a forum or message board that allows you to message that person. I'm sure a small percentage will reply or still be checking emails associated with that account but it's better than nothing.

use231t

Apr 29, 2012

“theproblemsolver” thanks for the hard work. I know you are very busy and sorry for hassling you. No worries, since most users only visit once a month or more, we’ll have to wait for them. I’ve started inviting other forums to contribute; however, I’ll prepare for next week’s exam. Once done, I’ll come back and continue searching for other forums. Please everyone if you can, invite others when possible.

I took a quick peek at the data that we’ve collected so far and even though the number of users isn’t significant enough to predict a lot, I was however stunned by the age group and geographical/ethnic distribution.

It seems to span all ages & nationality. If this was a genetic disorder, it should focus at a particular age and ethnic group. Good lord, if the data is right, it means we can be happy that we won’t pass it on to the next generation. That’s something I’m scared of which is why I refuse to have a kids. Good news for marriage couples I guess. Hormones could easily be eliminated as well on the same ground. The only two that can’t be excluded right now is; it’s either an organism or mutation.

I know that most of us are more inclined to the idea of an organism.

We’ll have to wait and observe with more records coz it might change statistically… let the data speak by itself.

theproblemsolver

Apr 30, 2012

To: use231t

Thank you. I appreciate your input.

I also like that this forum is starting to get more analytical as well as critical. I have so much to add, but not the time to say it. Soon I should be able to communicate more often.

I really anxious to hear the results of smellyoulater's breath test. I want to get this done as well. We should really all try to get the breath test done - it the most informative of all testing. I am 95% certain that this is, at least, exhaled through my breath. It may also be from other areas as well, such as one's hair, but definitely my breath.

theproblemsolver

Apr 30, 2012

To: use231t

Also, many many thanks for your contribution in recruiting!

I would like to make more surveys that get more and more specific. Soon I will asking for the results of tests (which is significantly more helpful because of its objectivity whereas this first time is almost entirely subjective) and we can put all the data together.

I would also like to make one related to current medications, and past medications. Rating the efficacy of each. (Unfortunately, this is subjective again, but should help a little.) Also, if we ALL try something and none of us notice any improvement over a long enough period of time, we can pretty much write it off.

Again, though it is more expensive short term, I think actual testing is clearly the better choice because of its objectivity. This may also save money in the long run.

use231t

Apr 30, 2012